Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 HI Betsy, My name is Sacora and I have 3 boys,( 17,Christoper 16, and Nicolas 13). I do live in Central Oregon. My youngest and I have been experiencing this for years. We have been to many many doctors and actually since we have seen a few doctors in Portland now they have been researching PFS and alot unknown diseases. WHo is the rheumatologist your seeing? The one my son see's is at Emanuel Hospital and he is so wonderful, and now he is seeing patients and doing more investigations on the kids referred to him. I was told the same thing about prednisone, it helps my son more then anything we have ever tried but still he is fevering every 3 to 6 weeks and getting more and more severe and longer. I would love to talk to you and share info. I feel for your daughter, I see my son go through this on top of myself as well. Take care Sacora Nicolas 13 --- <tbeejsmith@...> wrote: > Greetings from Oregon! > > My name is Betsy and I have three girls (Elise 4 > 1/5, Evie 3, & June 9 mos.). My middle daughter, > Evie, has been having fevers for over a year. We > will be seeing a rheumatologist on Weds. to try and > get more info. because her symptoms have been > changing (complaints of headaches, joint pain, > stomach pain when not in her fever cycle). > > Two questions: > > 1) Is anyone else going through this in Oregon? It > would be great to share local resources, if so! > > 2) Has anyone heard of side effects to Prednisone? > I've been told that such small doses will not effect > them long term, but with her recent change in > symptoms, I wonder if there is a build up in her > system. > > Thanks so much for everyone's responses and info. > It's wonderful to see people sharing their > experiences to help others. > > We are in the middle of a fever cycle right now-- > > Betsy in Creswell, OR > Elise (4 1/2) > Evie (3 yrs.) > June (9 mos) > > > --------------------------------- > TV dinner still cooling? > Check out " Tonight's Picks " on TV. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Sucker-punch spam with award-winning protection. Try the free Beta. http://advision.webevents./mailbeta/features_spam.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 I have a friend with an AS son in Orgeon and should would like to get respite care. Anyone know what agency you could approach? Willa Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.