Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 I just had a thought… when we DO go get the ADOS test for the boys, I am thinking I want my eldest to be OFF meds for the test. Has anyone had experience with this?? Because he is taking Concerta (36mg), which was originally prescribed for “ADHDâ€, but I want him off the meds completely for the test. I want an accurate picture of his strengths and needs. If you have experience with this, let me know. I also know NOTHING literally about taking a child off a stimulant, and if there’s a “withdrawl†period, or if there’s an adjustment time frame, etc. I’d love to know your thoughts on this. OR if any of you had your children on medication for a previous diagnosis, and what YOU did, moving into getting an ACCURATE diagnosis (AS). Thanks in advance !! =) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 The A.S. diagnosis is NOT EASY TO GET; took us 12 years to hear itfor the first time for our now 15 1/2 year old son.......I was told byprofessionals to keep telling his symptoms to every single professionalthat worked with him until someone, someday, told us what that was,and at 12, someone finally did. After that, the services and everythingelse fell in to place.We took our son the University of Iowa Hospitals and Clinics for a completeassessment (educational and psychological evaluation in 4th grade---stillnever got an A.S. diagnosis----never heard of it nor thought of my sonas autistic at that point)..........and we took him off all meds; THEY WERENOT PLEASED ABOUT IT but my hubby and I were sick and TIRED of hearing how normal and wonderful he was, and how can they do it when he is medicated.As for the medication you refer to, go to any NEW BOOKS book store and look inthe nursing medication referral book on meds for say 2009 maybe a 2010 is even outdon't know the EXACT NAME OF THE BOOK, so that is NOT it, but we do that, look upthe med, and look up how to properly take him off. I can tell you that the stimulantsincluding the one you referenced to, are NOT SUPPOSED TO BE BUILT UP IN THE SYSTEM!HOWEVER, that can be a negative affect of the medication in some.....also, we are supposedto be able to take it one day, not the next. But, I WOULD STRONGLY ENCOURAGE YOUTO LOOK IT UP, or simply do that here on line, you should be able to look it up through the medicationsheets; read them ALL and make sure. If you take someone (including kids) off meds thatare meant to be tapered, you can send them in to a psychcotic or other episodes, so this isvery important, so you do not end up at the hospital; or, simply just call the psychiatrist and askor a local pharmacy....they would all be best to be consulted but do not do it 'blind' for sure!!!We have done it ourselves before, but always fully researched and knowledgeable first. We've had medicationcomplications / interactions, we knew what to do, but called the psychiatrist to get HIS permission, andverified that WAS in fact the correct way to take him off the medication because otherwise, we as parentscan be considered 'abusive' or bring that type of garbage in to our lives, too, as we are NOT doctors!!! So,keep that in mind, and good luck!Ruthie Dolezal From: nicole.obrien@...Date: Tue, 26 May 2009 11:47:06 -0230Subject: ( ) Testing and medication... I just had a thought… when we DO go get the ADOS test for the boys, I am thinking I want my eldest to be OFF meds for the test. Has anyone had experience with this?? Because he is taking Concerta (36mg), which was originally prescribed for “ADHD”, but I want him off the meds completely for the test. I want an accurate picture of his strengths and needs. If you have experience with this, let me know. I also know NOTHING literally about taking a child off a stimulant, and if there’s a “withdrawl” period, or if there’s an adjustment time frame, etc. I’d love to know your thoughts on this. OR if any of you had your children on medication for a previous diagnosis, and what YOU did, moving into getting an ACCURATE diagnosis (AS). Thanks in advance !! =) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 We didn't get the diagnosis until 2 years ago & he is 16 years old. That was the one positive thing that happened during his last hospitalization.Sent from my iPhoneBlessings, DonnaOn May 26, 2009, at 9:31 AM, BRYAN DOLEZAL <DOLEZAL123@...> wrote: The A.S. diagnosis is NOT EASY TO GET; took us 12 years to hear itfor the first time for our now 15 1/2 year old son.......I was told byprofessionals to keep telling his symptoms to every single professionalthat worked with him until someone, someday, told us what that was,and at 12, someone finally did. After that, the services and everythingelse fell in to place.We took our son the University of Iowa Hospitals and Clinics for a completeassessment (educational and psychological evaluation in 4th grade---stillnever got an A.S. diagnosis----never heard of it nor thought of my sonas autistic at that point)..........and we took him off all meds; THEY WERENOT PLEASED ABOUT IT but my hubby and I were sick and TIRED of hearing how normal and wonderful he was, and how can they do it when he is medicated.As for the medication you refer to, go to any NEW BOOKS book store and look inthe nursing medication referral book on meds for say 2009 maybe a 2010 is even outdon't know the EXACT NAME OF THE BOOK, so that is NOT it, but we do that, look upthe med, and look up how to properly take him off. I can tell you that the stimulantsincluding the one you referenced to, are NOT SUPPOSED TO BE BUILT UP IN THE SYSTEM!HOWEVER, that can be a negative affect of the medication in some.....also, we are supposedto be able to take it one day, not the next. But, I WOULD STRONGLY ENCOURAGE YOUTO LOOK IT UP, or simply do that here on line, you should be able to look it up through the medicationsheets; read them ALL and make sure. If you take someone (including kids) off meds thatare meant to be tapered, you can send them in to a psychcotic or other episodes, so this isvery important, so you do not end up at the hospital; or, simply just call the psychiatrist and askor a local pharmacy....they would all be best to be consulted but do not do it 'blind' for sure!!!We have done it ourselves before, but always fully researched and knowledgeable first. We've had medicationcomplications / interactions, we knew what to do, but called the psychiatrist to get HIS permission, andverified that WAS in fact the correct way to take him off the medication because otherwise, we as parentscan be considered 'abusive' or bring that type of garbage in to our lives, too, as we are NOT doctors!!! So,keep that in mind, and good luck!Ruthie Dolezal From: nicole.obrieneastlink (DOT) caDate: Tue, 26 May 2009 11:47:06 -0230Subject: ( ) Testing and medication... I just had a thought… when we DO go get the ADOS test for the boys, I am thinking I want my eldest to be OFF meds for the test. Has anyone had experience with this?? Because he is taking Concerta (36mg), which was originally prescribed for “ADHDâ€, but I want him off the meds completely for the test. I want an accurate picture of his strengths and needs. If you have experience with this, let me know. I also know NOTHING literally about taking a child off a stimulant, and if there’s a “withdrawl†period, or if there’s an adjustment time frame, etc. I’d love to know your thoughts on this. OR if any of you had your children on medication for a previous diagnosis, and what YOU did, moving into getting an ACCURATE diagnosis (AS). Thanks in advance !! =) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.