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Hi Dawn, welcome to the group. If you're going to work today I hope

that means your ES is not too debilitating, as it can be for some.

Please fill us in on symptoms when you have a chance - I think you'll

find that are lots of very knowledgeable and generous people on this

list. My husband is severely ES, but I feel that we are finally on

track to recovery, thanks largely to the advice of people in this

group. We have a very long way to go still, but I am now very

confident that 1) we are not crazy (ES is real) and 2) significant

recovery is possible.

Cara

>

>

> Hi,

>

> I'm relieved to find this group, which hopefully confirms that I

am

> not crazy!?

> I don't have time right now to go into details because I need to

get

> ready for work, but I've been having symptoms for several years now

> that could be caused by electromagnetic exposure. The worst being

hives

> & SVT. I wish I could go into it now, but I'll try to fill you in

when

> I can. Thanks for being here.

>

>

> Dawn

>

> South Central PA

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  • 3 years later...
Guest guest

Hello Miela, I am glad to see you recognize your limitations with being too

close to the

forrest to see all those trees. <G>

Motivation and self starting is certainly difficult for most Aspies from what I

have noticed.

My son is 14 and when it is something that interest HIM, there is not problem in

his self

starting. So, interest is a good motivator. If you can pique his interest in

what ever

subject it is a good start. Having said that, Aspies find most of school BORING

because

few teachers know how to teach in a visual, hands on manner and that is what

most of

these kids prefer to keep them interested.

I have beat my head against the wall, fought the district here in WA state and

have decided

that most schools don't want to change teaching styles no matter what ADA, NCLB

or IDEA

says in the federal laws about giving each child an equal education. However,

they will

have to change sooner or later if the number are accurate and 1 in 150 kids have

some

form of autism. Its a shame ours at the beginning of this change.

Two things to do: Educate the school district about Asperger's Synndrome and

Autistic

Spectrum Disorders. And enlist the help of a professional: A clinical

psychologist or

psychiatrist who has hands on advanced training with functionally autistic kids

to inform

the district what the needs of these kids are and then threated a law suit if

they implement

the doctor's orders as put down in the law.

May I suggest you read as much as you can from OASIS and its connected links

about

Asperger's, then go to the ED.gov and review the education laws for public

schools when

it comes to kids with disabilities? Knowing the law and what is needed to help

these kids

succeed is your main ammo. when districts tell you they " don't have enough

funding to do

specialized programs for a few kids " . You come back with " That's the law..I pay

taxes

....you get extra money for my child...do it or I will see you in court. "

That is the reality of the situation for most of us when it comes to our child

getting the

same education as the NT kids. Most of the time, from what I have heard and

read from

other parents, is that unless pushed these kids will be put in to resource rooms

and just

pushed through with subsitute subjects to graduate high school, but not the

proper

credits to get into a 4 year college.

Dee ><)))*>

>

> Hi-just by way of introduction-I have a 13 yo stepson just diagnosed with AS

and

having lots of trouble with school and negativity, depression.  I'm doing all

that I can

doctorwise for him, I am a pediatric naturopath, but find that 1. I'm way to

close to him to

be effective and so he sees someone else for that stuff.  But

parentwise-sometimes I'm

good and other times I'm just at a loss.  The stuff that is hardest for me to

figure out how

to help with is self-starting, and the negativity.  Not sure how to break

through with that. 

He's had a tough time with school this year, this is really the first year

that he's gotten

really bad grades, because of being constantly confused about what he is

supposed to be

doing.  We are spending hours actly is due when, and how to do it.  Once he

knows what

he should do, he does it, but it really takes a lot to get him there. Teachers

think that

because he can do the actual work, he is perfectly capable,

> and don't get the rest.  Anyway-that's us in a nutshell-at least this week!

>  Forest Family  Medicine

> 10 Crossroads Plaza

> West Hartford, Ct 06117

> 860-570-9825

>

>

>

________________________________________________________________________________\

____

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

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Hi, I have found that to be true with my son at times -- the self-

starting. I think sometimes that goes along with decision-making

too.

With your son, is this affecting school assignments with just daily

homework? Or more in the area of having to write/discuss some topic,

choose topic, writing a summary/report.... My son always has the

most trouble with that opening paragraph, seems to me. I would tell

him to just skip it or write a " draft " and go on to the next, he

could go back and " touch up " the first paragraph later...but it's

like he wants it perfect from the first.

Also when they have too many instructions, that can be where it needs

to be broken down more into " steps " or maybe written down for them

(vs just hearing the verbal).

And sometimes it seems, with my son, that the simple things are hard;

and what I would call " complex " seems easy for him (yes, he's smarter

than I am, LOL).

So sorry he is feeling depressed and negative about it all!

>

> Hi-just by way of introduction-I have a 13 yo stepson just

diagnosed with AS and having lots of trouble with school and

negativity, depression.  I'm doing all that I can doctorwise for

him, I am a pediatric naturopath, but find that 1. I'm way to close

to him to be effective and so he sees someone else for that stuff. 

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This is what I found with my son, as well.  Also,  if he was note taking he wouldget behind due to his views that the print had to be perfect.  I also pulled mineout of school and now do a parent partnership with an alternative school.  That may not pan out well, either, because I have to start all over again with the ASeducation process despite it being the same district.  But, on the plus side....within a year I have brought my son up from being taught4th grade crap in the resource room to doing 9th grade algebra at home using theKey to Algebra series booklets. (He is in the 8th grade.)Miela, Aspie's get overwhelmed even with the appearance of too much work placed in from of them.  This is perfect.  Ten booklets per section of 35 -39 pages each.  ; )   Dee ><)))*>My SON cannot take notes and listen at the same time; he can do ONE THING AT A TIME, literally. If the teacher wants him to listen, he will; write, he will; he cannot do both and NOT be either overwhelmed or writing and not hearing a word you said. Well, SCHOOL could CARE A LESS about this.Ruthie Dolezal

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  • 2 weeks later...
Guest guest

Dr. Miela,

Sorry for the late welcome but Welcome to our group! Feel free to join in the conversation whenever you like! Self starting and negativity are big problems here with my 11 yo ds (hfa, gifted, hyperlexia). Share any ideas you have!

RoxannaAutism Happens

( ) new member-intro

Hi-just by way of introduction-I have a 13 yo stepson just diagnosed with AS and having lots of trouble with school and negativity, depression. I'm doing all that I can doctorwise for him, I am a pediatric naturopath, but find that 1. I'm way to close to him to be effective and so he sees someone else for that stuff. But parentwise-sometimes I'm good and other times I'm just at a loss. The stuff that is hardest for me to figure out how to help with is self-starting, and the negativity. Not sure how to break through with that. He's had a tough time with school this year, this is really the first year that he's gotten really bad grades, because of being constantly confused about what he is supposed to be doing. We are spending hours actly is due when, and how to do it. Once he knows what he should do, he does it, but it really takes a lot to get him there. Teachers think that because he can do the actual work, he is perfectly capable, and don't get the rest. Anyway-that's us in a nutshell-at least this week!

Forest Family Medicine10 Crossroads PlazaWest Hartford, Ct 06117860-570-9825

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

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