Re: question about physical limitations

[Guest guest]

Our daughter was diagnosed (prior to AS) with hypertonia (age 3)

which means muscle weakness. She also was much weaker on the left side (OT

diagnosis) and benefited from Bi-lateral coordination

type exercises in OT. She still tires very easily. My quess is that

muscle tone is not as good (for us anyway). My dauhgter's visual

perception is not good either. At age 6 the OT sent us to a

developmental opitican and they did these tests with eye tracking and her

perception of a ball coming at her. I know some people have

had vision therapy with there kids and it may work. We must be the most informed

family on our daughter but it hasn't helped us because our daughter refuses to

participate in therapies.

Bi-lateral OT type exercises my daughter liked and they did strenghten her. If

your daughter is classified under IEP

you can get OT. OT's in school would probably not do much for

vision perception issues is just my guess.

My daughter would sit in front of a TV all summer if I let her.

I usually have one day out and about and let her have one day

to rest. I wish she could sustain more.

We were trying the medication trial to see if she is so fatigued

from the anxiety of heightened sensory sensitivities but as I

mentioned before she is not cooperating with this either.

If I was more confident we got the medication right I would

be heavy handed for her own good. But for us chances are

we will need to trial a few meds and doses before we

get it right. She is such a sensitive kido.

Pam

>

> my 12 yo daughter, diagnosed with asd,ocd and capd, has issues with physical

activity. she tires easily from little exertion and if she gets hit even in a

small way, she acts like her leg (or arm or whatever body part) has been cut

off. she has tried some sports soccer when very young but the running was too

taxing, softball too boring and volleyball, well the ball is too scarry coming

at her--she will put her arms infront of her face or run away from the ball.

>

> i understand there are sensory issues when she gets hit but whather to become

so tired so easily. i think this maybe common in aspies but cannot make the

connection between effect and the cause. my husband is the same way

(undiagnosed aspie).

>

> thanx for any ideas

> melody k.

> fresno, california

>

[Guest guest]

pam:

the more i hear your daughter's story, the more similarities i see with my

daughter. for instance last year, when megan was 11, should would have refused

meds. in part due to the literal meaning of " just say no to drugs " campaign at

school and in part because she was afraid that it would take away all her

anxiety and then she would become " bad " . for her this meant her fear of

everything would be gone so she would no longer be concerned about school work

or authority figures or germs, etc. this year, she opened up to the idea. the

psychologist questioned her feelings about it, by now she came to understood

that drugs can do good things too, so it was the fear of loosing all her anxiety

reason. he asked her " what if we reduce your anxiety by only 50%, how would

that be " ? she said that would be okay.

regards, melody

> >

> > my 12 yo daughter, diagnosed with asd,ocd and capd, has issues with physical

activity. she tires easily from little exertion and if she gets hit even in a

small way, she acts like her leg (or arm or whatever body part) has been cut

off. she has tried some sports soccer when very young but the running was too

taxing, softball too boring and volleyball, well the ball is too scarry coming

at her--she will put her arms infront of her face or run away from the ball.

> >

> > i understand there are sensory issues when she gets hit but whather to

become so tired so easily. i think this maybe common in aspies but cannot make

the connection between effect and the cause. my husband is the same way

(undiagnosed aspie).

> >

> > thanx for any ideas

> > melody k.

> > fresno, california

> >

>

[Guest guest]

>

> my 12 yo daughter, diagnosed with asd,ocd and capd, has issues with physical

activity. she tires easily from little exertion and if she gets hit even in a

small way, she acts like her leg (or arm or whatever body part) has been cut

off.

My AS son also has a developmental coordination disorder dx (DCD). He has

several years delay in manual dexterity, bilateral coordination (top and bottom)

and left-right coordination. One of the symptoms of DCD is a tendency to tire

easily. He tires very easily and is not very physically active. He just

learned to tie his shoes in jr high and has never learned to ride a bike. Aside

from tiring easily, he had difficulty playing team sports when he was young

because he could not work with the ball and coordinate with teammates

simultaneously. This is a common dual dx with Asperger, so it may be your

daughter's problem. Unfortunately, not much is understood about it, and there

isn't really much in the way of treatment. They tell us to try to keep our son

as active as we can to avoid secondary problems developing from lack of

physically activity or lack of development of normal activities. He has

progressed to the point where he enjoys PE and has never had to have adaptive

PE. He swam on a competitive swim team for a couple of years in elementary. He

has learned accommodations like letting the members of his science labs do most

of the physical work while he focuses on learning. I've never had to put that

in any of his plans because he figured it out himself and nobody has fussed

about it.

Ruth

[Guest guest]

My son, too, has DCD. It is important to keep these kiddos active because they

will tend to gravitate to less physical activities such as video games (although

a little game play is not a bad thing either because it adds to fine motor skill

dexterity!)

Anyway, it will be important to stress to physical education teachers the

importance of encouraging ALL levels of participation and to make accomodations

when necessary. For instance, a child may have great difficulty with team

sports, but do well with individual activities, such as swimming. Focus on the

positive and encourage these skills... just as we do for other areas of

education.

> >

> > my 12 yo daughter, diagnosed with asd,ocd and capd, has issues with physical

activity. she tires easily from little exertion and if she gets hit even in a

small way, she acts like her leg (or arm or whatever body part) has been cut

off.

>

> My AS son also has a developmental coordination disorder dx (DCD). He has

several years delay in manual dexterity, bilateral coordination (top and bottom)

and left-right coordination. One of the symptoms of DCD is a tendency to tire

easily. He tires very easily and is not very physically active. He just

learned to tie his shoes in jr high and has never learned to ride a bike. Aside

from tiring easily, he had difficulty playing team sports when he was young

because he could not work with the ball and coordinate with teammates

simultaneously. This is a common dual dx with Asperger, so it may be your

daughter's problem. Unfortunately, not much is understood about it, and there

isn't really much in the way of treatment. They tell us to try to keep our son

as active as we can to avoid secondary problems developing from lack of

physically activity or lack of development of normal activities. He has

progressed to the point where he enjoys PE and has never had to have adaptive

PE. He swam on a competitive swim team for a couple of years in elementary. He

has learned accommodations like letting the members of his science labs do most

of the physical work while he focuses on learning. I've never had to put that

in any of his plans because he figured it out himself and nobody has fussed

about it.

>

> Ruth

>

[Guest guest]

, thanks. Your idea is good, my daughter likes things

concrete. I may be making too many changes at once too.

She is out of school (due to anxiety) and adjusting this.

Then I am gone at least one morning a week looking at

alternate schools. Perhaps she will cooperate more when

life is more settled on the school.

What do you think?

Pam

to this big anageI ahn

> > >

> > > my 12 yo daughter, diagnosed with asd,ocd and capd, has issues with

> physical activity. she tires easily from little exertion and if she gets hit

> even in a small way, she acts like her leg (or arm or whatever body part)

> has been cut off. she has tried some sports soccer when very young but the

> running was too taxing, softball too boring and volleyball, well the ball is

> too scarry coming at her--she will put her arms infront of her face or run

> away from the ball.

> > >

> > > i understand there are sensory issues when she gets hit but whather to

> become so tired so easily. i think this maybe common in aspies but cannot

> make the connection between effect and the cause. my husband is the same way

> (undiagnosed aspie).

> > >

> > > thanx for any ideas

> > > melody k.

> > > fresno, california

> > >

> >

>

[Guest guest]

Hey Melody. As far as I know, almost all AS people have a hard time with

physical areas. They are generally clumsier (which probably makes them a little

nervous even trying physical activities), and less interested in physical

activities. Unless their obsessions are with physical activities. My son,

has a really hard time with physical activity. He is clumsy, has a hard

time in team sports, and if he's outside will be looking for insects instead of

doing any physical activity he's supposed to be doing. He also has his father's

and mine genetics which is for being overweight and also has flat feet. All

these things make physical activity really frustrating for him. The one thing

he likes to do is ride his bike to school and back. He just learned last summer

(at the age of 10) to ride his bike. He can't really pedal when there is the

slightest incline, though, and will have to push his bike at these times. It is

good to get our kids to do physical things, but just remember that they will

never be good at it, and probably will never want to do it on their own. But

since you've discussed how they can be afraid of things that can hurt them, you

might really want to bring up that not exercising can bring diabetes and hurt

our hearts. That we need to some sort of exercise at least every other day.

This might be a way to educate about health risks and get our kids to understand

that they need to exercise.

ah

>

> my 12 yo daughter, diagnosed with asd,ocd and capd, has issues with physical

activity. she tires easily from little exertion and if she gets hit even in a

small way, she acts like her leg (or arm or whatever body part) has been cut

off. she has tried some sports soccer when very young but the running was too

taxing, softball too boring and volleyball, well the ball is too scarry coming

at her--she will put her arms infront of her face or run away from the ball.

>

> i understand there are sensory issues when she gets hit but whather to become

so tired so easily. i think this maybe common in aspies but cannot make the

connection between effect and the cause. my husband is the same way

(undiagnosed aspie).

>

> thanx for any ideas

> melody k.

> fresno, california

>

[Guest guest]

hi maryah:

thanx for your help.

when my daughter was outside for a team sport, she is looking for 4leaf clovers.

she could be playing outfield for softball but her eyes would be on the ground.

there isn't alot of physical activity she cares to do, because she tires so

easily. she goes to aikido twice a week. she likes to swim, but not

competetively, so i am looking at local swimming group options. she will walk

the dog with me sometimes. i have bought her a 48 inch personal trampoline

which she can do while she watches tv or just alone for fun. she also had a

pivot board, which looks like the top of a skateboard but it sits atop a

cylinder. the idea is to balance on the board on the cylinder and move the

board forward and backward. she uses this while she plays video games but has

gotten so good with her balance that she can stay completely still on it. i

guess i have to suggest she learn how to turn on it or something. i was also

thinking it might be fun and helpful for her to learn how to toss around a hacky

sack.

this summer she said she wants to lift weights so she will be strong enought to

carry a backpack in the fall. up until now, she has used a rolling backpack but

that won't be an option in the busy rushed hallways of middle school. i will

encourage her to go thru with " her idea " .

thanx, melody

> >

> > my 12 yo daughter, diagnosed with asd,ocd and capd, has issues with physical

activity. she tires easily from little exertion and if she gets hit even in a

small way, she acts like her leg (or arm or whatever body part) has been cut

off. she has tried some sports soccer when very young but the running was too

taxing, softball too boring and volleyball, well the ball is too scarry coming

at her--she will put her arms infront of her face or run away from the ball.

> >

> > i understand there are sensory issues when she gets hit but whather to

become so tired so easily. i think this maybe common in aspies but cannot make

the connection between effect and the cause. my husband is the same way

(undiagnosed aspie).

> >

> > thanx for any ideas

> > melody k.

> > fresno, california

> >

>