Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi All, This is Emmett - we have had several requests from parents in the area to start a social club for adults with asd. One parent suggested we use a cutting edge model out of Baltimore that combines social instruction groups with real life experiences and fun. After the New Year, I will send out information on this model to gain feedback to see if there is interest in moving forward with this model. E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 I wish I could supply you with names and numbers, but our situation is different (relatively non-verbal autism and we live in the northern suburbs) and I do not know what is available in your area for your son. I hope one of our members will have some ideas and respond. Be patient, because it is holiday time. If you get no responses, PLEASE post again after Jan. 1. Ellen Ellen Garber Bronfeldegskb@... Social life Hi,I have a question. I have a "highly functional developmentally delayed" son who is 23 years old. He lives on his own, has a driver's licience (does limited driving) and takes the train back and forth to his part time job. Sam tells me his life would be wonderful if he had someone to go out with. We have been involved with NEDSRA (which is a great park district) but he doesn't feel he can find someone his level. Any suggestions where Sam could go to meet people? Thanks for your help!Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi Ellen, Thanks so much! KayEllen Bronfeld <egskb@...> wrote: I wish I could supply you with names and numbers, but our situation is different (relatively non-verbal autism and we live in the northern suburbs) and I do not know what is available in your area for your son. I hope one of our members will have some ideas and respond. Be patient, because it is holiday time. If you get no responses, PLEASE post again after Jan. 1. Ellen Ellen Garber Bronfeldegskbsbcglobal (DOT) net Social life Hi,I have a question. I have a "highly functional developmentally delayed" son who is 23 years old. He lives on his own, has a driver's licience (does limited driving) and takes the train back and forth to his part time job. Sam tells me his life would be wonderful if he had someone to go out with. We have been involved with NEDSRA (which is a great park district) but he doesn't feel he can find someone his level. Any suggestions where Sam could go to meet people? Thanks for your help!Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Kay, I also have son, 22 years old who also would like to meet people. really wants a social life, friends and a girlfriend. works part-time at Home Depot, does not drive and lives with me. I also am interested in any suggestions for to meet people. We currently live in Clarendon Hills. Thank you On 12/29/06, kay4948 <kelmore@...> wrote: Hi, I have a question. I have a " highly functional developmentally delayed " son who is 23 years old. He lives on his own, has a driver's licience (does limited driving) and takes the train back and forth to his part time job. Sam tells me his life would be wonderful if he had someone to go out with. We have been involved with NEDSRA (which is a great park district) but he doesn't feel he can find someone his level. Any suggestions where Sam could go to meet people? Thanks for your help! Kay -- Tami Andress 427 Hudson AveClarendon Hills, IL 60514 630.850.7908 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 , that sounds like a fantastic idea. I cannot imagine there would not be an interest in such a group. There are social opportunities in my area through NSSRA and Glenkirk, but they are not "therapuetic" in the way you are describing. Thanks for the response. Ellen Ellen Garber Bronfeldegskb@... Re: Social life Hi All, This is Emmett - we have had several requests from parents in the area to start a social club for adults with asd. One parent suggested we use a cutting edge model out of Baltimore that combines social instruction groups with real life experiences and fun. After the New Year, I will send out information on this model to gain feedback to see if there is interest in moving forward with this model. E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 fHi - I look forward to your information as I tried for over a year to engage an SLP skilled in AAC to facilitate a social group for kids who rely on AAC for their communication. However, billing for group therapy was an issue that continued to block us from moving forward. That's how the west-suburban AAC lunch group began. Fortunately, very skilled SLPs review my " AACtivities " and structure, and provide input and guidance. They are also willing to volunteer a few times a year and join us for a specifically planned activity. Pam -- Strengthening the Family's Voice of AAC / Promoting communication for people with complex communication needs /group/PACT -------------- Original message ---------------------- From: emmettx4@... > Hi All, > > This is Emmett - we have had several requests from parents in the area > to start a social club for adults with asd. One parent suggested we use a > cutting edge model out of Baltimore that combines social instruction groups > with real life experiences and fun. After the New Year, I will send out > information on this model to gain feedback to see if there is interest in > moving > forward with this model. > > E Hi All, This is Emmett - we have had several requests from parents in the area to start a social club for adults with asd. One parent suggested we use a cutting edge model out of Baltimore that combines social instruction groups with real life experiences and fun. After the New Year, I will send out information on this model to gain feedback to see if there is interest in moving forward with this model. E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi Kay. There are other SRAs that may have some particpants like your son. There's SEASPAR (my area), Gateway, and WRSDA. Usually these organizations have Social Club programs which I think would be a great place for him to meet someone. They all host dances which he can also check out. > > Hi, > > I have a question. I have a " highly functional developmentally > delayed " son who is 23 years old. He lives on his own, has a driver's > licience (does limited driving) and takes the train back and forth to > his part time job. Sam tells me his life would be wonderful if he had > someone to go out with. We have been involved with NEDSRA (which is a > great park district) but he doesn't feel he can find someone his > level. Any suggestions where Sam could go to meet people? > > Thanks for your help! > > Kay > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 , Ups for Downs hosted a training from OSU, " Next Chapters Book Club " .. Very interesting concept many of us were interested in. The youbg people get together at local spots, barnes and NOble etc books are selected, and read by the individuals in the group. This is aimred at people with DD, so the model is written for a different reading level. It is social, community, and to the surprise of the people doing it, there has been an increase in reading level. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Kay: You say you have been involved w/NEDSRA in the past. Has he ever participated in Special Olympics? You can inquire at the NEDSRA office about him joining their program. Also, you can check w/the office staff for the Adult programs current listing. NWSRA has a weekly program called " Nighthawks " that is different activities on Fridays. My son, 20yo, has done some of those activities & has really had a great time! There are new programs starting just after the 1st of the year. Special Olympics is a great way for everyone to make wonderful friends! Families also end up getting involved with SO - coaching, administrative, whatever you want to! (We turn NO ONE away). They don't have to be athletes - there are lots of different " sports " to choose from. I'm new to the list & don't know the history of anyone, but just thought I would add what has worked for us. Happy New Year. , mother to Kenny (AS;ADHD;EBD) & (nt) 21yo & a student @ EIU, majoring in SpEd with an emphasis on autism! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Thanks to so many of our members who are contributing such great information and ideas. As co-moderator, and I am sure I speak for my two wonderful partners, we wish each and every one of the IPADDU members a year of laughter, productivity, good health and fulfilled dreams and hopes. Happy New Year. Ellen, Laurie and Marie Ellen Garber Bronfeldegskb@... Re: Social life Kay:You say you have been involved w/NEDSRA in the past. Has he ever participated in Special Olympics? You can inquire at the NEDSRA office about him joining their program. Also, you can check w/the office staff for the Adult programs current listing. NWSRA has a weekly program called "Nighthawks" that is different activities on Fridays. My son, 20yo, has done some of those activities & has really had a great time! There are new programs starting just after the 1st of the year.Special Olympics is a great way for everyone to make wonderful friends! Families also end up getting involved with SO - coaching, administrative, whatever you want to! (We turn NO ONE away). They don't have to be athletes - there are lots of different "sports" to choose from.I'm new to the list & don't know the history of anyone, but just thought I would add what has worked for us.Happy New Year., mother to Kenny (AS;ADHD;EBD) & (nt) 21yo & a student @ EIU, majoring in SpEd with an emphasis on autism! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 I would add my wishes to Ellen's for a happy New Year to everyone! Much happiness to us all--and especially for our kids. Let's work to make it so! Marie>> Thanks to so many of our members who are contributing such great information and ideas. > As co-moderator, and I am sure I speak for my two wonderful partners, we wish each and every one of the IPADDU members a year of laughter, productivity, good health and fulfilled dreams and hopes.> Happy New Year.> Ellen, Laurie and Marie > Ellen Garber Bronfeld> egskb@...> Re: Social life> > > Kay:> You say you have been involved w/NEDSRA in the past. Has he ever > participated in Special Olympics? You can inquire at the NEDSRA > office about him joining their program. Also, you can check w/the > office staff for the Adult programs current listing. NWSRA has a > weekly program called "Nighthawks" that is different activities on > Fridays. My son, 20yo, has done some of those activities & has really > had a great time! There are new programs starting just after the 1st > of the year.> > Special Olympics is a great way for everyone to make wonderful > friends! Families also end up getting involved with SO - coaching, > administrative, whatever you want to! (We turn NO ONE away). They > don't have to be athletes - there are lots of different "sports" to > choose from.> > I'm new to the list & don't know the history of anyone, but just > thought I would add what has worked for us.> > Happy New Year.> , mother to Kenny (AS;ADHD;EBD) & (nt) 21yo & a > student @ EIU, majoring in SpEd with an emphasis on autism!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 Hi Liz,We have been involved in special Olympics and NEDSRA, and both are wonderful programs. My husband teaches self defense classes for special needs adults through NEDSRA. We have both been very involved.Our issue is after high school Sam attended SIU's (wonderful, fantastic, life changing, get the idea) Independent Life Skills program for about 9 1/2 months. When Sam came home, we set him up in his own place, and he lives pretty much independently. (with some help from us) We are so proud of him, and it has been a struggle to get to this point. Sam feels most of the people he meets at NEDSRA are not at his level, which is pretty high level. I understand his concerns and am trying to find some other social opportunities. Don't get me wrong NEDSRA is wonderful, the parents and staff and participants are great, it's just Sam feels he has moved beyond. He's in a space where he is above NEDSRA, but not quite normal. Does this make sense? Sam would like a girlfriend and to live a normal life without being labeled "special."I hope I've explained this well and not offended anyone.Happy New Year!KayLiz <dizlizgraf@...> wrote: Kay: You say you have been involved w/NEDSRA in the past. Has he ever participated in Special Olympics? You can inquire at the NEDSRA office about him joining their program. Also, you can check w/the office staff for the Adult programs current listing. NWSRA has a weekly program called "Nighthawks" that is different activities on Fridays. My son, 20yo, has done some of those activities & has really had a great time! There are new programs starting just after the 1st of the year. Special Olympics is a great way for everyone to make wonderful friends! Families also end up getting involved with SO - coaching, administrative, whatever you want to! (We turn NO ONE away). They don't have to be athletes - there are lots of different "sports" to choose from. I'm new to the list & don't know the history of anyone, but just thought I would add what has worked for us. Happy New Year. , mother to Kenny (AS;ADHD;EBD) & (nt) 21yo & a student @ EIU, majoring in SpEd with an emphasis on autism! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 In my opinion, Kay you have explained it very well and I certainly do not take offense. I have a son without some of those skills. I applaud your sons many successes. I hear from some families in our community, the same sorts of concerns. One young man in our community who happens to be a fantastic bowler has joined a regular bowling league and that has given him some expanded social network. If your son has some particular interest, perhaps he can find a group to hook up with. I know this is a huge challenge as so many social contacts are made through work more than any place else. The families I know are not in your area, otherwise a social group might work, but not when the travel is 25 miles or more! Ellen Ellen Garber Bronfeldegskb@... Re: Re: Social life Hi Liz,We have been involved in special Olympics and NEDSRA, and both are wonderful programs. My husband teaches self defense classes for special needs adults through NEDSRA. We have both been very involved.Our issue is after high school Sam attended SIU's (wonderful, fantastic, life changing, get the idea) Independent Life Skills program for about 9 1/2 months. When Sam came home, we set him up in his own place, and he lives pretty much independently. (with some help from us) We are so proud of him, and it has been a struggle to get to this point. Sam feels most of the people he meets at NEDSRA are not at his level, which is pretty high level. I understand his concerns and am trying to find some other social opportunities. Don't get me wrong NEDSRA is wonderful, the parents and staff and participants are great, it's just Sam feels he has moved beyond. He's in a space where he is above NEDSRA, but not quite normal. Does this make sense? Sam would like a girlfriend and to live a normal life without being labeled "special."I hope I've explained this well and not offended anyone.Happy New Year!KayLiz <dizlizgrafcomcast (DOT) net> wrote: Kay:You say you have been involved w/NEDSRA in the past. Has he ever participated in Special Olympics? You can inquire at the NEDSRA office about him joining their program. Also, you can check w/the office staff for the Adult programs current listing. NWSRA has a weekly program called "Nighthawks" that is different activities on Fridays. My son, 20yo, has done some of those activities & has really had a great time! There are new programs starting just after the 1st of the year.Special Olympics is a great way for everyone to make wonderful friends! Families also end up getting involved with SO - coaching, administrative, whatever you want to! (We turn NO ONE away). They don't have to be athletes - there are lots of different "sports" to choose from.I'm new to the list & don't know the history of anyone, but just thought I would add what has worked for us.Happy New Year., mother to Kenny (AS;ADHD;EBD) & (nt) 21yo & a student @ EIU, majoring in SpEd with an emphasis on autism! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 , I would be most interested in such a group for my 19 year old daughter, and I think it is needed. Thank you > > Hi All, > > This is Emmett - we have had several requests from parents in the area > to start a social club for adults with asd. One parent suggested we use a > cutting edge model out of Baltimore that combines social instruction groups > with real life experiences and fun. After the New Year, I will send out > information on this model to gain feedback to see if there is interest in moving > forward with this model. > > E > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 To Mr. Emmett - I was wondering if you are able to soon gather and share information re: the " cutting edge model out of Baltimore that combines social instruction groups with real life experiences and fun " ? I am interested in learning more about this. Thanks. Pam and Josh -- Strengthening the Family's Voice of AAC / Promoting communication for people with complex communication needs /group/PACT -------------- Original message ---------------------- From: emmettx4@... > Hi All, > > This is Emmett - we have had several requests from parents in the area > to start a social club for adults with asd. One parent suggested we use a > cutting edge model out of Baltimore that combines social instruction groups > with real life experiences and fun. After the New Year, I will send out > information on this model to gain feedback to see if there is interest in > moving > forward with this model. > > E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 I was having a conversation at church this morning with a gentleman whose daughter (now away at college) was a wonderful " role model " for my dd while growing up at church. I was quite pleased to hear his complements of my dd, he can't believe that she is 15 already, be began attending this church when she was barely 4. He is quite impressed with how my dd carries herself at church. He said, that whenever he speaks to her, she looks him in the eyes and will politely carry on the conversation 3 or 4 sentences before moving away. It feels wonderful to know that all the hard work she and I have done over the years has paid off. Of course, this conversation came up after one of the older ladies was commenting that she told my dd to brush her hair out of her face b/c she was hiding behind it, lol. Quote Link to comment Share on other sites More sharing options...
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