Re: National Asperger's Association

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Hi Everyone, Does anyone think we should form a National Asperger's Association? I wish there was one place where I could get information on research, treatment, disability services, housing etc for people with Aspergers.It seems to me that families with children with Downs Syndrome are organized and they know what is out there for their children.Parents with kids with Aspergers seem more scattered. Or, is that just me? My son is 16 and I'm getting more and more anxious for him and us.Can anyone direct me or is this something that needs to be started?Your input is greatly appreciated. Thanks, Jody "Be the change you want to see in the world" Gandhi ( ) Re: Not sure

what is going on...Xbox > withdrawal?? ??> > > > Date: Friday, September 26, 2008, 9:18 PM> > > > > > > > > > > > > > It really is amazing to compare a good school environment to a bad > > one. was in a terrible school in Texas and he was miserable. I > > kept thinking, "Where has my happy little boy gone?" Then he was > > transferred to another school in the district that had a > centralized > > social skills classroom just for kids with high functioning autism > or > > asperger syndrome. He went from doing no class or homework at all, > > having extreme issues with aggression, meltdowns

every day, > > depression and anxiety (age 7) to

a complete 180 within weeks of > > starting the school with the CSSC which was a good environment. The > > aggression declined and was nearly gone by age 9. 's first year > > there he won the Principal's award for good citizenship because of > > his improved behavior. He won an award for his artwork and he > > started writing poetry. He's an amazing poet! I love to read his > > work. > > > > Here is his latest. He had an assignment to write about his > > thumbprint using analogies:> > > > "The comet moving slowly in the light-ridden space.> > The ripples it leaves behind in space like its water.> > The ripples slowly becoming more psychadellic.> > In the comets movement a vortex forms in the middle of it.> > From all of these things the weirdness of space is born."> > >

> Here's a thing he wrote about his sister. Not a poem but about why > > she's his best friend.> > > > "Rayleigh is my sister which automatically makes her my best > friend. > > We are siblings. We play all the same video games. We play Super > > Smash Brothers Melee for the Gamecube and want to get a Wii along > > with Super Smash Brothers Brawl. It has a character named Lucas > from > > Earthbound 2. My sister and I play MMORPGs (Massively Multiplayer > > Online Role Playing Games). We enjoy them a lot.> > > > When we're not playing video games we just resort to our computers, > > but if there's something very cool going on inside or outside then > we > > take part in that. We like to have snowball fights when there is > > enough snow. Sometimes we go bowling. Back in Texas I had a

> > trampoline but it's gone now that we're in New Hampshire. We liked > to > > go boing boing boing boing. When there was ice on the trampoline we > > liked to slip on it. On occasion we will watch some TV. Sometimes > we > > like to watch videos on our computer.> > > > We have brown hair. We are both very smart and sometimes we like to > > read together.> > > > There are lots of things that are different about us even though > > there are lots of things that are the same about us. I like Greek > > Mythology so I like swords used in Greek Mythology. I'm a guy and > > she's a girl. I have Asperger Syndrome my sister is Neurotypical. > We > > both go to different schools. I go to *******. She goes to *******. > I > > have short hair. She has long hair. I played baseball

last year > while > > she likes shoes, did ballet and plays with dolls. Rayleigh has a > > hamster. I have a dog.> > > > Rayleigh and I like to eat different food. Rayleigh eats shrimp, > > vegetables, spaghetti with sauce and she likes steak. I seem to > like > > Ramen and Nuggets. We also both like to eat peanut butter and jelly.> > > > My sister seems to do a lot of stuff that really interests me but > > then she starts to annoy me. She probably has no idea she has > annoyed > > me until I go screaming a lot and then she has no idea why I'm > > screaming so she thinks about it. And then finally comes up with > the > > conclusion that she annoyed me. And then I just go up to my room > and > > watch videos and then I just try to find her and it turns out she's > > by my

side.> > > > She seems to like it when I am imitating certain things that she > > likes.> > > > My sister is my best friend because I love her and we're in the > same > > family. Either way I look at it I'm stuck with her for the rest of > my > > life until I die so I figure I just make the best of what I have. I > > understand why she acts the way she does. Rayleigh always makes the > > funnest games. When the game is over I stop and think what I'd be > > doing right now if I didn't have a sister like her. I don't want to > > have any other girl for my sister besides her. So I try to keep her > > happy. But if she gets on my nerves I go crazy."> > > > I have a nice little collection of all of his poems and stories now.> > > > Miriam> > >

> > miram....> > > > > > Thank you for your long post and writing about what the doctor > said > > to you. I think you were right...about the environment. ..things > > going wrong in school....he felt his teacher was unfair to > > him ...making him finish the reading assignment and not making the > > others finish. He then shut down in math...so then he had to > finish > > the math too...plus he had 9 science words...to look up....he was > > fustrated becuase the teacher said they could not use the glossary > in > > the back of the book...it has to be found in the chapter...it > > frightened him and overwhelmed him....> > > > > > It is amazing what happens to our children when they are > anxious. > > After battling all night we finally got the

homework all > done...told > > him see ...it wasn't that bad and we could have had it done in 1 > > hour. Sometime I try to ease things up for him....write the math > > problems donw so he just has to solve them....read things to him > and > > make him tell me the answers. I have always told my son we are > here > > to help him and lift the anxiety and some of the weight off him. > > Later that night my husband talked to him about homework...and my > son > > admitted he was AFRAID of homework. Wow...that is some > insight....he > > probably gets very anxious about it.> > > > > > We too have limited Video games. It does improve him over the > long > > run when he is not on it.... in fact last night we caught him up at > > 10:30 pm reading a book...reading!

Wow!> > > We too have a rule ....no tv, xbox until all homework is done....> > > > > > Thanks for the advice....> > > > > > Jan> > > > > > > > > Jan Rushen> > > Smile because it is contagious!! !!> >>

[Guest guest]

>

> Hi Everyone,

>

> Does anyone think we should form a National Asperger's Association?

I wish there was one place where I could get information on research,

treatment, disability services, housing etc for people with Aspergers.

I think this is very much needed, although I couldn't be the one to do

it! I had an incredible time finding resources for my son. No, it is

not just you--the information is very scattered and each parent has to

start from scratch. It seems all the autism organizations/information

are more geared towards kids with classic autism only.

If there is one out there, I've never heard of it.

Ruth

[Guest guest]

There is maap ---> http://www.maapservices.org/

and oasis --> http://www.udel.edu/bkirby/asperger/

and Tony Attwood has a whole AS site --> http://www.tonyattwood.com.au/

There are even a few publishing co's dedicated to autism, one to HFA/AS specifically

AAPC --> http://www.asperger.net/

and Future Horizons --> http://www.futurehorizons-autism.com/

RoxannaYou're UniqueJust like everyone else...

Re: ( ) National Asperger's Association

>> Hi Everyone, > > Does anyone think we should form a National Asperger's Association?I wish there was one place where I could get information on research,treatment, disability services, housing etc for people with Aspergers.I think this is very much needed, although I couldn't be the one to doit! I had an incredible time finding resources for my son. No, it isnot just you--the information is very scattered and each parent has tostart from scratch. It seems all the autism organizations/informationare more geared towards kids with classic autism only.If there is one out there, I've never heard of it.Ruth

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