Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Hi, Jan is 28. She's been a character from the beginning. Jan is one of the first generation to get an education (no only partly inclusive) and she has pioneered a post high school program for the learning disabled at Chapel Haven. She succeded there and as a graduate of the program lives close to the school in an apartment of her own. She has a few hours a week of life skills help, but otherwise is independent. There are courses to take when she isn't employed and a really good social life. She went to Newport, RI last weekend for a day trip. It isn't easy. Independent living is what she really wants after years of everyone being her supervisor/parent. She is still working on the challenges. 14 months ago, she had the first really serious illness of her life. She managed to combine an auto-immune disease with and underlying incurable leukemia, diabetes, and every hospital infection you could imagine. Things were not happy a year ago, but the leukemia is either in remission or gone. The diabetes is also gone with weight loss and diet control. The auto-immune disease is cured, at least for the moment. Then this spring, she had an apparently unrelated stroke. She's recovering from that. It hit her left side mobility and her balance, but fortunately not her mind. I post on this list fairly regularly about both Jan's triumphs and also her problems. Your child or loved one will be different but hopefully no less loved and cared for than mine. Rick ........... dad to 28 year old Jan who's climbed Half Dome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Hi, Jan is 28. She's been a character from the beginning. Jan is one of the first generation to get an education (no only partly inclusive) and she has pioneered a post high school program for the learning disabled at Chapel Haven. She succeded there and as a graduate of the program lives close to the school in an apartment of her own. She has a few hours a week of life skills help, but otherwise is independent. There are courses to take when she isn't employed and a really good social life. She went to Newport, RI last weekend for a day trip. It isn't easy. Independent living is what she really wants after years of everyone being her supervisor/parent. She is still working on the challenges. 14 months ago, she had the first really serious illness of her life. She managed to combine an auto-immune disease with and underlying incurable leukemia, diabetes, and every hospital infection you could imagine. Things were not happy a year ago, but the leukemia is either in remission or gone. The diabetes is also gone with weight loss and diet control. The auto-immune disease is cured, at least for the moment. Then this spring, she had an apparently unrelated stroke. She's recovering from that. It hit her left side mobility and her balance, but fortunately not her mind. I post on this list fairly regularly about both Jan's triumphs and also her problems. Your child or loved one will be different but hopefully no less loved and cared for than mine. Rick ........... dad to 28 year old Jan who's climbed Half Dome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2003 Report Share Posted November 2, 2003 hello Sue, Thanks for your intro. Do you see Dr Andy ? He uses Samento a lot. I am following the progress of the people who are taking it with great interest. I too used to be a very keen cyclist JUST before coming down with ...Lyme etc. I had just toured in France and Ireland (and camped everywhere wild!) and of course had been bitten by ticks. Where abouts do you live? Do you belong to EuroLyme? I too am finding it real hard to handle stress, and I do not eat little children, (although, yes, I AM French BTW) so fear not )) Nelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 Hi Nelly, > Do you see Dr Andy ? Yes, I've been seeing him for nearly a year but haven't yet started the Borrelia/Samento regime. We've been focussing on sorting out my gut problems -antibiotics, to which I don't react well, so I'm pleased that his preferred treatment for borrelia is 'alternative'. > I too used to be a very keen cyclist JUST before coming down > with ...Lyme etc. I had just toured in France and Ireland (and > camped everywhere wild!) Over a few years we toured the Alps & Pyrenees, moving on every day, staying in hotels, travelling light. Also done the crinkly bits in the SW of Ireland. I really miss it. > Where about do you live? Do you belong to EuroLyme? I'm in Leicestershire, UK but lived for 2 years in Sweden where we were warned about ticks. But apparently had no bites. And no, I don't belong to EuroLyme, what is it? Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 >no, I don't belong to EuroLyme, what is it? Sue, It's a UK based Lyme discussion list. A conference was organised last June in York and Dr attended. We had our first conference in Hull in Sept 2001. I'm sure you would find it useful. Some members are also patients of Dr . Nelly EuroLyme/?yguid=164480 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 - My family and I live in Germany (Karlsruhe, on the Rhein) for 4-6 weeks a couple of times/year. I don't know whether you are fluent in German or French or Italian, but I'm not in German (I have housewife German...stores, food, restaurants). It can be isolating at times, but I've learned the playgrounds and fun places to take my kids. Perhaps we can stay in touch and if we're back in Germany, heading your way, we can hook up. Mother to Dominick (17 mos) Hello All, It has been quite some time since I last posted...I have been busy moving my family from the US to Switzerland (about an hour outside of Geneva). Life has been full of changes in the last few months...with exception of my daughter's fevers. They have remained a constant. I had come to grips with the cyclic nature of the fevers (ranging 20 to 48 days apart) for the past 8 months but in recent days I am beginning again to worry. She has not officially been diagnosed with but my pediatrician in the US said that it was a good possibility. He did a preliminary blood workup to check for elevated white blood cell count and assured me that she doesn't have leukemia...which I was very afraid of! I have not established medical care yet here in Switzerland but will do so shortly. I think I am still a bit in denial about setting down roots in a new country...anyway, that is another story! When she gets the fever, she exhibits very dark circles under her eyes (almost a tell tale sign of the fever coming the next day); her face appears to get a bit puffy; during the first 6 fevers she had a lot of saliva in her mouth, garbled speech and clearly had ulcers on the back of her throat; the sores have seemed to not be that painful in the last two fevers; her fevers range from 101 to 105 and last 4- 5 days; she has a loss of appetite but drinks quite a bit throughout the night (thank goodness); she is up every night during the fevers for about 3 hours so I am exhausted by the end of the fever. She seems to do well on Motrin alone...Tylenol does nothing for the fevers and eventhough the pediatrician told us to alternate we give her motrin every 4 hours....that can't be good for her! I have several questions that I have been thinking about for some time....please answer with your thoughts or findings. Has there ever been any evidence that is caused by certain immunizations? Can be connected with premature birth (my daughter was 4.5 weeks early)? OR perhaps childhood illness such as RSV (my daughter was hospitalized with RSV at 9 months old)? What blood tests must be administered to rule out ALL other diseases or diagnoses? And if I am ready to start this process, how long and painful of a process is it to get a diagnosis? What are the long term effects (all things considered) of these fevers? And lastly, why does MY little girl and family have to go through this?! It is simply not fair! Thank you very much for any support you can provide, Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 - My family and I live in Germany (Karlsruhe, on the Rhein) for 4-6 weeks a couple of times/year. I don't know whether you are fluent in German or French or Italian, but I'm not in German (I have housewife German...stores, food, restaurants). It can be isolating at times, but I've learned the playgrounds and fun places to take my kids. Perhaps we can stay in touch and if we're back in Germany, heading your way, we can hook up. Mother to Dominick (17 mos) Hello All, It has been quite some time since I last posted...I have been busy moving my family from the US to Switzerland (about an hour outside of Geneva). Life has been full of changes in the last few months...with exception of my daughter's fevers. They have remained a constant. I had come to grips with the cyclic nature of the fevers (ranging 20 to 48 days apart) for the past 8 months but in recent days I am beginning again to worry. She has not officially been diagnosed with but my pediatrician in the US said that it was a good possibility. He did a preliminary blood workup to check for elevated white blood cell count and assured me that she doesn't have leukemia...which I was very afraid of! I have not established medical care yet here in Switzerland but will do so shortly. I think I am still a bit in denial about setting down roots in a new country...anyway, that is another story! When she gets the fever, she exhibits very dark circles under her eyes (almost a tell tale sign of the fever coming the next day); her face appears to get a bit puffy; during the first 6 fevers she had a lot of saliva in her mouth, garbled speech and clearly had ulcers on the back of her throat; the sores have seemed to not be that painful in the last two fevers; her fevers range from 101 to 105 and last 4- 5 days; she has a loss of appetite but drinks quite a bit throughout the night (thank goodness); she is up every night during the fevers for about 3 hours so I am exhausted by the end of the fever. She seems to do well on Motrin alone...Tylenol does nothing for the fevers and eventhough the pediatrician told us to alternate we give her motrin every 4 hours....that can't be good for her! I have several questions that I have been thinking about for some time....please answer with your thoughts or findings. Has there ever been any evidence that is caused by certain immunizations? Can be connected with premature birth (my daughter was 4.5 weeks early)? OR perhaps childhood illness such as RSV (my daughter was hospitalized with RSV at 9 months old)? What blood tests must be administered to rule out ALL other diseases or diagnoses? And if I am ready to start this process, how long and painful of a process is it to get a diagnosis? What are the long term effects (all things considered) of these fevers? And lastly, why does MY little girl and family have to go through this?! It is simply not fair! Thank you very much for any support you can provide, Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Sorry to say we have at least 60 members who have children who have and the fevers started as early as 3 months.... My son started at just over 5.5 mths old. The docs who follow do say the majority of kids do begin around 2-3 yrs old however about 25% start UNDER a year old. Fran Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Subject: Re: Reintroduction , the fever sysmptoms started when she was 17-18 months old. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Sorry to say we have at least 60 members who have children who have and the fevers started as early as 3 months.... My son started at just over 5.5 mths old. The docs who follow do say the majority of kids do begin around 2-3 yrs old however about 25% start UNDER a year old. Fran Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Subject: Re: Reintroduction , the fever sysmptoms started when she was 17-18 months old. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Fran, Thanks for your feedback....yet the DTaP vaccine and others are given at 2 months, 4 months, 6 months, and then at 18months and then again at 4-6 years. My intent is to help in anyway I can anyone researching possible causes for this...I do not believe this just happens or children are just born with it...this of course is just a personal belief. As I stated before, I do not intend to help in a witch hunt but IF a link can be found (and it doesn't seem like anyone has yet pursued this)to immunizations, imagine how many families would be saved from this. I have searched the internet a bit on any correlation or studies connecting with environmental/immunization causes but come up with nothing. Do you know of any studies that have been done connecting the two, perhaps some of the contacts you have made through the years have already researched this? Undoubtedly, whoever does try to research this will come up against the CDC and Federal Government and this may prove to be very long study....but I believe it is worth it. Thank you for any support you can offer, > Sorry to say we have at least 60 members who have children who have > and the fevers started as early as 3 months.... My son started at just over > 5.5 mths old. The docs who follow do say the majority of kids do begin > around 2-3 yrs old however about 25% start UNDER a year old. > Fran > Fran A Bulone > Mom to ph 5 yrs old > Waxhaw, NC > > Owner & Moderator Group > > > > Subject: Re: Reintroduction > , the fever sysmptoms started when she was 17-18 months old. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Fran, Thanks for your feedback....yet the DTaP vaccine and others are given at 2 months, 4 months, 6 months, and then at 18months and then again at 4-6 years. My intent is to help in anyway I can anyone researching possible causes for this...I do not believe this just happens or children are just born with it...this of course is just a personal belief. As I stated before, I do not intend to help in a witch hunt but IF a link can be found (and it doesn't seem like anyone has yet pursued this)to immunizations, imagine how many families would be saved from this. I have searched the internet a bit on any correlation or studies connecting with environmental/immunization causes but come up with nothing. Do you know of any studies that have been done connecting the two, perhaps some of the contacts you have made through the years have already researched this? Undoubtedly, whoever does try to research this will come up against the CDC and Federal Government and this may prove to be very long study....but I believe it is worth it. Thank you for any support you can offer, > Sorry to say we have at least 60 members who have children who have > and the fevers started as early as 3 months.... My son started at just over > 5.5 mths old. The docs who follow do say the majority of kids do begin > around 2-3 yrs old however about 25% start UNDER a year old. > Fran > Fran A Bulone > Mom to ph 5 yrs old > Waxhaw, NC > > Owner & Moderator Group > > > > Subject: Re: Reintroduction > , the fever sysmptoms started when she was 17-18 months old. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 If anyone has a vaccine theory please go to the vaccination board. This is a topic that fits in well with the other group. A note... we have children here who have not been immunized at the choice of their parents.... and my son did not start his immunizations until near one years old. If any theory holds true it must apply to all children and this does not. So please... keep vaccine theory on the vaccine board for created by one of our members and keep all alternative herbal remedies on the alternative group which was created by another one of our members. Thanks Fran Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 If anyone has a vaccine theory please go to the vaccination board. This is a topic that fits in well with the other group. A note... we have children here who have not been immunized at the choice of their parents.... and my son did not start his immunizations until near one years old. If any theory holds true it must apply to all children and this does not. So please... keep vaccine theory on the vaccine board for created by one of our members and keep all alternative herbal remedies on the alternative group which was created by another one of our members. Thanks Fran Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2005 Report Share Posted February 17, 2005 Wow, what a ride for sure. I'm so glad you were able to get rebanded and that your insurance covered it. Good going on the appeal and my very best to you. Congratulations on your little boy. gayle in seattle >/// Microsoft said yes! > Had surgery 2/14/05 > Home, feeling sore and tired, but up and around./// Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2005 Report Share Posted February 17, 2005 Congratulations Elise! Welcome back and all the best on your new future. Sylvia F 2/23/4 - Dr. Watkins 290\200\135-150 Reintroduction It's time for a re-introduction. I have been away for a long time and have had quite a wild ride. Name: Elise s Location: Seattle First Banded: 2/1/02 in Tijuana by Dr. Ortiz Lost 60 pounds, which brought me out of obese to the overweight category. Got pregnant Had fill removed after the 1st trimester. Gained about 20 lbs in pregnancy Gave birth at home to a healthy baby boy on 1/6/04 Ate and nursed, nursed and ate, etc. etc. Started to gain gain gain Went to get a fill. Pain. Serious pain developed around the port site. Took lots of pain killers. Had a CT scan, had a fluid aspiration to check for infection. All negative. Cried. Convinced NWWLS to move my port to the other side because maybe it was on a nerve or something. While in surgery, Dr. Montgomery found that the whole band was infected and there was scar tissue all over. They cultured the bacteria and it was pseudomonas, which is just not normal. Basically, my body had encapsulated the infection for years. Went back into surgery a week later to have the whole thing taken out because antibiotics don't work on plastic. Spent three weeks on IV antibiotics at home. Sad. Depressed. Had to deal with all those people who basically said, " Well that's what happens if you go to Mexico " . Had to deal with all my banded friends who would comment on how much I could eat and how little they could. Started a Weight Watchers group in my neighborhood. Did South Beach Diet. Gain weight. <*Shocking*> A few months ago, I went back to NWWLS and said " I want my band back " Microsoft Premera denied me because I wasn't quite fat enough and, thankfully, don't have any real co-morbidities. Dr. Montgomery and Trish at NWWLS, and myself appealed and explained the uniqueness of the situation. Microsoft said yes! Had surgery 2/14/05 Home, feeling sore and tired, but up and around. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2005 Report Share Posted February 17, 2005 Elise - I'm so glad you were able to get your insurance to be reasonable!!! (Truly amazing!) So welcome back from Elise's Wild Ride! Helen in Redmond >From: " Elise s " <ejacobs129@...> >Reply- >< > >Subject: Reintroduction >Date: Thu, 17 Feb 2005 10:40:59 -0800 > > >It's time for a re-introduction. I have been away for a long time and have >had quite a wild ride. >Name: Elise s >Location: Seattle >First Banded: 2/1/02 in Tijuana by Dr. Ortiz >Lost 60 pounds, which brought me out of obese to the overweight category. >Got pregnant >Had fill removed after the 1st trimester. >Gained about 20 lbs in pregnancy >Gave birth at home to a healthy baby boy on 1/6/04 >Ate and nursed, nursed and ate, etc. etc. >Started to gain gain gain >Went to get a fill. >Pain. Serious pain developed around the port site. >Took lots of pain killers. Had a CT scan, had a fluid aspiration to check >for infection. All negative. >Cried. >Convinced NWWLS to move my port to the other side because maybe it was on a >nerve or something. >While in surgery, Dr. Montgomery found that the whole band was infected and >there was scar tissue all over. They cultured the bacteria and it was >pseudomonas, which is just not normal. Basically, my body had encapsulated >the infection for years. >Went back into surgery a week later to have the whole thing taken out >because antibiotics don't work on plastic. >Spent three weeks on IV antibiotics at home. >Sad. >Depressed. >Had to deal with all those people who basically said, " Well that's what >happens if you go to Mexico " . Had to deal with all my banded friends who >would comment on how much I could eat and how little they could. >Started a Weight Watchers group in my neighborhood. Did South Beach Diet. >Gain weight. <*Shocking*> >A few months ago, I went back to NWWLS and said " I want my band back " >Microsoft Premera denied me because I wasn't quite fat enough and, >thankfully, don't have any real co-morbidities. >Dr. Montgomery and Trish at NWWLS, and myself appealed and explained the >uniqueness of the situation. >Microsoft said yes! >Had surgery 2/14/05 >Home, feeling sore and tired, but up and around. > > > > >February, 2005 is the Seattle Bandster Splash! >http://barbooch2.homestead.com/SeattleBandsterSplash.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 " I hope that this " message in a bottle " will be found by someone who would like to get to know me. " " I hope that this " message in a bottle " will be found by someone who would like to get to know me. " Hi Ron, I notice you are cross-posting messages across the forums, so I am going to cross-post a response. The best way to find girls is really not to throw out a " message in a bottle " and hope someone responds. That seems rather desparate in my opinion. Perhaps it is just me, but I feel the same way about personal ads too. For a woman to take an interest in you, you need to actually chat with them, listen to them, and get to know them. If they get the idea that you are just trolling for dates, I think they are going to begin to wonder what sort of fish you are catching beside them, what sort of uality they are, and how many. These forums are not set up for the purpose of finding dates, and I am not entirely comfortable with folks trying to find companions using my forums. We have no real idea if you are truly Aspie, or what your real intentions are. Since your past posts had the same theme, I am going to put you on moderation until such time as you actually join in conversations here. Posts where you simply ask for dates will be deleted. Tom Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 Ron wrote: " It's been a while since I've posted anything, so I think I should reintroduce myself ... <snip> ... " RON! Welcome back! Oh my ... we have had a flurry of returns recently and each of them welcome. :-D Ron wrote: " ... <snip> ... I've recently re-entered college (Science major) as much for the social aspects as for the educational aspects, although, as an Aspie, the social thing doesn't come easy to me. Ideally, I'd like to find a girl who's also in college, or is contemplating going to college, but that's not absolutely necessary .... <snip> ... " Congratulations on returning to college. Education is a life long journey as far as I am concerned. And I'm happy to hear that you aren't limiting yourself by insisting on finding a girlfriend who is either attending college or who has a college degree. There are a number of brilliant people who have never attended college but who put college grads to shame with their knowledge. In life there are two ways to get an education (IMHO) ... by paying tuition or by paying attention. :-) Ron wrote: " ... <snip> ... I'm very much a believer in " friends first " -- my ideal is to eventually marry my best friend. I'd like to be the " wind beneath her wings " -- to nurture her, never to restrict her ... <snip> ... " That is wonderful to hear and don't let anyone tell you that this is impossible. I have been in relationship with my best friend for a year now and it has been the best relationship I have ever had. Do not give up on this dream of yours and in time, you will see it come to be. Ron wrote: " ... <snip> ... I'll never be a total grown-up ... <snip> .... " Who would want to be a total grown-up anyway? A person's imagination is the greatest playground of all and only those who are childlike are able to maintain a fertile imagination. Ron wrote: " ... <snip> ... I guess you could say that I'm a big nerd .. . . but I'm a FUN nerd! ... <snip> ... " And this is a bad thing? Hooray for those who feel that being childlike is worth preserving. The world has far too many grown-ups in it and all of them are messing things up. I say let's keep a place within ourselves where the child within us can thrive alongside the grown-up. Raven Co-Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2007 Report Share Posted February 14, 2007 > > Hi Fellow Aspies! > > It's been a while since I've posted anything, so I think I should > reintroduce myself. > > I'm very single, without even family and friends. Are you without access to a local AS group? It sucks that the global coverage of them is incomplete. Anyway, there is the global AS culture now. Some of my other interests include Science and > Medicine, Paranormal (ESP, crop circles, ghosts, excellent way to give yourself well-funded feelings of not being alone. Me luv ghosties. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2007 Report Share Posted February 14, 2007 > > Hi Fellow Aspies! > > It's been a while since I've posted anything, so I think I should > reintroduce myself. > > I'm very single, without even family and friends. Are you without access to a local AS group? It sucks that the global coverage of them is incomplete. Anyway, there is the global AS culture now. Some of my other interests include Science and > Medicine, Paranormal (ESP, crop circles, ghosts, excellent way to give yourself well-funded feelings of not being alone. Me luv ghosties. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 > > My name is Jen, and I've been a member of this group for a looong > time. We have relocated to the English countryside in > Suffolk. I live in a cottage in a village and have a relatively > largish garden that I have already started filling with stocks, > pinks, wallflowers, lots and lots of roses and all sorts of other > fragrant cottage garden plants. I even found three osmanthus bushes > at Wyevale! Hi Jen I'm so glad to see you back posting ;-) Your input and friendly spirit has been missed, and I'm happy your spirits have risen with the promise of a nice English scented garden. A long time dream of mine will be > realized later this spring when a beehive arrives! If anyone has > read the archives, you will see that I have had a long-time obsession > with bees and beeswax in particular. You were the first Bee Goo Queen, and I still have the fragrant stuff you sent, I keep it for myself! You know the honeybees in the USA are dying off at a terrible rate, and nobody knows why, although environmental toxins and ag chemicals are suspect. There was a sobering, scary item on TV about it the other day. The man quoted Albert Einstein: " if honeybees vanish, so will the human race within four years. " Well, if it's only USA-based, I'm leaving! Tell us of your sitings of honeybees in the UK, are they vigorous? I do not have a workspace set > up for all of my oils yet, but it is in the works. A lot of my lab > glassware did not survive the moves around the globe, so I will have > to restock. Ebay is great for that, fabulous prices. I just saw a " lot " there yesterday, maybe there are some on ebay UK, too,where you pay one flat fee and get lots of stuff like flasks, funnels, stirrers, etc. > > Another big spring summer project that I will be asking for help from > the group with is a enfleurage project with sweet peas. I have over > a hundred of the grandiflora varities sprouting at the moment ready > to be hardened off soon. I also have a glass still. I should have > more than enough blossoms to try a distillation and enfleurage. I > should also have more than enough rose to distill rose water. I look > forward to playing and getting my fingers fragrant again - it's been > WAY too long. I just checked in Arctander for you -- they say the most common form of extraction for sweet peas is solvent extraction. I'm sure, however. You might want to try something I've been using with great success for some time now: an ultrasonic machine. Arctander writes about it on p. 43-44, I believe. He states that it helps pull out the scent more efficiently and you get a wonderful saturation of the scent, and he is right! I just had to purchase a new one because my old used one burned out. I got a 2 liter capacity, digital controls, for $129 plus reasonable shipping. You just stuff the flowers in a glass jar, cover them with alcohol or oil, set them in the container, fill up to within an inch or two of the top with warm water, and let it run for a half hour or so, turn it off, evaluate, maybe let it rest. Most stuff extracts within four " runs " or so. It's great for tincturing also, esp. concretes. I long to grow sweet peas, and if I ever get it together for my move to Texas (seems Miami contractors are conspiring against that, lol) I'll grow tons of them. PS. Genders, in his book says you can play with vanilla and neroli to create a dupe for sweet peas! Arctander mentions traces of hyachinth (another one that's going into the ultrasonic when they hit the flower market in volume/for cheap), tuberose, light greenness, jasmine absolute, rose de mai absolute, terpeneless petigrain bigarade, styrax, benzoin, tolu, cinnamon and then the devolves into synthetic babble, lol. Well, a long reply to a friend long missed! Anya's Garden of Natural Perfume http://AnyasGarden.com Artisan Natural Perfumers Guild http://ArtisanNaturalPerfumers.org Natural Perfumers Community Group / Natural Perfumery Blog http://AnyasGarden.Blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 > > > > My name is Jen, and I've been a member of this group for a looong > > time. > > > JenB > > Hi JenB > > Welcome back! I loved reading your intro, I could picture your lovely > cottage and garden and it sounds so idyllic. It must be so beautiful > now in the spring, my favorite time of year. I am looking forward to > reading more of what you are up to, setting up your new studio and > beehives etc. > > Warmly > Welcome back JenB! Is it already spring there? We've still got snow on the ground here (right near Washington DC). I'm not expecting spring for at least a month! I have seen many of your old posts about bee goo and have been planning to try the tincture. My mother-in-law keeps bees and Anya is right, two hives died mysteriously last year. She was very depressed-- she is not an animal lover but bees seem to be the perfect " pet " for her-- all her nurturing goes to her bees. Still, she has three more hives and she has more coming so there's hope. Keep us posted on the sweetpeas. They are one of my favorites. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 > > > > My name is Jen, and I've been a member of this group for a looong > > time. > > > JenB > > Hi JenB > > Welcome back! I loved reading your intro, I could picture your lovely > cottage and garden and it sounds so idyllic. It must be so beautiful > now in the spring, my favorite time of year. I am looking forward to > reading more of what you are up to, setting up your new studio and > beehives etc. > > Warmly > Welcome back JenB! Is it already spring there? We've still got snow on the ground here (right near Washington DC). I'm not expecting spring for at least a month! I have seen many of your old posts about bee goo and have been planning to try the tincture. My mother-in-law keeps bees and Anya is right, two hives died mysteriously last year. She was very depressed-- she is not an animal lover but bees seem to be the perfect " pet " for her-- all her nurturing goes to her bees. Still, she has three more hives and she has more coming so there's hope. Keep us posted on the sweetpeas. They are one of my favorites. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 heartinmymouth <heartinmymouth@...> wrote: <Suffolk .... lovely country.... have you heard of Raven? Fabulous gardener and seller of all sorts of exotic coloured species including unusual sweetpeas......Her house and shop is in Suffolk I believe. Anyway I have never posted from the messages before so I hope this gets through ok.... With all good wishes Janita> I have heard of Raven. I have her book " The Bold And Brilliant Garden " . I love it! Not only is it inspirational, but I am so with her love of colors and it's use in the garden. Orange, magenta, blue, crimson, lime green, violet,gold; just my thing. That's why I got the book. In fact, my garden has been looking more and more like her pallette every year. You should have seen my spring garden last year, Austin Powers would've been proud! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2007 Report Share Posted June 22, 2007 Hey. I'm new here. I hope to get to know you. I understand about feeling a need to open up some and connect with others. amy In a message dated 6/20/2007 9:00:53 P.M. Central Daylight Time, markwanda91@... writes: Hi I just wanted to reintroduce myself Ihave not posted for quite some time. I apologize. I get so caught up in trying to make it day to day. I have vascular ehlers danlos syndrome and a myriad of secondary problems as a result the main one being chronic pain. I hope you all will give me a chance to get to know you all better. I realize I need to share what is going on in my life and hopefully help others in the process. I am now going through a heart stress test the one with the injection. I have the second half scheduled tomorrow. I have to go for now and get some rest but just wanted to pop in and say hi and I hope to hear from you all soon. Have a peaceful painfree night.Thanks again. See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
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