Not sure what to think

[Guest guest]

Hi! I was wondering if any of you had any insight on

this. My DS is 3 1/2 and we just had an appointment

with a ped yesterday. After she had observed him she

said she thinks he has OCD and ADHD. She didn't think

he had symptoms of AS. I think he does but what do I

know? We are going to Iowa City next week and the ped

thinks that is a great idea. My DS is fine notor

skills delayed. I try to work with him as does my

mother since she is my daycare. He is so stubborn!

he wont do it. I am worried since I dont want him to

fall behind. I was wondering if I should get a tutor

for him for his fine motor. Or is that ridiculous

since he is so young? Whoever posted those fine motor

skills ideas...thank you! You all are so wise about

all of this...I am just in the begining stages.

Thanks!

[Guest guest]

You know your son. If you feel he shows signs get an appt with a child psychologist, psychiatrist, or a developmental pediatrician. My son's last dr had him labeled as oppositional defiant and not one word about the AS.

( ) Not sure what to think

Hi! I was wondering if any of you had any insight onthis. My DS is 3 1/2 and we just had an appointmentwith a ped yesterday. After she had observed him shesaid she thinks he has OCD and ADHD. She didn't thinkhe had symptoms of AS. I think he does but what do Iknow? We are going to Iowa City next week and the pedthinks that is a great idea. My DS is fine notorskills delayed. I try to work with him as does mymother since she is my daycare. He is so stubborn! he wont do it. I am worried since I dont want him tofall behind. I was wondering if I should get a tutorfor him for his fine motor. Or is that ridiculoussince he is so young? Whoever posted those fine motorskills ideas...thank you! You all are so wise aboutall of this...I am just in the begining stages.Thanks!

[Guest guest]

Hi , my Aspergers son also has OCD. And I know of many young

kids with only OCD. So don't rule it out.

Occupational therapy helped lots with my son's fine and gross motor

skills.

>

> Hi! I was wondering if any of you had any insight on

> this. My DS is 3 1/2 and we just had an appointment

> with a ped yesterday. After she had observed him she

> said she thinks he has OCD and ADHD. She didn't think

> he had symptoms of AS. I think he does but what do I

[Guest guest]

Praying for positive results today.ErynMother of Brayden, 18 months old, 21* out of cast, 0* in cast, currently in cast #2----- Reply message -----From: " Tame Olson " <dazies2001@...><infantile scoliosis treatment >Subject: not sure what to thinkDate: Thu, Apr 5, 2012 10:51 am

Our stories are similar. Can chat long... My son has a 2 pm cast change and I am currently starring as his entertainment:) sigh. We will be going into a brace this summer to. He is 5 and has plateaued at 25. Also don't know what to feel... But glad I read this today. So glad. I am hoping we get some good correction today so we are in the best position possible going into brace.More later.Hoping to avoid surgery and knowing that may not be a viable option can make a person sad.. ZTSent from my iPhoneOn Apr 4, 2012, at 11:22 PM, "SR Clancy" <svale88@...> wrote:

Hi Everyone,

Eden started casting when she was 29

months old and 49 deg. She’s now 4 years old, and is in cast #9 as

of two weeks ago. She didn’t get an out of cast xray this time, so

we need to wait until June. Her in cast curve was around 19 deg –

not much different than cast #8. Her out-of-cast curve was 30-32 deg

before cast #8. She definitely appears to have plateaued. She’s

getting a brace for the summer. Last summer’s brace corrected her

to slightly better than 24 deg while in the brace, and the brace held the curve

over the summer (she stayed around 32deg out of brace or cast). The plan

is to re-evaluate at the end of the summer and decide whether to stay in the

brace or go back into a cast. I believe her rotation is negligible.

The doctor talked long term for the first time. He

said most kids in Eden’s situation (I’m

paraphrasing) will hold their curve until their pre-pubescence growth spurt.

If the curve improves now, (assuming we cast again in the fall?) and gets a

little worse during pre-pubescence, she may not need surgery later. If it

doesn’t get any better now, and gets a little worse during

pre-pubescence, she may need one surgery. If it slowly continues to get

worse, and worsens more during pre-pubescence, she may need more than one

surgery. I’m guessing he is referring to growth rods and subsequent

lengthening surgeries.

I was really hoping she wouldn’t need surgery. I’m

bummed to say the least. I totally KNOW that Mehta specialized EDF casting

has made a bad situation much, much better by straightening her spine as much

as possible, correcting her rotation, aligning her body so that she walks &

runs straight and doesn’t put uneven wear on her other joints, and giving

her heart and lungs symmetrical and sufficient space to develop properly.

So I am tremendously thankful for this treatment!!! But I had really

hoped she would never need surgery. L

I don’t want to borrow trouble because this is

something we won’t need to face for approximately 8 years. Heaven knows

what could change in that time. I also know there are much worse things

that a child could go through. Honestly, I don’t even know what to

think or feel at this point. Please feel free to respond with your

thoughts on this. Thanks!

Sherry

PS My only definite thought is that for everyone who is told

to “wait and seeâ€, please go to a casting hospital/doctor and get a

second opinion. If

your child needs casting, please please do it earlier rather than later.

We did not “wait and see†but were delayed due

to a special situation. Eden has Erb’s

palsy. It’s very mild. I think the pediatrician(s) were

chalking anything out of the ordinary up to the erb’s and assuming her erb’s

specialist was taking care of it. The erb’s specialist saw her at

12 months and said she was cleared and didn’t need to come back for

further evaluation, so the kicker is no doctor saw her between 12 and 24

months! She had a strange, loping gate when she ran and definitely had a

rib hump which I discussed with her physical therapist at every monthly appointment.

I thought it was uneven back muscle development where her normal side was strong/muscular

and the muscles on the other side of her spine were weak/paralyzed due to nerve

injury. Her PT (who is really good at what she does but still she was a

26 yr old relatively inexperienced kid out of college) didn’t recognize

the rib hump for what it was. Her pediatrician (who definitely isn’t

26) didn’t recognize the rib hump for what it was either at her 24mo well

visit. Her PT was concerned she was at risk for scoliosis, but was

shocked, as everyone (us, ped, ortho) when the xray came back. She was casted

within two months, but by 29 months of age, we had missed the early treatment

window.

TODAY(Beta) •