Re: LDN and RLS not MS related, Fibro and thyroid

[Guest guest]

Hello, I am new to this group and am here as " two " people...lol

My other half has horrible RLS and PLMD (Periodic limb movement

disease), he is on 2 - 3 mg of Mirapex a day and still often gets no

relief. He is a twin, and both of them since childhood have had RLS.

I would like to know more about those of you who have used LDN for

RLS please.

I also have endocrine system problems which first showed up as

hypothyroid, then adrenal problems and then about 9 months ago they

discovered a tumor on my pituitary.

I have horrible hip joint pain as well as muscular, soft tissue pain,

especially in my left leg, hip and thigh. I was Dx'd many years ago

with Fibro, but for the most part I can live with that except for the

left leg area, which is getting beyond sore - I cannot lay on that

side at all and experience pain 24/7 now.

I have looked into Lyme D. and did take the recommended protocol of

fistful's of supplements and for a while the pain did seem to get

much better......do wish I could figure out which of the many, many,

many pills or combo thereof that helped.

I also have had all my life sleep problems - I just do not seem to

make what is necessary for one to fall asleep - so it is Halcion or

Ambien every night - with limited success and of course not real

sleep from the Halcion.....it may all be caused from the tumor as the

pituitary does conduct most of our bodies and the pressure may be

inhibiting me from producing proper hormones and chemicals resulting

in the lack of sleep and the malfunctioning thyroid.

Sorry this is so long, but I am indeed hoping this could be a miracle

for one or both of us......

PS I did go read the recommended sites prior to posting, but did not

see any info relating to RLS and only a small bit re: thyroid.

Thanks so much, Kaylee

-- In low dose naltrexone , " LarryGC " <larrygc@...>

wrote:

>

> http://www.larrygc.com/mystory I wrote about RLS in my story. Day

9 my RLS disappeared. I get twinges of it every so often when I'm

really really really fatigued and too warm, but otherwise, never had

it like I used to have it prior to 4/26/03

>

>

> -- LarryGC/LarryLDN LDN Info rrms

> ^^^^^^

>

> [low dose naltrexone] LDN and auto immune neuropathy or

RLS not MS related

>

>

> Good Day,

>

> I am on day 26 of LDN from Skip's I am looking to see if there is

> anyone who can tell me if they have received any relief from

either

> neuropathy or RLS while taking LDN? This neuropathy would be auto

> immune related and have the usual symptoms of tingles, electric

shock

> type pain and some muscle jerking. Or has anyone had a slowing of

the

> progression of this while being on ldn?

>

> Thanks to anyone who responds,

>

>

>

[Guest guest]

Hi Kaylee,

I started LDN for autoimmune Graves Disease. I am currently HYPO from

Radioactive Iodine Ablation.

Much to my surprise, LDN has stopped my RLS. Also, GREATLY (and I can

not stress the GREATLY enough) improved my sleep. My overall feelings

of well being have improved so much, today, I almost feel like my old

self...even while being hypo. (my numbers are " within range " but not

best for me)

Considering the very low risk of side effects, and even those being

minimal, I would say def. give LDN a try.

Saundra

> >

> > http://www.larrygc.com/mystory I wrote about RLS in my story. Day

> 9 my RLS disappeared. I get twinges of it every so often when I'm

> really really really fatigued and too warm, but otherwise, never had

> it like I used to have it prior to 4/26/03

> >

> >

> > -- LarryGC/LarryLDN LDN Info rrms

> > ^^^^^^

> >

> > [low dose naltrexone] LDN and auto immune neuropathy or

> RLS not MS related

> >

> >

> > Good Day,

> >

> > I am on day 26 of LDN from Skip's I am looking to see if there is

> > anyone who can tell me if they have received any relief from

> either

> > neuropathy or RLS while taking LDN? This neuropathy would be auto

> > immune related and have the usual symptoms of tingles, electric

> shock

> > type pain and some muscle jerking. Or has anyone had a slowing of

> the

> > progression of this while being on ldn?

> >

> > Thanks to anyone who responds,

> >

> >

> >

>

[Guest guest]

Hi Kaylee,

For restleg leg syndrome you may want to try some homeopathic remedies. There are 3 that come to mind: Zincum metalicum, Rhus tox, and Tarentula hispanica. Try one at a time. Buy it in 6C or 12C potency. Take it around bedtime. You can take a second or third dose during the night if it helps. If it helps, you may find that you don't have to take it every night. You can get it from Boiron in your local health food store. They might have to order it for you. Or you can get it on the web. Google Helios pharmacy. They're in England.

My recollection is that pituitary tumors are usually non-malignant. I vaguely remember Manganese being recommended for that. You might look into that.

I don't want to oversimplify things but there are a few things you might try for the endocrine problems. For hypothyroid you should remove soy products and if my memory serves me correctly cruciferous vegetables (broccoli, cabbage, brussel sprouts, cauliflower). Coconut oil has been touted as supportive of thyroid function (1-2 tbs/day). Tyrosine is a precursor to thyroid hormone. You might consider trying 500mg 2 or 3 times per day on empty stomach. Of course kelp is worth trying too for it's iodine content. There are probably some other foods and herbs that are supportive too. If your adrenals are weak consider cutting out caffeine and sweets. There are herbs that support the adrenals like ginseng, licorice and holy basil among others.

There's a new product called Fibronol from Allergy Research Group (aka; Nutricology) that I believe has gotton excellent results in FMG. It's expensive. If you go to their website and look around you'll find a discussion about it in one of their newletters. What's very good for FMG and sleep problems is Tryptophan. Take up to 4000 mg of it on an empty stomach in divided doses and certainly before bedtime. You can take it with a little fruit if you wish. Start at a low dose and work your way up. Food allergies are a consideration with FMG. Particularly grains I think.

You might consider a professional homeopath. Something I'm big on. You can get a list from NASH (I think).

If you have MS than some of the food recommendations would need to be modified.

I hope that helps a little.

Alan

[low dose naltrexone] Re: LDN and RLS not MS related, Fibro and thyroid

Hello, I am new to this group and am here as "two" people...lol

My other half has horrible RLS and PLMD (Periodic limb movement

disease), he is on 2 - 3 mg of Mirapex a day and still often gets no

relief. He is a twin, and both of them since childhood have had RLS.

I would like to know more about those of you who have used LDN for

RLS please.

I also have endocrine system problems which first showed up as

hypothyroid, then adrenal problems and then about 9 months ago they

discovered a tumor on my pituitary.

I have horrible hip joint pain as well as muscular, soft tissue pain,

especially in my left leg, hip and thigh. I was Dx'd many years ago

with Fibro, but for the most part I can live with that except for the

left leg area, which is getting beyond sore - I cannot lay on that

side at all and experience pain 24/7 now.

I have looked into Lyme D. and did take the recommended protocol of

fistful's of supplements and for a while the pain did seem to get

much better......do wish I could figure out which of the many, many,

many pills or combo thereof that helped.

I also have had all my life sleep problems - I just do not seem to

make what is necessary for one to fall asleep - so it is Halcion or

Ambien every night - with limited success and of course not real

sleep from the Halcion.....it may all be caused from the tumor as the

pituitary does conduct most of our bodies and the pressure may be

inhibiting me from producing proper hormones and chemicals resulting

in the lack of sleep and the malfunctioning thyroid.

Sorry this is so long, but I am indeed hoping this could be a miracle

for one or both of us......

PS I did go read the recommended sites prior to posting, but did not

see any info relating to RLS and only a small bit re: thyroid.

Thanks so much, Kaylee

-- In low dose naltrexone , "LarryGC" <larrygc@...>

wrote:

>

> http://www.larrygc.com/mystory I wrote about RLS in my story. Day

9 my RLS disappeared. I get twinges of it every so often when I'm

really really really fatigued and too warm, but otherwise, never had

it like I used to have it prior to 4/26/03

>

>

> -- LarryGC/LarryLDN LDN Info rrms

> ^^^^^^

>

> [low dose naltrexone] LDN and auto immune neuropathy or

RLS not MS related

>

>

> Good Day,

>

> I am on day 26 of LDN from Skip's I am looking to see if there is

> anyone who can tell me if they have received any relief from

either

> neuropathy or RLS while taking LDN? This neuropathy would be auto

> immune related and have the usual symptoms of tingles, electric

shock

> type pain and some muscle jerking. Or has anyone had a slowing of

the

> progression of this while being on ldn?

>

> Thanks to anyone who responds,

>

>

>

Planning your summer road trip? Check out AOL Travel Guides.

[Guest guest]

I'm sorry. I shouldn't have written this on the Ldn list.

[low dose naltrexone] Re: LDN and RLS not MS related, Fibro and thyroid

Hello, I am new to this group and am here as "two" people...lol

My other half has horrible RLS and PLMD (Periodic limb movement

disease), he is on 2 - 3 mg of Mirapex a day and still often gets no

relief. He is a twin, and both of them since childhood have had RLS.

I would like to know more about those of you who have used LDN for

RLS please.

I also have endocrine system problems which first showed up as

hypothyroid, then adrenal problems and then about 9 months ago they

discovered a tumor on my pituitary.

I have horrible hip joint pain as well as muscular, soft tissue pain,

especially in my left leg, hip and thigh. I was Dx'd many years ago

with Fibro, but for the most part I can live with that except for the

left leg area, which is getting beyond sore - I cannot lay on that

side at all and experience pain 24/7 now.

I have looked into Lyme D. and did take the recommended protocol of

fistful's of supplements and for a while the pain did seem to get

much better......do wish I could figure out which of the many, many,

many pills or combo thereof that helped.

I also have had all my life sleep problems - I just do not seem to

make what is necessary for one to fall asleep - so it is Halcion or

Ambien every night - with limited success and of course not real

sleep from the Halcion.....it may all be caused from the tumor as the

pituitary does conduct most of our bodies and the pressure may be

inhibiting me from producing proper hormones and chemicals resulting

in the lack of sleep and the malfunctioning thyroid.

Sorry this is so long, but I am indeed hoping this could be a miracle

for one or both of us......

PS I did go read the recommended sites prior to posting, but did not

see any info relating to RLS and only a small bit re: thyroid.

Thanks so much, Kaylee

-- In low dose naltrexone , "LarryGC" <larrygc@...>

wrote:

>

> http://www.larrygc.com/mystory I wrote about RLS in my story. Day

9 my RLS disappeared. I get twinges of it every so often when I'm

really really really fatigued and too warm, but otherwise, never had

it like I used to have it prior to 4/26/03

>

>

> -- LarryGC/LarryLDN LDN Info rrms

> ^^^^^^

>

> [low dose naltrexone] LDN and auto immune neuropathy or

RLS not MS related

>

>

> Good Day,

>

> I am on day 26 of LDN from Skip's I am looking to see if there is

> anyone who can tell me if they have received any relief from

either

> neuropathy or RLS while taking LDN? This neuropathy would be auto

> immune related and have the usual symptoms of tingles, electric

shock

> type pain and some muscle jerking. Or has anyone had a slowing of

the

> progression of this while being on ldn?

>

> Thanks to anyone who responds,

>

>

>

Planning your summer road trip? Check out AOL Travel Guides.

Planning your summer road trip? Check out AOL Travel Guides.

[Guest guest]

Hi Alan, thank you for your very detailed and helpful information. I have

tried him on Rhus Tox and a combo homeopathic remedy for RLS that did not

do anything, but will try the other two individually - I am a big fan of

homeopathy and have a Dilosios (sp?) kit, which of course is now filled with

Bioran.....

Yes, most pituitary tumors are not cancerous and I found out yesterday from

my latest MRI that the tumor has not grown since last August, although they

are very, very slow growing usually, but this may indicate that it has been

there all or most of my life. It could account for my thyroid, adrenal,

hormonal and sleep problems.

I am hypo, I take Armour thyroid instead of synthroid, it is a prescription,

but it is natural from pig thyroid and mimics our bodies the best. I stay

away from soy and all raw cruciferous veggies, cooked are usually ok though

in moderation.

I use cold, no heat method virgin coconut oil every day and am on the

coconut oil forum here at along with a thyroid, adrenal and RLS

group.........lol just what I needed another forum.......we simply cannot

rely on the medical community to help us, just have to do a lot of our own

research.

I was hoping the LDN might help with my thyroid AND the Fibro???

I just started taking HTP-5 yesterday it is suppose to get absorbed better

than the L-tryptophan (doesn't cross the blood/brain barrier??). I am not

sure if I have tried Tyrosine or not - I just looked it up and it does say

it can help in converting your T3 etc, but maybe this would interfere with

my thyroid med?.

I usually take Iodoral for iodine - I also have a goiter and 7 nodules on my

thyroid - the iodine helps shrink them some and keeps them from growing and

me from surgery!! Yea.

I will have to look into Manganese. For my adrenals I have taken Isocort,

which must be ordered but is non-prescription and similar to taking HC

(Hydro-cortisone) which I am afraid to take, but it is not as strong.

The Fibronol I will most certainly look into.

I don't, nor does the other half have MS, at least not that we are aware

of.........

Thank you so much for the info.......the only question still is - does LDN

help with any of these problems??

SeaLady

Hi Kaylee,

For restleg leg syndrome you may want to try some homeopathic remedies.?

There are 3 that come to mind: Zincum metalicum, Rhus tox, and Tarentula

hispanica.? Try one at a time.? Buy it in 6C or 12C potency.? Take it around

bedtime.? You can take a second or third dose during the night if it helps.?

If it helps, you may find that you don't have to take it every night.? You

can get it from Boiron in your local health food store.? They might have to

order it for you.? Or you can get it on the web.? Google Helios pharmacy.?

They're in England.?

My recollection is that pituitary tumors are usually non-malignant.? I

vaguely remember Manganese being recommended for that.? You might look into

that.

I don't want to oversimplify things but there are a few things you might try

for the endocrine problems.? For hypothyroid you should remove soy products

and if my memory serves me correctly cruciferous vegetables (broccoli,

cabbage, brussel sprouts, cauliflower).? Coconut oil has been touted as

supportive of thyroid function (1-2 tbs/day).? Tyrosine is a precursor to

thyroid hormone.? You might consider trying 500mg 2 or 3 times per day on

empty stomach.? Of course kelp is worth trying too for it's iodine content.?

There are probably some other foods and herbs that are supportive too.? If

your adrenals are weak consider cutting out caffeine and sweets.?There are

herbs that support the adrenals like ginseng, licorice and holy basil among

others.?

There's a new product called Fibronol from Allergy Research Group (aka;

Nutricology) that I believe has gotton excellent results in FMG.? It's

expensive.? If you go to their website and look around you'll find a

discussion about it in one of their newletters.? What's very good for FMG

and sleep problems is Tryptophan.? Take up to 4000 mg of it on an empty

stomach in divided doses and certainly before bedtime.? You can take it with

a little fruit if you wish.? Start at a low dose and work your way up.? Food

allergies are a consideration with FMG.? Particularly grains I think.?

You might consider a professional homeopath.? Something I'm big on.? You can

get a list from NASH (I think).?

If you have MS than some of the food recommendations would need to be

modified.

I hope that helps a little.

Alan

SeaLady

[Guest guest]

To my surprize my RLS went away with starting LDN. red pill

Never miss a thing. Make your homepage.

[Guest guest]

me too...

4/26/03, Day 9, drove 5 speed standard shift after trying 2 and 3 days earlier without being able to keep the clutch in, and been driving it ever since. RLS GONE, hasn't returned since.

-- LarryGC/LarryLDN LDN Info rrms

[low dose naltrexone] Re: LDN and RLS not MS related, Fibro and thyroid

To my surprize my RLS went away with starting LDN.

red pill

Never miss a thing. Make your homepage.