Re: Plaquenil and LDN - your experiences?

[Guest guest]

Judy, I do not have MS but I do have lupus as well as other stuff. Before I really heard of LDN I had started to wean off Plaquenil, didn't think it made much difference. So started LDN and was just fine so never went back to plaquenil. I have been off it for several months, on LDN for about 5 months and better for it in the lupus department.

Celia

[Guest guest]

AS this question is very much off topic if anyone has any questions

they can contact me.

>

> I have seen some posts from people who stayed on Plaquenil and have

done well with it and

> LDN together (even though conventional wisdom says one counteracts

the other), and I am

> trying to put the pieces together and see if stopping Plaquenil

might have been what has

> caused some of us RA patients to have problems down the road with

just using LDN. If you

> have been on Plaquenil, can you please answer these questions?

>

> For those of you who were on Plaquenil when you started LDN, did

you go off it or stay on it?

>

> If you went off it, how did that go? How long has it been and are

you doing well with just

> LDN?

>

> If you stayed on it, has it continued to work for you, and has the

LDN worked well with it?

>

> Is there anyone out there who continued taking Plaquenil when they

started LDN who then

> experienced an exacerbation or flare after a few months on LDN?

>

> Thanks for your help!

>

> Judy

>

[Guest guest]

> >

> > I have seen some posts from people who stayed on Plaquenil and have

> done well with it and

> > LDN together (even though conventional wisdom says one counteracts

> the other), and I am

> > trying to put the pieces together and see if stopping Plaquenil

> might have been what has

> > caused some of us RA patients to have problems down the road with

> just using LDN. If you

> > have been on Plaquenil, can you please answer these questions?

> >

> > For those of you who were on Plaquenil when you started LDN, did

> you go off it or stay on it?

> >

> > If you went off it, how did that go? How long has it been and are

> you doing well with just

> > LDN?

> >

> > If you stayed on it, has it continued to work for you, and has the

> LDN worked well with it?

> >

> > Is there anyone out there who continued taking Plaquenil when they

> started LDN who then

> > experienced an exacerbation or flare after a few months on LDN?

> >

> > Thanks for your help!

> >

> > Judy

> >

>

[Guest guest]

I don’t see how this is off topic. It is about mixing LDN with an immunosuppressant and having it possibly still work well. We have been told they don’t work together yet I’ve seen posts that say Plaquenil may be an exception. If it works well with LDN, that’s news to share, so if you have anything to share about this, please do. If you’re more comfortable emailing me directly I guess that’s ok, but there may be others on this board who would like to know about this too.

Thanks,

Judy

Re: Plaquenil and LDN - your experiences?

Posted by: " mclea1972 " mclea1972@... mclea1972

Tue Apr 1, 2008 4:51 pm (PDT)

AS this question is very much off topic if anyone has any questions

they can contact me.

>

> I have seen some posts from people who stayed on Plaquenil and have

done well with it and

> LDN together (even though conventional wisdom says one counteracts

the other), and I am

> trying to put the pieces together and see if stopping Plaquenil

might have been what has

> caused some of us RA patients to have problems down the road with

just using LDN. If you

> have been on Plaquenil, can you please answer these questions?

>

> For those of you who were on Plaquenil when you started LDN, did

you go off it or stay on it?

>

> If you went off it, how did that go? How long has it been and are

you doing well with just

> LDN?

>

> If you stayed on it, has it continued to work for you, and has the

LDN worked well with it?

>

> Is there anyone out there who continued taking Plaquenil when they

started LDN who then

> experienced an exacerbation or flare after a few months on LDN?

>

> Thanks for your help!

>

> Judy

>

[Guest guest]

Well Judy I guess that would depend on your dr and what he tells you

about plaquenil then as the 14 rheumy's I have been to all since I

got sick 12 feel that plaquenil is an immuno modulator NOT and

suppressant. So I guess this would depend on your beliefs on how

plaquenil works. Again I have been taking both and just each for a

long time now and have done a lot of experimenting until I found the

right balance.

> >

> > I have seen some posts from people who stayed on Plaquenil and

have

> done well with it and

> > LDN together (even though conventional wisdom says one counteracts

> the other), and I am

> > trying to put the pieces together and see if stopping Plaquenil

> might have been what has

> > caused some of us RA patients to have problems down the road with

> just using LDN. If you

> > have been on Plaquenil, can you please answer these questions?

> >

> > For those of you who were on Plaquenil when you started LDN, did

> you go off it or stay on it?

> >

> > If you went off it, how did that go? How long has it been and are

> you doing well with just

> > LDN?

> >

> > If you stayed on it, has it continued to work for you, and has the

> LDN worked well with it?

> >

> > Is there anyone out there who continued taking Plaquenil when they

> started LDN who then

> > experienced an exacerbation or flare after a few months on LDN?

> >

> > Thanks for your help!

> >

> > Judy

> >

>

[Guest guest]

My My,

I agree with Judy. How can this be an off topic

question? Aren't we here to help each other to heal

in the most dignified and painless way possible? I,

for one, appreciate any feedback from others that

might help me on my journey to eventual freedom. I'm

a newbie on LDN and a year is a long time to live with

unneccesay pain if a pioneer has discovered something

that has worked for them. Thank you again for all of

you who have thoughtfully offered ideas.

Bless You!

________________________________________________________________________________\

____

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.

http://tc.deals./tc/blockbuster/text5.com

[Guest guest]

Hi

I am on Plaquenil and LDN for sjogrens disease

Plaquenil alone helped some. LDN alone helped even more. But

LDN and Plaquenil together has taken a lot of the sjogren symptoms

away, especially the fatigue and the brainfog.

I still have problems with dryness. Maybe the glandular tissue is

already destroyed?

Liseander

[Guest guest]

Hi Lisender, thanks for your post. Several people have said they had

a good experience with both and no one seemed to say anything

negative. So..I will talk to my dr. Monday and see if I get back on

plaquenil for a while to speed up the coming glory days! Have been in

a lupus/fibro flare since I began LDN and I think I need some help

with these beasts.

[Guest guest]

Hi

I use both LDN and Plaquenil after recommendation from my rheumy.

He says Plaquenil is an immunomodulator like LDN and combo

LDN/Plaquenil is most probably the best treatment for my sjogren today.

Liseander