Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Hello, Iam new to this group and on 3mg nightly, I have already noticed some improvements with symptoms of course I hope for more. Bye, RJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Fantastic, RJ! I also have MS and am on LDN. I started out on 3mg in September 2007 and also noticed improvement in symptoms right away. I've been on 4.5mg for the last few months and don't really notice any major differences over the 3mg, but it's wonderful that we all seem to be finding such great success in using LDN! Please keep posting about your progress! Speaking for myself, I love to hear about how people's lives are so vastly improved, after starting LDN! Best wishes and welcome to the group! > > Hello, > > Iam new to this group and on 3mg nightly, > I have already noticed some improvements with symptoms > of course I hope for more. > > Bye, > > RJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Hi I have M.S and am taking L. D.N now for 7 months.No relapses or muscle spasms that I was getting weekly.No progression . Clare No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.1/1346 - Release Date: 27/03/2008 10:03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Was just reading about saved testimonials regarding ldn for ms. I would love to know how to go see them. Please post instructions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 You can go to my MS,TM and LDN website here and it has a bunch of LDN Testimonies - http://crystalangel6267.webs.com/ldntestimonies.htm Hugs & Blessings, Crystal LDN_Users Group Owner Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 6 months on LDN with Skip's Pharmacy..... Crystal's MS,TM & LDN Website Crystal's LDN Gift Shop Crystal's LDN Support Group Skip's Compounding Pharmacy LDN Website [low dose naltrexone] Re: MS and LDN Was just reading about saved testimonials regarding ldn for ms. I would love to know how to go see them. Please post instructions. OMG, Sweet deal for users/friends: Get A Month of Blockbuster Total Access, No Cost. W00t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 My neurologist wouldn't prescribe it either. My internist did. Now my neurologist will. He read about a research study that was done, I believe in CA. I've been on LDN since March 2008.He had said to stop the Copaxone before since he thought I was Secondary Progressive. I didn't want to take it anymore anyway since I was in the "donut hole".They are really pushing the Tysabri (and their stock was doing well until the latest problems).Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Read my MS/LDN story: http://tinyurl.com/5tcp6r How To Obtain Low Dose Naltrexone: http://www.webspawner.com/users/howtoobtainldn/index.html Art -- > > My name is Angie and I was diagnosed with R/R MS in 1999. My last > relapse left me with vision difficulties, and an MRI which showed an > active lesion in the occipital lobe. My neuro is now wanting to change > my medication - for the third time. I did not do well on Copaxone, > Avonex, or Betaserone. He wanted to put me on Tysabri until I told him > about the latest brain swelling incidences in Europe. I found out > about LDN but wanted to speak with someone who has taken it, their > experiences, and how they got their neuro to prescribe it. Mine > basically said " no " it wasn't approved for MS soooo he wouldn't write a > script. > > Any information would be greatly appreciated. > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Hi Angie, My 19-yr-old daughter has RRMS, diagnosed 3 1/2 years ago. Rather than give us a prescription, our neurologist " fired " us when we told him we were going to try LDN. Interestingly, since that time info has been published from a couple of trials and even the Pediatric Center for Excellence (of which there are 6 spread throughout the country) in Stonybrook has finally mentioned LDN in its newsletter! Interestingly Stonybrook is a sister institution to the one in Boston that fired us. We got the LDN prescription from a doctor in Pennsylvania who prescribes LDN by phone appt. Not very satisfying, but that is all we found. However, recently we tried a new Boston neuro who is not anti-LDN! I may ask him for the prescription next time although he has much less LDN experience than the phone doctor and sees it only as a comfort drug, not one that can change the outcome of the disease. I'd like for my daughter's case to convince him otherwise. She's been on LDN since May and he would like to see her move to Tysabri. I'd like to see a beautiful MRI in the spring that will shut him up about Tysabri. Perhaps the info from Stony Brook will help convince your doctor. Here is the link to the Stony Brook newsletter: http://www.pediatricmscenter.org/NewsLetter/Pediatric%20MS%20June%202008%20Newsl\ etter.pdf the mention of LDN is on page 4. Also some more info from their website: http://www.pediatricmscenter.org/Lists/News/DispForm.aspx?ID=69 & Source=http%3A%2\ F%2Fwww.pediatricmscenter.org%2FLists%2FNews%2FAllItems.aspx. Good luck, LAura > > My name is Angie and I was diagnosed with R/R MS in 1999. My last > relapse left me with vision difficulties, and an MRI which showed an > active lesion in the occipital lobe. My neuro is now wanting to change > my medication - for the third time. I did not do well on Copaxone, > Avonex, or Betaserone. He wanted to put me on Tysabri until I told him > about the latest brain swelling incidences in Europe. I found out > about LDN but wanted to speak with someone who has taken it, their > experiences, and how they got their neuro to prescribe it. Mine > basically said " no " it wasn't approved for MS soooo he wouldn't write a > script. > > Any information would be greatly appreciated. > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 I too take LDN in my battle with Multiple Sclerosis, unfortunately a lot of people get turned off just by the word 'NALTREXONE' and then research it and find out that it is used specifically for people who are addicted to Heroin! Stupidity reigns regardless of your station in life Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 I have tried all of the CRABS and seen nor felt anything positive from them except a very evident lightening of my wallet! I have just taken my 19th session of Tysabri and don't "see" anything but my neuro has told me that my MRIs have shrunk! There is no cure for MS yet but it is a viable attempt at stopping MS's progression long enough for our bodies to repair inflicted damage and hopefully the cure to be found. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Judy HVBG 2000-310 #Lost 75 #, regained 15 #RNY 2002-250 #Lost 35 #, regained 45 #9/5/08 started low carb at 260 #Lost 5 # and 2" off hips From: Lee Camacho Sent: Thursday, October 16, 2008 12:21 AM low dose naltrexone Subject: Re: [low dose naltrexone] Re: MS and LDN thanks bev......... From: cat707k <bevhksbcglobal (DOT) net>Subject: [low dose naltrexone] Re: MS and LDNlow dose naltrexone Date: Thursday, October 16, 2008, 12:07 AM Lee9 days is really not very long - if you said 9 months then you would be giving it a real chance! You may or may not get some balance improvement - some are lucky and get symptom relief but some dont - LDN is meant for slowing down and hopefully stopping progression - anything else is a bonus!I have never heard of tapioca as a filler - thats not to say it`s not good - maybe someone else can offer advice about that. If you are at all worried about your pharmacy then choose one from the recommended list to be sure. We have used Skips for nearly four years and couldnt be happier. We live on the west coast and he is on the east but we get the LDN within a few days of re-ordering each time. Hang on in there and be prepared to give it much more time!Bev> From: Mark <jarheaddad56@ ...>> Subject: Re: [low dose naltrexone] Re: MS and LDN> low dose naltrexone> Date: Wednesday, October 15, 2008, 10:39 AM> > > > > > > > > > > > I too take LDN in my battle with Multiple Sclerosis, unfortunately a lot of people get turned off just by the word 'NALTREXONE' and then research it and find out that it is used specifically for people who are addicted to Heroin! Stupidity reigns regardless of your station in life> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 I'm so sorry for this. I've got a laptop and I was writing a post to another list when I must have bumped something. Anyway it not only sent half of my other message but it sent this also. And of course I couldn't get it back. Sigh. Judy H From: Judy Harford Sent: Thursday, October 16, 2008 11:47 AM low dose naltrexone Subject: Re: [low dose naltrexone] Re: MS and LDN Judy HVBG 2000-310 #Lost 75 #, regained 15 #RNY 2002-250 #Lost 35 #, regained 45 #9/5/08 started low carb at 260 #Lost 5 # and 2" off hips From: Lee Camacho Sent: Thursday, October 16, 2008 12:21 AM low dose naltrexone Subject: Re: [low dose naltrexone] Re: MS and LDN thanks bev......... From: cat707k <bevhksbcglobal (DOT) net>Subject: [low dose naltrexone] Re: MS and LDNlow dose naltrexone Date: Thursday, October 16, 2008, 12:07 AM Lee9 days is really not very long - if you said 9 months then you would be giving it a real chance! You may or may not get some balance improvement - some are lucky and get symptom relief but some dont - LDN is meant for slowing down and hopefully stopping progression - anything else is a bonus!I have never heard of tapioca as a filler - thats not to say it`s not good - maybe someone else can offer advice about that. If you are at all worried about your pharmacy then choose one from the recommended list to be sure. We have used Skips for nearly four years and couldnt be happier. We live on the west coast and he is on the east but we get the LDN within a few days of re-ordering each time. Hang on in there and be prepared to give it much more time!Bev> From: Mark <jarheaddad56@ ...>> Subject: Re: [low dose naltrexone] Re: MS and LDN> low dose naltrexone> Date: Wednesday, October 15, 2008, 10:39 AM> > > > > > > > > > > > I too take LDN in my battle with Multiple Sclerosis, unfortunately a lot of people get turned off just by the word 'NALTREXONE' and then research it and find out that it is used specifically for people who are addicted to Heroin! Stupidity reigns regardless of your station in life> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Lee I take LDN for MS too, its now been 10 months for me. Stay on 3mg for at least a month and when you up to 4.5mg if you get an increase in muscle spasms and ot spacticity go back down to 3mg. SOME MS people need to stay on 3mg due to muscle issues and spacticity. I can't answer you question re the pharmacy. I stuck with a pharmacy that was on the list and proven to make LDN correctly. If you have any douts about your script change to Skipps pharmacy who really knows how to make LDN. Sal > From: Mark <jarheaddad56@...> > Subject: Re: [low dose naltrexone] Re: MS and LDN > low dose naltrexone > Date: Wednesday, October 15, 2008, 10:39 AM > > > > > > > > > > > >  I too take LDN in my battle with Multiple Sclerosis, unfortunately a lot of people get turned off just by the word 'NALTREXONE' and then research it and find out that it is used specifically for people who are addicted to Heroin! Stupidity reigns regardless of your station in life > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Dear Cabbie, Welcome aboard. If you would like me to send you a copy of the " welcome e-mail " and copies of " what not to take with LDN " and " possible side effects " , please send me your e-mail address. All my best, Aletha Aletha@... > > Hi all .....just joined..... I was wondering if there is anyone > taking LDN and has Multiple Sclerosis. > > Thanks > Cabbie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Hi Cabbie, I have Secondary Progressive MS and Transverse Myelitis and I have been taking LDN for 3 years now. May there be a miracle in YOUR life today and may you have the EYES to see it. From My Heart to Yours Love, Hugs & Blessings, Crystal LDN_Users Group Owner Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 3 years on LDN with Skip's Pharmacy..... No Relapses.... Crystal's MS,TM & LDN Website http://www.freewebs.com/crystalangel6267/index.htm LDN Website http://ww.ldninfo.org/ Crystal's LDN Support Group LDN_Users/ Cris – Case Health - Health Success Stories http://casehealth.com/case/about.html Crystal's LDN Gift Shop http://www.cafepress.com/crystalldngifts Skip's Compounding Pharmacy http://www.skipspharmacy.com/ [low dose naltrexone] Re: MS and LDN Dear Cabbie, Welcome aboard. If you would like me to send you a copy of the "welcome e-mail" and copies of "what not to take with LDN" and "possible side effects", please send me your e-mail address. All my best, Aletha Aletharedhsift (DOT) com > > Hi all .....just joined..... I was wondering if there is anyone > taking LDN and has Multiple Sclerosis. > > Thanks > Cabbie > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 just out of curriosity, what is on the 'what not to take with LDN' list? > > > > Hi all .....just joined..... I was wondering if there is anyone > > taking LDN and has Multiple Sclerosis. > > > > Thanks > > Cabbie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 Drugs To Avoid When Taking Low Dose Naltrexone http://www.webspawner.com/users/avoidthesedrugsonldn/index.html > > just out of curriosity, what is on the 'what not to take with LDN' > list? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 I would like a copy of the What Not To Take while on LDN-Thanks so much... Sandie-Going To Be a MS survivor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 Eek!! Cabbie wrote that post on Aug 21, 2003!! They are one of the longest term members on here!! wittmann.aletha wrote: > Dear Cabbie, > > Welcome aboard. > > If you would like me to send you a copy of the " welcome e-mail " and > copies of " what not to take with LDN " and " possible side effects " , > please send me your e-mail address. > > All my best, Aletha Aletha@... > > > > >> Hi all .....just joined..... I was wondering if there is anyone >> taking LDN and has Multiple Sclerosis. >> >> Thanks >> Cabbie >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 I have read that LDN is being used to treat Melanoma. Has anyone else heard this and is anyone using LDN now to treat melanoma? Rusty From: low dose naltrexone [low dose naltrexone ] On Behalf Of angelauztaz [angelauztaz@...] Sent: Thursday, October 16, 2008 5:15 PM low dose naltrexone Subject: [low dose naltrexone] Re: MS and LDN Lee I take LDN for MS too, its now been 10 months for me. Stay on 3mg for at least a month and when you up to 4.5mg if you get an increase in muscle spasms and ot spacticity go back down to 3mg. SOME MS people need to stay on 3mg due to muscle issues and spacticity. I can't answer you question re the pharmacy. I stuck with a pharmacy that was on the list and proven to make LDN correctly. If you have any douts about your script change to Skipps pharmacy who really knows how to make LDN. Sal > From: Mark <jarheaddad56@...> > Subject: Re: [low dose naltrexone] Re: MS and LDN > low dose naltrexone > Date: Wednesday, October 15, 2008, 10:39 AM > > > > > > > > > > > > I too take LDN in my battle with Multiple Sclerosis, unfortunately a lot of people get turned off just by the word 'NALTREXONE' and then research it and find out that it is used specifically for people who are addicted to Heroin! Stupidity reigns regardless of your station in life > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 look at this video http://www.curenaturalicancro.com/video-drsimoncini-cancer- convention-2008.html > > From: Mark <jarheaddad56@> > > Subject: Re: [low dose naltrexone] Re: MS and LDN > > low dose naltrexone <mailto:low dose naltrexone% 40> > > Date: Wednesday, October 15, 2008, 10:39 AM > > > > > > > > > > > > > > > > > > > > > > > > I too take LDN in my battle with Multiple Sclerosis, > unfortunately a lot of people get turned off just by the > word 'NALTREXONE' and then research it and find out that it is used > specifically for people who are addicted to Heroin! Stupidity reigns > regardless of your station in life > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 www.skipspharmacy.com Ingrid Re: [low dose naltrexone] Re: MS and LDN> low dose naltrexone > Date: Wednesday, October 15, 2008, 10:39 AM> > > > > > > > > > > > I too take LDN in my battle with Multiple Sclerosis, unfortunately a lot of people get turned off just by the word 'NALTREXONE' and then research it and find out that it is used specifically for people who are addicted to Heroin! Stupidity reigns regardless of your station in life>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 I am on ldn and love all the information but its just too much and too overwhelming! I had 200 emails this morning! I have tried to unsubscribe several times. Does anyone know how to get me off the list. Bokos National Ladder & Scaffold Co. Ph# (248) 399-0984 Fax (248) 546-4169 " Beware of false prophets, which come to you in sheep's clothing, but inwardly they are ravening wolves. " From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Gunn Dybfest Sent: Monday, October 20, 2008 7:44 AM low dose naltrexone Subject: Re: [low dose naltrexone] Re: MS and LDN www.skipspharmacy.com Ingrid Re: [low dose naltrexone] Re: MS and LDN > low dose naltrexone > Date: Wednesday, October 15, 2008, 10:39 AM > > > > > > > > > > > > I too take LDN in my battle with Multiple Sclerosis, unfortunately a lot of people get turned off just by the word 'NALTREXONE' and then research it and find out that it is used specifically for people who are addicted to Heroin! Stupidity reigns regardless of your station in life > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 Hi , You don't have to unsubscribe to stop all the emails. Just log on to the group website and edit your membership. You can set it so that you don't get emails. Then you are still a member and can log on anytime you want but can ignore the postings when you're too busy. HTH! Betty > > From: Mark <jarheaddad56@> > > Subject: Re: [low dose naltrexone] Re: MS and LDN > > low dose naltrexone > > Date: Wednesday, October 15, 2008, 10:39 AM > > > > > > > > > > > > > > > > > > > > > > > > I too take LDN in my battle with Multiple Sclerosis, > unfortunately a lot of people get turned off just by the > word 'NALTREXONE' and then research it and find out that it is used > specifically for people who are addicted to Heroin! Stupidity reigns > regardless of your station in life > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 this is an excellent way to stop anyone from MAILING SOMETHING TO YOU via or you can do like I do which is to look at your incoming messages and see who the sender and is and a short blurb of the message is and then just hit your delete key! Quote Link to comment Share on other sites More sharing options...
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