Re: Another question on LDN

[Guest guest]

You may be having a reaction to the filler used in the pill. Ask the

pharmacy to see what they used. I am using avicel and its all good

Troninsworld45

>

> Has any other members experienced a bad reaction to LDN. I tried both

> 1.5 mg & as little as 750 mg. Both made me extremely tired, dry mouth,

> jittery, anxious, brain in a fog, unable to sleep with the 1.5 mg

> dose. The symptoms were bad enough that I could not stay on it. Other

> than trying another compound pharmacy I do not know what to do other

> than just stay off of LDN.

>

[Guest guest]

These early symptoms are not unusual, they generally fade away as your

body adjusts.

You may want to get your yeast load evaluated. Yeast may be

contributing to the adverse reactions.

[Guest guest]

wouldnt yeast be helped by ldn? Do you know why it causes adverse

reactions? I know I do have some yeast going on, and I was wondering

why I had a much more severe reaction to the LDN this time. (I had

started it before but stopped it cause of the joint pain.) Could that

be why?

>

>

> These early symptoms are not unusual, they generally fade away as

your

> body adjusts.

>

> You may want to get your yeast load evaluated. Yeast may be

> contributing to the adverse reactions.

>

[Guest guest]

Angie, I am not a doctor but when someone comes on and says LDN caused

them joint pain, a red flag goes up. I have seen a few people

diagnosed MS start LDN and suddenly complain of noticeable joint

pain. Some have tested positive for Lyme Disease via IGeneX Lab, Fry

Lab in Arizona, Central Florida Lab(Formerly Bowen) or a live blood

analysis via a Bradford Variable Projection Microscope.

If it were me, I'd get yeast load evaluated and test for possible lyme

disease. I've witnessed some diagnosed with multiple conditions. I'm

not saying you have lyme but it sure wouldn't hurt to get evaluated.

One child Dr. McCandless had in her trial was one of mystery. Dr.

McCandless could not figure why this child was having such a horrible

time with being on LDN and coming off LDN. I believe she consulted

with every professional she could and even shot it to some lay people,

including myself for possible suggestions. Well, Lyme disease was

finally detected and the mystery was solved. I give Dr. McCandless

credit for not throwing in the towel on that case. Her patience and

persistence paid off. I wish all doctors were this way, our health

would be much better.

Angie, never give up on yourself and don't allow any doctor to give up

on you either, if they do, fire them and search for one who will work

with you and not give up, one with an open mind and will ask other

professional's opinions if he/she dose not know the answer. This is

what I have in my doctor.

All I offer are suggestions and possibilities you may want to look

into. BTW, what is your diet like? Even foods you eat may conflict

with LDN.

[Guest guest]

I'm currently pursuing Lyme diagnosis and treatment. Totally my

opinion, none of the Lyme tests are totally accurate. I've read where

people give blood samples 6 times or more looking for a diagnosis.

When I worked for big pharma, doing multiple tests like this is called

" testing into compliance " . The same test is repeated time after time

until the desired answer is reached. The FDA nearly shut down a large

pharma company in Kansas for " testing into compliance " . This is

generally regarded as " a bad thing " .

According to Central Florida Research personnel, they are no part or

ever have been part of Bowen Labs.

Lyme Disease is a clinical diagnosis. Lyme disease has a " cottage

industry " component. Any old MD can hang a Lyme shingle in front of

the office. When interviewing the Lyme Literate Medical Doctor (LLMD)

ask how long the doc has been getting patients into remission. Ask

what type of treatments they use. IV antibiotics are a slim breath

from death. Personally, I'd avoid the IV antibiotics. Another caution

sign to look for is an MD that prescribes copious quantities of

supplements then conveniently sells those supplements.

One of the Lyme boards I surfed in Michigan seemed to have many people

on IV antibiotics. Scared me. Personally, I'd gravitate towards the

east coast to hire a LLMD. Lyme disease is named after the town Lyme

Connecticut. They've had more time to work with the disease.

I also firmly agree in hiring new docs as necessary. It seems that

each physician has a built in " flow-chart " . The flow chart specifies

symptoms-diagnosis then treatment. For example " if runny nose -- then

2 aspirin and call in the morning " . As soon as we step outside of

their flow-chart they are lost and so are we.

My Lyme tests are in my MySpace profile " pics " section. Look for the

blue circles.

http://www.myspace.com/alrightguy123

>

>

> Angie, I am not a doctor but when someone comes on and says LDN caused

> them joint pain, a red flag goes up. I have seen a few people

> diagnosed MS start LDN and suddenly complain of noticeable joint

> pain. Some have tested positive for Lyme Disease via IGeneX Lab, Fry

> Lab in Arizona, Central Florida Lab(Formerly Bowen) or a live blood

> analysis via a Bradford Variable Projection Microscope.

>

>

>

> Angie, never give up on yourself and don't allow any doctor to give up

> on you either, if they do, fire them and search for one who will work

> with you and not give up, one with an open mind and will ask other

> professional's opinions if he/she dose not know the answer. This is

> what I have in my doctor.

[Guest guest]

Hi ,

Thanks for your encouragement. I do have lyme, and I do have candida

along with viruses. But I thought that was the point of the LDN - to

modulate the immune system so that you can fight infection.

I've been told there are many using it as a part of their strategy

with lyme and I'm sure many folks using steroids and antibiotics are

dealing with candida - so I'm encouraged to keep at it. I would guess

that once your immune system kicks in you're fighting these

infections and it may not feel good. Am I understanding that

correctly?

Or is there something wrong with being on LDN with these infections?

From what I think I understand about LDN, it can help you defeat

things like chronic chronic infections by supporting the immune

system, but am I understanding that what's being said is that those

with lyme and candida should NOT be on LDN?

Also, what did you mean that some foods conflict with LDN. I'd never

seen that and I'd sure appreciate any insight you can offer.

Thanks! Angie

>

>

> Angie, I am not a doctor but when someone comes on and says LDN

caused

> them joint pain, a red flag goes up. I have seen a few people

> diagnosed MS start LDN and suddenly complain of noticeable joint

> pain. Some have tested positive for Lyme Disease via IGeneX Lab,

Fry

> Lab in Arizona, Central Florida Lab(Formerly Bowen) or a live blood

> analysis via a Bradford Variable Projection Microscope.

>

> If it were me, I'd get yeast load evaluated and test for possible

lyme

> disease. I've witnessed some diagnosed with multiple conditions.

I'm

> not saying you have lyme but it sure wouldn't hurt to get evaluated.

>

> One child Dr. McCandless had in her trial was one of mystery. Dr.

> McCandless could not figure why this child was having such a

horrible

> time with being on LDN and coming off LDN. I believe she consulted

> with every professional she could and even shot it to some lay

people,

> including myself for possible suggestions. Well, Lyme disease was

> finally detected and the mystery was solved. I give Dr. McCandless

> credit for not throwing in the towel on that case. Her patience

and

> persistence paid off. I wish all doctors were this way, our health

> would be much better.

>

> Angie, never give up on yourself and don't allow any doctor to give

up

> on you either, if they do, fire them and search for one who will

work

> with you and not give up, one with an open mind and will ask other

> professional's opinions if he/she dose not know the answer. This

is

> what I have in my doctor.

>

> All I offer are suggestions and possibilities you may want to look

> into. BTW, what is your diet like? Even foods you eat may

conflict

> with LDN.

>

>

>

[Guest guest]

I've been entirely unable to find a doc that's willing to treat

without antibiotics and knows what he/she is doing. I'd be willing to

travel if there was someone who really was getting people well. If

you know of anyone I'd be grateful if you would share your resource.

> >

> >

> > Angie, I am not a doctor but when someone comes on and says LDN

caused

> > them joint pain, a red flag goes up. I have seen a few people

> > diagnosed MS start LDN and suddenly complain of noticeable joint

> > pain. Some have tested positive for Lyme Disease via IGeneX Lab,

Fry

> > Lab in Arizona, Central Florida Lab(Formerly Bowen) or a live

blood

> > analysis via a Bradford Variable Projection Microscope.

> >

> >

> >

> > Angie, never give up on yourself and don't allow any doctor to

give up

> > on you either, if they do, fire them and search for one who will

work

> > with you and not give up, one with an open mind and will ask

other

> > professional's opinions if he/she dose not know the answer. This

is

> > what I have in my doctor.

>

[Guest guest]

While you wait for to answer you, spend some time reading her

excellent LDN website:

http://ldn.proboards3.com/index.cgi

Art

--

>

> Hi ,

>

> Thanks for your encouragement. I do have lyme, and I do have

candida

> along with viruses. But I thought that was the point of the LDN -

to

> modulate the immune system so that you can fight infection.

>

> I've been told there are many using it as a part of their strategy

> with lyme and I'm sure many folks using steroids and antibiotics

are

> dealing with candida - so I'm encouraged to keep at it. I would

guess

> that once your immune system kicks in you're fighting these

> infections and it may not feel good. Am I understanding that

> correctly?

>

> Or is there something wrong with being on LDN with these

infections?

> From what I think I understand about LDN, it can help you defeat

> things like chronic chronic infections by supporting the immune

> system, but am I understanding that what's being said is that those

> with lyme and candida should NOT be on LDN?

>

> Also, what did you mean that some foods conflict with LDN. I'd

never

> seen that and I'd sure appreciate any insight you can offer.

>

> Thanks! Angie

>

[Guest guest]

for " grball628 "

I tend to doubt if you'd be able to find a LLMD that will treat

without antibiotics. The International Lyme and Associated Diseases "

organization may be of some help.

http://www.ilads.org/

My opinion - avoid the infectious disease organization. The

Connecticut attorney general recently won a law suit against them

claiming conflicts of interest.

Some state also have their own private Lyme organizations.

For example

Lifelyme of Texas

www.lifelyme.org

Minnesota also has a Lyme organization of some sort.

Mileage may vary

> > >

> > >

> > > Angie, I am not a doctor but when someone comes on and says LDN

> caused

> > > them joint pain, a red flag goes up. I have seen a few people

> > > diagnosed MS start LDN and suddenly complain of noticeable joint

> > > pain. Some have tested positive for Lyme Disease via IGeneX Lab,

> Fry

> > > Lab in Arizona, Central Florida Lab(Formerly Bowen) or a live

> blood

> > > analysis via a Bradford Variable Projection Microscope.

> > >

> > >

> > >

> > > Angie, never give up on yourself and don't allow any doctor to

> give up

> > > on you either, if they do, fire them and search for one who will

> work

> > > with you and not give up, one with an open mind and will ask

> other

> > > professional's opinions if he/she dose not know the answer. This

> is

> > > what I have in my doctor.

> >

>

[Guest guest]

http://www.cornerstoneprogressivehealth.com/ treats Lymes without

antibiotics. I don't have lymes so not sure how well they do. You

could call them and ask. I know one thing they use is Cats Claw.

> > > >

> > > >

> > > > Angie, I am not a doctor but when someone comes on and says

LDN

> > caused

> > > > them joint pain, a red flag goes up. I have seen a few

people

> > > > diagnosed MS start LDN and suddenly complain of noticeable

joint

> > > > pain. Some have tested positive for Lyme Disease via IGeneX

Lab,

> > Fry

> > > > Lab in Arizona, Central Florida Lab(Formerly Bowen) or a live

> > blood

> > > > analysis via a Bradford Variable Projection Microscope.

> > > >

> > > >

> > > >

> > > > Angie, never give up on yourself and don't allow any doctor

to

> > give up

> > > > on you either, if they do, fire them and search for one who

will

> > work

> > > > with you and not give up, one with an open mind and will ask

> > other

> > > > professional's opinions if he/she dose not know the answer.

This

> > is

> > > > what I have in my doctor.

> > >

> >

>

[Guest guest]

>

> According to Central Florida Research personnel, they are no part or

> ever have been part of Bowen Labs.

========

I thought someone posted here or on one of the LDN forums that Central

Florida bought out Bowen.

Guess not.

[Guest guest]

LDN plays a limited role with lyme. One must treat the lyme while on

LDN. One must treat candida yeast, LDN cannot rid body of candida

yeast. LDN keeps the lyme patient's immune system boosted.

I will try to find Dr. McCandless' info on exogenous(sp?) opioids,

diet, LDN and such.

[Guest guest]

No - you were correct - they can be found here:

http://centralfloridaresearch.com/lab2/

> >

> > According to Central Florida Research personnel, they are no part or

> > ever have been part of Bowen Labs.

> ========

>

> I thought someone posted here or on one of the LDN forums that

Central

> Florida bought out Bowen.

>

> Guess not.

>

>

>

[Guest guest]

--- How much did the tests from Igenex cost? Which ones did you have

done. I just recieved my testing kit but Im not sure which one or

ones to order.

Amber

In low dose naltrexone , " alrightguy123 "

<alrightguy123@...> wrote:

>

> I'm currently pursuing Lyme diagnosis and treatment. Totally my

> opinion, none of the Lyme tests are totally accurate. I've read

where

> people give blood samples 6 times or more looking for a diagnosis.

>

> When I worked for big pharma, doing multiple tests like this is

called

> " testing into compliance " . The same test is repeated time after

time

> until the desired answer is reached. The FDA nearly shut down a

large

> pharma company in Kansas for " testing into compliance " . This is

> generally regarded as " a bad thing " .

>

> According to Central Florida Research personnel, they are no part or

> ever have been part of Bowen Labs.

>

> Lyme Disease is a clinical diagnosis. Lyme disease has a " cottage

> industry " component. Any old MD can hang a Lyme shingle in front of

> the office. When interviewing the Lyme Literate Medical Doctor

(LLMD)

> ask how long the doc has been getting patients into remission. Ask

> what type of treatments they use. IV antibiotics are a slim breath

> from death. Personally, I'd avoid the IV antibiotics. Another

caution

> sign to look for is an MD that prescribes copious quantities of

> supplements then conveniently sells those supplements.

>

> One of the Lyme boards I surfed in Michigan seemed to have many

people

> on IV antibiotics. Scared me. Personally, I'd gravitate towards

the

> east coast to hire a LLMD. Lyme disease is named after the town Lyme

> Connecticut. They've had more time to work with the disease.

>

> I also firmly agree in hiring new docs as necessary. It seems that

> each physician has a built in " flow-chart " . The flow chart

specifies

> symptoms-diagnosis then treatment. For example " if runny nose --

then

> 2 aspirin and call in the morning " . As soon as we step outside of

> their flow-chart they are lost and so are we.

>

> My Lyme tests are in my MySpace profile " pics " section. Look for

the

> blue circles.

>

> http://www.myspace.com/alrightguy123

>

>

> >

> >

> > Angie, I am not a doctor but when someone comes on and says LDN

caused

> > them joint pain, a red flag goes up. I have seen a few people

> > diagnosed MS start LDN and suddenly complain of noticeable joint

> > pain. Some have tested positive for Lyme Disease via IGeneX Lab,

Fry

> > Lab in Arizona, Central Florida Lab(Formerly Bowen) or a live

blood

> > analysis via a Bradford Variable Projection Microscope.

> >

> >

> >

> > Angie, never give up on yourself and don't allow any doctor to

give up

> > on you either, if they do, fire them and search for one who will

work

> > with you and not give up, one with an open mind and will ask

other

> > professional's opinions if he/she dose not know the answer. This

is

> > what I have in my doctor.

>

[Guest guest]

Hi,

it's a pity it doesn't work,

what do you take it for, do you have MS?

Do you know that you can use Melatonin to get the sleep on track?

I was also extremely tired the first months, I needed sometimes 2 naps

during a day, and I went to bed before my grandkids :-) and they are small kids!

Couldn't wait til 9 pm to go to sleep, at 8 in the night I was exhausted,

had no energy left. But do you know what? Now, after 7 months I don't even need

a nap anymore, this is something new, naps has been extremely required the last

5 years of my Crohns life.

Dry mouth - had that for a while. Started to use some sweet candies and drink water

while sitting and writing here almost each night.

My disease has made me feel like in a fog, extremely tired, dry mouth, fever every day,

pain, and so on, so...some of the symptoms may often come from the disease it self.

Another thing, did you know that many of us need to change pharmacy to get another filler,

we are allergic or there is the lactose in the pills making people feel worse. Consider it.

Good luck!

:-)

Ingrid

[low dose naltrexone] Another question on LDNHas any other members experienced a bad reaction to LDN. I tried both 1.5 mg & as little as 750 mg. Both made me extremely tired, dry mouth, jittery, anxious, brain in a fog, unable to sleep with the 1.5 mg dose. The symptoms were bad enough that I could not stay on it. Other than trying another compound pharmacy I do not know what to do other than just stay off of LDN. ------------------------------------