Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 I was diagnosed in 93 after I was numb from my neck down. Went on steroids and it went away. I have had few relapses since, the last being 3 yrs ago, before that 7! This last time in April, I got new MRIs and dr. strongly suggesting I start interferons. I have read about them, am very active-not to mention, very lucky I know. I have only had tingling, numbness, and a little weakness/fatigue, but nothing serious. I have heard the 1st 5 years is a good indication of how bad you will get?? Anyway, just heard of LDNs from MS website. Why does dr. not metion it? Will it be hard to get him to prescribe? Would much rather do this than all the needles and side effects! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Hi Swaphl If your doctor has not heard about LDN, you might want to gather whatever solid information you can get (lots of good sites for that) print some of it out and take it to your doctor, ask him to read and consider prescribing. I did this with my neurologist, told him I'd been on the interferons previously (new doc for me), hated the side effects, did not want to go on them again, but would be happy to try LDN. He looked over the information. He said he could not recommend LDN as a treatment due to lack of proper peer reviewed, scientific study results. However, he said LDN could do me no harm, and if I wanted to try it and report back to him on my progress with it, he'd prescribe it! I've been on LDN 3 months now (have had Relapsing/remitting MS for 27 years) and I am feeling better than I have felt in MANY years! Most encouraging improvement has been in bladder control, which was one problem that seemed to stick with me even in strong remissions. I can last 3 hours or more without needing to urinate. My sleep is much better as I'm not up several times a night. I'm no longer fighting extreme fatigue in the afternoon and have more energy. Doctor just wrote another prescription for me at my request after giving him a progress update. I intend to continue on LDN and hope that my improvements continue/last. Best of luck to you! > > I was diagnosed in 93 after I was numb from my neck down. Went on > steroids and it went away. I have had few relapses since, the last > being 3 yrs ago, before that 7! This last time in April, I got new > MRIs and dr. strongly suggesting I start interferons. I have read > about them, am very active-not to mention, very lucky I know. I have > only had tingling, numbness, and a little weakness/fatigue, but nothing > serious. I have heard the 1st 5 years is a good indication of how bad > you will get?? Anyway, just heard of LDNs from MS website. Why does > dr. not metion it? Will it be hard to get him to prescribe? Would > much rather do this than all the needles and side effects! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Hi Swaphl, When I was diagnosed 8 mos. ago, my neuro never mentioned LDN, either. I found out about it on my own, as I was researching on the internet and finding out about all the side-effects the CRAB drugs don't tell you about in their information folders. When I called my neuro back to ask her about LDN, she got PISSED and told me that if I didn't want to take one of the drugs she had recommended, then I should find another doctor. So I did. I now see a neuro/MS specialist who is about an hour away and he is FABULOUS! Absolutely love him. He listens, talks, advises and lets me take the information he gives me and make my own decision. That's the way it should be, as far as I'm concerned. My advice: Educate yourself as well as you can about LDN BEFORE you go to your doctor with a question about whether he'll prescribe it for you. If you really want to try LDN and he refuses to prescribe it for you, then you have to make a choice to either go against your own wishes or find yourself a doctor who will work WITH you. If you end up doing the latter, Crystal (one of the group members here) maintains a list of doctors known to prescribe LDN all over the U.S. She is how I found my doctor. You have a right to participate in your healthcare decisions. Be well- informed and do what feels right to you. There are all kinds of people here who are willing to help in any way they can. Take them up on it. > > I was diagnosed in 93 after I was numb from my neck down. Went on > steroids and it went away. I have had few relapses since, the last > being 3 yrs ago, before that 7! This last time in April, I got new > MRIs and dr. strongly suggesting I start interferons. I have read > about them, am very active-not to mention, very lucky I know. I have > only had tingling, numbness, and a little weakness/fatigue, but nothing > serious. I have heard the 1st 5 years is a good indication of how bad > you will get?? Anyway, just heard of LDNs from MS website. Why does > dr. not metion it? Will it be hard to get him to prescribe? Would > much rather do this than all the needles and side effects! > Quote Link to comment Share on other sites More sharing options...
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