LDN AND MS

[Guest guest]

What I did to get a pres. from my GP was to print an article written by a

neuro. on ldn.org.

This was enough to get this. Then you have to find a compounding pharmacy to

fill it & it takes a few days. Cost is only about $30./month.

[Guest guest]

i have just posted this question and got several answers,but

considering that here in italy speaking about ldn means getting always

the same information:it is for symptoms in ppms,i post again the

question:

was i wright when reading about ldn i understood it is to slow

progression in rr and spms,and could also be taken in ppms due to its

hight capacity in symptom reduction?

please forgive this question but i had a chat with my neurologist that

is one of the italian ldn trial performer,and even if he knows i'm now

on ldn from 7 months,he continues to tell me that it is mainly for

ppms and mine is a spms.

does someone know what was the results presentation (in chicago) that

italian coordinator dr gironi gave last week and if she spoke about a

second trial on rr-sp ms.

any information will be very appreciated

my best

emiliano

[Guest guest]

Hi

Glad to see you have joined the

group.

Many others have described similar

symptoms, so hopefully some of them will reply.

The advice from the more experienced

users tends to be, to tough it out, as it is early days yet, and in the

meantime not to increase past 3mg.

Also keep Dr. Boyle advised of your

progress.

Aletha, as

is a new member, can you send her your welcome email, and do you have any saved

emails on initial stiffness after starting LDN?

Thanks.

Tommy

Posted by:

" Kerr " amandakerr1403@...

amandakerr1403

Fri May 9, 2008 3:10 am (PDT)

Hi everyone,

Here is my story- diagnosed in march 2007 with MS (remitting and

relapsing). My mobility has gradually got worse. Got married

there in march 2008 and want to stop this disease getting worse

or progressing further. Recently discovered LDN from a friend and

discussed it with Dr. Phil Boyle in Galway Clinic Ireland who

prescribed it for me. Started on 2mg on the 21st April for ten

days then increasing to 3mg for 10 days and then up to the best

dose of 4.5mg. Currently still on 3mg but feel worse can

virtually not walk at all now, even standing is a problem, legs

like pokers,stiffness,balance not good and dizziness

increased.Also taken a York Test to eliminate certain foods from

my diet and taking extra vitamins. Can anyone tell me how long

this will happen and when will i begin to notice a difference. It

is really getting me down and need to hear from someone else who

has experienced this.

[Guest guest]

Thanks Tommy,

They are on there way

Aletha

[low dose naltrexone] Re:LDN and MS

Hi

Glad to see you have joined the group.

Many others have described similar symptoms, so hopefully some of them will reply.

The advice from the more experienced users tends to be, to tough it out, as it is early days yet, and in the meantime not to increase past 3mg.

Also keep Dr. Boyle advised of your progress.

Aletha, as is a new member, can you send her your welcome email, and do you have any saved emails on initial stiffness after starting LDN?

Thanks.

Tommy

Posted by: " Kerr" amandakerr1403 amandakerr1403

Fri May 9, 2008 3:10 am (PDT)

Hi everyone,Here is my story- diagnosed in march 2007 with MS (remitting andrelapsing). My mobility has gradually got worse. Got marriedthere in march 2008 and want to stop this disease getting worseor progressing further. Recently discovered LDN from a friend anddiscussed it with Dr. Phil Boyle in Galway Clinic Ireland whoprescribed it for me. Started on 2mg on the 21st April for tendays then increasing to 3mg for 10 days and then up to the bestdose of 4.5mg. Currently still on 3mg but feel worse canvirtually not walk at all now, even standing is a problem, legslike pokers,stiffness,balance not good and dizzinessincreased.Also taken a York Test to eliminate certain foods frommy diet and taking extra vitamins. Can anyone tell me how longthis will happen and when will i begin to notice a difference. Itis really getting me down and need to hear from someone else whohas experienced this.