Re: My questions

[Guest guest]

Hi

i can't help you out with the hearing aid question .... i never used one

but as far as aural rehab ..... before i received my CI no one ever mentioned

this to me once i was hooked up i just thought it was up to me to learn

how to hear with my CI i did work hard at it too i listened to

children's CD stories

so many times ... listened to audio books too whenever i talked with

someone i would work at picking up sounds for each word i tried to get my

kids to help out by repeating words ... but this was short lived it

became boring for them very quickly it was only after 5 months having my

CI i

learned there was some kind of help ... turned out to be aural rehab

when i went ... finally ... it's wasn't exactly aural rehab for CI it was

more like speech therapy i didn't continue after 3 times but on my

own i did very well enough so now i understand most anyone plus use the

phone

before i had my CI i never really talked to anyone about how much time will

it take to get back to normal i had surgery on a friday and by the next

wednesday i was driving at that time i was still a little off balance

and i was somewhat tired but i did go back to work resume my regular

day

later i found out that most people take a couple of weeks to adjust a

smart thing to do each person reacts differently to this surgery

so the time factor is individual

good luck

susan

[Guest guest]

Hi ,

I needed more time than many others to recover from my surgery - about 4

days minimum. I think I had a different kind of anesthetic cocktail than

others did. After 10 days I felt totally myself again.

Many/most? audies do recommend that we try not u-to use the HA in the

other ear so that our brains get the maximum workout from the CI. But that is a

recommendation and you can do what you feel most comfortable doing. Try to

keep an open mind until you actually need to make the decision.

I did not bother with aural rehab; I let the sounds come to me and boy

did they!! Many people find it extremely helpful but certainly using books on

tape and ESL labs on the internet and 800 # recordings can work just fine.

N24C

2000

[Guest guest]

Welcome to the forum . I can't help you with the first concern since I

had both ears done at the same time.

I used audio tapes, radio, TV, phone, music, and any family member that would

take the time to work with me.

I had surgery on Monday and drove on Saturday for a short distance. I waited

until one week after hookup (5 weeks after surgery) before going back to work

since I was 100% deaf after having bilateral surgery and was afraid I couldn't

communicate. My bosses were for the implants and I didn't have a problem taking

off as long as I needed. They have been very understanding and mapping time has

never been a problem either. I think they are happier that I can hear because it

is dangerous when you can't hear a buggy of metal being moved or a horn.

Sharon Myers

Bilateral N24C 3G

" H. " <rtstein@...> wrote:

I have three main concerns right now:

First, I once read or heard that some audiologists want people not to

have their hearing aid on in the non-implanted ear while adjusting to

the implant. Is this true? I would be willing to turn the aid off

briefly for aural rehabilitation sessions, but would not be willing to

leave it off for long periods. This would disrupt my life too much, and

my reasoning is that I would be using both the implant and aid in

day-to-day situations anyway.

My second question is how necessary is person-to-person aural

rehabilitation? I would be willing to work hard with audio books, tv,

and toll free hotlines and such, but person-to-person could be a

problem. I moved about 300 miles from my hometown about a year ago.

All my family and couple of friends are on the other side of the state!

I don’t really have anyone here that I could work with in person

everyday, though I may be able to work around this by getting in touch

with other CI users in the area. I am hoping the training I could do on

my own along with “trial by fire” day-to-day activity at work would be

enough for me. I have read that needs vary in this area. I have been

oral my entire life and went through mainstream schools (salutatorian of

my high school class 1996, graduated from Wake Forest U. with a 4.0 GPA

in 2000). I think my auditory nerves should be in good shape, since I

have been using aids since I was 5. Also, the nearest high quality

implant center to me is about 2 ½ to 3 hours away.

Finally, (and I know this probably varies) but I wondering how soon I

could expect to resume my normal routine after surgery—specifically with

regards to driving and returning to work. I am hoping only a few days.

I don’t have a lot of leave time since I’ve only been there about a

year, and I have responsibilities that I am specifically suited for and

don’t want to away from for very long. I do have some leeway with flex

scheduling. When I mentioned some issues to my supervisor, she said she

didn’t think it would a problem to work Saturdays sometimes, so I could

go in for follow-up visits for mappings, etc. during the week.

(Fortunately, my supervisor is a wonderful, caring lady who has done

what she can to help with my hearing issues.)

I value any input anyone care give.

Thanks,

H.

North Carolina

Beginning implant research

[Guest guest]

Hi Buffy,

I'm not sure if this applies to you, but I know of a man in my town

that is missing bones in his legs. This was due to some medications

that his mother was precribed to her while she was pregnant with

him. Due to this drug it did not allow him to have an average body.

I am not sure what type of a drug it was, but they had to

discontinue this drug because it was causing deformities in many

babies.

Was there any chance that your mother had taken some type of a

medication while she was pregnant with you? There are over 200 types

of dwarfism out there, and there are unknown types as well. But

there are other causes out there also. You may want to see a genetic

therapist to see if it's in the genes or a result of drugs.

a

>

> When I posted my question about someone helping me find out what

type

> of dwarfism I might have I did get a few responses and thank you.

I

> still don't know what it could be. This depresses me not knowing

what

> type i have and if my deformation of my arms/hands has anything to

do

> with it. I'm 35 yrs old and if I'd been to the proper DRs I prolly

> would know by now but growing up below poverty level being raised

by my

> greatgrandmother and teen aunt didn't help. It bothers me because

I

> know that there are health issues with different types and the

older

> one gets the more issues come up. Most DRs I've seen have pretty

much

> rudely asked " what are you " ? I say " if I knew I wouldn't be

sitting

> here on this cold table would I " ? Because of the missing bones

(each

> arm missing the opposit bone) most are amazed how how well I can

> function. Does anyone know of a DR that might be interested in

helping

> me? If so please let me know.

> Than you in advance,

> Buffy

>

[Guest guest]

At 06:46 PM 3/9/2006, you wrote:

>Thank you to Steve, Marcia, & phine for taking time to answer my

>questions. (Marcia, I will do those searches soon.)

>

>Another question regarding Steve's reply about freezing colognes.

>Wouldn't freezing and thawing change the chemical character of the

>oils? Also, what is the shelf life of a natural perfume,

>particularly those with a lot of citrus?

No, , freezing and filtering is the norm in the industry. Any

perfume, including those with citrus, AFAIK, are preserved due to the

alcohol. Arctander recommends protecting some EOs and abs that can go " off "

by storing them diluted in alcohol. Same principle.

>Another question I have is: A while back I bought some crude amber

>oil. It smells a lot like petroleum. How can Iget rid of that smell

>without destroying the oil? I have actually used it in a blend, and

>the smell changes with time. Is that how to do it?

You may have a synthetic oil, and it can't be salvaged. Don't know if the

scent evolution is due to the " amber " or something else. I'd toss anything

iffy.

>

Anya

http://.com

The premier site on the Web to discover the beauty of Natural Perfume

/

Join to study natural perfumery

[Guest guest]

>

> 1> Any investigations before the commencement of theraphy?

***please read the LDN website at http://www.ldninfo.org And

especially read the Further Q and A page on the LDN website.

> 2>Details of the dosage?

***Some are starting LDN at 1.5mg for 1 month and then going to 3.0mg

for a month and then upping to 4.5mg

> 3>How to monitor the response of the therapy?

***In about 6 to 9 months on LDN therapy you notice your illness not

getting any worse.

> 4>Can present therapy be combined with LDN?

***No steroids should be used with LDN, no interferons should be used,

no Tysabri used, no chemotherapy drugs used, no narcotic/opoiod drugs

should be used. Copaxone is the only FDA approved MS drug that can be

used with LDN.

> 5>Time between discontinuing the present medication and start of LDN?

***If you are currently on any narcotic/opioid type medications you

must be off of these medications 14 days prior to starting LDN. If on

steroids start to try to come off them, you can start LDN while still

using steroids but you my not get the full benefit of LDN. Do the

same if you are on an interferon or chemo.

> 6>Any reference of Indian Physician recommending this therapy ?

>

***I'm of no help with this question, sorry.

Answers by

[Guest guest]

Dear Bajaj,

It is not recommended to take LDN along with Avonex.

All my best

Aletha

[low dose naltrexone] My questions

Hello Everyone.Please excuse me for any errors. ( This is the firts time i am posting on the net )I Munish bajaj 26 years of age, a resident of Mumbai, India has been diagnosed with Multiple Sclerosis in February 2007.Knowing the limitations and poor prognosis of this disease,i came to know about the LDN .I have had one episode in February 2007 and the other in May 2007,in February if affected my lower limbs,had difficulty walking i.e loss of balance and couldnt lift both legs to walk,weakness and also started getting urgency of micturation.Treatment Given: 5 days Solumedrol 1gm OD.On discharge : Weakness got better ,imbalance wile walking got better and no urgency of urination.2nd Episode:Recurrent and internuclear Opthlomioplegia.This was is May 2007,it affected my vision(blurring vision,sudden onset more on left) and had body weakness.Treatment Given: 5 day on Solumedrol.On discharge:Vision was fine.Treatment now:Im on interferon Avonex since July 2007 .As there are not many physicians recommending this theraphy in this country,i have a few questions which i would like to clarify.1> Any investigations before the commencement of theraphy?2>Details of the dosage? 3>How to monitor the response of the therapy?4>Can present therapy be combined with LDN?5>Time between discontinuing the present medication and start of LDN?6>Any reference of Indian Physician recommending this therapy ?I have taken this oppurtunity to clarify my doubts,as I Personally seem to be convinced about its efficancy.Thanking You.Bajaj