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A copy of the letter to Joyce at NMSS

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Here is a copy of the letter I just emailed Joyce. I hope to see

everyone else email her too. And Crystal I will need a bunch of your

LDN t- shirts for my walk on April 26th.

Dear Joyce,

My name is Amber . I am a 30 year old mother of 5

children ages 14, 11, 8, 7, 4. I am a happily married woman of 15yrs.

I was diagnosed with MS on October 12, 2007 just 4 days after my 30th

bday.

I started my journey with steriods just like everyone else. They

did not help just made me appear 7 months pregnant.

The first neuroligist I went to was Dr. Foley in Salt Lake City Utah.

He assured me Avonex was my only choice of drug. After some research

I found out that he (Dr. Foley) was on the Avonex payroll. He was

using me to make a few ($1000.00) bucks. I then found a new

neuroligist. Dr. Watkins from Provo Utah. He discussed all my

options with me and even better he isnt on any drug companies

payroll. After reading ALOT about the different drugs for MS I

decided to go on Rebif. At $1800.00 per month this was not an easy

choice.

I must say that while I was on the titration pack things where

pretty good. No real noticeable side effects. But after the first

full strength injection things got really BAD. I have never felt so

bad in my life.

I began rapidly loosing muscle strength in my right arm and left

leg. My optic neuritis got even worse. I couldnt sleep without

sleeping meds because I was in so much pain.I had no energy. I wasnt

able to care for my children at all. The worst part is my children

sat by and watched their mother (in their words) die. They insited on

sleeping with me every night just in case I didnt wake up. For 6

weeks I cried in pain and sorrow.

I decided that no one was going to help me except me. So I began

doing research online, at the library and even with my General Doctor

and my Neuroligist. All fingers pointed to stop using the Rebif. So I

did.

Now I knew I had to get on something. After 2 weeks of research I

began reading about a drug called LDN. I first found out about it on

the Montel web page. Then I took it even farther talking

about it with everyone I could. Including Dr. Bihari himself and my

neuroligist. I was at first thrilled with the idea of a pill. NO MORE

PAINFULL INJECTIONS!!! Then my excitement was the little to no side

effects of LDN. I was hearing and reading about wonderful turn

arounds in peoples diseases, yes I said diseases (plural) not only

was it helping MS but many other immune diseases. So I got my

prescription and embarked on my LDN journey.

After just one night of LDN. I woke up feeling better than I had in

years. My energy was awsome. Even better my energy is STILL awsome.

After one week on LDN the weakness in my arm and leg GONE!! Even

better I havent had any weakness at all since starting LDN. My

depression, yep you guessed it GONE!! Even better its still gone.

After 2 weeks on LDN. I began sleeping better than I ever have in my

life!! Even better I still sleep wonderfully.

After 3 months on LDN. On March 3rd I had another MRI (at the

request of my Neuroligist). Theres no progression in my MS. Some old

lessions have actually disappeared.

All and all I feel really good!! My kids are very happy with their

momma now. I am able to get out of bed and shower, get dressed,do my

hair and make-up, make my kids breakfast, clean up the mess and send

them to school and I still have energy!! Now I do rest for about an

hour or so in the afternoon. But hey I have a teenager, I need all

the rest I can get to handle him. lol I also work at a Bingo parlor

in the evenings. I love my job!! I had to give up my job while on the

Rebif. LDN gave me my wonderful job back!! LDN gave me my life back!!

I should also mention that my husband, daughter 7yrs old, my mother

and my grandmother are all on LDN now also. They too have experienced

wonderful healing with LDN. LDN has made my mom a new person!! I love

it and more importantly my mom loves herself now.

I am just one story in a million on LDN. Hundreds of people all over

the world are experiencing these same effects with LDN. Even better

there are no drug companies pushing it on us. We CHOOSE to take LDN.

LDN comes backed with real Human stories of amazement. We are REAL

people with REAL diseases and we choose REAL help. We all know that

LDN is not a cure but it is sure keeping us around and in good health

till a cure can be found.

I am asking the NMSS to starting funding a trial for LDN in MS.

There is one in California. I am sure they would love the backing of

the NMSS. Your charity has access to research money that could really

help LDN get its FDA approval. If you are willing to set up a fund

just for LDN research and trials I am willing to raise money for

that, as will hundreds of other people. As members of the NMSS let us

decide where the money goes. Let us raise the money for the things we

have found to work. An ad filled with people on LDN would show

smiling faces, lives changed and preserved. A Rebif add is a lie. I

nevered smiled while on Rebif and neither did my family!!

Please help us put a face on LDN. Not just for MS suffers but for

everyone who needs it.

On April 26th I will be wearing a T-shirt supporting LDN. I hope

everyone there will be too.

I am a face for LDN because I dont have to learn how to LIVE with MS

but I do have to learn how to BEAT it. And LDN is bringing me one

step closer.

Amber

I included my address and phone

too.

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Amber, this is a fabulous letter. I have 5 children, and

reading your story and can very much understand what you were going through

when you were not well. I am so happy you found ldn, and I can tell you that I

feel much the same as you do. LDN has given me my life back, and my son’s

also. Let’s see what response you get from your letter, and I would love

to form a committee to raise money for a study here in Ohio. Sammy Jo, are you out there? Can you

help us and share you knowledge about how you had your fund raiser? Are you

behind the study in California?

Let’s go for it!!! Conni

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