Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 Here is a copy of the letter I just emailed Joyce. I hope to see everyone else email her too. And Crystal I will need a bunch of your LDN t- shirts for my walk on April 26th. Dear Joyce, My name is Amber . I am a 30 year old mother of 5 children ages 14, 11, 8, 7, 4. I am a happily married woman of 15yrs. I was diagnosed with MS on October 12, 2007 just 4 days after my 30th bday. I started my journey with steriods just like everyone else. They did not help just made me appear 7 months pregnant. The first neuroligist I went to was Dr. Foley in Salt Lake City Utah. He assured me Avonex was my only choice of drug. After some research I found out that he (Dr. Foley) was on the Avonex payroll. He was using me to make a few ($1000.00) bucks. I then found a new neuroligist. Dr. Watkins from Provo Utah. He discussed all my options with me and even better he isnt on any drug companies payroll. After reading ALOT about the different drugs for MS I decided to go on Rebif. At $1800.00 per month this was not an easy choice. I must say that while I was on the titration pack things where pretty good. No real noticeable side effects. But after the first full strength injection things got really BAD. I have never felt so bad in my life. I began rapidly loosing muscle strength in my right arm and left leg. My optic neuritis got even worse. I couldnt sleep without sleeping meds because I was in so much pain.I had no energy. I wasnt able to care for my children at all. The worst part is my children sat by and watched their mother (in their words) die. They insited on sleeping with me every night just in case I didnt wake up. For 6 weeks I cried in pain and sorrow. I decided that no one was going to help me except me. So I began doing research online, at the library and even with my General Doctor and my Neuroligist. All fingers pointed to stop using the Rebif. So I did. Now I knew I had to get on something. After 2 weeks of research I began reading about a drug called LDN. I first found out about it on the Montel web page. Then I took it even farther talking about it with everyone I could. Including Dr. Bihari himself and my neuroligist. I was at first thrilled with the idea of a pill. NO MORE PAINFULL INJECTIONS!!! Then my excitement was the little to no side effects of LDN. I was hearing and reading about wonderful turn arounds in peoples diseases, yes I said diseases (plural) not only was it helping MS but many other immune diseases. So I got my prescription and embarked on my LDN journey. After just one night of LDN. I woke up feeling better than I had in years. My energy was awsome. Even better my energy is STILL awsome. After one week on LDN the weakness in my arm and leg GONE!! Even better I havent had any weakness at all since starting LDN. My depression, yep you guessed it GONE!! Even better its still gone. After 2 weeks on LDN. I began sleeping better than I ever have in my life!! Even better I still sleep wonderfully. After 3 months on LDN. On March 3rd I had another MRI (at the request of my Neuroligist). Theres no progression in my MS. Some old lessions have actually disappeared. All and all I feel really good!! My kids are very happy with their momma now. I am able to get out of bed and shower, get dressed,do my hair and make-up, make my kids breakfast, clean up the mess and send them to school and I still have energy!! Now I do rest for about an hour or so in the afternoon. But hey I have a teenager, I need all the rest I can get to handle him. lol I also work at a Bingo parlor in the evenings. I love my job!! I had to give up my job while on the Rebif. LDN gave me my wonderful job back!! LDN gave me my life back!! I should also mention that my husband, daughter 7yrs old, my mother and my grandmother are all on LDN now also. They too have experienced wonderful healing with LDN. LDN has made my mom a new person!! I love it and more importantly my mom loves herself now. I am just one story in a million on LDN. Hundreds of people all over the world are experiencing these same effects with LDN. Even better there are no drug companies pushing it on us. We CHOOSE to take LDN. LDN comes backed with real Human stories of amazement. We are REAL people with REAL diseases and we choose REAL help. We all know that LDN is not a cure but it is sure keeping us around and in good health till a cure can be found. I am asking the NMSS to starting funding a trial for LDN in MS. There is one in California. I am sure they would love the backing of the NMSS. Your charity has access to research money that could really help LDN get its FDA approval. If you are willing to set up a fund just for LDN research and trials I am willing to raise money for that, as will hundreds of other people. As members of the NMSS let us decide where the money goes. Let us raise the money for the things we have found to work. An ad filled with people on LDN would show smiling faces, lives changed and preserved. A Rebif add is a lie. I nevered smiled while on Rebif and neither did my family!! Please help us put a face on LDN. Not just for MS suffers but for everyone who needs it. On April 26th I will be wearing a T-shirt supporting LDN. I hope everyone there will be too. I am a face for LDN because I dont have to learn how to LIVE with MS but I do have to learn how to BEAT it. And LDN is bringing me one step closer. Amber I included my address and phone too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Amber, this is a fabulous letter. I have 5 children, and reading your story and can very much understand what you were going through when you were not well. I am so happy you found ldn, and I can tell you that I feel much the same as you do. LDN has given me my life back, and my son’s also. Let’s see what response you get from your letter, and I would love to form a committee to raise money for a study here in Ohio. Sammy Jo, are you out there? Can you help us and share you knowledge about how you had your fund raiser? Are you behind the study in California? Let’s go for it!!! Conni Quote Link to comment Share on other sites More sharing options...
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