Re: IGeneX lab

[Guest guest]

bwentdg@... writes:

>> Could you list the info for IGNEX Labs i.e Phone and address please ?

Bw, Did IMMD test you for Lyme also ?

http://www.igenex.com/

<A HREF= " http://www.igenex.com/ " >IGeneX, Inc.</A>

[Guest guest]

Get rid of the Inf. disease Dr and find a LLMD. The INF dr are very neg

about it.

www.handsoncredit.net

www.petpeevin-singles.com

[ ] Igenex Lab

Hello!

I had an appointment with an Infectious Disease doctor today. He

said that he has never seen a Lyme test from Igenex come back negative

and was trying convince me that even though my Lyme test was positive

that doesn't mean I have Lyme Disease. Sigh. He thinks that the lab at

Mayo Clinic is the best for diagnosing Lyme Disease. It will be

interesting to see if that comes back positive. So, I was wondering

about the truth of that statement: has anyone ever had blood work from

Igenex come back negative for Lyme Disease?

(BTW, I knew going into that appointment that infectious disease

doctors aren't known for their belief in the prevalence of Lyme

Disease, but I was referred by the neurologist I went to.)

[Guest guest]

What test are you talking about with the Mayo Clinic and how would

one get that test ordered?

I would appreciate any info. And yes, I do think that many people

come back negative on Igenex. With the number of bands needed, I

did, but I also had many indeterminate bands which I am going to go

on antibiotics for 3 weeks and retest to see if those IND. bands

turn positive. In the meantime, both the IGM and IGG were labeled

negative as I didn't have enough of the right types of bands. I

know back when Bowen Lab did Lyme testing, nobody tested negative.

My LLMD said that was because it was testing for any Spirochete in

the body, not just the Lyme Spirochete.

Thanks for the Mayo Clinic Info.

>

> Get rid of the Inf. disease Dr and find a LLMD. The INF dr are

very neg

> about it.

>

[Guest guest]

I have seen lyme tests come back negative... meaning there wasnt the 5 bands to

determine positive....so it is possible

@...: emilysmail2u@...: Tue, 18 Dec 2007

23:22:50 +0000Subject: [ ] Igenex Lab

Hello!I had an appointment with an Infectious Disease doctor today. He said that

he has never seen a Lyme test from Igenex come back negative and was trying

convince me that even though my Lyme test was positive that doesn't mean I have

Lyme Disease. Sigh. He thinks that the lab at Mayo Clinic is the best for

diagnosing Lyme Disease. It will be interesting to see if that comes back

positive. So, I was wondering about the truth of that statement: has anyone ever

had blood work from Igenex come back negative for Lyme Disease? (BTW, I knew

going into that appointment that infectious disease doctors aren't known for

their belief in the prevalence of Lyme Disease, but I was referred by the

neurologist I went to.)

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[Guest guest]

answer to your question, my husbands and my sons first tests from igenex (who

both do have lyme and have since gotten positives) both came back negative the

first time. Only after getting clinically diagnosed and starting on abxs, and

retesting did they come back positive. So, there are two cases of people who def

have lyme receiving negatives from igenex. My husbands infectious disease doctor

while holding my husbands positive lyme test in his hand also told us he didnt

have lyme. Dont get me started on infectious disease doctors. ugh!

fsmfarms <fsmfarms@...> wrote: Get rid of the Inf. disease Dr

and find a LLMD. The INF dr are very neg

about it.

[Guest guest]

Yes the Igenex test comes back positive all the time, because it is the most

accurate test and people really do have Lyme. Duh!!! Suppose he has not

heard about the Lyme epidemic (even Oprah knows. lol)

Well I would not despair over Mayo clinic " s test, at leat it is a research

hospital. i would have been concerned if your doctor would just order any

generic Lyme test at any unknown lab. Hang in there.

Dagmar

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

emily. hi. your infection disease doctor is wrong--it's a myth staeted by IDSA.

a friend of mine (i know her in person--not internet) thought/thinks she has

lyme. she had FOUR igenex western blots--came back with only two bands the

first time and ONE band the following times (she has chronic EBV which can cause

bands to show up) --it said negative each and every time.

also, i have met people online with negative igenex tests results as well as

equivocal . i have also met igenex " positive " people but who were not " CDC "

positive. then i met other who are BOTH igenex and CDC positive. it is truly a

lie to say all people get positive results at Igenex.

Igenex was investigated. The San Francisco Chronical ran a story that Igenex

is clean and follows proper guidlines. Igenex has two standards, their own and

the CDC's. I tested positive both on their standard and the CDC's. Your doctor

should investigate matters instead of listening to unsubstaintiated rumors.

chelsea

<emilysmail2u@...> wrote:

Hello!

I had an appointment with an Infectious Disease doctor today. He

said that he has never seen a Lyme test from Igenex come back negative

and was trying convince me that even though my Lyme test was positive

that doesn't mean I have Lyme Disease. Sigh. He thinks that the lab at

Mayo Clinic is the best for diagnosing Lyme Disease. It will be

interesting to see if that comes back positive. So, I was wondering

about the truth of that statement: has anyone ever had blood work from

Igenex come back negative for Lyme Disease?

(BTW, I knew going into that appointment that infectious disease

doctors aren't known for their belief in the prevalence of Lyme

Disease, but I was referred by the neurologist I went to.)

Chelsea

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

I was misdiagnosed after going to Mayo Clinic and spending more than $10,000

in cash beyond insurance with Fibromyalgia. Yes, it was 10+ years ago but I

have heard it hasn't gotten any better. I, for one, don't trust them to find

Lyme.

Ann

-- [ ] Re: Igenex Lab

What test are you talking about with the Mayo Clinic and how would

one get that test ordered?

I would appreciate any info. And yes, I do think that many people

come back negative on Igenex. With the number of bands needed, I

did, but I also had many indeterminate bands which I am going to go

on antibiotics for 3 weeks and retest to see if those IND. bands

turn positive. In the meantime, both the IGM and IGG were labeled

negative as I didn't have enough of the right types of bands. I

know back when Bowen Lab did Lyme testing, nobody tested negative.

My LLMD said that was because it was testing for any Spirochete in

the body, not just the Lyme Spirochete.

Thanks for the Mayo Clinic Info.

>

> Get rid of the Inf. disease Dr and find a LLMD. The INF dr are

very neg

> about it.

>

[Guest guest]

My Dad's results from Igenex came back negative (only 1 marker was there), and

my

hubbie's was negative by CDC criteria, though he had a lot more markers.

Fortunately, our

great ID dr. treated him anyway, and his joint pain and memory symptoms

resolved. My

Igenex and my mom's Igenex results were very positive, and we're still being

treated--

better, but still symptomatic.

So, yes, they do come back negative from Igenex. They are a great lab, our ID

dr. thinks.

If they called you positive, then you have it.

Peggy

>

>

> Hello!

> I had an appointment with an Infectious Disease doctor today. He

> said that he has never seen a Lyme test from Igenex come back negative

> and was trying convince me that even though my Lyme test was positive

> that doesn't mean I have Lyme Disease. Sigh. He thinks that the lab at

> Mayo Clinic is the best for diagnosing Lyme Disease. It will be

> interesting to see if that comes back positive. So, I was wondering

> about the truth of that statement: has anyone ever had blood work from

> Igenex come back negative for Lyme Disease?

> (BTW, I knew going into that appointment that infectious disease

> doctors aren't known for their belief in the prevalence of Lyme

> Disease, but I was referred by the neurologist I went to.)

>

>

[Guest guest]

peggy,

thanks for that info because i'm sick of hearing those docs affiliated with

idsa saying " everyone tests positive at igenex. " it simply is not true.

i think what we should do is report these remarks to igenex (dr. nick harris)

and stop these rumors. i had a " cfs " doctor tell me that igenex tests are

" worthless and not to be trusted " because " everyone tests positive " and that

" fringe doctors and labs pay one another to test patients positive. "

these are not opinions stated. when a doctor says about igenex (or any lab for

that matter) that " everyone tests positive " this is defamation and should be

reported. it's one thing to have an opinion, it's another thing to say false

statements. doctors should know better than this and stick to facts they can

back up. chelsea

piffen <piffen@...> wrote:

My Dad's results from Igenex came back negative (only 1 marker was

there), and my

hubbie's was negative by CDC criteria, though he had a lot more markers.

Fortunately, our

great ID dr. treated him anyway, and his joint pain and memory symptoms

resolved. My

Igenex and my mom's Igenex results were very positive, and we're still being

treated--

better, but still symptomatic.

So, yes, they do come back negative from Igenex. They are a great lab, our ID

dr. thinks.

If they called you positive, then you have it.

Peggy

[Guest guest]

hi. i'm just learning about lyme. how is it that one can test positive for

spirochete besides lyme--do we all have some forms of spirochete in our bodies?

chelsea

Shewholaughslives <wolfereagan@...> wrote: What test are you

talking about with the Mayo Clinic and how would

one get that test ordered?

I would appreciate any info. And yes, I do think that many people

come back negative on Igenex. With the number of bands needed, I

did, but I also had many indeterminate bands which I am going to go

on antibiotics for 3 weeks and retest to see if those IND. bands

turn positive. In the meantime, both the IGM and IGG were labeled

negative as I didn't have enough of the right types of bands. I

know back when Bowen Lab did Lyme testing, nobody tested negative.

My LLMD said that was because it was testing for any Spirochete in

the body, not just the Lyme Spirochete.

Thanks for the Mayo Clinic Info.

>

> Get rid of the Inf. disease Dr and find a LLMD. The INF dr are

very neg

> about it.

>

Chelsea

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

emily,

hi. if you don't have lyme, why would you test positive? does your doctor

think it's a lab error or another infection? i also have rickettsia (sp),

mycoplasma, chlamydia pneumonia, legeionalla p. and two active herpes viruses.

perhaps these aforementioned bacteria/viruses can skew lyme results? i've

heard EBV can get in the way of lyme results. my lyme results are igenex and cdc

positive igm showing current infection. i don't recall having a bulls eye rash.

chelsea

SARAH DEVORE <shami86@...> wrote:

I have seen lyme tests come back negative... meaning there wasnt the 5 bands to

determine positive....so it is possible

@...: emilysmail2u@...: Tue, 18 Dec 2007

23:22:50 +0000Subject: [ ] Igenex Lab

Hello!I had an appointment with an Infectious Disease doctor today. He said that

he has never seen a Lyme test from Igenex come back negative and was trying

convince me that even though my Lyme test was positive that doesn't mean I have

Lyme Disease. Sigh. He thinks that the lab at Mayo Clinic is the best for

diagnosing Lyme Disease. It will be interesting to see if that comes back

positive. So, I was wondering about the truth of that statement: has anyone ever

had blood work from Igenex come back negative for Lyme Disease? (BTW, I knew

going into that appointment that infectious disease doctors aren't known for

their belief in the prevalence of Lyme Disease, but I was referred by the

neurologist I went to.)

__________________________________________________________

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[Guest guest]

Hi ,

yes, I had mine come back negative after two years of

antibiotic therapy...

Hope this helps

--- <emilysmail2u@...> wrote:

>

> Hello!

> I had an appointment with an Infectious Disease

> doctor today. He

> said that he has never seen a Lyme test from Igenex

> come back negative

> and was trying convince me that even though my Lyme

> test was positive

> that doesn't mean I have Lyme Disease. Sigh. He

> thinks that the lab at

> Mayo Clinic is the best for diagnosing Lyme Disease.

> It will be

> interesting to see if that comes back positive. So,

> I was wondering

> about the truth of that statement: has anyone ever

> had blood work from

> Igenex come back negative for Lyme Disease?

> (BTW, I knew going into that appointment that

> infectious disease

> doctors aren't known for their belief in the

> prevalence of Lyme

> Disease, but I was referred by the neurologist I

> went to.)

>

>

>

Sudylo RN / CHT

About

www.juliashbot.com

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Dr. has also said that testing can also be skewd if someone has had

different kinds of treatment. This includes some Chinese herbs and different

antibiotics...

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[Guest guest]

Hi,

Just to discuss the tests a little--Western Blot tests have 12 bands

and the CDC says that 5 specific bands have to be positive to get a

positive. Igenex and researchers say that if two specific bands (I am

not sure which but this info is available on the web) are positive

then you get a positive, and that the 5 are not necessary. Western

Blots are often indeterminate or borderline... meaning not negative or

positive, and the person should be retested at a later date. This

could be because the lines are not dark enough to be certain or there

are not enough bands, or that there are enough bands, for that test

but they are not the right bands.

Igenex tests also contain some bands that are missing from other tests

and they say that the fact that they are missing leads to a lot of

missed positives.

Igenex tests are more sensitive so they may more often have some bands

that are positive or borderline, but that does not mean that the test

is positive, and it does not even mean that it is borderline. But an

ignorant doctor seeking to say that Igenex is always " positive " may

notice that there are more often SOME bands with SOME markings. They

probably do not even know there are extra bands being tested, they

just see a few bands and assume it is positive. Either that or they

simply have not seen Igenex tests--why would they, since they don't do

them? And so many people have negative ELISAs so these doctors would

not even test beyond that, much less with Igenex. So WHEN these

" doctors " would EVER see an Igenex test is beyond me, it sounds like

they're just spouting received opinions.

If the Igenex test only shows non-Lyme specific bands then it would be

negative. A borderline test is technically negative, but often when

people have been sick a long time they will get this. You could get

this on any Western blot not just Igenex. If you are sick with Lyme

symptoms and you get a test with some Lyme-specific bands or even one,

then the doctor could reasonably suspect Lyme. Lyme is a clinical

diagnosis, no test is totally reliable and there are more false

positives than negatives.

I am not an expert but to me the clear thing is that nothing is clear

and that most doctors simply lack knowledge and operate in a closed

system.

Mindy

>

> I have seen lyme tests come back negative... meaning there wasnt the

5 bands to determine positive....so it is possible

>

> @...: emilysmail2u@...: Tue, 18 Dec 2007 23:22:50

+0000Subject: [ ] Igenex Lab

>

> Hello!I had an appointment with an Infectious Disease doctor today.

He said that he has never seen a Lyme test from Igenex come back

negative and was trying convince me that even though my Lyme test was

positive that doesn't mean I have Lyme Disease. Sigh. He thinks that

the lab at Mayo Clinic is the best for diagnosing Lyme Disease. It

will be interesting to see if that comes back positive. So, I was

wondering about the truth of that statement: has anyone ever had blood

work from Igenex come back negative for Lyme Disease? (BTW, I knew

going into that appointment that infectious disease doctors aren't

known for their belief in the prevalence of Lyme Disease, but I was

referred by the neurologist I went to.)

[Guest guest]

miss maples,

it's in the doctor's best interest of some doctors to slam Igenex if they are

affiliated with idsa, insurance industry and/or big pharma.

chelsea

missmaples <missmaples@...> wrote:

Hi,

Just to discuss the tests a little--Western Blot tests have 12 bands

and the CDC says that 5 specific bands have to be positive to get a

positive. Igenex and researchers say that if two specific bands (I am

not sure which but this info is available on the web) are positive

then you get a positive, and that the 5 are not necessary. Western

Blots are often indeterminate or borderline... meaning not negative or

positive, and the person should be retested at a later date. This

could be because the lines are not dark enough to be certain or there

are not enough bands, or that there are enough bands, for that test

but they are not the right bands.

Igenex tests also contain some bands that are missing from other tests

and they say that the fact that they are missing leads to a lot of

missed positives.

Igenex tests are more sensitive so they may more often have some bands

that are positive or borderline, but that does not mean that the test

is positive, and it does not even mean that it is borderline. But an

ignorant doctor seeking to say that Igenex is always " positive " may

notice that there are more often SOME bands with SOME markings. They

probably do not even know there are extra bands being tested, they

just see a few bands and assume it is positive. Either that or they

simply have not seen Igenex tests--why would they, since they don't do

them? And so many people have negative ELISAs so these doctors would

not even test beyond that, much less with Igenex. So WHEN these

" doctors " would EVER see an Igenex test is beyond me, it sounds like

they're just spouting received opinions.

If the Igenex test only shows non-Lyme specific bands then it would be

negative. A borderline test is technically negative, but often when

people have been sick a long time they will get this. You could get

this on any Western blot not just Igenex. If you are sick with Lyme

symptoms and you get a test with some Lyme-specific bands or even one,

then the doctor could reasonably suspect Lyme. Lyme is a clinical

diagnosis, no test is totally reliable and there are more false

positives than negatives.

I am not an expert but to me the clear thing is that nothing is clear

and that most doctors simply lack knowledge and operate in a closed

system.

Mindy

[Guest guest]

I had this concern about skewing test results so I went off all antibiotics for

over 12 weeks. I hope that was long enough. I also did not take herbs.

chelsea

Charolette <iamcharolette@...> wrote:

Dr. has also said that testing can also be skewd if someone has

had different kinds of treatment. This includes some Chinese herbs and different

antibiotics...

[Guest guest]

>

> I ordered the Lymes testing kit from IGX. Wow there are a ton of

things

> to have checked. Which one do I need? Does anyone know?

>

==========

This below was posted about the IGeneX tests on another forum so I

copied it for you.

igenex lyme tests

Sat Sep 22, 2007 8:27AM

hi guys,

you can spend a fortune on the different lyme tests but Medicare &

Insurance usually reimburses you.

The minimum tests to order are # 188 & # 189 (i think those are the

numbers) But it is the lyme western blot IgG & lyme western blot IgM.

Each test costs $95.00 so you put check w/ blood sample and Igenex

sends you receipt for you to self submit to insurance

you can ask questions and get info from http://www.lymenet.org