Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Go to low dose naltrexone/ and about half way down the page put Lupus in the Search box. You'll find over 500 previous posts which mention Lupus, many of them quite informative. Far better than only having a few current members trying to reinvent the wheel for you. jupitersb52 wrote: > I need info on LDN + Lupus to pass on to a friend. Knowing I'll get lots of info from all, > thanks in advance! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Hi Sugargpaw, I have just sent you a copy of the welcome e-mail and some saved posts regarding Lupus. Please keep us posted on how you do with LDN. Also try and keep a diary of what you are noticing now and what you notice durring your LDN experience. Best of luck Aletha [low dose naltrexone] LDN and Lupus Hi everyone. This is my second post. I am flaring with nasty lupus vasculitis, chilblain type rash and general misery. I get my first LDN meds tomorrow. I am starting at 1.75 mg but am tempted to go higher. Can you take plaquinil (sp?)at the same time? My doctor was very agreeable to the LDN but was really wanting me to go on the plaquinil. I had a flare, got it under control, was given a diuretic which through me back into flare. Am concerned about vasculitis as it can go to the kidneys. Also, have a great compounding pharmacist who is excited to work with me on the LDN. Does anyone have any suggestions? Please pray for me that the LDN will work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Hi Sugar paw, I take both plaquenil and ldn and have been since December of 2007. Dr Mcandless my perscribing doc told me I shouldn't need the plaquenil anymore once I am on the ldn I could try to get off of it. I have reduced from 400 mg a day to 200 mg every other day and feel really good the ldn helps with some symptoms and then plaquenil with the rest.. for " me " it's been a good combo. > > Hi Sugargpaw, > > I have just sent you a copy of the welcome e-mail and some saved posts regarding Lupus. > > Please keep us posted on how you do with LDN. Also try and keep a diary of what you are noticing now and what you notice durring your LDN experience. > > Best of luck > > Aletha > [low dose naltrexone] LDN and Lupus > > > Hi everyone. This is my second post. I am flaring with nasty lupus > vasculitis, chilblain type rash and general misery. I get my first > LDN meds tomorrow. I am starting at 1.75 mg but am tempted to go > higher. Can you take plaquinil (sp?)at the same time? My doctor was > very agreeable to the LDN but was really wanting me to go on the > plaquinil. I had a flare, got it under control, was given a diuretic > which through me back into flare. Am concerned about vasculitis as it > can go to the kidneys. Also, have a great compounding pharmacist who > is excited to work with me on the LDN. Does anyone have any > suggestions? Please pray for me that the LDN will work. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 I was on Plaquenil (2 x 200 daily) when I started LDN and did really well. Then I tapered off the Plaquenil and I do have some inflammation returning. Not sure what’s caused it or if it’s even related to going off Plaquenil, but I’d been on it a long time and was very sick of the 5 hour eye exam with retinal photos I had to get every year or so because of the potential side effects of it building up on the retina. The idea of possibly going blind at a later date was a BIT of a deterrent to continuing the use of it indefinitely. I decided to try and get off it, and I did. My doctor told me I should probably get off it by tapering off slowly. The compounding pharmacist at Irmat’s told me it was not necessary to go off Plaquenil at all. My guess is that nobody really knows! Judy [low dose naltrexone] LDN and Lupus Hi everyone. This is my second post. I am flaring with nasty lupus vasculitis, chilblain type rash and general misery. I get my first LDN meds tomorrow. I am starting at 1.75 mg but am tempted to go higher. Can you take plaquinil (sp?)at the same time? My doctor was very agreeable to the LDN but was really wanting me to go on the plaquinil. I had a flare, got it under control, was given a diuretic which through me back into flare. Am concerned about vasculitis as it can go to the kidneys. Also, have a great compounding pharmacist who is excited to work with me on the LDN. Does anyone have any suggestions? Please pray for me that the LDN will work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 I wish I knew about LDN 25 %#$#$@%@%%@#^#%#$ years ago! damn quackery lol. Perhaps coulda stunted the prgression of tremors. > > > > > > Hi Sugargpaw, > > > > > > I have just sent you a copy of the welcome e-mail and some saved > > posts regarding Lupus. > > > > > > Please keep us posted on how you do with LDN. Also try and keep > a > > diary of what you are noticing now and what you notice durring your > > LDN experience. > > > > > > Best of luck > > > > > > Aletha > > > [low dose naltrexone] LDN and Lupus > > > > > > > > > Hi everyone. This is my second post. I am flaring with nasty > > lupus > > > vasculitis, chilblain type rash and general misery. I get my > > first > > > LDN meds tomorrow. I am starting at 1.75 mg but am tempted to > go > > > higher. Can you take plaquinil (sp?)at the same time? My doctor > > was > > > very agreeable to the LDN but was really wanting me to go on > the > > > plaquinil. I had a flare, got it under control, was given a > > diuretic > > > which through me back into flare. Am concerned about vasculitis > > as it > > > can go to the kidneys. Also, have a great compounding > pharmacist > > who > > > is excited to work with me on the LDN. Does anyone have any > > > suggestions? Please pray for me that the LDN will work. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 I take 4.5 ldn for breast cancer. Recently, I found out that I may have sjogrens and/or lupus. I am waiting on some test results. This is exciting if the ldn could help all three. --CC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 That is one of the most amazing things about LDN. If any or all of ones ailments are helped with a more properly working immune system then, in theory they should all be helped with LDN. One little pill, a low cost and minimal side effects. You could have blown me over with a mild wind when I first heard of LDN. It almost sounded too good to be true. Aletha [low dose naltrexone] Re: LDN and Lupus I take 4.5 ldn for breast cancer. Recently, I found out that I may have sjogrens and/or lupus. I am waiting on some test results. This is exciting if the ldn could help all three. --CC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Hi, That was exactly what I thought the first time I read about it, I think it was at ldninfo.org. I was about to stop to read, but scrolled down the page and found info on the Crohns study at Penn State University in 2006/2007. When I told my GI that I had used this medication for 4 months (in jan. this year), he said the same; don't belive in this; one pill cure all is NEVER true! But when I asked him to read about the clinical trial of Crohns, and he found that it was written about it in the American Journal of Gastroenterology (2007;102:1–9), where LDN is being official presentated for the worlds scientists, he found it interesting, and told me he would discuss this with his colleagues. Well, I am sure he did. He also told me to continue using LDN, because he found that the inflammations in my intestines had calmed down to such a degree that he wouldn't need to put me on the surgery lists. Not yet. :-) Ingrid [low dose naltrexone] Re: LDN and Lupus I take 4.5 ldn for breast cancer. Recently, I found out that I may have sjogrens and/or lupus. I am waiting on some test results. This is exciting if the ldn could help all three. --CC No Cost - Get a month of Blockbuster Total Access now. Sweet deal for users and friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 I have now been on titrated LDN for 9 days. The last two on 3 mg. Am feeling some positive effects after moving up to 3.0. My question is (and I hope this doesn't sound dumb) has anyone with lupus and successful with LDN been able to get in the sun again? One of the most depressing things to me is having to avoid the sunshine. I have been an outdoors person all my life and this is just so hard to handle. Although I have had the disease for over 1 year, I was only diagnosed about 2 months ago. I am so fortunate for having found out about LDN so early and thank the Good Lord for the internet (and this wonderful support group)! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 I am not aware of any damage but suggest you go to www.low dose naltrexone.org site where you will find more about it. > > is it possible for ldn to be harmful to kidneys for someone with lupus? > susan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2009 Report Share Posted February 9, 2009 In my research I didn't find any cause for worry and neither did my doctor. I would encourage you to research it yourself though. I have SLE and have been on LDN for almost a year now with great results. No kidney infections or problems. Cami > > is it possible for ldn to be harmful to kidneys for someone with lupus? > susan > Quote Link to comment Share on other sites More sharing options...
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