Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 I think you can start back right away. You're not a sissy! You have to do what you are comfortable with. I would probably do them too if I were in your shoes!!! Marcie nicknamedjaylo <nicknamedjaylo@...> wrote: Ok everyone I feel I have no choice but to start the dreaded steroids. When I tried to get out of bed this morning I hit the floor. My legs are quickly giving up on me. I know this question has been asked but I dont remember the answer. How long after the IV solumedrol do I wait before starting my LDN again? I will be on IV solumedrol for 3 days at 1000mg a day. Thanks and sorry for being a sissy and for asking questions already answered.Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 I didn't go back to taking ldn because I had problems with it. Maybe I was already weak but in 6 months on ldn I got much worse. If you do start taking ldn after the solumedrol I'd be interested in how you feel. I am in rehab right now and trying to get back my strength to where I was before. [low dose naltrexone] Solumedrol (sp) Ok everyone I feel I have no choice but to start the dreaded steroids. When I tried to get out of bed this morning I hit the floor. My legs are quickly giving up on me. I know this question has been asked but I dont remember the answer. How long after the IV solumedrol do I wait before starting my LDN again? I will be on IV solumedrol for 3 days at 1000mg a day. Thanks and sorry for being a sissy and for asking questions already answered.Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 miki- what problems were you having with it? I so want this to work but I feel worse on it than I did before I started. not giving up yet but just curious as to what went wrong for you. [low dose naltrexone] Solumedrol (sp) Ok everyone I feel I have no choice but to start the dreaded steroids. When I tried to get out of bed this morning I hit the floor. My legs are quickly giving up on me. I know this question has been asked but I dont remember the answer. How long after the IV solumedrol do I wait before starting my LDN again? I will be on IV solumedrol for 3 days at 1000mg a day. Thanks and sorry for being a sissy and for asking questions already answered.Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2008 Report Share Posted April 28, 2008 I had alot of problems that I never experienced before (that's what worried me). I had really bad spasticity and that was what actually made me go into the hospital for the solumedrol treatment. I also had headaches, although that went away eventually. I had an upset stomach, so much so that my family dr. sent me for an xray and nothing showed up. Each time I stopped LDN it cleared up. I lost weight (about 6/7 kgs) because I lost my appetite. My fingers on both hands became numb. my feet became numb and my knees started to buckle in spite of the stiffness. my right eye started to droop and the right side of my nose felt strange- like I had a cold on one side and I kept rubbing it but there was nothing. This scared me because I had no problems waist up ever and so this was all new and extremely uncomfortable. strange thing though, I NEVER had sleep problems or strange dreams! I simply felt all round worse on LDN and was getting worse all the time, whether I increased the dose or reduced it. Right now I am feeling so much better than I have in the last 3 months and am recuperating legs, hands and feet...I am sad LDN didn't work for me and I wish I knew why (maybe there were other issues influencing...??) but until I know more about what possibly went wrong, I will not try again. I'm too scared after what I went thru. Hopefully it will work for you but if you keep feeling bad, maybe there's something in our systems that reacts to LDN differently... wish you luck, Miki [low dose naltrexone] Solumedrol (sp) Ok everyone I feel I have no choice but to start the dreaded steroids. When I tried to get out of bed this morning I hit the floor. My legs are quickly giving up on me. I know this question has been asked but I dont remember the answer. How long after the IV solumedrol do I wait before starting my LDN again? I will be on IV solumedrol for 3 days at 1000mg a day. Thanks and sorry for being a sissy and for asking questions already answered.Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2008 Report Share Posted April 28, 2008 > > I had alot of problems that I never experienced before (that's what worried me). I had really bad spasticity and that was what actually made me go into the hospital for the solumedrol treatment. I also had headaches, although that went away eventually. I had an upset stomach, so much so that my family dr. sent me for an xray and nothing showed up. Each time I stopped LDN it cleared up. I lost weight (about 6/7 kgs) because I lost my appetite. My fingers on both hands became numb. my feet became numb and my knees started to buckle in spite of the stiffness. my right eye started to droop and the right side of my nose felt strange- like I had a cold on one side and I kept rubbing it but there was nothing. This scared me because I had no problems waist up ever and so this was all new and extremely uncomfortable. strange thing though, I NEVER had sleep problems or strange dreams! I simply felt all round worse on LDN and was getting worse all the time, whether I increased the dose or reduced it. > Right now I am feeling so much better than I have in the last 3 months and am recuperating legs, hands and feet...I am sad LDN didn't work for me and I wish I knew why (maybe there were other issues influencing...??) but until I know more about what possibly went wrong, I will not try again. I'm too scared after what I went thru. ========= Upon starting LDN I too experienced numbness in both hands for 3 weeks, got extra stiffness in claves of legs for 3 solid months, later on extra fatigue, I had an eyelid that twitched on and off for 6 months, other muscles jumped like crazy, I had vivid dreams. All these faded away as time passed. I believe all these adverse symptoms I experienced was an awakening of previously non-working nerve pathways. I didn't panic over the adverse symptoms. Many have exprienced weightloss with LDN, naltrexone is being trialed for weightloss. I only had a headache and severe nausea when several months into starting LDN I decided to switch my lactose capsule filler to Avicel (cellulose) filler, big mistake, I was allergic so I switched back to lactose. If I could have tolerated the Avicel I could have gotten my LDN cheaper. , LDN user 5 years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2008 Report Share Posted April 28, 2008 hi micki- the one side effect of ldn I'd like , losing weight, isn't happening, figures. I asked the dr. to lower the dosage for me, hopefully he will because I feel terrible the last couple of weeks. I hope that will help because I really don't want to stop. thanks for the input, jackie [low dose naltrexone] Solumedrol (sp) Ok everyone I feel I have no choice but to start the dreaded steroids. When I tried to get out of bed this morning I hit the floor. My legs are quickly giving up on me. I know this question has been asked but I dont remember the answer. How long after the IV solumedrol do I wait before starting my LDN again? I will be on IV solumedrol for 3 days at 1000mg a day. Thanks and sorry for being a sissy and for asking questions already answered.Amber Quote Link to comment Share on other sites More sharing options...
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