Hashimoto's Thyroiditis and LDN

[Guest guest]

Not sure if this is a new information on the main LDN website, but I

have to admit I never noticed it before. Been giving the G/F 4.5mgs

almost every night. Must reconsider that dosage. Just proves it pays to

read that site very carefully, and often. Most LDN-related questions

can be answered from the site.

> Cautionary warnings:

3.Those patients who are taking thyroid hormone replacement for a

diagnosis of Hashimoto's thyroiditis with hypothyroidism ought to begin

LDN at the lowest range (1.5mg for an adult). Be aware that LDN may

lead to a prompt decrease in the autoimmune disorder, which then may

require a rapid reduction in the dose of thyroid hormone replacement in

order to avoid symptoms of hyperthyroidism.

http://www.low dose naltrexone.org/

[Guest guest]

I take thyroid meds (90 mg of Armour) but I don't know if its

Hashimoto's or just low thyroid. Should I be using 1.5 LDN? I've

been using 3 mg.

>

> Not sure if this is a new information on the main LDN website, but

I

> have to admit I never noticed it before. Been giving the G/F

4.5mgs

> almost every night. Must reconsider that dosage. Just proves it

pays to

> read that site very carefully, and often. Most LDN-related

questions

> can be answered from the site.

>

> > Cautionary warnings:

>

> 3.Those patients who are taking thyroid hormone replacement for a

> diagnosis of Hashimoto's thyroiditis with hypothyroidism ought to

begin

> LDN at the lowest range (1.5mg for an adult). Be aware that LDN

may

> lead to a prompt decrease in the autoimmune disorder, which then

may

> require a rapid reduction in the dose of thyroid hormone

replacement in

> order to avoid symptoms of hyperthyroidism.

>

> http://www.low dose naltrexone.org/

>

[Guest guest]

I plan on giving my girlfriend 1.5mgs until she sees her Endo and gets

re-evaluated with her condition. Wouldn't want to see her go Hyper.

Right now she takes 100mcg of Levothyroxine, plus the LDN, and feels

pretty good. Thyroid has shrunk back to where she's able to swallow

without diffuculty and her mood swings have evened out a bit (yay!).

You must do what you think is best.

-Art

--

>

> I take thyroid meds (90 mg of Armour) but I don't know if its

> Hashimoto's or just low thyroid. Should I be using 1.5 LDN? I've

> been using 3 mg.

>

[Guest guest]

Hi Marla,

I have Hashi's and when I started LDN at the 4.5 dose I had an

immediate response. Within two days on LDN I had such incredible

energy...and this continued until day 19 when I finally realized that

what I was feeling was too much thyroid hormone -- I was

over-medicated. My heart rate jumped to 91, I had lost 10lbs in two

weeks...and I was just NOT tired...I couldn't sit still. It freaked me

out -- mostly because I just wasn't prepared for that type of

immediate response. I mean...I had JUST started LDN. If I had known

ahead of time that there could be this type of response, I would have

figured out sooner that I needed to start reducing my thyroid meds

almost immediately based on those symptoms.

I know two women with the Grave's version of thyroid disease -- who

were in the hypo phase of the disease -- had a similar experience as I

did. One of these women has been on LDN for over 2 yrs now and she

told me that over a 6mo period she reduced her thyroid meds to where

she no longer takes them.

To manage your thyroid meds while taking LDN you have to monitor your

vitals -- ie; heart rate / blood pressure etc. --- then adjust

(reduce) your thyroid meds. It's tricky to manage your thyroid

levels... but I can tell you being over-medicated like that is NOT a

pleasant feeling.

Best wishes..

Jann

[Guest guest]

So the question then is whether its better to reduce the LDN or

reduce the thyroid meds?

>

> Hi Marla,

>

> I have Hashi's and when I started LDN at the 4.5 dose I had an

> immediate response. Within two days on LDN I had such incredible

> energy...and this continued until day 19 when I finally realized

that

> what I was feeling was too much thyroid hormone -- I was

> over-medicated. My heart rate jumped to 91, I had lost 10lbs in

two

> weeks...and I was just NOT tired...I couldn't sit still. It

freaked me

> out -- mostly because I just wasn't prepared for that type of

> immediate response. I mean...I had JUST started LDN. If I had

known

> ahead of time that there could be this type of response, I would

have

> figured out sooner that I needed to start reducing my thyroid meds

> almost immediately based on those symptoms.

>

> I know two women with the Grave's version of thyroid disease -- who

> were in the hypo phase of the disease -- had a similar experience

as I

> did. One of these women has been on LDN for over 2 yrs now and she

> told me that over a 6mo period she reduced her thyroid meds to

where

> she no longer takes them.

>

> To manage your thyroid meds while taking LDN you have to monitor

your

> vitals -- ie; heart rate / blood pressure etc. --- then adjust

> (reduce) your thyroid meds. It's tricky to manage your thyroid

> levels... but I can tell you being over-medicated like that is NOT

a

> pleasant feeling.

>

> Best wishes..

> Jann

>

[Guest guest]

It sounds like reducing the thyroid meds just before and starting off low with the LDN. At least I think that is what is being said.

Aletha

[low dose naltrexone] Re: Hashimoto's Thyroiditis and LDN

So the question then is whether its better to reduce the LDN or reduce the thyroid meds? >> Hi Marla,> > I have Hashi's and when I started LDN at the 4.5 dose I had an> immediate response. Within two days on LDN I had such incredible> energy...and this continued until day 19 when I finally realized that> what I was feeling was too much thyroid hormone -- I was> over-medicated. My heart rate jumped to 91, I had lost 10lbs in two> weeks...and I was just NOT tired...I couldn't sit still. It freaked me> out -- mostly because I just wasn't prepared for that type of> immediate response. I mean...I had JUST started LDN. If I had known> ahead of time that there could be this type of response, I would have> figured out sooner that I needed to start reducing my thyroid meds> almost immediately based on those symptoms. > > I know two women with the Grave's version of thyroid disease -- who> were in the hypo phase of the disease -- had a similar experience as I> did. One of these women has been on LDN for over 2 yrs now and she> told me that over a 6mo period she reduced her thyroid meds to where> she no longer takes them. > > To manage your thyroid meds while taking LDN you have to monitor your> vitals -- ie; heart rate / blood pressure etc. --- then adjust> (reduce) your thyroid meds. It's tricky to manage your thyroid> levels... but I can tell you being over-medicated like that is NOT a> pleasant feeling. > > Best wishes..> Jann>

[Guest guest]

Yes, this is my preoccupation as well. I think it may be difficult

to find the right way to do it because becoming hyper through too

much thyroïd medication is not fun and perhaps even dangerous. I'm

on levothyrox 75 at the moment, have Hashimoto disease and a TSH

which is going up and down like a yo-yo.

> >

> > Hi Marla,

> >

> > I have Hashi's and when I started LDN at the 4.5 dose I had an

> > immediate response. Within two days on LDN I had such incredible

> > energy...and this continued until day 19 when I finally

realized

> that

> > what I was feeling was too much thyroid hormone -- I was

> > over-medicated. My heart rate jumped to 91, I had lost 10lbs in

> two

> > weeks...and I was just NOT tired...I couldn't sit still. It

> freaked me

> > out -- mostly because I just wasn't prepared for that type of

> > immediate response. I mean...I had JUST started LDN. If I had

> known

> > ahead of time that there could be this type of response, I

would

> have

> > figured out sooner that I needed to start reducing my thyroid

meds

> > almost immediately based on those symptoms.

> >

> > I know two women with the Grave's version of thyroid disease --

who

> > were in the hypo phase of the disease -- had a similar

experience

> as I

> > did. One of these women has been on LDN for over 2 yrs now and

she

> > told me that over a 6mo period she reduced her thyroid meds to

> where

> > she no longer takes them.

> >

> > To manage your thyroid meds while taking LDN you have to

monitor

> your

> > vitals -- ie; heart rate / blood pressure etc. --- then adjust

> > (reduce) your thyroid meds. It's tricky to manage your thyroid

> > levels... but I can tell you being over-medicated like that is

NOT

> a

> > pleasant feeling.

> >

> > Best wishes..

> > Jann

> >

>

[Guest guest]

Re: Hashimoto's Thyroiditis and LDN

I'm not certain of THE correct approach to LDN therapy while taking

thyroid HRT...but what I decided to do was to restart the LDN while

not being on thyroid HRT.

I don't think it's essential to go off thyroid meds...other thyroid

folks have been successful with just reducing their thyroid HRT as

they went along with the LDN therapy. I just would rather approach MY

LDN experiment without the thyroid HRT for the first 4-6wks as a

factor. After being back on LDN for the 4-6 wks I'll then have my

thyroid labs retaken to see if I still need some thyroid hormone or

not. Because I have the Hashi's version of thyroid disease the

antibodies have been attacking the thyroid gland and it may be

irreparably damaged and not able to produce as much thyroid hormone as

I need. I'll need to monitor the levels.

Based on my first reaction to LDN it just makes me nervous to think

about feeling hyper like that again and even apprehensive to restart

LDN. I plan to restart LDN at the lower dose also. Again...I'm

probably over-reacting, but not having the " official road map " on how

to apply LDN therapy while on thyroid HRT we are all left on our own

to figure out our own way.

An important consideration with thyroid meds is that the T4

(Synthroid) med has a long " half-life " . This means that if you take a

dose of T4 med on a given day it will take up to 6 weeks for that dose

to be about 98% out of your system. This is why thyroid folk have to

wait 6wks to retest their thyroid levels when they have

increased/decreased their T4 med. T3 meds -- like Cytomel -- do not

have quite that half-life and are out of your system sooner than the

T4 meds.

So if you decide to reduce your any of your thyroid HRT before

starting LDN, you'll have to figure out exactly how much is actually

in your system when you start LDN. At least I would want to know that.

This thyroid business is tricky...but it's not impossible.

Jann

[Guest guest]

Go this website, click on Community. There's a forum where they discuss thyroid

issues and some use LDN.

http://www.ahsta.com/Home/tabid/90/Default.aspx

This a blog by someone with Hashimoto's thyroiditis and is treating it with LDN:

http://forums.realthyroidhelp.com/viewtopic.php?f=11 & t=6277

>

> From: Kem Tillford <Losinit4good@...>

> Subject: [low dose naltrexone] Re: Hashimoto's Thyroiditis and LDN

> " LDN " <low dose naltrexone >

> Date: Wednesday, June 24, 2009, 2:44 AM

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> I have hypo/hashi's and use low dose of  Iodine (be careful with

hashi's) and 1.5 mg. LDN.  I just started the LDN 2 weeks ago and am doing

great, my fibromyalgia pain has subsided.  Be careful with Iodine doses, I only

take 150 mcg. of Iodine with my 3 gr. of nature-throid.  For about a week I was

taking 300 mcg of iodine and ticked off the hashi's and had a thyroid dump...not

fun.

> <<Posted by: " savvysavvy22 "  savvysavvy22   savvysavvy22Tue

Jun 23, 2009 2:56 pm (PDT)

>

> I am new to this group and wondering if there is anyone out there who has used

this remedy with Hashimoto's, along with Iodine, and whether good results

occurred. Also, would general lymphatic inflammation be 

> helped by this? Does it come available in smaller dosages? Thanks in advance

(TIA). Savvy>>

>

>

> Kem in Eugene        <º)))><

>

[Guest guest]

this number you sent for crystal is all jumbled...can you send it to me privately i am wondering why it would be scrambled ..thanks dawnFrom: mike3kit <mk3@...>Subject: [low dose naltrexone] Re: Hashimoto's Thyroiditis and LDNlow dose naltrexone Date: Wednesday, June 24, 2009, 8:56 AM

From my understanding of LDN, LDN is not a cure for Hashi's as it isn't a cure for most of the diseases that it helps so yes you'll again in my opinion be tied to a doctor that will prescribe this for you should you go this route.

If you prefer to work with a local doctor, Crystal maintains a list by location in the United States and abroad of physicians who prescribe LDN and of pharmacies that compound it.

You can contact her at

& #8232; & #8232; angelindisguisel dn @ . com & #8232; & # 8232;

Crystal also has a list of other doctors who do telephone consultations. & #8232; & # 8232;

Please let her know that sent you.

Thank you.

>

> From: Kem Tillford <Losinit4good@ ...>

> Subject: [low dose naltrexone] Re: Hashimoto's Thyroiditis and LDN

> "LDN" <low dose naltrexone>

> Date: Wednesday, June 24, 2009, 2:44 AM

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> I have hypo/hashi's and use low dose of Iodine (be careful with hashi's) and 1.5 mg. LDN. I just started the LDN 2 weeks ago and am doing great, my fibromyalgia pain has subsided. Be careful with Iodine doses, I only take 150 mcg. of Iodine with my 3 gr. of nature-throid. For about a week I was taking 300 mcg of iodine and ticked off the hashi's and had a thyroid dump...not fun.

> <<Posted by: "savvysavvy22" savvysavvy22 savvysavvy22Tue Jun 23, 2009 2:56 pm (PDT)

>

> I am new to this group and wondering if there is anyone out there who has used this remedy with Hashimoto's, along with Iodine, and whether good results occurred. Also, would general lymphatic inflammation be

> helped by this? Does it come available in smaller dosages? Thanks in advance (TIA). Savvy>>

>

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> Kem in Eugene <º)))><

>

[Guest guest]

what is a thyroid dump? i have hashis too. hoping ldn will help.

s

[Guest guest]

Go to http://www.stopthethyroidmadness.com/hashimotos and it will explain dumping to you. A good reason to keep the thyroid balanced. For me, if I take too much Iodine it causes a dump of thyroid as the thyroid can't properly process it and causes me horrid hyper symptoms.<<Posted by: "susan letteer" sletteer@... sletteer@...Wed Jun 24, 2009 3:54 pm (PDT)what is a thyroid dump? i have hashis too. hoping ldn will help. s>> Kem in Eugene <º)))><