Word of LDN getting around

[Guest guest]

I have been going through drug hell over elevated BP and lupus. Every

drug my doc gives me throws me back into flare. Saturday, I had to go

to ER due to loss of feeling in hands and feet and return of dreaded

chilblains rash (lisinopril does that to lupus..why would he prescribe

that?). The ER doc, female, classy and very intelligent was aware of

LDN. She did not bash it, and after cat scan and blood work told me

to quit taking lisonipril and go back to pc on Monday. She also was

supportive of my use of thiamine and calcium/magnesium for treatment

of fibro type numbness at night. I felt she was pro-ldn by the way

she reacted. Just as further update, have been of 4.5 mg ldn for last

three nights. Go to sleep immediately but awaken after 2 to 4 hrs.

Last night I took 1/2 low dose of xanax and slept until 10:00 a.m.

Feel better than I have in weeks!

[Guest guest]

I'm sorry your lupus is such a problem right now. I feel for you!

LDN has helped my lupus symptoms tremendously. I still have a bad day

occasionally but after a month and a half no longer have bad WEEKS and

can work and function normally. Still wake up occasionally but that's

worth feeling better. The cal/mag helps a lot for the nerve/numbness

issues. I think the majority of neurological symptoms and hair loss -

at least those I've experienced - are probably linked with

malabsorption. I can't keep weight on and no longer have IBD type

symptoms but my blood readings show signs of being malnourished even

though I eat very well (gluten, sugar, processed food free - on a well

rounded whole foods diet). I had amino acid tests recently and my

doctor can order a blend specific to what I am deficient in. You may

want to consider it - I've been on it before and it helped

tremendously. I'm pretty lucky with my doctor. He's been very

supportive and is current on what is available.

I hope you feel better.

Cami

[Guest guest]

Thanks Cami for your reply. Will look into the amino acids as I also

want to have my vitamin D levels checked. I am new to lupus diagnosis

and LDN. I believe since moving up to 4.5 mg I will see a difference

in my bp and lupus as I am a tremendous believer in LDN. As to high

bp issues, they are new for me as well. I think my bp is related to

pain and water retention. Today I took an 81 mg aspirin (have been

off bp meds since Sat.)and have been drinking a lot of water and took

extra b vitamins. Also started deep breathing exercises today. My bp

was 147/88 with heart rate of 86 early this am. At 3:30 pm bp was

135/74 with heart rate of 67. Fabulous to have no side effects!!!

Also, have no numbness or tingling in my hands and feet. I moved up

to 4.5 mg against my Doctor's instructions. He is not following Dr.

Bihari's protocol, but I am.