Update...2 days LDN - 30 yrs w/Crohn's disease

March 12, 2008

Hello friends,

I have been taking 4.5 mg (capsule) for 2 nights so far (started on

Monday, March 10th). I get it from Skip's Pharmacy in Boca Raton,

FL. I have not noticed any side effects so far. I have had some

interruption in sleep but I have always had that. I can't remember

the last time that I slept through the entire night! LOL! I am able

to fall back to sleep quickly so it really isn't a problem. All I

can tell you is that, so far, I feel much better!

Yesterday morning (the first day on LDN) I really wasn't very hungry,

but I ate a scrambled egg and some grits. This is the first meal in

a long time that I have been able to " keep " (my food usually " runs

through " me). I felt great all morning...had a little macaroni salad

for lunch...but it " went right through me " as food usually does. I

felt some discomfort (normal for Crohn's)...but after a few hours...I

felt better.

Today is even better than yesterday! I had my usual bowel movements

(diarrhea) this morning, but without the discomfort that I usually

have. I ate a small breakfast and a small lunch and I have not had a

bowel movement since I left home this morning 8 hours ago!

Now...that is impressive to me! LOL!

I am thinking that my body " senses " something " new " (LDN) and it must

be a little confused. But the bottom line is that I really do feel

better. I didn't expect to " feel " it this soon and I am sure that

after a period of adjustment (maybe a week or so) I will know more

about how my body is going to respond to this new treatment. My

diarrhea AND my " discomfort " have decreased, and I am doing great! I

feel " gut relief " for the first time in a long time. I am very

pleased! )

I will keep you posted.

Thanks,

Patti (a/k/a livinwithcrohns)

*dx Crohn's - June, 1978

*surgery - Dec., 2002 - Ileocolectomy/resection

*dx Crohn's/Colitis/Acid Reflux - Feb., 2005

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