Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Been there done that many many times.I hate to say it,but I learned long ago just to endure this stuff until it goes away.How long? Sometimes weeks,sometimes months,but it does go away.It does eventually come back though.You just gotta live with it.Usually I had so many other stuff going on at the same time,school work was the least of my concernrs.Never really did that much in the whole twelve years. From: Alisa Ackerman <clarkalisa@...> Subject: Sensory regression!!! Yeast? Hormones? Phenyols? Help!! taca-usa , abmd , biomedheads , thoughfulhousecenterforchildren , , beyondgfcf Date: Monday, November 2, 2009, 11:57 AM Hi all, I am trying to figure why my son, who was doing so great in many aspects due to all the biomedical help he's had, has now for the past 3 months been seriously regressing w/ regard to sensory issues. He's always had a lot of sensory issues (noise, scratchy fabrics, over sensitive to pain, etc.), but now after making much progress in this area, he suddenly has regressed! Now he cannot stand even the seams in his shirts. To the point that he gets so distracted that he just cannot participate in school sometimes! ALL his clothes--no matter how soft, etc. drive him nuts. He says his pants are too heavy, his shoes are too hard. His hair on the pillow at night bothers him.... etc. etc. etc.!! Also noise is very bothersome to him right now also. Anyhow, while of course we can try to help him from a behavioral standpoint, I am looking for any insight at all from a biomedical standpoint as to why this is suddenly happening??? ?! Could it be hormonal? (he is five just turning 6, just discovering his penis in a big way!) Could it be the anti-viral protocol we are now doing (very high doses of elderberry, monolaurin, silver collidal, policosonol, moducare, etc.) There are a lot of phenyols in some of the anti-viral herbs and he does react to those but we need to do this protocol. Could the sensory overload be related to phenoyls? Is this simply a yeast symptom (I've not heard much about skin sensitivity specifically before??) Please, any help here at all is greatly appreciated. It's terrible to see him suffering so much and it is affecting every aspect of his life, social, school, everything! BTW, last question here: has anyone had success with using the HANDLE face tapping technique for sensory issues? (see here for more info: http://www.wellsphe re.com/autism- autism-spectrum- article/little- frog-s-handle- program/566334P) Many thanks in advance! Alisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Alot of those antivirals are high salicylates { phenol [ Yes those can lead to sensory overload symptoms , brain fog, etc.. etc.. You wont be able to boost the system to fight off the viruses etc if his body is being poisoned with thess salicylates or any other food he does not have the enzymes for. nanci > > Hi all, > > I am trying to figure why my son, who was doing so great in many aspects due to all the biomedical help he's had, has now for the past 3 months been seriously regressing w/ regard to sensory issues. > > He's always had a lot of sensory issues (noise, scratchy fabrics, over sensitive to pain, etc.), but now after making much progress in this area, he suddenly has regressed! > > Now he cannot stand even the seams in his shirts. To the point that he gets so distracted that he just cannot participate in school sometimes! ALL his clothes--no matter how soft, etc. drive him nuts. He says his pants are too heavy, his shoes are too hard. His hair on the pillow at night bothers him.... etc. etc. etc.!! Also noise is very bothersome to him right now also. > > Anyhow, while of course we can try to help him from a behavioral standpoint, I am looking for any insight at all from a biomedical standpoint as to why this is suddenly happening????! > > Could it be hormonal? (he is five just turning 6, just discovering his penis in a big way!) Could it be the anti-viral protocol we are now doing (very high doses of elderberry, monolaurin, silver collidal, policosonol, moducare, etc.) There are a lot of phenyols in some of the anti-viral herbs and he does react to those but we need to do this protocol. Could the sensory overload be related to phenoyls? > > Is this simply a yeast symptom (I've not heard much about skin sensitivity specifically before??) > > Please, any help here at all is greatly appreciated. It's terrible to see him suffering so much and it is affecting every aspect of his life, social, school, everything! > > BTW, last question here: has anyone had success with using the HANDLE face tapping technique for sensory issues? (see here for more info: http://www.wellsphere.com/autism-autism-spectrum-article/little-frog-s-handle-pr\ ogram/566334P) > > Many thanks in advance! > Alisa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 You need to increase the yeast protocol BIG TIME. Killing viruses usually cause yeast flares. > > Hi all, > > I am trying to figure why my son, who was doing so great in many aspects due to all the biomedical help he's had, has now for the past 3 months been seriously regressing w/ regard to sensory issues. > > He's always had a lot of sensory issues (noise, scratchy fabrics, over sensitive to pain, etc.), but now after making much progress in this area, he suddenly has regressed! > > Now he cannot stand even the seams in his shirts. To the point that he gets so distracted that he just cannot participate in school sometimes! ALL his clothes--no matter how soft, etc. drive him nuts. He says his pants are too heavy, his shoes are too hard. His hair on the pillow at night bothers him.... etc. etc. etc.!! Also noise is very bothersome to him right now also. > > Anyhow, while of course we can try to help him from a behavioral standpoint, I am looking for any insight at all from a biomedical standpoint as to why this is suddenly happening????! > > Could it be hormonal? (he is five just turning 6, just discovering his penis in a big way!) Could it be the anti-viral protocol we are now doing (very high doses of elderberry, monolaurin, silver collidal, policosonol, moducare, etc.) There are a lot of phenyols in some of the anti-viral herbs and he does react to those but we need to do this protocol. Could the sensory overload be related to phenoyls? > > Is this simply a yeast symptom (I've not heard much about skin sensitivity specifically before??) > > Please, any help here at all is greatly appreciated. It's terrible to see him suffering so much and it is affecting every aspect of his life, social, school, everything! > > BTW, last question here: has anyone had success with using the HANDLE face tapping technique for sensory issues? (see here for more info: http://www.wellsphere.com/autism-autism-spectrum-article/little-frog-s-handle-pr\ ogram/566334P) > > Many thanks in advance! > Alisa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 , I don¹t have energy any more it is finished that is why. When I get all the programs in place then I will see what to do.It is the energy which I am lucking at this time that is why I want to limit the travel time. We will talk. Maedot On 11/4/09 8:22 PM, " " <ckrupa3672@...> wrote: > > > > > > > You need to increase the yeast protocol BIG TIME. Killing viruses usually > cause yeast flares. > > > > >> > >> > Hi all, >> > >> > I am trying to figure why my son, who was doing so great in many aspects >> due to all the biomedical help he's had, has now for the past 3 months been >> seriously regressing w/ regard to sensory issues. >> > >> > He's always had a lot of sensory issues (noise, scratchy fabrics, over >> sensitive to pain, etc.), but now after making much progress in this area, he >> suddenly has regressed! >> > >> > Now he cannot stand even the seams in his shirts. To the point that he gets >> so distracted that he just cannot participate in school sometimes! ALL his >> clothes--no matter how soft, etc. drive him nuts. He says his pants are too >> heavy, his shoes are too hard. His hair on the pillow at night bothers >> him.... etc. etc. etc.!! Also noise is very bothersome to him right now also. >> > >> > Anyhow, while of course we can try to help him from a behavioral >> standpoint, I am looking for any insight at all from a biomedical standpoint >> as to why this is suddenly happening????! >> > >> > Could it be hormonal? (he is five just turning 6, just discovering his >> penis in a big way!) Could it be the anti-viral protocol we are now doing >> (very high doses of elderberry, monolaurin, silver collidal, policosonol, >> moducare, etc.) There are a lot of phenyols in some of the anti-viral herbs >> and he does react to those but we need to do this protocol. Could the sensory >> overload be related to phenoyls? >> > >> > Is this simply a yeast symptom (I've not heard much about skin sensitivity >> specifically before??) >> > >> > Please, any help here at all is greatly appreciated. It's terrible to see >> him suffering so much and it is affecting every aspect of his life, social, >> school, everything! >> > >> > BTW, last question here: has anyone had success with using the HANDLE face >> tapping technique for sensory issues? (see here for more info: >> http://www.wellsphere.com/autism-autism-spectrum-article/little-frog-s-handle >> -program/566334P) >> > >> > Many thanks in advance! >> > Alisa >> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 > I am trying to figure why my son, who was doing so great in many aspects due to all the biomedical help he's had, has now for the past 3 months been seriously regressing w/ regard to sensory issues. At my house, most sensory issues were caused by yeast overgrowth. >>Also noise is very bothersome to him right now also. This was definitely yeast at my house. > Could it be hormonal? (he is five just turning 6, just discovering his penis in a big way!) My son was obsessed with his penis and played with it all day long, as well as humped furniture, when he was yeasty. >>Could it be the anti-viral protocol we are now doing (very high doses of elderberry, monolaurin, silver collidal, policosonol, moducare, etc.) Viral die off tends to increase yeast. Yes, definitely could be this. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 This could definitely be yeast. The combination of sensory stuff, especially about clothes, and interest in his penis both point to yeast IMO. The other thing that came to mind is the elderberry is EXTREMELY high in histamine, which sets the volume control in the brain for sensory input and also can cause a lot of playing with the genitals (common aphrodisiacs like oysters, red wine, and chocolate are all very high in histamine). If I gave my kids elderberry I'd get all the symptoms you are describing. Yeast can also cause or exacerbate histamine processing problems. I would drop the elderberry and up the yeast protocol. Epsom salt baths help with both issues. This also relates to phenols, as phenols can cause histamine release and yeast disables the body's ability to process phenols. HTH, Sierra > > Hi all, > > I am trying to figure why my son, who was doing so great in many aspects due to all the biomedical help he's had, has now for the past 3 months been seriously regressing w/ regard to sensory issues. > > He's always had a lot of sensory issues (noise, scratchy fabrics, over sensitive to pain, etc.), but now after making much progress in this area, he suddenly has regressed! > > Now he cannot stand even the seams in his shirts. To the point that he gets so distracted that he just cannot participate in school sometimes! ALL his clothes--no matter how soft, etc. drive him nuts. He says his pants are too heavy, his shoes are too hard. His hair on the pillow at night bothers him.... etc. etc. etc.!! Also noise is very bothersome to him right now also. > > Anyhow, while of course we can try to help him from a behavioral standpoint, I am looking for any insight at all from a biomedical standpoint as to why this is suddenly happening????! > > Could it be hormonal? (he is five just turning 6, just discovering his penis in a big way!) Could it be the anti-viral protocol we are now doing (very high doses of elderberry, monolaurin, silver collidal, policosonol, moducare, etc.) There are a lot of phenyols in some of the anti-viral herbs and he does react to those but we need to do this protocol. Could the sensory overload be related to phenoyls? > > Is this simply a yeast symptom (I've not heard much about skin sensitivity specifically before??) > > Please, any help here at all is greatly appreciated. It's terrible to see him suffering so much and it is affecting every aspect of his life, social, school, everything! > > BTW, last question here: has anyone had success with using the HANDLE face tapping technique for sensory issues? (see here for more info: http://www.wellsphere.com/autism-autism-spectrum-article/little-frog-s-handle-pr\ ogram/566334P) > > Many thanks in advance! > Alisa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2009 Report Share Posted November 12, 2009 Thank you Sierra (and all of you who've sent such great responses!) I am going to drop the Elderberry. I do want to continue some kind of anti-viral protocol however (alongside a much increased yeast protocol). We think he has residual viral issues from the nasal Flu mist live virus which caused his regression... Also, he's a kid who responds to viral infections (like the flu which is floating around alot here now) with seizures. So, anti-viral seems quite important. BUT what can I use to do this? Do you think Monolaurin is OK from this standpoint? He had a terrible reaction (phenolic) to OLE... And the question remains for yeast what's best from a phenol/oxalate standpoint? Our DAN told me to cut the OLE, GSE, Oregon Grape and Quercetin and NOT to increase his biotin (which we give a lot of) Now I must admit, I am a bit stumped. I am clear that there is yeast however. His poop this morning gave more evidence (I will spare you all the details, but it is classic yeast poop---after 2 days of constipation???) Thanks for any help with this!!!! Alisa > > > > Hi all, > > > > I am trying to figure why my son, who was doing so great in many aspects due to all the biomedical help he's had, has now for the past 3 months been seriously regressing w/ regard to sensory issues. > > > > He's always had a lot of sensory issues (noise, scratchy fabrics, over sensitive to pain, etc.), but now after making much progress in this area, he suddenly has regressed! > > > > Now he cannot stand even the seams in his shirts. To the point that he gets so distracted that he just cannot participate in school sometimes! ALL his clothes--no matter how soft, etc. drive him nuts. He says his pants are too heavy, his shoes are too hard. His hair on the pillow at night bothers him.... etc. etc. etc.!! Also noise is very bothersome to him right now also. > > > > Anyhow, while of course we can try to help him from a behavioral standpoint, I am looking for any insight at all from a biomedical standpoint as to why this is suddenly happening????! > > > > Could it be hormonal? (he is five just turning 6, just discovering his penis in a big way!) Could it be the anti-viral protocol we are now doing (very high doses of elderberry, monolaurin, silver collidal, policosonol, moducare, etc.) There are a lot of phenyols in some of the anti-viral herbs and he does react to those but we need to do this protocol. Could the sensory overload be related to phenoyls? > > > > Is this simply a yeast symptom (I've not heard much about skin sensitivity specifically before??) > > > > Please, any help here at all is greatly appreciated. It's terrible to see him suffering so much and it is affecting every aspect of his life, social, school, everything! > > > > BTW, last question here: has anyone had success with using the HANDLE face tapping technique for sensory issues? (see here for more info: http://www.wellsphere.com/autism-autism-spectrum-article/little-frog-s-handle-pr\ ogram/566334P) > > > > Many thanks in advance! > > Alisa > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 Alisa- we've been doing antivirals for almost a year and it has been miraculous for my son. I hope it works for yours! If you're looking for low phenol/oxalate ideas, you could try ViraStop, Valtrex (prescription, which you may have to compound yourself, I can tell you how), colostrum (we use the Kirkman one that is casein-free), transfer factor, or Lauricidin if he can swallow small pellets. Lauricidin is supposed to be much more concentrated than Monolaurin, but that should help too. I'm sure I'm forgetting a lot... For yeast, how much probiotic are you giving? We have had great success with ThreeLac, which hasn't caused all the horrors of die-off that we usually get, just improvement. Colostrum is also good for yeast. Are you avoiding all sugar and yeast-feeding food? We got huge die-off with lots of different antifungals, but there was still an amazing amount left to die when we started SCD. I highly recommend SCD (we do the GAPS version) to heal the immune system. My family has always been sick all fall and winter, and this year everyone around us is sick and we aren't! I'm sure it's from the diet. -Sierra http://grainfreefoodie.blogspot.com/ > > Thank you Sierra (and all of you who've sent such great responses!) > > I am going to drop the Elderberry. I do want to continue some kind of anti-viral protocol however (alongside a much increased yeast protocol). We think he has residual viral issues from the nasal Flu mist live virus which caused his regression... Also, he's a kid who responds to viral infections (like the flu which is floating around alot here now) with seizures. So, anti-viral seems quite important. > > BUT what can I use to do this? Do you think Monolaurin is OK from this standpoint? > > He had a terrible reaction (phenolic) to OLE... > > And the question remains for yeast what's best from a phenol/oxalate standpoint? Our DAN told me to cut the OLE, GSE, Oregon Grape and Quercetin and NOT to increase his biotin (which we give a lot of) > > Now I must admit, I am a bit stumped. I am clear that there is yeast however. His poop this morning gave more evidence (I will spare you all the details, but it is classic yeast poop---after 2 days of constipation???) > > Thanks for any help with this!!!! > Alisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 > I am going to drop the Elderberry. I do want to continue some kind of anti-viral protocol however (alongside a much increased yeast protocol). We think he has residual viral issues from the nasal Flu mist live virus which caused his regression... Also, he's a kid who responds to viral infections (like the flu which is floating around alot here now) with seizures. So, anti-viral seems quite important. > BUT what can I use to do this? Do you think Monolaurin is OK from this standpoint? I have used Lauricidin here. It cause soooooooooo much yeast that I eventually had to stop using it. > And the question remains for yeast what's best from a phenol/oxalate standpoint? Our DAN told me to cut the OLE, GSE, Oregon Grape and Quercetin and NOT to increase his biotin (which we give a lot of) Personally, I would ignore the DAN and increase the biotin. You can try Candidase or Candex also. > Now I must admit, I am a bit stumped. I am clear that there is yeast however. His poop this morning gave more evidence (I will spare you all the details, but it is classic yeast poop---after 2 days of constipation???) Yeast tends to be constipating for most people. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 Sierra, Thanks again for all of this amazing help! OK, this all makes sense. I am going to look into ViraStop or Valtrex. Would you recommend doing both at once (starting w/ gradual dosages of course)? How do you compound Valtrex yourself? For yeast we are doing Klaire probiotics--Therbiotic Complete and Therbiotic Detox along with Culturelle and Sacchromecis Boulardi (sp?) Is ThreeLac better than these products w/ less die off? We are also doing Curcumin, GSE & Biotin. He does take Colostrum (Laktoferrin) But for the yeast something in our protocol is definitely missing and I just don't think our DAN is getting it! I think based on the answers I am getting here that I should put OLE back in (for viral and yeast issues!) even if he did have phenol reactions to it. Because it can help get to the bottom of the phenol issue, right? Our diet is very restrictive and we allow very little sugar, but I think we need to bite the bullet and try the SCD. I am going to look into it! I think we can do it--all except the very special occasion treats which are rare. Will this ruin it? " I know I will sound lame, but I HAVE to allow some rare, special occasion sugar. He will be just devastated if he cannot have a cupcake (GF/CF/SF, low sugar, etc.) like the other kids. Now these events are rare. (But such a big deal to him and also other kids can be mean about it, etc. so I feel like on a social-emotional level he truly needs the treat) But because they are rare and because he has almost no tolerance for sugar and it really affects him even more. Is there anything I can do following a treat (activated charcoal perhaps?) Will this make the diet not worth doing? Thanks for your thoughts on any of these questions!!!!!! HTH, Alisa > > > > Thank you Sierra (and all of you who've sent such great responses!) > > > > I am going to drop the Elderberry. I do want to continue some kind of anti-viral protocol however (alongside a much increased yeast protocol). We think he has residual viral issues from the nasal Flu mist live virus which caused his regression... Also, he's a kid who responds to viral infections (like the flu which is floating around alot here now) with seizures. So, anti-viral seems quite important. > > > > BUT what can I use to do this? Do you think Monolaurin is OK from this standpoint? > > > > He had a terrible reaction (phenolic) to OLE... > > > > And the question remains for yeast what's best from a phenol/oxalate standpoint? Our DAN told me to cut the OLE, GSE, Oregon Grape and Quercetin and NOT to increase his biotin (which we give a lot of) > > > > Now I must admit, I am a bit stumped. I am clear that there is yeast however. His poop this morning gave more evidence (I will spare you all the details, but it is classic yeast poop---after 2 days of constipation???) > > > > Thanks for any help with this!!!! > > Alisa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 Oh yes and we also do 1 cap of Candisol a day for yeast. But I think I need to increase to 2X day... > > > > > > Thank you Sierra (and all of you who've sent such great responses!) > > > > > > I am going to drop the Elderberry. I do want to continue some kind of anti-viral protocol however (alongside a much increased yeast protocol). We think he has residual viral issues from the nasal Flu mist live virus which caused his regression... Also, he's a kid who responds to viral infections (like the flu which is floating around alot here now) with seizures. So, anti-viral seems quite important. > > > > > > BUT what can I use to do this? Do you think Monolaurin is OK from this standpoint? > > > > > > He had a terrible reaction (phenolic) to OLE... > > > > > > And the question remains for yeast what's best from a phenol/oxalate standpoint? Our DAN told me to cut the OLE, GSE, Oregon Grape and Quercetin and NOT to increase his biotin (which we give a lot of) > > > > > > Now I must admit, I am a bit stumped. I am clear that there is yeast however. His poop this morning gave more evidence (I will spare you all the details, but it is classic yeast poop---after 2 days of constipation???) > > > > > > Thanks for any help with this!!!! > > > Alisa > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Dana~~~How do you counteract the constipation from yeast? WOndering if that's what's going on here.... > > I am going to drop the Elderberry. I do want to continue some kind of anti-viral protocol however (alongside a much increased yeast protocol). We think he has residual viral issues from the nasal Flu mist live virus which caused his regression... Also, he's a kid who responds to viral infections (like the flu which is floating around alot here now) with seizures. So, anti-viral seems quite important. > > BUT what can I use to do this? Do you think Monolaurin is OK from this standpoint? > > > I have used Lauricidin here. It cause soooooooooo much yeast that I eventually had to stop using it. > > > > And the question remains for yeast what's best from a phenol/oxalate standpoint? Our DAN told me to cut the OLE, GSE, Oregon Grape and Quercetin and NOT to increase his biotin (which we give a lot of) > > > Personally, I would ignore the DAN and increase the biotin. You can try Candidase or Candex also. > > > > Now I must admit, I am a bit stumped. I am clear that there is yeast however. His poop this morning gave more evidence (I will spare you all the details, but it is classic yeast poop---after 2 days of constipation???) > > > Yeast tends to be constipating for most people. > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Persoanlly, I would start with either ViraStop or Valtrex but not both together. Valtrex is a prescription drug so it might be easier to start with ViraStop. ViraStop is more expensive though, so that could be a deciding factor. Valtrex comes as a huge blue pill. To compound it, first wash off the blue coating (it has aluminum in it) by running it under water and rubbing the blue off. Some people soak it, and some people rub it with a damp cloth, but I found my way easiest. You will lose a little of the med itself. Leave the pills to dry completely (overnight). I would do this for all the pills at once. You may need to get a pill splitter if you are starting low. Grind the pill (or split part) with a mortar and pestle, making sure to get the powder very fine. I found that the powder dissolved in oil much better than water so I would mix it into a teaspoon of cod liver oil (which tastes nasty anyway, Valtrex tastes AWFUL BTW) and then give it with an oral syringe and a chaser. I think that if you do Valtrex for more than a couple months you may need to get bloodwork done regularly to check on the liver. ViraStop is very safe so you don't need to do that. As for the SCD/GAPS, you can make delicious cupcakes and treats on the diet. I don't know why you would need to cheat and use sugar. We make treats that even kids who eat " normal " junk food all day long like. Here is a link to a recipe for GAPS cupcakes: http://grainfreefoodie.blogspot.com/2009/03/almond-coconut-cupcakes-with.html It's from a blog that some friends and I do about what we cook on GAPS (we have recipes for a lot of other treats, even candy on there). I completely agree about the emotional need for treats and special things. GAPS is more of a protocol than SCD, so it is harder to do, but many people do something in between the two. For example, my kids won't touch broth or soup so I don't do that part. SCD tells you what NOT to eat, GAPS also tells you what to eat to heal. It's very hard to start, but once you get onto it, it gets easier. The amount of healing that my family has had is unbelieveable! Lots of people also start SCD and then later switch to GAPS. I'm sure you'll find a way to make the diet work for you. If you do decide to still give occasional sugar, I think the diet is still worth doing- just give more probiotics and other yest killers afterwards. Sounds like you're doing a lot of great probiotics. You could try rotating in Threelac and seeing if it helps- it is specifically for yeast and basically " eats " the yeast, which I think is why we didn't get die-off from it- I think it " ate " the toxins that the yeast give off. Last Christmas we were eating a ton of sugar (last binge before going on GAPS) on 3 packets a day of Threelac kept the yeast at bay. I don't recommend doing that, but it worked! Personally, depending on how much phenol reaction your son gets, I would not put the OLE back in until you get that under control. I would use other things for yeast and viruses. To support phenol issues you can give molybdenum- it helps the body produce sulfate. Do you also give epsom salt baths or use epsom salt lotion? -Sierra > > > > > > Thank you Sierra (and all of you who've sent such great responses!) > > > > > > I am going to drop the Elderberry. I do want to continue some kind of anti-viral protocol however (alongside a much increased yeast protocol). We think he has residual viral issues from the nasal Flu mist live virus which caused his regression... Also, he's a kid who responds to viral infections (like the flu which is floating around alot here now) with seizures. So, anti-viral seems quite important. > > > > > > BUT what can I use to do this? Do you think Monolaurin is OK from this standpoint? > > > > > > He had a terrible reaction (phenolic) to OLE... > > > > > > And the question remains for yeast what's best from a phenol/oxalate standpoint? Our DAN told me to cut the OLE, GSE, Oregon Grape and Quercetin and NOT to increase his biotin (which we give a lot of) > > > > > > Now I must admit, I am a bit stumped. I am clear that there is yeast however. His poop this morning gave more evidence (I will spare you all the details, but it is classic yeast poop---after 2 days of constipation???) > > > > > > Thanks for any help with this!!!! > > > Alisa > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 I am using Isoprinosine as an antiviral.If anyone knows of an antibacterial that's just as good,please let me know. ' '                        From: purpledragonmama05 <sierra.ansley@...> Subject: Re: Sensory regression!!! Yeast? Hormones? Phenyols? Help!! Date: Sunday, November 15, 2009, 5:54 PM  Persoanlly, I would start with either ViraStop or Valtrex but not both together. Valtrex is a prescription drug so it might be easier to start with ViraStop. ViraStop is more expensive though, so that could be a deciding factor. Valtrex comes as a huge blue pill. To compound it, first wash off the blue coating (it has aluminum in it) by running it under water and rubbing the blue off. Some people soak it, and some people rub it with a damp cloth, but I found my way easiest. You will lose a little of the med itself. Leave the pills to dry completely (overnight). I would do this for all the pills at once. You may need to get a pill splitter if you are starting low. Grind the pill (or split part) with a mortar and pestle, making sure to get the powder very fine. I found that the powder dissolved in oil much better than water so I would mix it into a teaspoon of cod liver oil (which tastes nasty anyway, Valtrex tastes AWFUL BTW) and then give it with an oral syringe and a chaser. I think that if you do Valtrex for more than a couple months you may need to get bloodwork done regularly to check on the liver. ViraStop is very safe so you don't need to do that. As for the SCD/GAPS, you can make delicious cupcakes and treats on the diet. I don't know why you would need to cheat and use sugar. We make treats that even kids who eat " normal " junk food all day long like. Here is a link to a recipe for GAPS cupcakes: http://grainfreefoo die.blogspot. com/2009/ 03/almond- coconut-cupcakes -with.html It's from a blog that some friends and I do about what we cook on GAPS (we have recipes for a lot of other treats, even candy on there). I completely agree about the emotional need for treats and special things. GAPS is more of a protocol than SCD, so it is harder to do, but many people do something in between the two. For example, my kids won't touch broth or soup so I don't do that part. SCD tells you what NOT to eat, GAPS also tells you what to eat to heal. It's very hard to start, but once you get onto it, it gets easier. The amount of healing that my family has had is unbelieveable! Lots of people also start SCD and then later switch to GAPS. I'm sure you'll find a way to make the diet work for you. If you do decide to still give occasional sugar, I think the diet is still worth doing- just give more probiotics and other yest killers afterwards. Sounds like you're doing a lot of great probiotics. You could try rotating in Threelac and seeing if it helps- it is specifically for yeast and basically " eats " the yeast, which I think is why we didn't get die-off from it- I think it " ate " the toxins that the yeast give off. Last Christmas we were eating a ton of sugar (last binge before going on GAPS) on 3 packets a day of Threelac kept the yeast at bay. I don't recommend doing that, but it worked! Personally, depending on how much phenol reaction your son gets, I would not put the OLE back in until you get that under control. I would use other things for yeast and viruses. To support phenol issues you can give molybdenum- it helps the body produce sulfate. Do you also give epsom salt baths or use epsom salt lotion? -Sierra > > > > > > Thank you Sierra (and all of you who've sent such great responses!) > > > > > > I am going to drop the Elderberry. I do want to continue some kind of anti-viral protocol however (alongside a much increased yeast protocol). We think he has residual viral issues from the nasal Flu mist live virus which caused his regression.. . Also, he's a kid who responds to viral infections (like the flu which is floating around alot here now) with seizures. So, anti-viral seems quite important. > > > > > > BUT what can I use to do this? Do you think Monolaurin is OK from this standpoint? > > > > > > He had a terrible reaction (phenolic) to OLE... > > > > > > And the question remains for yeast what's best from a phenol/oxalate standpoint? Our DAN told me to cut the OLE, GSE, Oregon Grape and Quercetin and NOT to increase his biotin (which we give a lot of) > > > > > > Now I must admit, I am a bit stumped. I am clear that there is yeast however. His poop this morning gave more evidence (I will spare you all the details, but it is classic yeast poop---after 2 days of constipation? ??) > > > > > > Thanks for any help with this!!!! > > > Alisa > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 Why did the DAN recommend cutting that out? Our DAN told me to cut the OLE, GSE, Oregon Grape and Quercetin and NOT to increase his biotin (which we give a lot of) Alisa - why are you dropping it? We are taking this currently. I am going to drop the Elderberry. Many people have luck with No Phenol for attacking the yeast in addition to their yeast protocol. Lastly, we struggle with allowing some sugar while not allowing too much..so hard. What I did not realize is HOW much we were consuming when I thought we were very, very low. One day I wrote every item down and added it all up. It was very high. We began to offer points for a larger toy or smaller toys along the way instead of all the food treats our kids seem to get these days! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 > Dana~~~How do you counteract the constipation from yeast? Increase the yeast protocol so the yeast overgrowth is eliminated. http://www.danasview.net/yeast.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2009 Report Share Posted November 26, 2009 You know what? I have been wondering if my son's regressions were from his FluMist also ... my daughter (age 5) also started exhibiting odd symptoms after the FluMist. She is constantly wanting to bounce/flip around this little ribbon and looks at it constantly while she bounces it. What is that about? So, did an anti-viral therapy help your post flumist situation? > > I am going to drop the Elderberry. I do want to continue some kind of anti-viral protocol however (alongside a much increased yeast protocol). We think he has residual viral issues from the nasal Flu mist live virus which caused his regression... Also, he's a kid who responds to viral infections (like the flu which is floating around alot here now) with seizures. So, anti-viral seems quite important. > > BUT what can I use to do this? Do you think Monolaurin is OK from this standpoint? > > > I have used Lauricidin here. It cause soooooooooo much yeast that I eventually had to stop using it. > > > > And the question remains for yeast what's best from a phenol/oxalate standpoint? Our DAN told me to cut the OLE, GSE, Oregon Grape and Quercetin and NOT to increase his biotin (which we give a lot of) > > > Personally, I would ignore the DAN and increase the biotin. You can try Candidase or Candex also. > > > > Now I must admit, I am a bit stumped. I am clear that there is yeast however. His poop this morning gave more evidence (I will spare you all the details, but it is classic yeast poop---after 2 days of constipation???) > > > Yeast tends to be constipating for most people. > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2009 Report Share Posted November 26, 2009 Your daughter has exact symtoms to my daughter. From: mcdmcd888 <margaret.d888@...> Subject: Re: Sensory regression!!! Yeast? Hormones? Phenyols? Help!! Date: Thursday, November 26, 2009, 8:44 PM Â You know what? I have been wondering if my son's regressions were from his FluMist also ... my daughter (age 5) also started exhibiting odd symptoms after the FluMist. She is constantly wanting to bounce/flip around this little ribbon and looks at it constantly while she bounces it. What is that about? So, did an anti-viral therapy help your post flumist situation? > > I am going to drop the Elderberry. I do want to continue some kind of anti-viral protocol however (alongside a much increased yeast protocol). We think he has residual viral issues from the nasal Flu mist live virus which caused his regression.. . Also, he's a kid who responds to viral infections (like the flu which is floating around alot here now) with seizures. So, anti-viral seems quite important. > > BUT what can I use to do this? Do you think Monolaurin is OK from this standpoint? > > > I have used Lauricidin here. It cause soooooooooo much yeast that I eventually had to stop using it. > > > > And the question remains for yeast what's best from a phenol/oxalate standpoint? Our DAN told me to cut the OLE, GSE, Oregon Grape and Quercetin and NOT to increase his biotin (which we give a lot of) > > > Personally, I would ignore the DAN and increase the biotin. You can try Candidase or Candex also. > > > > Now I must admit, I am a bit stumped. I am clear that there is yeast however. His poop this morning gave more evidence (I will spare you all the details, but it is classic yeast poop---after 2 days of constipation? ??) > > > Yeast tends to be constipating for most people. > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 > You know what? I have been wondering if my son's regressions were from his FluMist also ... my daughter (age 5) also started exhibiting odd symptoms after the FluMist. She is constantly wanting to bounce/flip around this little ribbon and looks at it constantly while she bounces it. What is that about? Try increasing the yeast protocol first. Dana Quote Link to comment Share on other sites More sharing options...
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