Guest guest Posted September 27, 2010 Report Share Posted September 27, 2010 Yep, that' exactly my kids...especially my son. It does get better with age, but then it picks up a little bit during puberty. You don't go back to square one with the behaviors, but they do get pretty bad around the time of their cycles. Even that evens out after about a year. Just hang in there and know that it gets better. It seems impossible right now, but there are things that help. It takes a lot of work and strength...and chocolate:) You can do it. You can figure this out and you can make things better. Anytime you need to vent just e-mail me. I've been there, I know what you're going through From: thesweetattack@... Date: Mon, 27 Sep 2010 14:58:49 -0400 Subject: RE: total defiance and big mouth She has not been on adderall for over 1 year, since it did not work, we stopped it. And her actions are at home behavior, and in public with us, but when she is with others or at school--no problems.. Re: total defiance and big mouth Well, we will be talking with her DAN doc this week, has many medical problems, on top of her behavior issues, last week she got a mild form of chicken pox, which for us is a blessing, as the last 5 months during full moon, she got large lymph nodes popping out all over her body, and her blood sugar has been bottoming out at a moment's notice, so for her body to be able to push some of the pox out of her skin is a blessing. She will be home from school all week, so we will be driving each other crazy this week. But as for medication, I don't even know where to tart --like stated before, she was on adderal for over 8 months, and in only lasted for about 2 hours, but that was before started all the yeast protocal, ----I just hate the thought of putting this little 7 year old body on medication, since she is able to control it at school and the teachers have trouble believing there are problems outside of school. She is well advanced academically, and is the only 1st grader in the 2nd grade enrichment classes---So all they see is this well rounded, advanced child. And I think It has to do with the constant structure. But at home it is a different story. I ahve seen some posts on here for risperdal, what is that over adderal or something else? I appreciate your thoughts so much... Jen total defiance and big mouth > > Date: Sunday, September 26, 2010, 6:58 AM > > Hello Everyone, > > I am looking to you all for help. My PDD, ketotic hypoglycemic 7yr old > female who has had many yeast and bacteria issues, and has been on the > yeast protocal for almost 2 years, now has the chicken pox mildly and > large lymph nodes that have erupted all over her body. So I can > understand the heightened horrible behavior. But even without all these > extra raised issues, the one constant remains,----her total defiance and > big mouth. throwing stuff at me, hitting me, total refusal to pick up, put > away anything, total destruction of our home, absolute rude behavior and > mean talk, loud talking, constant interrupting. WE have tried > discipline, time-out, spanking, taking things away, removing actitivies > etc. WE 've tried sticker charts, goal sheets, special events for her to > work towards and nothing works... She has driven a wedge between all of > us, > my husband just has no time for her anymore, and my 10 year son Hates her, > this > behavior just is not getting any better, with 3 years of help from > behavioralist and TSS people that help in home and community--------and > any > social event we are avoided like the plague as families do not want their > kids hanging around " that girl " -- and I honestly don't blame, she is > behaving horribly.. > > Can anyone relate, and what do you do. we have been thru all the food > allergy tests she is GF/CF/ Egg free, Dye free, and yes we know it is full > moon week which also adds to all this. She had all the bacteria and yeast > tests done, and all the nutrient deficiency test done which we have been > correcting for over a year as well.. But no matter what, this > horrible defiant, just absolutely possessed child behavior continues. Adn > we feel like our only option is to go to the typical medicine. Over 2 > years ago they had put her on adderal because she was jsut running out > into > the street, and ran into the sides of moving cars already, has undone her > seat belt and opened doors to the car while we are driving, undressed and > thrown her clothes out the windows, Has tried to climb out on our 2nd > story > roof from her bedroom window, has pushed chairs down the steps, as well > as all her clothes and many other things. Dumped bottles and bottles of > shampoo, soap, oil, anythign she can get her hands in --to make a skating > rink on our carpet---jumped all over our house furniture and bed in many > instances while urinating and rolling in it, taken her poop out of the > toilet and drawn all over our walls with it--- I think you get the > picture. > This is her history, but the ugly defiance is the worse--yes this is all > horrible and is a pain and very expensive to clean up, and it goes away > after time, but the mouth and nasty behavior remains. > > Our family is understandably falling apart, I understand this is some > behavior she cannot control, and she is not doing it on purpose, something > inside her is terribly off, we jsut do not know what else to do.. > > please help. > > Jen trovinger > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2010 Report Share Posted September 28, 2010 Just a thought (someone else may have said this already) but this behavior is classic for high histamine people, and high histamine is a common cause of Bipolar Disorder. My son was like this but now not at all. I can be addressed without meds, at least in some people. Meds only hide the symptom, they don't fix the underlying problem that caused the symptom. Of course, sometimes the symptom is so awful that you need to medicate in order to survive while the healing takes place. In my opinion, high histamine pretty much stems from bad bacteria. We used a low histamine diet to reduce symptoms quickly. I hope you find something that helps! -Sierra > > > In Bipolar Disorder, and I'm not saying that's what she has at all, but with Bipolar Disorder it's part of the " M.O " for them to behave out of the home and not at home. I know I was definately that way. My daughter is that way. It was one of the first clues that the BP diagnosis wasn't quite right for my son when he was acting out just as bad at school as at home. It has nothing to do with behavior or being able to control it. The reason for people with BP to only act out in private is they feel the need to present a " normal face " to the world. Only the people close to them get to see them at their worst....unless they are in serious mental breakdown mode, which is rare for most BP's. So that's what I know from my standpoint and from reading and talking to others with Bipolar kids. Like I said, I'm not saying it's bipolar, this is just how behaviors being different at home than at school have been explained to me. I can immagine it being the same for autism. My daughter is terrified of seeming weird or odd in front of her peers. So I think that fear overrides her other issues when she's at school. I can't stress enough that it doesn't mean she can control it, and it's not bad behavior. It's symptoms of an illness, whether it's autism or BP. Nobody ever believed me when I'd explain my daughter's behavior. She'd act like a completely different child at the Doctors and they'd be looking at me like I was the one who was crazy:) The aderall only working for two hours for your daughter is a good indicator that it's not right for her. Aderall is basically speed. So initially you get a high end feel euphoric, so that might be why it seemed to be working for her. I remember reading something in Dr.Bock's book about why some people thought their kid had ADHD when Aderall worked...I'll see if I can find it. I can't post t until later today b/c I'm off to run some errands. A good place to learn about psych meds is a website called CABF.org . It's the childhood and adolescant bbipolar foundation. Your child doesn't have to be bipolar for you to join, in fact a lot of parents with autistic children are on their. It's a lot like this site because you can post and talk to other parents and experts about it. It also has a lot of resource pages. A really great book that describes the meds and what they do is called " New Hope For Children and Adolescants with Bipolar Disorder " ...again I'm not saying your child has BP, even though it's been like every other wor din this post:) ha ha ha That's just where my info comes from. I'll see if I can find that info from Dr.Bock's book and post it later today...oh, what I did just see when I glanced talked about kids having low iron and borderline anemia (one of the signs is the bottoming out of her blood sugar) He said the aderall could mask the symptoms so it would seem like it was helping the child > > > > > From: thesweetattack@... > Date: Mon, 27 Sep 2010 09:41:59 -0400 > Subject: Re: total defiance and big mouth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2010 Report Share Posted September 28, 2010 I am so very very interested in learning about hystamine. I'm bipolar and my kids were originally diagnosed as bipolar. I didn't know that hystamine could be related to that. Do you have any website or book recommendations? From: sierra.ansley@... Date: Wed, 29 Sep 2010 02:03:49 +0000 Subject: Re: total defiance and big mouth Just a thought (someone else may have said this already) but this behavior is classic for high histamine people, and high histamine is a common cause of Bipolar Disorder. My son was like this but now not at all. I can be addressed without meds, at least in some people. Meds only hide the symptom, they don't fix the underlying problem that caused the symptom. Of course, sometimes the symptom is so awful that you need to medicate in order to survive while the healing takes place. In my opinion, high histamine pretty much stems from bad bacteria. We used a low histamine diet to reduce symptoms quickly. I hope you find something that helps! -Sierra > > > In Bipolar Disorder, and I'm not saying that's what she has at all, but with Bipolar Disorder it's part of the " M.O " for them to behave out of the home and not at home. I know I was definately that way. My daughter is that way. It was one of the first clues that the BP diagnosis wasn't quite right for my son when he was acting out just as bad at school as at home. It has nothing to do with behavior or being able to control it. The reason for people with BP to only act out in private is they feel the need to present a " normal face " to the world. Only the people close to them get to see them at their worst....unless they are in serious mental breakdown mode, which is rare for most BP's. So that's what I know from my standpoint and from reading and talking to others with Bipolar kids. Like I said, I'm not saying it's bipolar, this is just how behaviors being different at home than at school have been explained to me. I can immagine it being the same for autism. My daughter is terrified of seeming weird or odd in front of her peers. So I think that fear overrides her other issues when she's at school. I can't stress enough that it doesn't mean she can control it, and it's not bad behavior. It's symptoms of an illness, whether it's autism or BP. Nobody ever believed me when I'd explain my daughter's behavior. She'd act like a completely different child at the Doctors and they'd be looking at me like I was the one who was crazy:) The aderall only working for two hours for your daughter is a good indicator that it's not right for her. Aderall is basically speed. So initially you get a high end feel euphoric, so that might be why it seemed to be working for her. I remember reading something in Dr.Bock's book about why some people thought their kid had ADHD when Aderall worked...I'll see if I can find it. I can't post t until later today b/c I'm off to run some errands. A good place to learn about psych meds is a website called CABF.org . It's the childhood and adolescant bbipolar foundation. Your child doesn't have to be bipolar for you to join, in fact a lot of parents with autistic children are on their. It's a lot like this site because you can post and talk to other parents and experts about it. It also has a lot of resource pages. A really great book that describes the meds and what they do is called " New Hope For Children and Adolescants with Bipolar Disorder " ...again I'm not saying your child has BP, even though it's been like every other wor din this post:) ha ha ha That's just where my info comes from. I'll see if I can find that info from Dr.Bock's book and post it later today...oh, what I did just see when I glanced talked about kids having low iron and borderline anemia (one of the signs is the bottoming out of her blood sugar) He said the aderall could mask the symptoms so it would seem like it was helping the child > > > > > From: thesweetattack@... > Date: Mon, 27 Sep 2010 09:41:59 -0400 > Subject: Re: total defiance and big mouth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2010 Report Share Posted September 29, 2010 Sierra,  There seem to be a lot of the older kids that fit this pattern. My son is showing all kinds of symptoms of high histamine. He is currently on Abilify to help manage the aggression. If you wouldn't mind sharing your experience and solutions, I am sure we would all appreciate it.  Thanks, Drissia From: purpledragonmama05 <sierra.ansley@...> Subject: Re: total defiance and big mouth Date: Tuesday, September 28, 2010, 10:03 PM  Just a thought (someone else may have said this already) but this behavior is classic for high histamine people, and high histamine is a common cause of Bipolar Disorder. My son was like this but now not at all. I can be addressed without meds, at least in some people. Meds only hide the symptom, they don't fix the underlying problem that caused the symptom. Of course, sometimes the symptom is so awful that you need to medicate in order to survive while the healing takes place. In my opinion, high histamine pretty much stems from bad bacteria. We used a low histamine diet to reduce symptoms quickly. I hope you find something that helps! -Sierra > > > In Bipolar Disorder, and I'm not saying that's what she has at all, but with Bipolar Disorder it's part of the " M.O " for them to behave out of the home and not at home. I know I was definately that way. My daughter is that way. It was one of the first clues that the BP diagnosis wasn't quite right for my son when he was acting out just as bad at school as at home. It has nothing to do with behavior or being able to control it. The reason for people with BP to only act out in private is they feel the need to present a " normal face " to the world. Only the people close to them get to see them at their worst....unless they are in serious mental breakdown mode, which is rare for most BP's. So that's what I know from my standpoint and from reading and talking to others with Bipolar kids. Like I said, I'm not saying it's bipolar, this is just how behaviors being different at home than at school have been explained to me. I can immagine it being the same for autism. My daughter is terrified of seeming weird or odd in front of her peers. So I think that fear overrides her other issues when she's at school. I can't stress enough that it doesn't mean she can control it, and it's not bad behavior. It's symptoms of an illness, whether it's autism or BP. Nobody ever believed me when I'd explain my daughter's behavior. She'd act like a completely different child at the Doctors and they'd be looking at me like I was the one who was crazy:) The aderall only working for two hours for your daughter is a good indicator that it's not right for her. Aderall is basically speed. So initially you get a high end feel euphoric, so that might be why it seemed to be working for her. I remember reading something in Dr.Bock's book about why some people thought their kid had ADHD when Aderall worked...I'll see if I can find it. I can't post t until later today b/c I'm off to run some errands. A good place to learn about psych meds is a website called CABF.org . It's the childhood and adolescant bbipolar foundation. Your child doesn't have to be bipolar for you to join, in fact a lot of parents with autistic children are on their. It's a lot like this site because you can post and talk to other parents and experts about it. It also has a lot of resource pages. A really great book that describes the meds and what they do is called " New Hope For Children and Adolescants with Bipolar Disorder " ...again I'm not saying your child has BP, even though it's been like every other wor din this post:) ha ha ha That's just where my info comes from. I'll see if I can find that info from Dr.Bock's book and post it later today...oh, what I did just see when I glanced talked about kids having low iron and borderline anemia (one of the signs is the bottoming out of her blood sugar) He said the aderall could mask the symptoms so it would seem like it was helping the child > > > > > From: thesweetattack@... > Date: Mon, 27 Sep 2010 09:41:59 -0400 > Subject: Re: total defiance and big mouth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2010 Report Share Posted September 29, 2010 wow, just found out my son has high histamine. i went on line and there a lot of low histamine diets and they contradict each other. which diet did you follow? where did you get the info? thanks, kim Re: total defiance and big mouth Quote Link to comment Share on other sites More sharing options...
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