Re: I guess my last message didn't get through

January 19, 2008

Where do you live?

I guess my last message didn't get through

I am so confused, well not confused but overloaded with all this

information.

First, doo ANY of the DAN doctors take medicaid? or take insurance?

I called a place yesterday and they want $1300 to test my son. That

in itself is a crime.

Can I make his doctor test him for deficiencies?

Where can I find someone who actually knows what they are talking

about when it comes to supplements. I don't think GNC is the answer.

I am a little frustrated because I don't knwo any dietitians anymore -

my mother passed a while ago - I am sure she woud be all over this.

I called one DAN! doctor on the list and they don't do autism issues

anymore just pain management i guess there is even more money in that.

So bitter? its my frustration. I am not going to just put my son on

stuff without talking with a porfessional but its seems that I can't

find one to do that.

i guess i will just start there I can't remember what my other post

said, I guess it wasn't important

January 19, 2008

I am sorry you are so frustrated. It is hard to deal with what we have been

throw with so little help from the medical community.

In our area, no DAN! doc takes insurance. I never did go to one, but did use

a Certified Nutritionist who I paid by the hour. I don't even remember how I

found her.

However, I did most of what I have done based on my own research. I have

spent hours upon hours, late at night when I was exhasted, trying to figure out

how to pull my then 3 year old boarderline ASD son away from ASD and into

" typical. " Then he had a vocabulary of 30-50 words, now he speaks in full

sentences. He is still delayed in all areas, but no where near where he was

when I started. Today he is a 5 year old who still stuggles, but is considered

SID/SPD (sensory issues) and not ASD.

I have never been one to blindly trust the medical profession, but this

situation forced me to take my son's health adn development into my own hands.

You must read and seek and research and talk to other parents who have found

success iwth biomed. They can guide you, help you, support you. But you can

do it. And you can start with basic things taht would not hurt a child

regardless if you have medical input.

I started with removing all artifical colors and flavors, preservatives and

High Fructose Corn Syrup. I also added Cod Liver Oil, zinc and magnesium. The

results were huge, esp in his speech. I then started HNI digestive enzymes as

an altervative to GF/CF diet. We eventully discovered he had a corn intolerance

and removed all corn products from his diet (enzymes do not seem to help corn)>

It has not been easy but neither was the daily life we lived with him.

We now have him in private OT/PT to address his severe sensory issues that the

school was not really addressing. He is doing great.

Also, we changed Ped's. His previous one, at his 4 year check, was amazed at

his progress, and although I had brought her much research materials to read,

just said she knew nothing about it all but was sure it was helping. However,

she would not sign an auth for him to be given his enzymes at the drop off kids

care I use. I was on a wait list for a year to get into another practice where

the MD's have more experience with biomed and use alternative treatments along

side western med. I now have a doc who listens to me about using a med with

anything artifical, and one who gladly signed the enzyme auth.

You must become your child's advocate, it is hard...it is exhasting, but the

reward are so worth it. My life is still tough today because of my special

child, but it is better than it was and I have hope it will only get better,

that he will get better, and lead a typical, normal life.

Good Luck...ask questions, esp specific ones. The parents on this board are

the best!

denice

mystic1930 <mystic1930@...> wrote: