Re: Re: vocal stimming, again

[Guest guest]

Great info Amy!

 

My son's vocal stims are off the charts again also. I'm thinking it's yeast or

food sensitivities.

 

What test did your doctor run? Not sure where your doctor is located, but if you

wouldn't mind could you share his info.

 

My son eats a lot of rice in place of gluten products. His IgG was off the hook

for so many foods that we seriously don't know what to feed him. Every single

diet out there has so many things that his IgG states he's sensitive to. From

gluten, oats, rice, nuts, coconut, fruits, some veggies, and so much more. Ugh!

The biggest battle ever!

 

I'd be interested in looking into this test.

 

Thank you in advance,

Sandy

From: Amy <waggersitter@...>

Subject: Re: vocal stimming, again

Date: Monday, November 22, 2010, 8:24 AM

 

I'm just going to throw this out there, hoping it may help.

My son was doing lots of vocal/visual stimming and it has recently stopped

completely when we stopped feeding him rice.

We have done a VERY thorough parasite test with a specialist, on top of the CDSA

w/parasitology X3 from Great Plains (which found NOTHING, zero), and the

specialist testing found A LOT of parasites, including one they had never seen

and it's at the CDC being looked at to see which meds it will take to kill it.

(I know...) His new doctor (not a DAN doctor, btw, just very open minded and

thorough) firmly believes parasites aren't given enough focus, they cause

microscopic holes which lead to a ton of food sensitivities and just basically

do tons of damage. They let in oxalates, allow yeast to grow, destroy secretory

IgA, everything that causes these vicious cycles we are all on. Anyway, his IgG

test came back that he was allergic to 80% of foods tested for, so we started

getting rid of them and low and behold, no more stims.

I guess my point is, maybe it's worth seeing if parasites could be an underlying

problem, and get a really good test with a specialist. I've read several places

that only 1% of cases are really getting detected. And sometimes a " cleanse "

isn't enough. It can take up to a year to really get rid of them. And then the

healing can begin and hopefully, less immune system responses to foods that

aren't really the enemy. I'm no expert, and this is only my son's case, but

maybe it's time we started looking at parasites as much as we look at yeast and

bacteria and viruses.

At least it gives you something to consider???

Amy

>

> I am at my wit's end with the vocal stim my son has. Every 3 to 7 seconds, he

yelps/barks/shrieks/ a sound like 'Ay!' It's at a pitch and volume that

literally make my ears hurt. He's non-verbal otherwise.

>

> He's been on Diflucan (400mg/day) for over a month, and it helped a little for

the first two days. It has helped him sleep and focus and calm down a bit, but

the stim is still there.

>

> He has major trouble with phenols, even with no-fenol enzymes, so I'm

reluctant to give GSE again.

>

> He takes:

> Vit D

> Vit E

> Vit B12

> Carnitine (did you know this is by prescription only in Canada?!)

> Glycine

> GABA

> cilantro

> 2 different probiotics

> iron

>

> Any ideas at all? I'm at a loss, and I'm about ready to lose it.

>

>

>

[Guest guest]

Hi. Thank you for the input.

Parasites were a minor problem, but we got rid of them. My DAN would totally

agree that they need as much attention as bacteria and yeast and viruses. We had

fairly comprehensive test done with Metagenix (? Not sure. It was about a year

ago) and the only thing that turned up was pinworms. Maybe, after I step up his

biotin, I'll add some biocidin back in and see if there are more parasitic

problems. Thanks.

----- Receiving the following content -----

From: Amy

Receiver:

Time: 2010-11-22, 08:24:22

Subject: Re: vocal stimming, again

>I'm just going to throw this out there, hoping it may help.

>My son was doing lots of vocal/visual stimming and it has recently stopped

completely when we stopped feeding him rice.

>

>We have done a VERY thorough parasite test with a specialist, on top of the

CDSA w/parasitology X3 from Great Plains (which found NOTHING, zero), and the

specialist testing found A LOT of parasites, including one they had never seen

and it's at the CDC being looked at to see which meds it will take to kill it.

(I know...) His new doctor (not a DAN doctor, btw, just very open minded and

thorough) firmly believes parasites aren't given enough focus, they cause

microscopic holes which lead to a ton of food sensitivities and just basically

do tons of damage. They let in oxalates, allow yeast to grow, destroy secretory

IgA, everything that causes these vicious cycles we are all on. Anyway, his IgG

test came back that he was allergic to 80% of foods tested for, so we started

getting rid of them and low and behold, no more stims.

>

>I guess my point is, maybe it's worth seeing if parasites could be an

underlying problem, and get a really good test with a specialist. I've read

several places that only 1% of cases are really getting detected. And sometimes

a " cleanse " isn't enough. It can take up to a year to really get rid of them.

And then the healing can begin and hopefully, less immune system responses to

foods that aren't really the enemy. I'm no expert, and this is only my son's

case, but maybe it's time we started looking at parasites as much as we look at

yeast and bacteria and viruses.

>

>At least it gives you something to consider???

>Amy

>

>

>>

>> I am at my wit's end with the vocal stim my son has. Every 3 to 7 seconds, he

yelps/barks/shrieks/ a sound like 'Ay!' It's at a pitch and volume that

literally make my ears hurt. He's non-verbal otherwise.

>>

>> He's been on Diflucan (400mg/day) for over a month, and it helped a little

for the first two days. It has helped him sleep and focus and calm down a bit,

but the stim is still there.

>>

>> He has major trouble with phenols, even with no-fenol enzymes, so I'm

reluctant to give GSE again.

>>

>> He takes:

>> Vit D

>> Vit E

>> Vit B12

>> Carnitine (did you know this is by prescription only in Canada?!)

>> Glycine

>> GABA

>> cilantro

>> 2 different probiotics

>> iron

>>

>> Any ideas at all? I'm at a loss, and I'm about ready to lose it.

>>

>>

>>

>

>

>

>

>------------------------------------

>

>

[Guest guest]

>Add or increase biotin, see if that helps.

>

>Dana

Thanks Dana! 1000 mcg to start sound about right?

[Guest guest]

Is this a blood test to test for parasites or a stool test? If blood, how

does that work? Glad you discovered the cause.

From:

[mailto: ] On Behalf Of Amy

Sent: Monday, November 22, 2010 3:42 PM

Subject: Re: vocal stimming, again

Actually, they put the sample under the microscope and there they were. I

have no idea how a $400 test from a huge company like Great Plains can miss

them all, but it did tell us about how little secretory IgA he has. This is

the first line of defense against pathogens and he has almost none. So,

that's a clue from those tests, but all we got. If I had not emailed his

blood test results to a doctor to ask about his thyroid, WE NEVER WOULD HAVE

KNOWN they were there. It missed tapeworm, pinworm, giardia, and the one we

are waiting for identification. (sounds horrible, doesn't it?)

What really alerted them was his extremely high Eosinophils on his blood

test. Very indicative of a parasitic infection. They said it was the highest

they had ever seen even in adults.

His yeast markers were good, and we are on Rx antifungals anyway, so

although it is always there, it wasn't causing the stims. Food is causing

them, of that I'm certain.

He's allergic to everything he can eat according to our diets too. Except

coffee. Which is an appetite suppressant, so maybe I'll just go with that

I have a few articles you may like to read, they helped me really get my

brain around how they can cause so many symptoms.

First, check out www.food-allergy.org. This is one lady's story about her

family and experience with parasites, and is really informative.

Then, parasitesinhumans.org, and last

http://www.preventionandhealing.com/articles/Parasites_and_Allergies.pdf

Sorry to be so detailed. Hope it helps,

Amy

> >

> > I am at my wit's end with the vocal stim my son has. Every 3 to 7

seconds, he yelps/barks/shrieks/ a sound like 'Ay!' It's at a pitch and

volume that literally make my ears hurt. He's non-verbal otherwise.

> >

> > He's been on Diflucan (400mg/day) for over a month, and it helped a

little for the first two days. It has helped him sleep and focus and calm

down a bit, but the stim is still there.

> >

> > He has major trouble with phenols, even with no-fenol enzymes, so I'm

reluctant to give GSE again.

> >

> > He takes:

> > Vit D

> > Vit E

> > Vit B12

> > Carnitine (did you know this is by prescription only in Canada?!)

> > Glycine

> > GABA

> > cilantro

> > 2 different probiotics

> > iron

> >

> > Any ideas at all? I'm at a loss, and I'm about ready to lose it.

> >

> >

> >

>

>

>

>

>

>

>

>

>