Re: Mark update

[Guest guest]

Good luck to Mark, . Perhaps at the 3 months his

esophagus was still " angry " at being operated on, but

after another 9 months have gone by things will have

settled down and be much better. Good luck!

--- <1x2y3z@...> wrote:

> I was away for awhile but started reading messages

> again during the past week. Welcome to all the new

> folks. This is such a supportive place.

>

> My son Mark (now 16) had the myotomy with

> fundoplication a year ago at Cleveland Clinic.

> Since then, he has been able to eat anything.

>

> Sometimes he does start coughing during a meal, but

> this is relieved by walking around.

>

> We recently returned from vacation, including a

> six-day cruise in the western Caribbean. Mark

> ordered whatever he wanted to eat, and the

> waiter did a great job of keeping his water

> glass full all the time. He does drink a LOT of

> water.

>

> Tomorrow he goes for the one-year timed barium

> swallow. His esophagus did not empty completely in

> five minutes at the three-month checkup... so we're

> just hoping that its shape is holding up well.

>

> in Pennsylvania

>

>

________________________________________________________________________________\

____

Be a better Globetrotter. Get better travel answers from someone who knows.

Answers - Check it out.

http://answers./dir/?link=list & sid=396545469

[Guest guest]

Thank you, .

It turns out the test hadn't been scheduled properly, and the

radiologist's office couldn't get in touch with the doctor... So

it will have to be rescheduled. At least it wasn't far from

home.

Re: Mark update

> Good luck to Mark, . Perhaps at the 3 months his

> esophagus was still " angry " at being operated on, but

> after another 9 months have gone by things will have

> settled down and be much better. Good luck!

>

>

>

> --- <1x2y3z@...> wrote:

>

>> I was away for awhile but started reading messages

>> again during the past week. Welcome to all the new

>> folks. This is such a supportive place.

>>

>> My son Mark (now 16) had the myotomy with

>> fundoplication a year ago at Cleveland Clinic.

>> Since then, he has been able to eat anything.

>>

>> Sometimes he does start coughing during a meal, but

>> this is relieved by walking around.

>>

>> We recently returned from vacation, including a

>> six-day cruise in the western Caribbean. Mark

>> ordered whatever he wanted to eat, and the

>> waiter did a great job of keeping his water

>> glass full all the time. He does drink a LOT of

>> water.

>>

>> Tomorrow he goes for the one-year timed barium

>> swallow. His esophagus did not empty completely in

>> five minutes at the three-month checkup... so we're

>> just hoping that its shape is holding up well.

>>

>> in Pennsylvania

>>

[Guest guest]

Maybe an eliptical machine would be easier on his feet if running is no good and

exercise is vital to him. Continued success to you.

Mark update

So, we made the transition to high school! Hurray! Right now, Mark has just

under an 80 average so he's doing pretty well.

Trigonometry continues to be a problem. Yes....anything to do with space and

spatial relationships is hard for him. The other math is ok because Mark does

the Kumon Math program. For those of you with younger kids, I highly recommend

Kumon Math for children with dyspraxia. Start them in grade school and keep your

dyspraxic kid in the program until they have finished school! Because Kumon is

" rote " driven, dyspraxic kids find it doable. I have tried many, many programs

and this is the only one we've been able to make work. The difference to the

grades is astounding! I pulled Mark from Kumon math when he was in grade school

and regret it..... I should have kept him in the whole way through!

Socially, everything is fabulous. Somehow, some way along this journey, Mark

learned how to read people and now is fairly popular with others. The teachers

like him and the kids like him. What a difference from his past! WOW! I had a

'tender' issue to deal with this past week. My daughter, who has been in singing

lessons for an eon, dancing and acting did not make the school play this year.

It is very competitive esp for the girls. Mark, however, DID make the school

play! OMG! What a family controversy! I felt sad for my girl because theatre is

her passion but pointed out that Mark only made the chorus (and he is pretty

tone deaf) only because they needed more boys. He is hyped out about it though!

Mark also made the school improv team and was the only kid in grade 10 to do so.

(high school here starts in grade 10). Now, I love improv because Mark is truly

funny and improv works his wit and helps him in the friend making department.

Girls like Mark very much! Though he doesn't have a girlfriend, he has a few

" stalkers " as he likes to call them! Of course, it is the normal teenage story

of the person you like doesn't even notice you and the people you don't care for

are chronically chasing you. Normal, normal, normal.... and that is just fine by

me!

Hand writing is improving! We continue to chelate and I am seeing improvements

in this area at last!!!!! It is taking forever but he is getting more and more

proficient. He doesn't use his laptop at all in class anymore and his sister has

absconded away that lovely high performance lightweight $750 laptop I

specifically invested for Mark at the beginning of the school year. We also

started fencing this fall. Fencing is great for fine motor skills and I do

believe that in conjunction with chelation, the two work together fabulously. I

wish I had done fencing with Mark when he was much, much younger because after

we started, the hand writing improvements became vastly noticeable.

Health.

We had stopped pretty much all of the supplements because Mark didn't need them

anymore. We stopped all of the diets but continued to avoid chemicals and

limited processed foods. We were just continuing to chelate and exercise. All

was going extremely well for about a year. Last May, Mark had a very nasty

recurrence with constipation that lasted a " painful " few days. He had another

bout at the end of the summer. DARN IT ALL! I got it under control though and

life resumed.

This September, he got an injury cross country running and had to quit. His feet

are becoming a problem because it is now November and it still hurts him to run.

Now, Mark's feet are as flat as a board and there was a time when his ankles

suffered from inward pronation which we corrected via months and months of toe

raises. I was hoping that the injury would correct itself but it hasn't. I've

bought specialized running shoes for flat-footed people and he finds them

painful to wear. I'll look into orthotics next but suspect we will have the same

issue. It HURTS.

Running keeps Mark strong and healthy in a way that is integral to his being. It

boosts his immune system and keeps the nasty bugs at bay. Since he has stopped

running, he has been suffering from reflux. It's coming back.... At first, he

didn't tell me about it. It finally got to a point where he felt like he was

kind of throwing up with every single meal and he was afraid to eat. That was

when he stepped up. I dug out the Tri Enza and the Betaine/DMG as well as the

glutamine and now he is taking these (all but the glutamine which we just do at

breakfast and at bedtime) at every meal. It's really disheartening to see that

" it " will come back. He has not been affected neurologically but you know how it

is with this stuff.....continued illness eventually affects your ability to

think.

We do have " it " under control now but this frightens me. Will we always be on

high alert? Will we never truly beat the monster? Mark will go to University

soon and I have already decided that he will not live anywhere but with me. But

what about after that? Will the issues of his tummy someday turn into crones or

some other nasty bowel disease? What about stomach cancer or esophageal cancer?

How do we completely eradicate this? For once and for all? Can we?

Janice

Mother of Mark, 15, 95% recovered???

[Guest guest]

Awesome update! Have you tried kefir for the reflux and other digestive issues?

You can make your own using milk or water grains. You can get the the grains for

the cost of postage from members at this group. It is simple and very cost

effective. Many success stories on this site. I included one below.

Kefir_making/?yguid=441733353

Kefir_making/message/90207

You could also try homeopathy, but I'm not as familiar with that.

>

> Health.

> We do have " it " under control now but this frightens me. Will we always be on

high alert? Will we never truly beat the monster? Mark will go to University

soon and I have already decided that he will not live anywhere but with me. But

what about after that? Will the issues of his tummy someday turn into crones or

some other nasty bowel disease? What about stomach cancer or esophageal cancer?

>

> How do we completely eradicate this? For once and for all? Can we?

>

> Janice

> Mother of Mark, 15, 95% recovered???

>

>

>

>

[Guest guest]

Thank you for your input on Kefir. Yes, it works great for digestive issues and

we did it for 2-4 months a few years ago to eradicate that bloated autistic

belly once and for all. It also works for constipation issues and bad bacteria

of every kind. I was hoping not to have to pull out the old " stuff " since it is

so tedious but I just may have to.

Initially we are going to change up Mark's acne medication. In speaking with

his dermatologist, apparently his acne meds sometimes cause stomach issues. She

gave us a new script yesterday and guess what, hey, it is sulpher based! Since

Mark's body seems to LOVE sulpher and since he is the oral DMSA pro, I am hoping

the switch to this will eradicate the reflux. If not....then I'll just have to

go back and attack that bad bacteria another way!

He is doing an improv show on Friday and I am overwhelmingly proud of him. 10

years of speech therapy pays off? Hahahaha. If only everyone knew how close he

was to being absolutely unintelligeable for his entire life! Now, he is doing

stand-up! It's funny. He takes his experiences with him. He's " that guy " who

is really great at slapstick. He spent so many years falling down stairs and

doing clumsy actions that he now uses those techniques for laughter. I giggle

inside with pride. Again....if only people knew. But they don't. They can't

tell and that fills me with overwhelming joy too! Him....well, he likes being on

the Improv team because all of the guys on the team have " hot " girlfriends! He

has ambitions....

I always told him when he used to complain about being lousy at everything to do

with sports, " When life hands you lemons, make lemonade! " Gee, I never knew

that it was actually going to prove true!

For those of you who have teens who are still compromised. Please don't give

up! We began chelating Mark at 13 and he had the auditory processing of a 5

year old at 12, was a special ed lifer just learning to tie his shoes and could

not be understood when he spoke. He was looking at the " broom sweeping " career

path! With hard work, perseverance and the 'right' help, he is now above average

IQ, gets a 76% average in mainstream without accommodations and wants to study

psychology and then possibly law. Handwriting is still an issue but it is

improving. We are still chelating but have ceased all therapy and he is so

popular in school it just makes me want to burst. (he was that lost forlorn

little boy who got the crap kicked out of him for years and years!) Again, he

uses all of this stuff for comedy today. So....

YES! CHELATION CAN WORK ON OLDER KIDS!!!! All of this stuff works on older

kids but you must do it with therapy alongside of it. K?

Take care my friends.

Janice

Mother of Mark, 15 (almost 16!)

[Guest guest]

The milk kefir is dairy based and requires animal milk (goat or cow). If casein

is an issue, you can use enzymes or use the water grains.

The water grains use water and sugar. The longer you ferment the grains, the

more sugar is depleted in the process.

Some people in the group ferment coconut water using the water kefir grains to

manage candida. You don't have to add sugar to the coconut water. There are tons

of videos on youtube, but they all mention a kefir starter. You don't want to

use a starter. Get the real grains.

Again, water kefir grains are an option for those who have an issue with dairy.

>

> Is Kefir dairy based?

>

> Jen