Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 My kid has a lot of the low muscle tone/motor planning stuff you are talking about. I do a lot of exercises with her and have just started on bio meds and a GFCF diet. I just wanted to tell you about my daughter's juices in the morning which she still drinks out of a bottle.... i use a blender and throw in avocado, banana, fresh orange juice, coriander, sprouts (alfalfa, broccoli) and pear. She loves it. From: jenniferelrod83 <mistura@...> Subject: What Helped Motor Planning Issues? Date: Monday, February 15, 2010, 3:17 PM Â I'm hoping that somebody has experience with using a biomedical treatment to heal motor planning issues. I'm thinking contributing factors could be yeast, carnitine deficiency, maybe even heavy metal toxicity. Has anything specific worked for any of you parents of kids with motor planning issues? My two year old Wyatt has made tremendous progress in just six months, since putting him on the SCD plus enzymes (and also doing DIR/Floortime with him). But his motor planning issues have only improved very slightly and gradually. He has low tone. I recently started supplementing him with carnitine for that. He has lots of yeast. I was giving him s. boullardii for that, off and on. I've just started giving him 1/3 capsule of Candizyme daily for his yeast. I've never had him tested for heavy metals. I read in the GAPS book that freshly made juices will work for heavy metal detoxing. This claim is supported by lots of footnotes which I've not checked. I figure that juicing can't hurt, so when he is advanced enough on SCD, I plan to get a juicer and give him freshly made juice every day. He hasn't had any systematic physical therapy (besides me getting him outside as much as possible before the winter hit), but I am going to have him start on physical therapy very soon. I think all of us here have learned that therapy works faster with biomedical support, so I I'm looking for something to help him from the inside out at the same time while he gets his therapy. There is so much experience collected in this forum that I'm hoping somebody will be able to give me a clue. Thanks! , mother to Wyatt, 2 yrs old motor planning issues, low tone, speech delay, sensory issues SCD and enzymes since Aug 2009 Supplements: Natural Calm with zinc and vitamin C, acetyl-l-carnitine, Candizyme, TriEnza, No-Fenol, homemade 24 hour goat yogurt for probiotics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Thank you, . After writing my post, I found a great article called Sensory Integration and Biochemistry on Age of Autism. http://www.ageofautism.com/2007/08/sensory-integra.html I also found this, which I may try unless it is ridiculously expensive (a carnosine patch and a glutathione patch): http://www.lifewave.com/yage.asp The Healers Journey blog cites a study about the benefits of carnosine for motor planning issues. http://thehealersjourney.wordpress.com/2009/01/19/l-carnosine-helps-cognitive-de\ velopmental-delays-socialization-in-autism/ Glutathione is supposed to help not only with detoxing but also with athletic performance. > > From: jenniferelrod83 <mistura@...> > Subject: What Helped Motor Planning Issues? > > Date: Monday, February 15, 2010, 3:17 PM > > > > > > > > Â > > > > > > > > > > I'm hoping that somebody has experience with using a biomedical treatment to heal motor planning issues. I'm thinking contributing factors could be yeast, carnitine deficiency, maybe even heavy metal toxicity. Has anything specific worked for any of you parents of kids with motor planning issues? > > > > My two year old Wyatt has made tremendous progress in just six months, since putting him on the SCD plus enzymes (and also doing DIR/Floortime with him). But his motor planning issues have only improved very slightly and gradually. > > > > He has low tone. I recently started supplementing him with carnitine for that. > > > > He has lots of yeast. I was giving him s. boullardii for that, off and on. I've just started giving him 1/3 capsule of Candizyme daily for his yeast. > > > > I've never had him tested for heavy metals. I read in the GAPS book that freshly made juices will work for heavy metal detoxing. This claim is supported by lots of footnotes which I've not checked. I figure that juicing can't hurt, so when he is advanced enough on SCD, I plan to get a juicer and give him freshly made juice every day. > > > > He hasn't had any systematic physical therapy (besides me getting him outside as much as possible before the winter hit), but I am going to have him start on physical therapy very soon. I think all of us here have learned that therapy works faster with biomedical support, so I I'm looking for something to help him from the inside out at the same time while he gets his therapy. > > > > There is so much experience collected in this forum that I'm hoping somebody will be able to give me a clue. > > > > Thanks! > > > > , mother to Wyatt, 2 yrs old > > motor planning issues, low tone, speech delay, sensory issues > > SCD and enzymes since Aug 2009 > > Supplements: Natural Calm with zinc and vitamin C, acetyl-l-carnitine, Candizyme, TriEnza, No-Fenol, homemade 24 hour goat yogurt for probiotics > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Do you mean motor apraxias? ________________________________ From: jenniferelrod83 <mistura@...> Sent: Mon, February 15, 2010 2:30:00 PM Subject: Re: What Helped Motor Planning Issues?  Thank you, . After writing my post, I found a great article called Sensory Integration and Biochemistry on Age of Autism. http://www.ageofautism.com/2007/08/sensory-integra.html I also found this, which I may try unless it is ridiculously expensive (a carnosine patch and a glutathione patch): http://www.lifewave .com/yage. asp The Healers Journey blog cites a study about the benefits of carnosine for motor planning issues. http://thehealersjo urney.wordpress. com/2009/ 01/19/l-carnosin e-helps-cognitiv e-developmental- delays-socializa tion-in-autism/ Glutathione is supposed to help not only with detoxing but also with athletic performance. > > From: jenniferelrod83 <mistura@... > > Subject: What Helped Motor Planning Issues? > > Date: Monday, February 15, 2010, 3:17 PM > > > > > > > >  > > > > > > > > > > I'm hoping that somebody has experience with using a biomedical treatment to heal motor planning issues. I'm thinking contributing factors could be yeast, carnitine deficiency, maybe even heavy metal toxicity. Has anything specific worked for any of you parents of kids with motor planning issues? > > > > My two year old Wyatt has made tremendous progress in just six months, since putting him on the SCD plus enzymes (and also doing DIR/Floortime with him). But his motor planning issues have only improved very slightly and gradually. > > > > He has low tone. I recently started supplementing him with carnitine for that. > > > > He has lots of yeast. I was giving him s. boullardii for that, off and on. I've just started giving him 1/3 capsule of Candizyme daily for his yeast. > > > > I've never had him tested for heavy metals. I read in the GAPS book that freshly made juices will work for heavy metal detoxing. This claim is supported by lots of footnotes which I've not checked. I figure that juicing can't hurt, so when he is advanced enough on SCD, I plan to get a juicer and give him freshly made juice every day. > > > > He hasn't had any systematic physical therapy (besides me getting him outside as much as possible before the winter hit), but I am going to have him start on physical therapy very soon. I think all of us here have learned that therapy works faster with biomedical support, so I I'm looking for something to help him from the inside out at the same time while he gets his therapy. > > > > There is so much experience collected in this forum that I'm hoping somebody will be able to give me a clue. > > > > Thanks! > > > > , mother to Wyatt, 2 yrs old > > motor planning issues, low tone, speech delay, sensory issues > > SCD and enzymes since Aug 2009 > > Supplements: Natural Calm with zinc and vitamin C, acetyl-l-carnitine, Candizyme, TriEnza, No-Fenol, homemade 24 hour goat yogurt for probiotics > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 my concern about the patch would be the die-off reaction. it feels like it might be physically overwhelming. still am interested to hear how much it costs. i rub kirkmans magnesium sulphate cream on leia. strangely in israel there is not an easy supply of epsom salts but i will get my hands on some. my daughter is definitely dyspraxic. From: jenniferelrod83 <mistura@...> Subject: Re: What Helped Motor Planning Issues? Date: Monday, February 15, 2010, 4:30 PM  Thank you, . After writing my post, I found a great article called Sensory Integration and Biochemistry on Age of Autism. http://www.ageofaut ism.com/2007/ 08/sensory- integra.html I also found this, which I may try unless it is ridiculously expensive (a carnosine patch and a glutathione patch): http://www.lifewave .com/yage. asp The Healers Journey blog cites a study about the benefits of carnosine for motor planning issues. http://thehealersjo urney.wordpress. com/2009/ 01/19/l-carnosin e-helps-cognitiv e-developmental- delays-socializa tion-in-autism/ Glutathione is supposed to help not only with detoxing but also with athletic performance. > > From: jenniferelrod83 <mistura@... > > Subject: What Helped Motor Planning Issues? > > Date: Monday, February 15, 2010, 3:17 PM > > > > > > > >  > > > > > > > > > > I'm hoping that somebody has experience with using a biomedical treatment to heal motor planning issues. I'm thinking contributing factors could be yeast, carnitine deficiency, maybe even heavy metal toxicity. Has anything specific worked for any of you parents of kids with motor planning issues? > > > > My two year old Wyatt has made tremendous progress in just six months, since putting him on the SCD plus enzymes (and also doing DIR/Floortime with him). But his motor planning issues have only improved very slightly and gradually. > > > > He has low tone. I recently started supplementing him with carnitine for that. > > > > He has lots of yeast. I was giving him s. boullardii for that, off and on. I've just started giving him 1/3 capsule of Candizyme daily for his yeast. > > > > I've never had him tested for heavy metals. I read in the GAPS book that freshly made juices will work for heavy metal detoxing. This claim is supported by lots of footnotes which I've not checked. I figure that juicing can't hurt, so when he is advanced enough on SCD, I plan to get a juicer and give him freshly made juice every day. > > > > He hasn't had any systematic physical therapy (besides me getting him outside as much as possible before the winter hit), but I am going to have him start on physical therapy very soon. I think all of us here have learned that therapy works faster with biomedical support, so I I'm looking for something to help him from the inside out at the same time while he gets his therapy. > > > > There is so much experience collected in this forum that I'm hoping somebody will be able to give me a clue. > > > > Thanks! > > > > , mother to Wyatt, 2 yrs old > > motor planning issues, low tone, speech delay, sensory issues > > SCD and enzymes since Aug 2009 > > Supplements: Natural Calm with zinc and vitamin C, acetyl-l-carnitine, Candizyme, TriEnza, No-Fenol, homemade 24 hour goat yogurt for probiotics > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Yes, or dyspraxia > > Do you mean motor apraxias? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Glutathione will decrease not increase toxin levels in the body. Without it, fat soluble toxins in the liver are reabsorbed by the body. When glutathione binds to them, they become water soluble and can be excreted. Other options besides the patch are milk thistle and alpha lipoic acid. Milk thistle increases glutathione levels in the liver. Alpha lipoic acid is a precursor to glutatione. It is well absorbed by the body. > > > > From: jenniferelrod83 <mistura@ > > > Subject: What Helped Motor Planning Issues? > > > > Date: Monday, February 15, 2010, 3:17 PM > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > I'm hoping that somebody has experience with using a biomedical treatment to heal motor planning issues. I'm thinking contributing factors could be yeast, carnitine deficiency, maybe even heavy metal toxicity. Has anything specific worked for any of you parents of kids with motor planning issues? > > > > > > > > My two year old Wyatt has made tremendous progress in just six months, since putting him on the SCD plus enzymes (and also doing DIR/Floortime with him). But his motor planning issues have only improved very slightly and gradually. > > > > > > > > He has low tone. I recently started supplementing him with carnitine for that. > > > > > > > > He has lots of yeast. I was giving him s. boullardii for that, off and on. I've just started giving him 1/3 capsule of Candizyme daily for his yeast. > > > > > > > > I've never had him tested for heavy metals. I read in the GAPS book that freshly made juices will work for heavy metal detoxing. This claim is supported by lots of footnotes which I've not checked. I figure that juicing can't hurt, so when he is advanced enough on SCD, I plan to get a juicer and give him freshly made juice every day. > > > > > > > > He hasn't had any systematic physical therapy (besides me getting him outside as much as possible before the winter hit), but I am going to have him start on physical therapy very soon. I think all of us here have learned that therapy works faster with biomedical support, so I I'm looking for something to help him from the inside out at the same time while he gets his therapy. > > > > > > > > There is so much experience collected in this forum that I'm hoping somebody will be able to give me a clue. > > > > > > > > Thanks! > > > > > > > > , mother to Wyatt, 2 yrs old > > > > motor planning issues, low tone, speech delay, sensory issues > > > > SCD and enzymes since Aug 2009 > > > > Supplements: Natural Calm with zinc and vitamin C, acetyl-l-carnitine, Candizyme, TriEnza, No-Fenol, homemade 24 hour goat yogurt for probiotics > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I use both of these products. Leia gets a product called GSH and she also gets homeopathic drops of milk thistle and burdock. Just wandering if the patch won't be too intense. From: jenniferelrod83 <mistura@...> Subject: Re: What Helped Motor Planning Issues? Date: Tuesday, February 16, 2010, 6:55 AM  Glutathione will decrease not increase toxin levels in the body. Without it, fat soluble toxins in the liver are reabsorbed by the body. When glutathione binds to them, they become water soluble and can be excreted. Other options besides the patch are milk thistle and alpha lipoic acid. Milk thistle increases glutathione levels in the liver. Alpha lipoic acid is a precursor to glutatione. It is well absorbed by the body. > > > > From: jenniferelrod83 <mistura@ > > > Subject: What Helped Motor Planning Issues? > > > > Date: Monday, February 15, 2010, 3:17 PM > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > I'm hoping that somebody has experience with using a biomedical treatment to heal motor planning issues. I'm thinking contributing factors could be yeast, carnitine deficiency, maybe even heavy metal toxicity. Has anything specific worked for any of you parents of kids with motor planning issues? > > > > > > > > My two year old Wyatt has made tremendous progress in just six months, since putting him on the SCD plus enzymes (and also doing DIR/Floortime with him). But his motor planning issues have only improved very slightly and gradually. > > > > > > > > He has low tone. I recently started supplementing him with carnitine for that. > > > > > > > > He has lots of yeast. I was giving him s. boullardii for that, off and on. I've just started giving him 1/3 capsule of Candizyme daily for his yeast. > > > > > > > > I've never had him tested for heavy metals. I read in the GAPS book that freshly made juices will work for heavy metal detoxing. This claim is supported by lots of footnotes which I've not checked. I figure that juicing can't hurt, so when he is advanced enough on SCD, I plan to get a juicer and give him freshly made juice every day. > > > > > > > > He hasn't had any systematic physical therapy (besides me getting him outside as much as possible before the winter hit), but I am going to have him start on physical therapy very soon. I think all of us here have learned that therapy works faster with biomedical support, so I I'm looking for something to help him from the inside out at the same time while he gets his therapy. > > > > > > > > There is so much experience collected in this forum that I'm hoping somebody will be able to give me a clue. > > > > > > > > Thanks! > > > > > > > > , mother to Wyatt, 2 yrs old > > > > motor planning issues, low tone, speech delay, sensory issues > > > > SCD and enzymes since Aug 2009 > > > > Supplements: Natural Calm with zinc and vitamin C, acetyl-l-carnitine, Candizyme, TriEnza, No-Fenol, homemade 24 hour goat yogurt for probiotics > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 > I'm hoping that somebody has experience with using a biomedical treatment to heal motor planning issues. I'm thinking contributing factors could be yeast, carnitine deficiency, maybe even heavy metal toxicity. Has anything specific worked for any of you parents of kids with motor planning issues? Those worked here. Hit the yeast hard, that was primary. Definitely consider chelation. > He has low tone. I recently started supplementing him with carnitine for that. Carnitine is good for this. > He has lots of yeast. I was giving him s. boullardii for that, off and on. I've just started giving him 1/3 capsule of Candizyme daily for his yeast. Those doses and products would have done nothing for my son. He needed high doses of biotin and GSE. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 What are " motor planning issues " ? How are they different from apraxias? ________________________________ From: danasview <danasview@...> Sent: Tue, February 16, 2010 8:08:50 AM Subject: Re: What Helped Motor Planning Issues? Â > I'm hoping that somebody has experience with using a biomedical treatment to heal motor planning issues. I'm thinking contributing factors could be yeast, carnitine deficiency, maybe even heavy metal toxicity. Has anything specific worked for any of you parents of kids with motor planning issues? Those worked here. Hit the yeast hard, that was primary. Definitely consider chelation. > He has low tone. I recently started supplementing him with carnitine for that. Carnitine is good for this. > He has lots of yeast. I was giving him s. boullardii for that, off and on. I've just started giving him 1/3 capsule of Candizyme daily for his yeast. Those doses and products would have done nothing for my son. He needed high doses of biotin and GSE. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Thank you, Dana. It makes sense that yeast would have a lot to do with it. After all, it makes alcohol and hangover chemicals that constantly attack the muscles and nerves. I'm afraid of chelation, because he's only two years old, and his metabolism is so fragile and sensitive. I suspect he may even have a mitochondrial disorder - we are going to do some lab tests for that. If he's still got significant healing to do by the time he is three years old - and I know his gut dysbiosis has healed, so the problem must be something else - then I'll consider giving chelation a cautious try. Candizyme is working very well for us right now. It doesn't make him cry in his sleep from die off - just makes him wake up very early laughing and wanting to play - that and gives him bad gas. If I were to try GSE, though, do you know if it would be effective if applied to the soles of the feet, like oil of oregano often is? > > I'm hoping that somebody has experience with using a biomedical treatment to heal motor planning issues. I'm thinking contributing factors could be yeast, carnitine deficiency, maybe even heavy metal toxicity. Has anything specific worked for any of you parents of kids with motor planning issues? > > > Those worked here. Hit the yeast hard, that was primary. Definitely consider chelation. > > > > He has low tone. I recently started supplementing him with carnitine for that. > > > Carnitine is good for this. > > > > He has lots of yeast. I was giving him s. boullardii for that, off and on. I've just started giving him 1/3 capsule of Candizyme daily for his yeast. > > > Those doses and products would have done nothing for my son. He needed high doses of biotin and GSE. > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Wyatt's therapists see things in him like having to almost think about how he sits down sometimes. Also, sometimes when he imitates things, there is a delay like he has to take longer to process what he wants to do before he can do it. They call it " motor planning " . I think it's the same thing as motor apraxia. > > What are " motor planning issues " ? How are they different from apraxias? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 OK.I didn't think there was anything abnormal about THAT,let alone a name for it. Â ________________________________ From: jenniferelrod83 <mistura@...> Sent: Tue, February 16, 2010 3:13:18 PM Subject: Re: What Helped Motor Planning Issues? Â Wyatt's therapists see things in him like having to almost think about how he sits down sometimes. Also, sometimes when he imitates things, there is a delay like he has to take longer to process what he wants to do before he can do it. They call it " motor planning " . I think it's the same thing as motor apraxia. > > What are " motor planning issues " ? How are they different from apraxias? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Hi I am a physical therapist by profession (working mainly with the aged). Interestingly, we see motor planning and motor apraxia as almost opposite things. After certain strokes / brain injuries in the aged, the patient has difficulty working out how to do a movement. For example - how to stand up .. . .you need to bring your feet back, lean forward, then push forward and up into standing. With the verbal input, they perform the task quite easily, but left to their own devices, cannot work out what to do. Motor apraxia, on the other hand, we see as the opposite. The patient knows what they want to do but how it occurs is not right - maybe in the wrong order. In the example above, they might try to push straight up before bringing feet back. Verbal instructions don't necessarily help, because they already know what to do. Clinically, both things can appear very similar. Differentiating which is which is the challenge as the intervention required for each is usually quite different. . . . and, of course, the client may have both . . . . Good luck :-) > What are " motor planning issues " ? How are they different from apraxias? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 > I'm afraid of chelation, because he's only two years old, and his metabolism is so fragile and sensitive. I started chelating my #4 when she was 2-1/2. I used low dose ALA. >>I suspect he may even have a mitochondrial disorder - we are going to do some lab tests for that. I corrected my kids' mito dysfunction, I wrote what they needed here http://www.danasview.net/mar05.htm > Candizyme is working very well for us right now. It doesn't make him cry in his sleep from die off - just makes him wake up very early laughing and wanting to play - that and gives him bad gas. If I were to try GSE, though, do you know if it would be effective if applied to the soles of the feet, like oil of oregano often is? I don't know, I never used it that way. Try giving a double dose of the Candizyme before bedtime, see if that helps. Or, add some biotin to the dose you currently give. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 how do i know if my kid has a mitochondrial disorder? From: danasview <danasview@...> Subject: Re: What Helped Motor Planning Issues? Date: Wednesday, February 17, 2010, 10:11 AM Â > I'm afraid of chelation, because he's only two years old, and his metabolism is so fragile and sensitive. I started chelating my #4 when she was 2-1/2. I used low dose ALA. >>I suspect he may even have a mitochondrial disorder - we are going to do some lab tests for that. I corrected my kids' mito dysfunction, I wrote what they needed here http://www.danasvie w.net/mar05. htm > Candizyme is working very well for us right now. It doesn't make him cry in his sleep from die off - just makes him wake up very early laughing and wanting to play - that and gives him bad gas. If I were to try GSE, though, do you know if it would be effective if applied to the soles of the feet, like oil of oregano often is? I don't know, I never used it that way. Try giving a double dose of the Candizyme before bedtime, see if that helps. Or, add some biotin to the dose you currently give. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 dana, how much GSE would you start on a 3 year old who is also taking 1 spray of oral b12 and 800mg of folic acid. Also, her tongue looks coated always... any thoughts about that. From: danasview <danasview@...> Subject: Re: What Helped Motor Planning Issues? Date: Wednesday, February 17, 2010, 10:11 AM Â > I'm afraid of chelation, because he's only two years old, and his metabolism is so fragile and sensitive. I started chelating my #4 when she was 2-1/2. I used low dose ALA. >>I suspect he may even have a mitochondrial disorder - we are going to do some lab tests for that. I corrected my kids' mito dysfunction, I wrote what they needed here http://www.danasvie w.net/mar05. htm > Candizyme is working very well for us right now. It doesn't make him cry in his sleep from die off - just makes him wake up very early laughing and wanting to play - that and gives him bad gas. If I were to try GSE, though, do you know if it would be effective if applied to the soles of the feet, like oil of oregano often is? I don't know, I never used it that way. Try giving a double dose of the Candizyme before bedtime, see if that helps. Or, add some biotin to the dose you currently give. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 i just took a look at mitochondrial disorders and a check list for diagnosis and i am trying to understand based on what people think their children have mitochondrial disorders? http://autism.about.com/gi/dynamic/offsite.htm?zi=1/XJ & sdn=autism & cdn=health & tm=\ 3 & f=00 & su=p726.5.336.ip_ & tt=2 & bt=0 & bts=0 & zu=http%3A//www.mitosoc.org/blogs/diagn\ osis From: danasview <danasview@...> Subject: Re: What Helped Motor Planning Issues? Date: Wednesday, February 17, 2010, 10:11 AM Â > I'm afraid of chelation, because he's only two years old, and his metabolism is so fragile and sensitive. I started chelating my #4 when she was 2-1/2. I used low dose ALA. >>I suspect he may even have a mitochondrial disorder - we are going to do some lab tests for that. I corrected my kids' mito dysfunction, I wrote what they needed here http://www.danasvie w.net/mar05. htm > Candizyme is working very well for us right now. It doesn't make him cry in his sleep from die off - just makes him wake up very early laughing and wanting to play - that and gives him bad gas. If I were to try GSE, though, do you know if it would be effective if applied to the soles of the feet, like oil of oregano often is? I don't know, I never used it that way. Try giving a double dose of the Candizyme before bedtime, see if that helps. Or, add some biotin to the dose you currently give. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Any advice for 8 yo who does have both, ? We've seen no change in planning -same issues since 1 year old, just advances with age so as tasks are more complicated so is his struggle. Also carrying over to Executive function skills....not much progress lots of struggles. With apraxia he can learn tasks by repitition - only quirk is he has to start from begining if he misses a step, instead of where his mistake was - such as tying shoes. I'll accept that level of ability! Thanks -Ann in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 > how do i know if my kid has a mitochondrial disorder? I went by observation of symptoms. For my son, he had excessive ear wax and became very aggressive any time he ate something containing fat. http://www.danasview.net/mar05.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 > dana, > how much GSE would you start on a 3 year old who is also taking 1 spray of oral b12 and 800mg of folic acid. I started with 1 drop and worked up. >>Also, her tongue looks coated always... any thoughts about that. This sounds like yeast. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 As I said,I have had these all of my life.I never thought them at all abnormal. Â ________________________________ From: Haks <cathy@...> Sent: Wed, February 17, 2010 5:13:06 AM Subject: RE: Re: What Helped Motor Planning Issues? Â Hi I am a physical therapist by profession (working mainly with the aged). Interestingly, we see motor planning and motor apraxia as almost opposite things. After certain strokes / brain injuries in the aged, the patient has difficulty working out how to do a movement. For example - how to stand up .. . .you need to bring your feet back, lean forward, then push forward and up into standing. With the verbal input, they perform the task quite easily, but left to their own devices, cannot work out what to do. Motor apraxia, on the other hand, we see as the opposite. The patient knows what they want to do but how it occurs is not right - maybe in the wrong order. In the example above, they might try to push straight up before bringing feet back. Verbal instructions don't necessarily help, because they already know what to do. Clinically, both things can appear very similar. Differentiating which is which is the challenge as the intervention required for each is usually quite different. . . . and, of course, the client may have both . . . . Good luck :-) > What are " motor planning issues " ? How are they different from apraxias? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 You may find this thread on mothering.com helpful: http://www.mothering.com/discussions/showthread.php?t=734501 > > > I'm afraid of chelation, because he's only two years old, and his metabolism is so fragile and sensitive. > > > > I started chelating my #4 when she was 2-1/2. I used low dose ALA. > > > > >>I suspect he may even have a mitochondrial disorder - we are going to do some lab tests for that. > > > > I corrected my kids' mito dysfunction, I wrote what they needed here > > > > http://www.danasvie w.net/mar05. htm > > > > > Candizyme is working very well for us right now. It doesn't make him cry in his sleep from die off - just makes him wake up very early laughing and wanting to play - that and gives him bad gas. If I were to try GSE, though, do you know if it would be effective if applied to the soles of the feet, like oil of oregano often is? > > > > I don't know, I never used it that way. > > > > Try giving a double dose of the Candizyme before bedtime, see if that helps. Or, add some biotin to the dose you currently give. > > > > Dana > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 What does the biotin do? How does the carnitine improve the muscle tone? Dave > > I'm hoping that somebody has experience with using a biomedical treatment to heal motor planning issues. I'm thinking contributing factors could be yeast, carnitine deficiency, maybe even heavy metal toxicity. Has anything specific worked for any of you parents of kids with motor planning issues? > > > Those worked here. Hit the yeast hard, that was primary. Definitely consider chelation. > > > > He has low tone. I recently started supplementing him with carnitine for that. > > > Carnitine is good for this. > > > > He has lots of yeast. I was giving him s. boullardii for that, off and on. I've just started giving him 1/3 capsule of Candizyme daily for his yeast. > > > Those doses and products would have done nothing for my son. He needed high doses of biotin and GSE. > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Any advice for 8 yo who does have both, ? We've seen no change in planning -same issues since 1 year old, just advances with age so as tasks are more complicated so is his struggle. Also carrying over to Executive function skills....not much progress lots of struggles. With apraxia he can learn tasks by repitition - only quirk is he has to start from begining if he misses a step, instead of where his mistake was - such as tying shoes. I'll accept that level of ability! Thanks -Ann in MN Hi Anne As a disclaimer, I've never worked with kids, so I'll be generalizing from the aged care perspective (and with Mom experience with my own sons) For motor planning problems, repetition is definitely the key. In advance, you need to break down the task / movement into its constituent parts so you know the easiest order for the task to be done in. Having a visual guide to go by, especially that is numbered 1 2 3 etc, is great. (I used icons from www.do2learn.com <http://www.do2learn.com/> and put them into order for many things like toileting, bathing, washing hands, cleaning teeth, getting dressed etc - I then laminated each of them and put them up in the appropriate place. Visitors were always VERY surprised to go the toilet at our house - no where else did they find a toilet with instructions!). And it needs to be consistent, so that you do it the same way every time. You'll need to give verbal prompts/ point to the visual prompt initially for all/some steps, but as time goes on, you withhold the prompts and they usually use the visual ones by themself. In the end, you can take the visual prompts down. For more complicated tasks - eg drop off at school and getting to classroom, or what to do in karate class / school excursion - a social story (with pictures) that you read together regularly beforehand and take with you on the day is really helpful. For motor execution problems, allowing time is the most important thing. Asking the person to think through the task / movement first (or go through the visual step guide) before starting is often helpful. Short verbal prompts using " trigger " words can be used if the person gets stuck. And of course, all the above to work best need lots of love, encouragement, praise and patience. Hope this helps. Good luck :-) __________ Information from ESET Smart Security, version of virus signature database 4883 (20100220) __________ The message was checked by ESET Smart Security. http://www.eset.com __________ Information from ESET Smart Security, version of virus signature database 4883 (20100220) __________ The message was checked by ESET Smart Security. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Thank you for this.... so helpful. From: Haks <cathy@...> Subject: RE: Re: What Helped Motor Planning Issues? Date: Sunday, February 21, 2010, 7:54 AM Â Any advice for 8 yo who does have both, ? We've seen no change in planning -same issues since 1 year old, just advances with age so as tasks are more complicated so is his struggle. Also carrying over to Executive function skills....not much progress lots of struggles. With apraxia he can learn tasks by repitition - only quirk is he has to start from begining if he misses a step, instead of where his mistake was - such as tying shoes. I'll accept that level of ability! Thanks -Ann in MN Hi Anne As a disclaimer, I've never worked with kids, so I'll be generalizing from the aged care perspective (and with Mom experience with my own sons) For motor planning problems, repetition is definitely the key. In advance, you need to break down the task / movement into its constituent parts so you know the easiest order for the task to be done in. Having a visual guide to go by, especially that is numbered 1 2 3 etc, is great. (I used icons from www.do2learn. com <http://www.do2learn .com/> and put them into order for many things like toileting, bathing, washing hands, cleaning teeth, getting dressed etc - I then laminated each of them and put them up in the appropriate place. Visitors were always VERY surprised to go the toilet at our house - no where else did they find a toilet with instructions! ). And it needs to be consistent, so that you do it the same way every time. You'll need to give verbal prompts/ point to the visual prompt initially for all/some steps, but as time goes on, you withhold the prompts and they usually use the visual ones by themself. In the end, you can take the visual prompts down. For more complicated tasks - eg drop off at school and getting to classroom, or what to do in karate class / school excursion - a social story (with pictures) that you read together regularly beforehand and take with you on the day is really helpful. For motor execution problems, allowing time is the most important thing. Asking the person to think through the task / movement first (or go through the visual step guide) before starting is often helpful. Short verbal prompts using " trigger " words can be used if the person gets stuck. And of course, all the above to work best need lots of love, encouragement, praise and patience. Hope this helps. Good luck :-) __________ Information from ESET Smart Security, version of virus signature database 4883 (20100220) __________ The message was checked by ESET Smart Security. http://www.eset. com __________ Information from ESET Smart Security, version of virus signature database 4883 (20100220) __________ The message was checked by ESET Smart Security. http://www.eset. com Quote Link to comment Share on other sites More sharing options...
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