RE: Someone make me feel better.

January 23, 2010

Hi there,

You are not alone but I know that it feels that way sometimes. I have not done

the ATEC but know that my 3 year old would be very high. He's the most severe

that any of our therapist and the school has seen. Zero receptive language, no

imitation skills, no understanding of gestures, very OCD, no functional

communication..... the list goes on. Basically he's a train wreck, however he is

improving. No more gut pain, manic laughing, spinning and self injurious

behavior. He's seeking out cuddles and tickles. My 5 year old was worse and is

now moving up to the moderate level. He's talking a bit and starting to play

with his typical brother. We do hours of ABA and tons of bio-med.. Hang in

there.

Casandra

autism treatment ; ;

mb12 valtrex

From: roserudolph55@...

Date: Fri, 22 Jan 2010 20:43:39 -0800

Subject: Someone make me feel better.

Does anyone else have a son that scores 147 on the ATEC. My son is very severely

affected by autism. Does anyone else have a severely affected son/daughter?

Just need to know I'm not alone.

Rose

January 23, 2010

Hi Rose,

I am not familiar with the ATEC test but my daughter is also severly affected.

She is 5 and we are still waiting for words and potty training. She has come a

long way with Biomedical introvention though and continues to make strides

forward. I have to look at it this was, she was so severly injured and affected

by so many issues (viral overload, toxic metals, mito issues...etc.) and that

means we have so many protocols and biomed options that we still have to try.

We see gains and just keep running the marathon of healing.

You are not alone!!

Amy

>

> Does anyone else have a son that scores 147 on the ATEC. My son is very

severely affected by autism. Does anyone else have a severely affected

son/daughter?

>

> Just need to know I'm not alone.

>

> Rose

>

January 23, 2010

I found the test and will do it later today, looks interesting though. I'll let

you know what I find.

> >

> > Does anyone else have a son that scores 147 on the ATEC. My son is very

severely affected by autism. Does anyone else have a severely affected

son/daughter?

> >

> > Just need to know I'm not alone.

> >

> > Rose

> >

January 23, 2010

Dear Rose,

At his worst, my son's ATEC was 172. I was so naive I didn't realize how bad

that was until I checked and found out that 180 was the highest possible score.

I think there are some people, like me, who underestimate the severity of our

kids simply because they are our kids and we tend to be isolated with them, and

then something like the ATEC can be an eye-opener. Now that I am out around

other kids more, I can get a better sense of the severity of my son's deficits

and the many strengths he does have.

We've been doing biomed for 5 years. My son has not been a huge responder and

often when he does respond to something, he seems to regress again afterwards.

I have not done an ATEC in quite a long time but your post motivated me to score

him again. He scored a 90. This was an excellent surprise for me--he has not

scored below 100 before (I've done 6 or 7 ATECs as I don't do them for every

intervention as it honestly would be too depressing).

Part of my son's progress right now might be attributed to going SCD. We had

done SCD before and it was a disaster. However, revisiting it seems to have

been helpful. I'm not sure why--it may be as simple as I'm better at it now and

understand things like lectins in nuts, or it may be something else entirely.

Either way, I'm glad I tried again.

I should also mention that back when my son was much more severe, we were trying

to teach him signing. We tried to teach him to sign " more " for 8 months.

Endlessly, for hours a day. He couldn't learn it. Finally, when he did learn

it, we moved to " swing " and he lost " more " . It was very discouraging. These

last 2 weeks, when we have started therapy again in earnest after a move from

overseas, my son has learned 5 signs, makes some sounds like " pi " for " spin " and

and mouths a couple words silently. This is huge for us.

We still have a long way to go. I believe my son will be the kind of kid who

needs 300 rounds of chelation (we've done 140) and a lot of education therapy,

to name just of two interventions we need to continue to pursue. So, even

though my son is still severely affected by autism, his quality of life is so

much better than it was before when he was a constantly unhappy, self-injuring,

isolated, lethargic boy completely in his own world who couldn't even stand to

hug someone. It has not been at all steady forward progress (my son has viral

issues which I think make steady forward progress very difficult) but our worst

days are behind us I believe.

I realize my post to you is not exactly what you were looking for as my son's

ATEC is now quite a bit lower than your son's. But, I do want to tell you that

even with kids who don't seem to respond very quickly or significantly to

interventions, changes can happen. It's exhausting--emotionally, physically,

socially, mentally, maritally, familialy, economically--and there are no

guarantees, but I continue to just try to put one foot in front of the other,

learning about interventions that might help my son, continuing to implement the

ones that I know do help him, and trying to make my best judgements about the

whole process.

Warmly,

Anita

>

> Does anyone else have a son that scores 147 on the ATEC. My son is very

severely affected by autism. Does anyone else have a severely affected

son/daughter?

>

> Just need to know I'm not alone.

>

> Rose

>

January 23, 2010

> Does anyone else have a son that scores 147 on the ATEC. My son is very

severely affected by autism. Does anyone else have a severely affected

son/daughter?

My son's initial ATEC score was in the 140s, I don't remember exactly tho. I

did the initial score about 10 years ago.

The last time I did his score, which was about 2 years ago, I think it was 9.

He no longer qualifies as autistic, but he is not yet age-appropriate.

Here is the most recent page of photos on my site, from 2007/08. My severe

child is #2.

http://www.danasview.net/dec07pic.htm

Dana

January 23, 2010

For anyone else interested in completing the ATEC (Autism Treatment Evaluation

Checklist), follow the link below. The ATEC is available in English, Spanish,

French, Italian, Russian, Turkish and Chinese:

http://www.autism.com/ari/atec/atec-online.htm

-Ann

>

> I found the test and will do it later today, looks interesting though.

January 23, 2010

Dear Rose, My children are in the ASD spectrum as well. I do not know how bad

their symptoms would be if I was not doing the biomedical interventions.

This group has many knowledgeable people who share their wealth of information.

Wish you smooth beginnings in your journey

towards recovery.

Anjie

>

> Does anyone else have a son that scores 147 on the ATEC. My son is very

severely affected by autism. Does anyone else have a severely affected

son/daughter?

>

> Just need to know I'm not alone.

>

> Rose

>

January 23, 2010

Rose,

I would just stay away from those checklists. The way your son scores on it now

may be very different from how he will score in the future. What is the point

in giving the autism a number score when you just don't know what the future

holds yet?

Jen

>

> Does anyone else have a son that scores 147 on the ATEC. My son is very

severely affected by autism. Does anyone else have a severely affected

son/daughter?

>

> Just need to know I'm not alone.

>

> Rose

>

January 23, 2010

I know you were not the original poster but I did wonder. Does you son watch TV

the signing time video's rock. If my son would watch TV. Funny little critter

if he is the first one awake he will go turn on the TV and watch it alone. If

anyone else is up he is off to the races. Was just a thought and when I try to

post to poeple I always click the wrong person.

> >

> > Does anyone else have a son that scores 147 on the ATEC. My son is very

severely affected by autism. Does anyone else have a severely affected

son/daughter?

> >

> > Just need to know I'm not alone.

> >

> > Rose

> >

January 23, 2010

Dana thank you for sharing that was very nice of you. My son still has a really

hard time looking at the camera. Sadly I still have all the pictures from when

he could and I can just grip them and cry. We have come a long way but I still

want my whole son back.

> > Does anyone else have a son that scores 147 on the ATEC. My son is very

severely affected by autism. Does anyone else have a severely affected

son/daughter?

>

> My son's initial ATEC score was in the 140s, I don't remember exactly tho. I

did the initial score about 10 years ago.

>

> The last time I did his score, which was about 2 years ago, I think it was 9.

He no longer qualifies as autistic, but he is not yet age-appropriate.

>

> Here is the most recent page of photos on my site, from 2007/08. My severe

child is #2.

>

> http://www.danasview.net/dec07pic.htm

>

> Dana

>

January 23, 2010

We actually went from a 67 to a 73 now he is around 48.

***TOTAL AND SUBSCALE SCORES***

Total Score: 48

I. Speech/Language/Communication: 19

II. Sociability: 5

III. Sensory/Cognitive Awareness: 11

IV. Health/Physical/Behavior: 13

Can you see how much the speech is holding him up. It is so hard cause

communication is like our last battle. Not that he does not have some other

habits I am not thrilled with but if he could talk more and understand more

speech I wonder if they could be delt with. I don't mind having the ATEC cause

it does show me we have gotten better. Though we are by no means out of the

woods. Sadly his blood work is way worse then his speech problem. Hang in

there. It is really hard to compare our children as they are so different. I

was talking to a mother today and he son has become a computer wiz really cute

cause I know him so I was really happy for her. He is also by no means out of

the woods. I wish my son would master something other then being the most

quardinated child with Autism ever.

> >

> > Does anyone else have a son that scores 147 on the ATEC. My son is very

severely affected by autism. Does anyone else have a severely affected

son/daughter?

> >

> > Just need to know I'm not alone.

> >

> > Rose

> >

January 23, 2010

While I am a firm believer in the AC protocol, I think that for most of us it

can't just be chelation alone. We have tried many things, everything works

better with chelation on board. Currently my mom comes over after work 5 nights

a week and she and my son do a " Wipeout " workout. It's actually from the book

Disconnected Kids. I think that once the metals are on the way out, it's really

important to build those neural connections again and this book helps you

pinpoint which areas are weak. Our old pediatrician said our boy had hyper

mobile joints. His core muscles are super weak. Last year in gymnastics he would

spend half the time laying on the mats. This year, because of chelation, he is

engaged and participating for the whole hour. Mom has been doing the program for

2 weeks and his gains in core strength have been amazing. He can do the bridge

pose with his arms over his chest and his shoulders on the floor for 200 secs

now without wavering. It's helped with his body awareness too. In gymnastics

this week, he bounced on the trampoline, landing in a bum drop and then bouncing

to flat on his back. He has never been able to control his body that way. It's

been a long road, barely verbal and barely potty trained at 4 to now. Just this

past month, he's started doing up his own zippers and putting on his own socks,

he's 6.

Kes

> > >

> > > Does anyone else have a son that scores 147 on the ATEC. My son is very

severely affected by autism. Does anyone else have a severely affected

son/daughter?

> > >

> > > Just need to know I'm not alone.

> > >

> > > Rose

> > >

January 24, 2010

I am there too Rose. It is really really painful.

Leia aged 3 this friday babbles but has maybe a few words that are used

sporadically.

She does not feed herself, doesn't chew. She only started to walk at the age of

2 years and 3 months. Minimal eye contact, stimming, turning her head from side

to side, She becomes receptive when engaged (cuddles, tickling, physical

touch) and will respond when someone asks her if she wants to drink (her

favorite occupation), she also likes music, but mostly she is in her own

world.Most of the time her cognition seems very low. I have just started

biomedics and she has just done a round of antibiotics and is now on nystatin.

For the last couple of days she hasn't wanted to eat. I am worried that it is

from the biomedics or some sort of die-off. I am praying all the time that

things will get better. I am dreading celebrating her 3rd birthday. I mean, look

at where we are.....

Write more...

From: casandra oldham <cmfitness@...>

Subject: RE: Someone make me feel better.

Date: Saturday, January 23, 2010, 8:35 AM