Re: Want to challenge the diet - need advice

[Guest guest]

Hi Lori,

I cant really help with the diet, but wanted to thank you for sharing the news

story about recovering from Autism. I am new to enzymes & the diet, but

knowing how they could help my son(no matter how slim the chance) is very

encouraging to me. I know you you get valuable advice here & I wish you the best

of luck. I am hoping & praying that all goes well for your son when you try the

foods!!

Robin

[Guest guest]

how do you think the enzymes work? and what do you mean by 'challenge " please,

linda rn

Want to challenge the diet - need advice

Listmates,

My son is " recovered " from autism and he is now 11 after doing the

diet and other biomedical treatments for 8.5 years.

He was a huge diet responder and made even more progress with Houston

Enzymes. We did both the Peptizyde and HN-Zyme Prime for years with each

meal and we have switched to TriEnza. I LOVE these enzymes and believe that

they hold the key to my son being able to eat normally again.

Since he is doing so well, I have decided that I need to challenge the diet

- with enzymes of course - but I am nervous.

Nervous because of the stories I have heard where it did not work - and then

had to take the foods away AGAIN.

Nervous to see regression - even if it's for a short time.

Could any of you moms or dads out there who had good results with the diet

and then challenged it with enzymes - give me some advice on how to do it,

what to look for, how it went for you in your specific situation?

Do I do it slowly, with small introductions of wheat or dairy, or do I go

all out and let him have 3 slices of regular pizza?

Any help you can give this " chicken " mom would be very much appreciated.

Lori Knowles

PS: If anyone wants to see a news story about my son, go to:

P_yCM>

[Guest guest]

> Since he is doing so well, I have decided that I need to challenge the diet -

with enzymes of course - but I am nervous.

>

> Nervous because of the stories I have heard where it did not work - and then

had to take the foods away AGAIN.

>

> Nervous to see regression - even if it's for a short time.

Hi Lori,

For DS9, we did the failsafe diet for elimination for quite fa few months, then

reintroduced the various food groups one by one to see which he reacted to

(--this is called a challenge, in this case, a food challenge). With

failsafe, you take out salicylates, amines, glutamates and all of the asty

chemicals and see if your child gets to baseline. Ours didn't so we also took

out dairy, wheat and soy.

The dairy and wheat challenges usually go first, since, if they are 'passed' you

can reintroduce those foods.

For wheat/gluten, there are quite a few elements of the foods that can casue

problems--the protein (gluten), the fibre, the starches etc.--so the best option

to start with is a simplified version of the food--e.g. plain white organic

wheat flour. If that goes OK, after about 3 days, then try the wholegrain flour,

etc. You need to give enough of the food to be sure that it is either causing a

reaction or not. If you are wary, then start with just a little--one small

portion in a day--and see how that goes. but to be really sure one way or the

other, you need to try a 'normal' amount of the food, e.g. 3 serves in a day,

for 7-10 days. Don't add anything else in or make any other changes until you

are sure, one way or the other.

Then try the dairy foods. Again try the simplest, least problematic food

first--either raw milk OR real yogurt (SCD-style, with no lactose) made with A2

milk (i.e. milk with A2 protein) would be the best option, but might be hard to

source. Other widely available yogurts usually have added milk solids and are

not cultured for long enough, so with still have some lactose. Your next best

choice (IMO) would be a hard cheese--no lactose, but contains regular A1

cassein. Again, if you are wary, just a little to start with, but get to 3 or so

serves per day for 7-10 days for a real test. Of course if you see a reaction

before that and you are sure it's the dairy, then stop.

When you do the challenges, make sure that the timing is as good as possible so

that nothing else is likely to cloud the results such as illness, changes at

school or in the household. School holidays are a good time, in case there is a

reaction, but would be tricky if you will be traveling since there would be so

many other influences.

To decide whether there is a reaction, firstly think about how gluten and casein

used to affect him and look for those signs. DS isn't sensitive to either so I'm

not much help on specific signs to look for (salicylates are his big issue, and

he manages them with no Fenol, all except nuts). I would also recommend coming

up with some benchmarks beforehand e.g. some mental arithmetic, some reading

etc.--be aware of his standard times for thinking about things, reading level

etc. so you can test him each day.

As for enzyme dosage to ensure that there is enough to handle the gluten and

casein, the manufacturers give good guidance, and if in doubt i would err on the

high side. you can always drop it back later if you find he doesn't need so

much.

If you haven't read it already, 's books and website talk about using

enzymes and eating gluten and cassein, and i think her words are very

reassuring. Certainly many people seem to do well with this model.

Finally, if the challenges don't go well, chances are your son won't want those

foods in his diet anyway--they will make him feel bad and he will be able to

tell what caused it. I would encourage you to be open with him about the

challenges. Also, If possible, choose boring or plain ways to serve the

food--that way if you have to remove it again, it's less likely to be missed!

I wish you well with your challenges,

Jen

Mum to DS9: SPD, ADHD?, undermethylator, food intolerances

DD6: pyroluria, candida

[Guest guest]

,

The enzymes were created by Devin Houston to help " replace " the diet. His

digestive enzymes Peptizyde and TriEnza have DPPIV in them that is the

enzyme that best breaks down the peptides created by gluten, casein, and

soy. This is controversial however with many doctors but I know of many

success stories of kids doing as well and some even doing better with

enzymes instead of the diet. I trusted Devin's enzymes because he has over

25 years in the field of digestive enzymes and he is a PhD biochemist and is

- in my opinion - the most qualified individual to be creating digestive

enzyme products for our children. Besides, he is the most caring person you

will ever meet and will take time to talk personally to any parent who has

questions.

My son has done AMAZING on his enzymes and started gaining weight and

looking healthy for the first time ever after starting on them.

Because my son responded so well to the diet, I kept doing it (although not

a strictly - allowing for cross contamination and small amounts in foods)

with enzymes for the past 6-7 years. I am hoping that as a result of

's progress and hopefully a healed gut by now, he will respond well to

enzymes only and can go back to eating regular food.

Some kids have done this without enzymes but I want to keep doing them as a

saftey net. Our kids have been damaged by mercury so that their digestive

systems do not function as well as they should. Healthy digestion is

critical for healthy bodies and minds.

Lori Knowles

General Manager

New Beginnings Nutritionals

7797 Quivira Rd Lenexa, KS 66215

Phone: (913) 754-0458

Fax: (913) 248-7609

Email: <mailto:lknowles@...> lknowles@... URL:

<http://www.nbnus.com/> http://www.nbnus.com/

</message/123180;_ylc=X3oDMTJz

ZzNlN3M4BF9TAzk3MzU5NzE1BGdycElkAzMyOTc1MzEEZ3Jwc3BJZAMxNzA1MDYxNjE2BG1zZ0lk

AzEyMzE4MARzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMjM2OTMyNzMw> Re: Want to

challenge the diet - need advice

Posted by: " Keeper "

<mailto:robin1208@...?Subject=%20Re%3A%20Want%20to%20challenge%20the%20d

iet%20-%20need%20advice> robin1208@...

<lindakeeperrn> lindakeeperrn

Thu Mar 12, 2009 7:16 pm (PDT)

how do you think the enzymes work? and what do you mean by 'challenge "

please, linda

[Guest guest]

> He was a huge diet responder and made even more progress with Houston

> Enzymes. We did both the Peptizyde and HN-Zyme Prime for years with each

> meal and we have switched to TriEnza. I LOVE these enzymes and believe that

> they hold the key to my son being able to eat normally again.

> Since he is doing so well, I have decided that I need to challenge the diet

> - with enzymes of course - but I am nervous.

My son improved when I added back wheat with AFP Peptizyde.

Milk required enzymes and mito cocktail.

Other foods required other things.

After ALA chelation, I was able to remove the enzymes, and now my son can eat

everything and anything, without enzymes.

> Nervous because of the stories I have heard where it did not work - and then

> had to take the foods away AGAIN.

> Nervous to see regression - even if it's for a short time.

Talk to your son about what can/might happen, both good and bad. Get his input

and opinion.

> Do I do it slowly, with small introductions of wheat or dairy, or do I go

> all out and let him have 3 slices of regular pizza?

I did it slowly, mostly because enzymes did not help with all foods. Certain

foods required supplements as well.

Dana