Re: Re: Failure to thrive and ASD

July 7, 2009

Thanks Dana.

Thanks , yes we are just in the process of getting the results

back on zinc and copper and a bunch of others including vitamins, etc.

We recently found a MD near us who practices Integrative Medicine and

treats autism and failure to thrive with a very open mind. He ordered

a bunch of blood test and we get the results next Monday at our

monthly appointment. We'll know then and I'll now know what to look

for.

Ed

On Mon, Jul 6, 2009 at 12:00 AM, maria rawlings<jamaraw@...> wrote:

>

> Hi ED,

> Have you had his zinc and copper levels checked.Too high copper nad too low

> zinc can cause failure to thrive according to Pfeiffer.

> R

>

July 8, 2009

Hi ,

I just got a copy of Dr. Amen's book on ADD have just started reading

it. We're just getting started and wow is it overwhelming. I just

finished Dr. McCandless' book " Children with Starving Brains " and

learned a lot. I need to read it again. We found an Integrative

Medicine MD hear us who happens to be a DAN doctor. My son's DAN

doctor has him taking enzymes (Trienza), cod liver oil, d-ribose,

probiotic (HMF Neuro), cell food, antifungal (caprylic acid), and

glycine. In the three weeks that my son has following the supplement

regimen he's gained just over a pound. He's now 29 pounds. We've

also seen a bit of an improvement in his ability to focus and he

doesn't go off into la la land as we call it very often but we have a

very long way to go. My son's appetite isn't to bad. He surprises

us at times and will eat a large meal by anyone's standard and then

ask for desert. It seems he's plagued by some sort of a malabsorption

issue. We've got our next appointment where we will get the results

from the pile of blood tests that were done and I'll raise the growth

hormone idea. Thanks

Ed

On Mon, Jul 6, 2009 at 10:27 AM, m_jhouston333<m_jhouston333@...> wrote:

>

> Hi,

>

> My son has similar issues. Developmental delay and growth delay. For us I

> think the two issues are linked by the same root cause. We are still trying

> to figure it out.

>

> But, after not growing for a year we recently increased the amount of

> enzymes (including nattokinase, virastop, candidase, trienza) we give him

> and reduced gut inflammation with enhansa/curcumin. We also started HBOT

> about a month or two ago. We also started giving him iron and zinc

> supplements and he has grown about 3 inches in the past few months. Most of

> that growth seems to have come since starting HBOT. But it is hard to say

> for sure because we also started the higher doses of enzymes at the same

> time.

>

> How is your son's appetite? Have you ever had his blood checked for iron

> ferritin levels and zinc levels? What about growth hormone? Our son has had

> no detectable levels of growth hormone in his blood in 3 or 4 tests. You can

> read a lot about the link between growth hormone and iron, ferritin, and

> zinc deficiencies.

>

> We think several things are going on with our son which may also apply to

> other kids. Iron and zinc (and other nutrients) are low because

> malabsorption and gut dysbiosis (maybe biofilm using up some

> minerals/nutrients), thick blood due to leaky gut, metal toxicity,

> suppressed immune system, which leads to blood/oxygen/nutrient flow issues

> in the brain and rest of the body which causes hormone issues and other

> issues and keeping my son in a developmental and growth delayed state.

>

> We are trying to address the blood flow issue by repairing his gut, using

> niacin to open up the capilaries, HBOT to increase oxygen delivery,

> vitamins/minerals to supplement deficiencies,

> antifungal/antiparasitics/antivirals/probiotics to address pathogens, and

> lots and lots of enzymes to help digest food, break down biofilm and this

> the blood.

>

> So far he has been doing pretty well lately and seems to be growing a little

> finally. We still have a long way to go but the past month or two have been

> encouraging for us.

>

> Good luck to you. I think you are right to think the two issues may be

> related.

>

>>

>> Hello all,

>> I have a 5 year old son who was diagnosed with ASD a few months back.

>> He is a former micro preemie (born a 510g). He's got a mix of

>> symptoms. I've been researching like crazy trying to figure out what

>> is going on and seeing if we can get some or all of his symptoms under

>> control. We have an appointment next with with a DAN doctor and we'll

>> begin investigating things with him as well. I started him on broad

>> spectrum enzymes almost a month ago and have recently switched him to

>> Trienza to see if that will help both with his ASD and growth. The

>> question I have is could my son's failure to thrive and his autism

>> symptoms be very closely related? He's at about the third (3)

>> percentile for height (38.5 inches) and weight (27.5 lbs) and hasn't

>> put on much weight since January. He's pretty energetic and

>> constantly on the go. When his autism symptoms don't get in the way

>> he can learn. I'm thinking that his autism is somehow related to his

>> brain being starved in some way. Is that possible? Anyone have any

>> comments on this one?

>>

>> Thanks

>>

>> Ed

>>

>

July 8, 2009

Yes Talyna, we're in the process of diet changes. I've just read

Elaine Gottschall's book " Breaking the Vicious Cycle " and think we'd

likely benefit from the Specific Carbohydrate Diet so we are going to

head down the SCD road. I've also recently read DeFelice's book

" Ezymes for Autism " and need to read it again. I will most definitely

look into further using enzymes as we begin to figure some of these

things our. Thanks you for you advice.

Ed

On Tue, Jul 7, 2009 at 3:35 PM, Alessandra<milagros205@...> wrote:

>

> Hi Ed,

> Since failure to thrive can be related to not be able to absorb crucial

> vitamins, minerals and nutrients, have you considered changing his diet? I

> would recommend going on a gf/cf (gluten free casein free) diet. Even

> staying away from corn and soy, while limiting the sugar intake. Diet has a

> huge impact on us and we often don't realize it. Also, do some research on

> hbot. It's a hyperbaric oxygen therapy. A lot of parents in similar

> situations, have found that between that, diet and enzymes that their child

> has tremendously benefited. And you've already got the enzyme thing down,

> right? Adding in some supplementing enzymes to help with the inflammation

> (if you find out he does have inflammation) would be worth a try too.

> We all wish we could give you a guarantee solution, but in some way, I

> really do hope this helps you and your family out. I wish you guys the best.

>

> Talyna

> Enzymedica Education Dept.

> www.enzymedica.com

> www.AGRT.org

>

>> >

>> > Hi ED,

>> > Have you had his zinc and copper levels checked.Too high copper nad too

>> > low

>> > zinc can cause failure to thrive according to Pfeiffer.

>> > R

>> >

>>

>

July 17, 2009

Hello,

I thought I would report back what the blood work showed. It looks

like my son is quite low on zinc, high on b12 and high on alkaline

phosphatase. Our doctor thinks that my son is challenged by an

underlying mitochondrial dysfunction problem as well as a

malabsorption issue probably around zinc and some of the b vitamins so

we've added zinc, b complex and a multivitamin to the growing list of

supplements.

My son also has a challenge with oral aversion. Someone we met

briefly a few months ago had mentioned that low zinc dramatically

affects taste and that their son, who also has ASD and a feeding

disorder, had taken to eating because it tasted good when he was

supplemented with zinc. Does anyone have any experience with this and

how long does it take for zinc to positively affect taste? It'd be

really nice to also help my son's progress in his feeding challenges

(stuck at purees!).

Thanks for everyone's input.

Ed

On Tue, Jul 7, 2009 at 8:01 PM,

juliejeffersonteacher<juliejeffersonteacher@...> wrote:

>

>>

>> Ed I took my son to the amen clinic in reston va. You csn check out their

>> web page at www amenclinic com its pretty impressive with the brain.they

>> also have a hige selection of books. My son is aspergers. Adhd ocd

>> tourettes. They did brain scans on my son to see which part of the brain is

>> affected and then how we need to treat. They told me that a lot of these

>> kids problems is inflammation in the body that is causing inflammation of

>> the brain. Figure what the trigger/triggers are, treat with enzymes etc. And

>> u should see a huge reduction in symptoms. Triggers can be food allergies,

>> metals, the body lacking in anything (vitamins, enzymes etc) , they

>> questioned me about lyme disease, fungals, yeast, fatty acids, leaky gut,

>> thyroid function Great plains laboratory has a huge selection on labs to

>> help figure this out. We've used them several times. Now we finally found a

>> dan dr and r going next week to see if he can put it all together for us.

>> Ugh!!! Talk about complicated.

>>

>> We have started coromega 3 because the amen clinic said it helps with

>> reducing inflammation of the brain. 4000mg a day. My son weighs 80 pounds.

>> Can't tell really a difference yet. Its only been 3 weeks.

>>

>> Hope this helps. Good luck

>> .

>> Sent from my Verizon Wireless BlackBerry

>>

>> Failure to thrive and ASD