Re: Mitococktail question?

January 30, 2009

I'd like this info too.

________________________________

From:

Subject: Mitococktail question?

I really want to try this mitococktail on DS but I'm confused on the amount for

each supplement and I'm assuming it is a one time thing??

DS is 30lbs and 2 1/2 yrs old. Thanks for your help!!

January 30, 2009

>

> I really want to try this mitococktail on DS but I'm confused on the

amount for each supplement and I'm assuming it is a one time thing??

> DS is 30lbs and 2 1/2 yrs old. Thanks for your help!!

My son required mito cocktail for just over a year. Which supps are

you planning to use? I will tell you what doses I used.

Dana

January 30, 2009

I'm not sure which ones too use. Among other things, He can't digest

fats. For instance he gets the chic bumps after eating avocado &

almonds. And nuts don't digest either.

> >

> > I really want to try this mitococktail on DS but I'm confused on the

> amount for each supplement and I'm assuming it is a one time thing??

> > DS is 30lbs and 2 1/2 yrs old. Thanks for your help!!

>

> My son required mito cocktail for just over a year. Which supps are

> you planning to use? I will tell you what doses I used.

>

> Dana

>

January 30, 2009

Hi there,

My 3 year old got the following in his mito cocktail from our mito. Dr. at KKI.:

Coq10 180 mg,

Vit. E 450 iu,

Vit C 720 mg,

Carnitin 900 mg,

ALA 180 mg,

Biotin 2 mg, and

Pantothenate 135 mg.

Please forgive my spelling on some of this as I can't really read the

pharmacists writing but hope it helps.

Casandra

@...: gizbaby123@...: Fri, 30 Jan

2009 18:19:31 +0000Subject: Re: Mitococktail question?

I'm not sure which ones too use. Among other things, He can't digestfats. For

instance he gets the chic bumps after eating avocado & almonds. And nuts don't

digest either. > >> > I really want to try this mitococktail on DS but I'm

confused on the> amount for each supplement and I'm assuming it is a one time

thing??> > DS is 30lbs and 2 1/2 yrs old. Thanks for your help!!> > > My son

required mito cocktail for just over a year. Which supps are> you planning to

use? I will tell you what doses I used.> > Dana>

January 30, 2009

I think I'm misunderstood what a mitococktail was. But I now realize

its not something given just once and its also something prescribed by

the child's doc.

> >> > I really want to try this mitococktail on DS but I'm

confused on the> amount for each supplement and I'm assuming it is a

one time thing??> > DS is 30lbs and 2 1/2 yrs old. Thanks for your

help!!> > > My son required mito cocktail for just over a year. Which

supps are> you planning to use? I will tell you what doses I used.> >

Dana>

>

January 30, 2009

Just so you know, you dont need a DR to give your child the

mitococktail, a lot of folks here are giving their children their own

variations. HTH. Blessings Conrad

In , " " <gizbaby123@...>

wrote:

>

> I think I'm misunderstood what a mitococktail was. But I now realize

> its not something given just once and its also something prescribed by

> the child's doc.

>

January 30, 2009

Thanks, I wasn't sure. But how does one know what to give their child?

> >

> > I think I'm misunderstood what a mitococktail was. But I now realize

> > its not something given just once and its also something prescribed by

> > the child's doc.

> >

>

January 31, 2009

it's true that you don't need a prescription to give the mito

cocktail, BUT if you can get it prescribed you can get it compounded

and covered by insurance. and if you get it compounded, it's a much

smaller volume of stuff that your child will have to take.

our DAN! was more than willing to call in the prescription for us. we

went through Lee Silsby.

> >

> > I think I'm misunderstood what a mitococktail was. But I now realize

> > its not something given just once and its also something prescribed by

> > the child's doc.

> >

>

January 31, 2009

Hi there,

If you want to get one compounded at a pharmacy without going to a Dr. you can

see Dorfman. Shes a nutritionist out of Potomac land but does phone

consultations. We get a lot of the supplements that our DAN! ordered combined

and compounded into a multi vit through her and its so much easier to give the

little guys. I don't have her number handy but you can google her. She is

wonderful and presents at a number of the conf. in the DC area. We saw her

before our DAN! as the wait was less to get into her plus a number of the

supplements that Dr. Bock had told us to do we were already on by the time we

had our first appt.. She also had us taking a number of the supplements in our

mitococktail before my guys were even diagnosised with type 1 mitochondrial

disease. She could tell they had issues based on the symptoms I was telling her.

Casandra

@...: gizbaby123@...: Fri, 30 Jan

2009 20:35:26 +0000Subject: Re: Mitococktail question?

I think I'm misunderstood what a mitococktail was. But I now realizeits not

something given just once and its also something prescribed bythe child's doc.

> >> > I really want to try this mitococktail on DS but

I'mconfused on the> amount for each supplement and I'm assuming it is aone time

thing??> > DS is 30lbs and 2 1/2 yrs old. Thanks for yourhelp!!> > > My son

required mito cocktail for just over a year. Whichsupps are> you planning to

use? I will tell you what doses I used.> >Dana> > > > > > > > [Non-text portions

of this message have been removed]>

February 1, 2009

>

> I'm not sure which ones too use. Among other things, He can't digest

> fats. For instance he gets the chic bumps after eating avocado &

> almonds. And nuts don't digest either.

I have a list of mito supps on my site page

http://www.danasview.net/mar05.htm

Research each one, and start one at a time with low dose. The most

important for my son were CoQ10, carnitine, taurine, and vitamin K.

Dana

February 1, 2009

>

> I think I'm misunderstood what a mitococktail was. But I now realize

> its not something given just once and its also something prescribed by

> the child's doc.

I did not use a doctor. Everything I did was OTC, including mito

cocktail.

Dana

February 2, 2009