RE: long chain fatty acid problem

July 27, 2009

Another test (urine through Vitamin Diagnostics) you may want to get for

your daughter is the Pyroluria or KPU because people with this condition are

deficient in Omega 6s.

On Mon, Jul 27, 2009 at 8:57 AM, Dougherty <JBelle456@...>wrote:

>

> Dear list mates,

>

> My daughter is presently awaiting urine test results out of CHOP

> (Children's

> Hospital of Phila.) to test for a metabolic disorder of long/short chain

> fatty acid digestion problem. She has always had a problem digesting

> anything with oils and certain fats which cause her to become aggressive

> and

> self abusive after eating. In the meantime, does anyone have any

> suggestions

> to help me help her while awaiting these results? Besides avoiding certain

> problem foods and oils, I do use various digestive enzymes and have started

> using Lypo Gold from Enzymedica for any foods whose fat content is a

> problem. However, they don't seem to work for absorption of essential fatty

> acids like Omega 3's or DHA.

>

> Thank you in advance to anyone who has already addressed this problem with

> their child or has info to pass on to me.

>

> My best,

>

July 28, 2009

,

Thanks for this info. My daughter's nutritionist, who ordered the last urine

test, is calling me back today. I'll run this by her.

_____

From:

[mailto: ] On Behalf Of nancy berndt

Sent: Monday, July 27, 2009 2:24 PM

Subject: Re: long chain fatty acid problem

Another test (urine through Vitamin Diagnostics) you may want to get for

your daughter is the Pyroluria or KPU because people with this condition are

deficient in Omega 6s.

On Mon, Jul 27, 2009 at 8:57 AM, Dougherty <JBelle456comcast (DOT)

<mailto:JBelle456%40comcast.net> net>wrote:

>

> Dear list mates,

>

> My daughter is presently awaiting urine test results out of CHOP

> (Children's

> Hospital of Phila.) to test for a metabolic disorder of long/short chain

> fatty acid digestion problem. She has always had a problem digesting

> anything with oils and certain fats which cause her to become aggressive

> and

> self abusive after eating. In the meantime, does anyone have any

> suggestions

> to help me help her while awaiting these results? Besides avoiding certain

> problem foods and oils, I do use various digestive enzymes and have

started

> using Lypo Gold from Enzymedica for any foods whose fat content is a

> problem. However, they don't seem to work for absorption of essential

fatty

> acids like Omega 3's or DHA.

>

> Thank you in advance to anyone who has already addressed this problem with

> their child or has info to pass on to me.

>

> My best,

>

July 29, 2009

Hi , My daughter also has a problem with metabolizing fats. Lypo Gold

helps alot and when I give her more than the recommended amount she seems to

have exceptionally good days.

Also, I experimented with carnitine per Dana. I started slowly and she was

doing very well then began having behavior problems which I traced to the

carnitine. Later, I learned from Dr Yasko that carnitine is a methyl donor

which would explain the problem. My daughter is an overmethylator and carnitine

is derived from methionine and lysine. I'm thinking now that if I give her one

capsule once in a while rather than every day, she could benefit from it without

so much methyl buildup.

>

> Dear list mates,

>

> My daughter is presently awaiting urine test results out of CHOP (Children's

> Hospital of Phila.) to test for a metabolic disorder of long/short chain

> fatty acid digestion problem. She has always had a problem digesting

> anything with oils and certain fats which cause her to become aggressive and

> self abusive after eating. In the meantime, does anyone have any suggestions

> to help me help her while awaiting these results? Besides avoiding certain

> problem foods and oils, I do use various digestive enzymes and have started

> using Lypo Gold from Enzymedica for any foods whose fat content is a

> problem. However, they don't seem to work for absorption of essential fatty

> acids like Omega 3's or DHA.

>

> Thank you in advance to anyone who has already addressed this problem with

> their child or has info to pass on to me.

>

> My best,

>

August 11, 2009

For fat digestion, I give my DD the combo listed below with each meal. I give

all her oils at one time and use this same combination. It works well here:

Digest Gold (a digestive enzyme with lots of lipase)

glycine (forms bile salts)

taurine (thins bile)

Solorary Liver Blend SP 13 (contains milk thistle, dandelion, etc.)