Re: Really confused about what to do next

[Guest guest]

It really depends on what you perceive to be your child's biggest most immediate

need.

While we all want our kids healthy now, like yesterday, there is usually some

issue that rears its' ugly head the most.

For us it was the diminishing amount of food he ate, and his decreasing size,

strength and health.

We opted for something that would both boost his appetite, chelate gently and

build up a small gut resilience to bacteria, yeast and viruses. For us, this

meant Ojibwa tea. Once on this for awhile (used a vitamin in the beginning) we

began enzymes (saw diminished need for really high dose vitamins, as he was

absorbing more nutrients from his food and eating more) and his increased health

allowed us to do more active things like find out which virus, bacteria, etc. to

address.

Our choice of Ojibwa tea also benefits as a natural gentle chelator, and

antiviral, antibacterial, stomach healer.

Not all brands of tea are the same. For us Ojibwa Tea at Ojibwatea.com was a

great start.

PS We had let the Docs at UCLA have their way with him medically in the

beginning and he was a wreck by the time we stopped seeing them, which is why we

tried this alternate route. Although it makes me sick to my stomach when I think

of just how badly they hurt him, I know it is what shaped my ability to do all

of the things that we've done since. We have an articulate, affectionate, funny,

12 year old. No asthma, no diabetes, none of the many things that the UCLA Docs

predicted at age 3, and certainly in better health than they left him. In fact

we've increased his IgA, something they said was impossible.

Good luck.

Really confused about what to do next

My son is 5 now. He is making slow but obvious and steady gains on enzymes,

low oxalate diet, GFCF, B12 shots, and a host of supplements. But he could be so

much better. I'm reading about valtrex, and chelation, and increasing his B12

shots to daily, and B complex, and so many other routes I could try. We have a

DAN doctor but she is very hard to get in touch with and we've only had one

visit. I am really on my own here.

What's best to do first? Chelation, methylation, virus/yeast/bacteria? Could

use some guidance! Thanks,

[Guest guest]

thanks ! How does the tea taste? I've never heard of this and I will look

into it.

I think our biggest concern is speech. If my son could talk well, it would

change everything. He's really bright and happy and he knows exactly what he

wants, but no one but me understands him. AFter that I'd say it's the tantrums,

the OCD-ish behaviors, and the anxiety. That's all better, but we still are not

able to go in public without meltdowns.

>

> It really depends on what you perceive to be your child's biggest most

immediate need.

>

> While we all want our kids healthy now, like yesterday, there is usually some

issue that rears its' ugly head the most.

>

> For us it was the diminishing amount of food he ate, and his decreasing size,

strength and health.

>

> We opted for something that would both boost his appetite, chelate gently and

build up a small gut resilience to bacteria, yeast and viruses. For us, this

meant Ojibwa tea. Once on this for awhile (used a vitamin in the beginning) we

began enzymes (saw diminished need for really high dose vitamins, as he was

absorbing more nutrients from his food and eating more) and his increased health

allowed us to do more active things like find out which virus, bacteria, etc. to

address.

>

> Our choice of Ojibwa tea also benefits as a natural gentle chelator, and

antiviral, antibacterial, stomach healer.

>

> Not all brands of tea are the same. For us Ojibwa Tea at Ojibwatea.com was a

great start.

>

>

>

> PS We had let the Docs at UCLA have their way with him medically in the

beginning and he was a wreck by the time we stopped seeing them, which is why we

tried this alternate route. Although it makes me sick to my stomach when I think

of just how badly they hurt him, I know it is what shaped my ability to do all

of the things that we've done since. We have an articulate, affectionate, funny,

12 year old. No asthma, no diabetes, none of the many things that the UCLA Docs

predicted at age 3, and certainly in better health than they left him. In fact

we've increased his IgA, something they said was impossible.

>

> Good luck.

>

> Really confused about what to do next

>

>

>

> My son is 5 now. He is making slow but obvious and steady gains on enzymes,

low oxalate diet, GFCF, B12 shots, and a host of supplements. But he could be so

much better. I'm reading about valtrex, and chelation, and increasing his B12

shots to daily, and B complex, and so many other routes I could try. We have a

DAN doctor but she is very hard to get in touch with and we've only had one

visit. I am really on my own here.

>

> What's best to do first? Chelation, methylation, virus/yeast/bacteria? Could

use some guidance! Thanks,

>

>

>

>

>

>

>

[Guest guest]

The tea doesn't really have a taste, although it can be kind of gritty when you

get to the bottom of a bottle.

It's a pain to make, but very much worth it.

We did sign language in the beginning because my son had better receptive

language than expressive language as well.

He began to talk around the time of the tea, but we had introduced DMG around

the same time as well, so I couldn't tell you if it was the tea, the DMG or both

together that prompted the talking.

Although clearer and easier to understand (age 3 and only 2 intelligible words

to outsiders) I understood more but not enough.

Then we hit echolalia. That was an experience. It really wasn't until his diet

improved and we began the calcium butyrate (immune issues) and the anti-virals,

anti-bacterials, yeast treatment that we saw clearer expressive speech. In fact,

he began speaking in complete sentences. It was as though we had skipped the

whole baby talk, learning to talk, incorrect grammar, etc.

The really funny part is that he began calling me " Leash " , which is what my

husband calls me. I didn't care. I had wondered if I'd ever know the sound of

his voice (he even cried without noise). It took awhile before he got around to

calling me Mom.

But I still remember where we were, and what the weather was like the first time

he wrapped his arms around me and said " I love you " .

What would kill me was when we would lose language.

Around this time he got a nasty infection, (husband was called to duty for 9/11

and came home on visit very very ill) and our son had to go on antibiotics.

I'll never forget this, he actually started instigating conversation with me. I

kept him up to the wee hours asking him about his favorite color, favorite food,

etc.

A couple of days later it was gone and we were back to echolalia. Turns out the

Augmenten antibiotic had addressed a clostridia issue we were unaware existed.

Some Culturelle and a solid daily rotation of Oil of Oregano drops, and hefty

doses of other probiotics and we were able to bring out more and more speech as

the Clostridia cleared up.

He was seeing a speech therapist at the time. This was a woman with 30 years

experience with special needs kids. ( I wasn't going to pay out of pocket for

some rookie just learning the ropes). This therapist had been nodding and

smiling while I explained what we were doing with our son ( wouldn't allow them

to use food as rewards due to his food issues). However, it wasn't until this

huge jump in cognitive ability and improved speech that she became a believer

herself in the diet and all the interventions we were doing in regards to

supplements.

It was one of the few professional affirmations I received at the time.

Otherwise, it was pretty awful when it came to professionals.

The good news is my husband, who had been having a fit at the money spent, came

home to a son that could talk and interact after being gone for a year. He has

given me flak for money spent and other things over the years, but nothing like

in the beginning. I think it saved our marriage, his being gone. I had pretty

much lived on the edge ( of course none of us get to sleep much) and had reached

the point where I had said to my husband, " keep up or get out of my way " . Then

9/11 happened and he was gone and I just did what I wanted without his eye

rolling, arguing, etc.

Addressing the clostridia (Culturelle, diet, probiotics, calcium butyrate)

cleared up most OCD behaviors for us, the anxiety and meltdowns. Unless he got a

food he shouldn't have ( it was years before he could have oranges or a banana).

Then he was like a Dr. Jekyle and Mr. Hyde. One minute sweet and easy going, the

next minute in the midst of a meltdown. Contrary too. He would say the opposite

of what he meant and then have a fit that I didn't understand what he wanted. It

was awful.

Glad those days are so very far behind us. Every teacher has said he has been a

pleasure in class, and he does the 3-4 hours of homework, therapy, etc. that was

required for him to catch up to his peers. Which he did for the first time last

year. He began school completely caught up. It was great. Good luck to you.

There is hope, but the road is neither easy nor well defined.

My thoughts have always been that what we were doing was easier than the

alternative. I'll never forget the Doc who told us not to save for college but

to save for an institution because by the time my son was about 14 they said

he'd be bigger than me, weigh more than me and be impossible for me to handle.

In that moment I refused. Mentally I just said " No, not gonna happen " .

My son is 12 now. We can wear the same size slipper (noticed this when I went

outside and slipped his sandals on because they were closer, and they fit). My

son is so gentle, intelligent and responsible, that he has been babysitting his

5 year old sister.

I got a bit of a backhanded compliment yesterday from a neighbor and friend. She

was telling me about a conversation between her and her husband. Basically her

husband wanted to know how this " supposedly autistic child " (his words) could

baby-sit his 5 year old sister, but their daughter who is about the same age

can't do the same for her younger siblings. She's just too irresponsible.

Yup, things are better now, and getting better still. Again, good luck to you.

Really confused about what to do next

>

>

>

> My son is 5 now. He is making slow but obvious and steady gains on enzymes,

low oxalate diet, GFCF, B12 shots, and a host of supplements. But he could be so

much better. I'm reading about valtrex, and chelation, and increasing his B12

shots to daily, and B complex, and so many other routes I could try. We have a

DAN doctor but she is very hard to get in touch with and we've only had one

visit. I am really on my own here.

>

> What's best to do first? Chelation, methylation, virus/yeast/bacteria? Could

use some guidance! Thanks,

>

>

>

>

>

>

>

[Guest guest]

> My son is 5 now. He is making slow but obvious and steady gains on enzymes,

low oxalate diet, GFCF, B12 shots, and a host of supplements. But he could be so

much better. I'm reading about valtrex, and chelation, and increasing his B12

shots to daily, and B complex, and so many other routes I could try. We have a

DAN doctor but she is very hard to get in touch with and we've only had one

visit. I am really on my own here.

> What's best to do first? Chelation, methylation, virus/yeast/bacteria?

I got yeast " reasonably under control " , then started ALA chelation. Once my son

tolerated most supplements, approx round 50, I started anti-virals and other

supps.

My son didn't really start recovering until ALA chelation.

Dana

[Guest guest]

For us, we made sure we had gut healing measures in place and then started

chelation. They go hand in hand, because his gut improved after chelation too.

Addressed bacteria and dysbiosis first. Chelation and B12 were huge in helping

with speech and social skills. His OCD disappeared after chelation and anxiety

reduced once bacteria was addressed. GABA is a great supplement for anxiety if

you haven't already tried it.

Joanne

www.healingautismandadhd.wordpress.com

> >

> > It really depends on what you perceive to be your child's biggest most

immediate need.

> >

> > While we all want our kids healthy now, like yesterday, there is usually

some issue that rears its' ugly head the most.

> >

> > For us it was the diminishing amount of food he ate, and his decreasing

size, strength and health.

> >

> > We opted for something that would both boost his appetite, chelate gently

and build up a small gut resilience to bacteria, yeast and viruses. For us, this

meant Ojibwa tea. Once on this for awhile (used a vitamin in the beginning) we

began enzymes (saw diminished need for really high dose vitamins, as he was

absorbing more nutrients from his food and eating more) and his increased health

allowed us to do more active things like find out which virus, bacteria, etc. to

address.

> >

> > Our choice of Ojibwa tea also benefits as a natural gentle chelator, and

antiviral, antibacterial, stomach healer.

> >

> > Not all brands of tea are the same. For us Ojibwa Tea at Ojibwatea.com was a

great start.

> >

> >

> >

> > PS We had let the Docs at UCLA have their way with him medically in the

beginning and he was a wreck by the time we stopped seeing them, which is why we

tried this alternate route. Although it makes me sick to my stomach when I think

of just how badly they hurt him, I know it is what shaped my ability to do all

of the things that we've done since. We have an articulate, affectionate, funny,

12 year old. No asthma, no diabetes, none of the many things that the UCLA Docs

predicted at age 3, and certainly in better health than they left him. In fact

we've increased his IgA, something they said was impossible.

> >

> > Good luck.

> >

> > Really confused about what to do next

> >

> >

> >

> > My son is 5 now. He is making slow but obvious and steady gains on

enzymes, low oxalate diet, GFCF, B12 shots, and a host of supplements. But he

could be so much better. I'm reading about valtrex, and chelation, and

increasing his B12 shots to daily, and B complex, and so many other routes I

could try. We have a DAN doctor but she is very hard to get in touch with and

we've only had one visit. I am really on my own here.

> >

> > What's best to do first? Chelation, methylation, virus/yeast/bacteria?

Could use some guidance! Thanks,

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

what did you do to address bacteria and dysbiosis and what did you do to

chelate? how did you give b12?

 

________________________________

From: josie2boyz <josie2boyz@...>

Sent: Wed, September 1, 2010 8:33:59 PM

Subject: Re: Really confused about what to do next

 

For us, we made sure we had gut healing measures in place and then started

chelation. They go hand in hand, because his gut improved after chelation too.

Addressed bacteria and dysbiosis first. Chelation and B12 were huge in helping

with speech and social skills. His OCD disappeared after chelation and anxiety

reduced once bacteria was addressed. GABA is a great supplement for anxiety if

you haven't already tried it.

Joanne

www.healingautismandadhd.wordpress.com

> >

> > It really depends on what you perceive to be your child's biggest most

>immediate need.

> >

> > While we all want our kids healthy now, like yesterday, there is usually

some

>issue that rears its' ugly head the most.

> >

> > For us it was the diminishing amount of food he ate, and his decreasing

size,

>strength and health.

> >

> > We opted for something that would both boost his appetite, chelate gently

and

>build up a small gut resilience to bacteria, yeast and viruses. For us, this

>meant Ojibwa tea. Once on this for awhile (used a vitamin in the beginning) we

>began enzymes (saw diminished need for really high dose vitamins, as he was

>absorbing more nutrients from his food and eating more) and his increased

health

>allowed us to do more active things like find out which virus, bacteria, etc.

to

>address.

>

> >

> > Our choice of Ojibwa tea also benefits as a natural gentle chelator, and

>antiviral, antibacterial, stomach healer.

> >

> > Not all brands of tea are the same. For us Ojibwa Tea at Ojibwatea.com was a

>great start.

> >

> >

> >

> > PS We had let the Docs at UCLA have their way with him medically in the

>beginning and he was a wreck by the time we stopped seeing them, which is why

we

>tried this alternate route. Although it makes me sick to my stomach when I

think

>of just how badly they hurt him, I know it is what shaped my ability to do all

>of the things that we've done since. We have an articulate, affectionate,

funny,

>12 year old. No asthma, no diabetes, none of the many things that the UCLA Docs

>predicted at age 3, and certainly in better health than they left him. In fact

>we've increased his IgA, something they said was impossible.

> >

> > Good luck.

> >

> > Really confused about what to do next

> >

> >

> >

> > My son is 5 now. He is making slow but obvious and steady gains on enzymes,

>low oxalate diet, GFCF, B12 shots, and a host of supplements. But he could be

so

>much better. I'm reading about valtrex, and chelation, and increasing his B12

>shots to daily, and B complex, and so many other routes I could try. We have a

>DAN doctor but she is very hard to get in touch with and we've only had one

>visit. I am really on my own here.

> >

> > What's best to do first? Chelation, methylation, virus/yeast/bacteria? Could

>use some guidance! Thanks,

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Joanne,

 

How did you do that?

From: josie2boyz <josie2boyz@...>

Subject: Re: Really confused about what to do next

Date: Wednesday, September 1, 2010, 1:33 PM

 

For us, we made sure we had gut healing measures in place and then started

chelation. They go hand in hand, because his gut improved after chelation too.

Addressed bacteria and dysbiosis first. Chelation and B12 were huge in helping

with speech and social skills. His OCD disappeared after chelation and anxiety

reduced once bacteria was addressed. GABA is a great supplement for anxiety if

you haven't already tried it.

Joanne

www.healingautismandadhd.wordpress.com

> >

> > It really depends on what you perceive to be your child's biggest most

immediate need.

> >

> > While we all want our kids healthy now, like yesterday, there is usually

some issue that rears its' ugly head the most.

> >

> > For us it was the diminishing amount of food he ate, and his decreasing

size, strength and health.

> >

> > We opted for something that would both boost his appetite, chelate gently

and build up a small gut resilience to bacteria, yeast and viruses. For us, this

meant Ojibwa tea. Once on this for awhile (used a vitamin in the beginning) we

began enzymes (saw diminished need for really high dose vitamins, as he was

absorbing more nutrients from his food and eating more) and his increased health

allowed us to do more active things like find out which virus, bacteria, etc. to

address.

> >

> > Our choice of Ojibwa tea also benefits as a natural gentle chelator, and

antiviral, antibacterial, stomach healer.

> >

> > Not all brands of tea are the same. For us Ojibwa Tea at Ojibwatea.com was a

great start.

> >

> >

> >

> > PS We had let the Docs at UCLA have their way with him medically in the

beginning and he was a wreck by the time we stopped seeing them, which is why we

tried this alternate route. Although it makes me sick to my stomach when I think

of just how badly they hurt him, I know it is what shaped my ability to do all

of the things that we've done since. We have an articulate, affectionate, funny,

12 year old. No asthma, no diabetes, none of the many things that the UCLA Docs

predicted at age 3, and certainly in better health than they left him. In fact

we've increased his IgA, something they said was impossible.

> >

> > Good luck.

> >

> > Really confused about what to do next

> >

> >

> >

> > My son is 5 now. He is making slow but obvious and steady gains on enzymes,

low oxalate diet, GFCF, B12 shots, and a host of supplements. But he could be so

much better. I'm reading about valtrex, and chelation, and increasing his B12

shots to daily, and B complex, and so many other routes I could try. We have a

DAN doctor but she is very hard to get in touch with and we've only had one

visit. I am really on my own here.

> >

> > What's best to do first? Chelation, methylation, virus/yeast/bacteria? Could

use some guidance! Thanks,

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

To start his gut healing process we began with cleaning up the diet, then went

gf/cf then started the process below.We were able to go off gf/cf once this was

all done with the assistance of digestive enzymes. We are now slowly reducing

the amount of enzymes to remove him off them too.

Bacteria: digestive enzymes, probiotics, and herbal anti-microbial product

called Biocidin. Now we are using curcumin (Enhansa by Lee Silsby) and are

seeing even more great gains!

Dysbiosis: same as above but first eliminated allergic foods and gut healing

measures like zinc (at night)with his probiotic.

Chelate: IV CaEDTA w/glutathione, NAC and Vitamin C every two weeks for about 5

mos. Supported essential minerals and liver during this chelation. Liverlife by

BioRay is a good product to support liver.

Methyl-B12: subcutaneous shots in bum every 3 days for past 2.5 yrs. He needs

his B12!

Joanne

www.healingautismandadhd.wordpress.com

>

> what did you do to address bacteria and dysbiosis and what did you do to

> chelate? how did you give b12?

 

>

> ________________________________

> From: josie2boyz <josie2boyz@...>

>

> Sent: Wed, September 1, 2010 8:33:59 PM

> Subject: Re: Really confused about what to do next

>

> For us, we made sure we had gut healing measures in place and then started

chelation. They go hand in hand, because his gut improved after chelation too.

Addressed bacteria and dysbiosis first. Chelation and B12 were huge in helping

with speech and social skills. His OCD disappeared after chelation and anxiety

reduced once bacteria was addressed. GABA is a great supplement for anxiety if

you haven't already tried it.

> Joanne

> www.healingautismandadhd.wordpress.com

>

[Guest guest]

 

thanks joanne.

we are definitely dealing with lots of gut issues here. what do you recommend i

use? biocidin or enhansa? she is using afp peptizide before meals. and she on a

custom amino acid blend. where do you get b12 shots from?

________________________________

From: josie2boyz <josie2boyz@...>

Sent: Thu, September 2, 2010 10:39:43 PM

Subject: Re: Really confused about what to do next

 

To start his gut healing process we began with cleaning up the diet, then went

gf/cf then started the process below.We were able to go off gf/cf once this was

all done with the assistance of digestive enzymes. We are now slowly reducing

the amount of enzymes to remove him off them too.

Bacteria: digestive enzymes, probiotics, and herbal anti-microbial product

called Biocidin. Now we are using curcumin (Enhansa by Lee Silsby) and are

seeing even more great gains!

Dysbiosis: same as above but first eliminated allergic foods and gut healing

measures like zinc (at night)with his probiotic.

Chelate: IV CaEDTA w/glutathione, NAC and Vitamin C every two weeks for about 5

mos. Supported essential minerals and liver during this chelation. Liverlife by

BioRay is a good product to support liver.

Methyl-B12: subcutaneous shots in bum every 3 days for past 2.5 yrs. He needs

his B12!

Joanne

www.healingautismandadhd.wordpress.com

>

> what did you do to address bacteria and dysbiosis and what did you do to

> chelate? how did you give b12?

 

>

> ________________________________

> From: josie2boyz <josie2boyz@...>

>

> Sent: Wed, September 1, 2010 8:33:59 PM

> Subject: Re: Really confused about what to do next

>

> For us, we made sure we had gut healing measures in place and then started

>chelation. They go hand in hand, because his gut improved after chelation too.

>Addressed bacteria and dysbiosis first. Chelation and B12 were huge in helping

>with speech and social skills. His OCD disappeared after chelation and anxiety

>reduced once bacteria was addressed. GABA is a great supplement for anxiety if

>you haven't already tried it.

> Joanne

> www.healingautismandadhd.wordpress.com

>

[Guest guest]

If you're relatively new to Biomed I'd wait on the Enhansa. It is very powerful

and can cause too many things to die off at once. Our DAN was a new DAN and she

put my kids on it from the get go...it was not pretty. They went totally nutso.

Somebody on here told me they thought Enhansa was pretty major for a newbie, so

I asked around. The consensus was that it is just too much too soon if you're

just starting out or ar eonly a few months into biomedical treatments. My kids

have been doing major biomed for 10 months now and I'm starting to consider

switching back to enhansa to eliminate the number of supplements they take...but

I think I'll wait until we hit the year mark

[Guest guest]

Thank you for that wonderful story, ! I was wondering if you tested for

clostridia of if you figured it out on your own?

> >

> > It really depends on what you perceive to be your child's biggest most

immediate need.

> >

> > While we all want our kids healthy now, like yesterday, there is usually

some issue that rears its' ugly head the most.

> >

> > For us it was the diminishing amount of food he ate, and his decreasing

size, strength and health.

> >

> > We opted for something that would both boost his appetite, chelate gently

and build up a small gut resilience to bacteria, yeast and viruses. For us, this

meant Ojibwa tea. Once on this for awhile (used a vitamin in the beginning) we

began enzymes (saw diminished need for really high dose vitamins, as he was

absorbing more nutrients from his food and eating more) and his increased health

allowed us to do more active things like find out which virus, bacteria, etc. to

address.

> >

> > Our choice of Ojibwa tea also benefits as a natural gentle chelator, and

antiviral, antibacterial, stomach healer.

> >

> > Not all brands of tea are the same. For us Ojibwa Tea at Ojibwatea.com was

a great start.

> >

> >

> >

> > PS We had let the Docs at UCLA have their way with him medically in the

beginning and he was a wreck by the time we stopped seeing them, which is why we

tried this alternate route. Although it makes me sick to my stomach when I think

of just how badly they hurt him, I know it is what shaped my ability to do all

of the things that we've done since. We have an articulate, affectionate, funny,

12 year old. No asthma, no diabetes, none of the many things that the UCLA Docs

predicted at age 3, and certainly in better health than they left him. In fact

we've increased his IgA, something they said was impossible.

> >

> > Good luck.

> >

> > Really confused about what to do next

> >

> >

> >

> > My son is 5 now. He is making slow but obvious and steady gains on

enzymes, low oxalate diet, GFCF, B12 shots, and a host of supplements. But he

could be so much better. I'm reading about valtrex, and chelation, and

increasing his B12 shots to daily, and B complex, and so many other routes I

could try. We have a DAN doctor but she is very hard to get in touch with and

we've only had one visit. I am really on my own here.

> >

> > What's best to do first? Chelation, methylation, virus/yeast/bacteria?

Could use some guidance! Thanks,

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks Joanne. What dose GABA would you suggest for 5 yo, 33 pounds? Is that

something we can do only when we're out of town or in a noisy place, or would we

give it all the time? Thanks!

> > >

> > > It really depends on what you perceive to be your child's biggest most

immediate need.

> > >

> > > While we all want our kids healthy now, like yesterday, there is usually

some issue that rears its' ugly head the most.

> > >

> > > For us it was the diminishing amount of food he ate, and his decreasing

size, strength and health.

> > >

> > > We opted for something that would both boost his appetite, chelate gently

and build up a small gut resilience to bacteria, yeast and viruses. For us, this

meant Ojibwa tea. Once on this for awhile (used a vitamin in the beginning) we

began enzymes (saw diminished need for really high dose vitamins, as he was

absorbing more nutrients from his food and eating more) and his increased health

allowed us to do more active things like find out which virus, bacteria, etc. to

address.

> > >

> > > Our choice of Ojibwa tea also benefits as a natural gentle chelator, and

antiviral, antibacterial, stomach healer.

> > >

> > > Not all brands of tea are the same. For us Ojibwa Tea at Ojibwatea.com was

a great start.

> > >

> > >

> > >

> > > PS We had let the Docs at UCLA have their way with him medically in the

beginning and he was a wreck by the time we stopped seeing them, which is why we

tried this alternate route. Although it makes me sick to my stomach when I think

of just how badly they hurt him, I know it is what shaped my ability to do all

of the things that we've done since. We have an articulate, affectionate, funny,

12 year old. No asthma, no diabetes, none of the many things that the UCLA Docs

predicted at age 3, and certainly in better health than they left him. In fact

we've increased his IgA, something they said was impossible.

> > >

> > > Good luck.

> > >

> > > Really confused about what to do next

> > >

> > >

> > >

> > > My son is 5 now. He is making slow but obvious and steady gains on

enzymes, low oxalate diet, GFCF, B12 shots, and a host of supplements. But he

could be so much better. I'm reading about valtrex, and chelation, and

increasing his B12 shots to daily, and B complex, and so many other routes I

could try. We have a DAN doctor but she is very hard to get in touch with and

we've only had one visit. I am really on my own here.

> > >

> > > What's best to do first? Chelation, methylation, virus/yeast/bacteria?

Could use some guidance! Thanks,

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thanks Dana. Is the protocol you used for ALA on your website? I just received

the Andy Cutler book and it's a bit hard for me to follow. I was expecting more

of a " to do " list. Did you follow the AC protocol?

Thanks!

> > My son is 5 now. He is making slow but obvious and steady gains on enzymes,

low oxalate diet, GFCF, B12 shots, and a host of supplements. But he could be so

much better. I'm reading about valtrex, and chelation, and increasing his B12

shots to daily, and B complex, and so many other routes I could try. We have a

DAN doctor but she is very hard to get in touch with and we've only had one

visit. I am really on my own here.

> > What's best to do first? Chelation, methylation, virus/yeast/bacteria?

>

>

> I got yeast " reasonably under control " , then started ALA chelation. Once my

son tolerated most supplements, approx round 50, I started anti-virals and other

supps.

>

> My son didn't really start recovering until ALA chelation.

>

> Dana

>

[Guest guest]

Dana of this group, Godsend that she is, read one of my wee morning hours

panicked emails.

Here I had just had this remarkable conversation with my son, and then his

language was gone again, just like that....

Dana put two and two together with the antibiotics, the type of issues he had

and suggested Clostridia might be his issue. We had some tests done and she was

right on the money.

Really confused about what to do next

> >

> >

> >

> > My son is 5 now. He is making slow but obvious and steady gains on

enzymes, low oxalate diet, GFCF, B12 shots, and a host of supplements. But he

could be so much better. I'm reading about valtrex, and chelation, and

increasing his B12 shots to daily, and B complex, and so many other routes I

could try. We have a DAN doctor but she is very hard to get in touch with and

we've only had one visit. I am really on my own here.

> >

> > What's best to do first? Chelation, methylation, virus/yeast/bacteria?

Could use some guidance! Thanks,

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hello

I myself have heard so many success stories when the diet is changed, the

digestive system is supported with probiotics and when specific supplementation

is implemented.

Have you ever heard of the Isotonix Spectrum line? If not here is a little info.

It comes in powder form so when it is mixed with water and taken on an empty

stomach it is absorbed right away into the intestines and bloodstream. Children

with nutrtional issues like those with autism see tremendous results on these

products! Checkout my website for the links below.

Take care god bless and keep strong in your fight for your children =)

Nate Lasko

Lasko Health Solutions

www.laskohealthsolutions.com

414-313-2454

Re: Really confused about what to do next

Dana of this group, Godsend that she is, read one of my wee morning hours

panicked emails.

Here I had just had this remarkable conversation with my son, and then his

language was gone again, just like that....

Dana put two and two together with the antibiotics, the type of issues he had

and suggested Clostridia might be his issue. We had some tests done and she was

right on the money.

Really confused about what to do next

> >

> >

> >

> > My son is 5 now. He is making slow but obvious and steady gains on enzymes,

low oxalate diet, GFCF, B12 shots, and a host of supplements. But he could be so

much better. I'm reading about valtrex, and chelation, and increasing his B12

shots to daily, and B complex, and so many other routes I could try. We have a

DAN doctor but she is very hard to get in touch with and we've only had one

visit. I am really on my own here.

> >

> > What's best to do first? Chelation, methylation, virus/yeast/bacteria?

Could use some guidance! Thanks,

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Les, I totally agree with you on waiting until other biomeds are in place before

starting Enhansa. We tried Enhansa a year ago and he couldn't tolerate it. But

now, he's doing SOOO much better with it. We still have to give him No-Phenol

with it and went very slowly with the doseage. I've been giving it to him for

over 4 wks and we are still only at 300 mg/day. Started with the powder so we

could ramp up as slowly as needed. FYI - we've been doing biomed treatments for

over 2 yrs now.

Joanne

>

> If you're relatively new to Biomed I'd wait on the Enhansa. It is very

powerful and can cause too many things to die off at once. Our DAN was a new DAN

and she put my kids on it from the get go...it was not pretty. They went totally

nutso. Somebody on here told me they thought Enhansa was pretty major for a

newbie, so I asked around. The consensus was that it is just too much too soon

if you're just starting out or ar eonly a few months into biomedical treatments.

My kids have been doing major biomed for 10 months now and I'm starting to

consider switching back to enhansa to eliminate the number of supplements they

take...but I think I'll wait until we hit the year mark

>

[Guest guest]

,

If she is already on a good probiotic and have cleaned up the diet, gone gf/cf

I'd go with Biocidin. We take it in the evening after dinner. Then the probiotic

before bed on an empty stomach to follow it up.

I get my B12 shots from Hopewell Pharmacy...prescription from my DAN doc.

Joanne

> >

> > what did you do to address bacteria and dysbiosis and what did you do to

> > chelate? how did you give b12?

>  

> >

> > ________________________________

> > From: josie2boyz <josie2boyz@>

> >

> > Sent: Wed, September 1, 2010 8:33:59 PM

> > Subject: Re: Really confused about what to do next

> >

> > For us, we made sure we had gut healing measures in place and then started

> >chelation. They go hand in hand, because his gut improved after chelation

too.

> >Addressed bacteria and dysbiosis first. Chelation and B12 were huge in

helping

> >with speech and social skills. His OCD disappeared after chelation and

anxiety

> >reduced once bacteria was addressed. GABA is a great supplement for anxiety

if

> >you haven't already tried it.

> > Joanne

> > www.healingautismandadhd.wordpress.com

> >

>

>

>

>

>

[Guest guest]

smart lady.....!

nancy j

a child is diagnosed with

asd every 20 seconds

From: ammattson <ammattson@...>

Subject: Re: Really confused about what to do next

Date: Friday, September 3, 2010, 10:18 AM

 

Dana of this group, Godsend that she is, read one of my wee morning hours

panicked emails.

Here I had just had this remarkable conversation with my son, and then his

language was gone again, just like that....

Dana put two and two together with the antibiotics, the type of issues he had

and suggested Clostridia might be his issue. We had some tests done and she was

right on the money.

Really confused about what to do next

> >

> >

> >

> > My son is 5 now. He is making slow but obvious and steady gains on

enzymes, low oxalate diet, GFCF, B12 shots, and a host of supplements. But he

could be so much better. I'm reading about valtrex, and chelation, and

increasing his B12 shots to daily, and B complex, and so many other routes I

could try. We have a DAN doctor but she is very hard to get in touch with and

we've only had one visit. I am really on my own here.

> >

> > What's best to do first? Chelation, methylation, virus/yeast/bacteria?

Could use some guidance! Thanks,

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks Joanne. Very helpful. We are on Culturelle one in morning and one in

evening and the diet is cleared up and no gf/cf. I have not been able to figure

out if she truly has a fenol issue but something intuitively is steering me

away

from oranges and tomatoes.

________________________________

From: josie2boyz <josie2boyz@...>

Sent: Fri, September 3, 2010 9:19:14 PM

Subject: Re: Really confused about what to do next

 

,

If she is already on a good probiotic and have cleaned up the diet, gone gf/cf

I'd go with Biocidin. We take it in the evening after dinner. Then the probiotic

before bed on an empty stomach to follow it up.

I get my B12 shots from Hopewell Pharmacy...prescription from my DAN doc.

Joanne

> >

> > what did you do to address bacteria and dysbiosis and what did you do to

> > chelate? how did you give b12?

>  

> >

> > ________________________________

> > From: josie2boyz <josie2boyz@>

> >

> > Sent: Wed, September 1, 2010 8:33:59 PM

> > Subject: Re: Really confused about what to do next

> >

> > For us, we made sure we had gut healing measures in place and then started

> >chelation. They go hand in hand, because his gut improved after chelation

too.

>

> >Addressed bacteria and dysbiosis first. Chelation and B12 were huge in

helping

>

> >with speech and social skills. His OCD disappeared after chelation and

anxiety

>

> >reduced once bacteria was addressed. GABA is a great supplement for anxiety

if

>

> >you haven't already tried it.

> > Joanne

> > www.healingautismandadhd.wordpress.com

> >

>

>

>

>

>

[Guest guest]

My DAN doctor has recommended you find the dose that works for each individual

by starting out with the 250 mg (Kirkman sells that dose) and trying it first.

Then increase it until it causes drowsiness then back off to the dose that eased

anxiety. My seven yo, 60 lbs son takes 500 mg in AM, 250 in afternoon and 500 mg

at bedtime. It doesn't stay in the system too long so you can give it only when

you want to.

Joanne

> > > >

> > > > It really depends on what you perceive to be your child's biggest most

immediate need.

> > > >

> > > > While we all want our kids healthy now, like yesterday, there is usually

some issue that rears its' ugly head the most.

> > > >

> > > > For us it was the diminishing amount of food he ate, and his decreasing

size, strength and health.

> > > >

> > > > We opted for something that would both boost his appetite, chelate

gently and build up a small gut resilience to bacteria, yeast and viruses. For

us, this meant Ojibwa tea. Once on this for awhile (used a vitamin in the

beginning) we began enzymes (saw diminished need for really high dose vitamins,

as he was absorbing more nutrients from his food and eating more) and his

increased health allowed us to do more active things like find out which virus,

bacteria, etc. to address.

> > > >

> > > > Our choice of Ojibwa tea also benefits as a natural gentle chelator, and

antiviral, antibacterial, stomach healer.

> > > >

> > > > Not all brands of tea are the same. For us Ojibwa Tea at Ojibwatea.com

was a great start.

> > > >

> > > >

> > > >

> > > > PS We had let the Docs at UCLA have their way with him medically in the

beginning and he was a wreck by the time we stopped seeing them, which is why we

tried this alternate route. Although it makes me sick to my stomach when I think

of just how badly they hurt him, I know it is what shaped my ability to do all

of the things that we've done since. We have an articulate, affectionate, funny,

12 year old. No asthma, no diabetes, none of the many things that the UCLA Docs

predicted at age 3, and certainly in better health than they left him. In fact

we've increased his IgA, something they said was impossible.

> > > >

> > > > Good luck.

> > > >

> > > > Really confused about what to do next

> > > >

> > > >

> > > >

> > > > My son is 5 now. He is making slow but obvious and steady gains on

enzymes, low oxalate diet, GFCF, B12 shots, and a host of supplements. But he

could be so much better. I'm reading about valtrex, and chelation, and

increasing his B12 shots to daily, and B complex, and so many other routes I

could try. We have a DAN doctor but she is very hard to get in touch with and

we've only had one visit. I am really on my own here.

> > > >

> > > > What's best to do first? Chelation, methylation, virus/yeast/bacteria?

Could use some guidance! Thanks,

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Joanne, do you think I could start with Enhansa? My boy is already doing gf/cf,

probiotics, a host of supplements, b12 shots, low oxalate diet. I suspect

measles in his tummy and I know the yeast has flared back up. I am leaning

towards Enhansa now rather than Biocidin because my son is very healthy besides

yeast and some mild bowel issues. (as far as I know!) I want a heavy hitter! Or

do you think it's still wise to start with biocidin?

Thanks again!

> > >

> > > what did you do to address bacteria and dysbiosis and what did you do to

> > > chelate? how did you give b12?

> >  

> > >

> > > ________________________________

> > > From: josie2boyz <josie2boyz@>

> > >

> > > Sent: Wed, September 1, 2010 8:33:59 PM

> > > Subject: Re: Really confused about what to do next

> > >

> > > For us, we made sure we had gut healing measures in place and then started

> > >chelation. They go hand in hand, because his gut improved after chelation

too.

> > >Addressed bacteria and dysbiosis first. Chelation and B12 were huge in

helping

> > >with speech and social skills. His OCD disappeared after chelation and

anxiety

> > >reduced once bacteria was addressed. GABA is a great supplement for anxiety

if

> > >you haven't already tried it.

> > > Joanne

> > > www.healingautismandadhd.wordpress.com

> > >

> >

> >

> >

> >

> >

[Guest guest]

You can certainly give Enhansa a try, why not? I'd go low and slow though since

it does cause viral/yeast die offs. If your son reacts to phenols, be cautious

with it and I use No-Phenol digestive enzyme with it. Biocidin is good too, but

I'd only do one at a time for now and once established at full dose with one,

start the other.

Best,

Joanne

> > > >

> > > > what did you do to address bacteria and dysbiosis and what did you do to

> > > > chelate? how did you give b12?

> > >  

> > > >

> > > > ________________________________

> > > > From: josie2boyz <josie2boyz@>

> > > >

> > > > Sent: Wed, September 1, 2010 8:33:59 PM

> > > > Subject: Re: Really confused about what to do next

> > > >

> > > > For us, we made sure we had gut healing measures in place and then

started

> > > >chelation. They go hand in hand, because his gut improved after chelation

too.

> > > >Addressed bacteria and dysbiosis first. Chelation and B12 were huge in

helping

> > > >with speech and social skills. His OCD disappeared after chelation and

anxiety

> > > >reduced once bacteria was addressed. GABA is a great supplement for

anxiety if

> > > >you haven't already tried it.

> > > > Joanne

> > > > www.healingautismandadhd.wordpress.com

> > > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Joanne,

What's the dosage of MB12 shots?

How old is your kid, did you see consistent gain, or a die-off in the beginning

and yes, did you see spaciness in your child after about 2-3 weeks on it when

you started.

How did you go for it initaially, Folinic acid added or later on you added it?

I saw increased spaciness in my 4 year old after 2 weeks.

thanks,

Sasmita

> > >

> > > what did you do to address bacteria and dysbiosis and what did you do to

> > > chelate? how did you give b12?

> >  

> > >

> > > ________________________________

> > > From: josie2boyz <josie2boyz@>

> > >

> > > Sent: Wed, September 1, 2010 8:33:59 PM

> > > Subject: Re: Really confused about what to do next

> > >

> > > For us, we made sure we had gut healing measures in place and then started

> > >chelation. They go hand in hand, because his gut improved after chelation

too.

> > >Addressed bacteria and dysbiosis first. Chelation and B12 were huge in

helping

> > >with speech and social skills. His OCD disappeared after chelation and

anxiety

> > >reduced once bacteria was addressed. GABA is a great supplement for anxiety

if

> > >you haven't already tried it.

> > > Joanne

> > > www.healingautismandadhd.wordpress.com

> > >

> >

> >

> >

> >

> >

[Guest guest]

> Thanks Dana. Is the protocol you used for ALA on your website?

I think so. Scroll down this page to the chelation section

http://www.danasview.net/myson.htm

>>I just received the Andy Cutler book and it's a bit hard for me to follow. I

was expecting more of a " to do " list. Did you follow the AC protocol?

No

Dana