Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 The best way to get Vit D is in cod liver oil. Dana lively.amanda wrote: > Hi, > My DAN recommended starting my two ASD kids on 5000 iu of Vitamin D3. I bought some > from the health food store, and it's mostly organic, but it has some preservatives in it. My > daughter took it and she did great in ABA, but other then that I haven't seen much of a > reaction. However my son took it and by the end of the day his sensory system went crazy. > He was sensory seeking by running into things and screamed in pain during bath time when I > tried to wash him. He was also clenching and screaming, which he used to do because of > artificial colorings and flavorings. I haven't seen him do this in a long time. > This morning, however, his speech was awesome. He was using and signing a lot of new > words. He was using words to get my attention, and other cool stuff. Does anyone have any > experience with Vitamin D3? Could this have been a " healing regression " or was it the > preservatives? > I ordered a more pure form of Vitamin D, and took him off the current one. > Thanks for all your help. I have learned so much from this group. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 thorne makes a pretty clean one. and yes that may have been an " awakening " of his neurons. when I worked in peds yrs ago, we used to have to tie the kids waking up from brain traumas and comas to us as they became hyperactive. linda rn Vitamin D Therapy Hi, My DAN recommended starting my two ASD kids on 5000 iu of Vitamin D3. I bought some from the health food store, and it's mostly organic, but it has some preservatives in it. My daughter took it and she did great in ABA, but other then that I haven't seen much of a reaction. However my son took it and by the end of the day his sensory system went crazy. He was sensory seeking by running into things and screamed in pain during bath time when I tried to wash him. He was also clenching and screaming, which he used to do because of artificial colorings and flavorings. I haven't seen him do this in a long time. This morning, however, his speech was awesome. He was using and signing a lot of new words. He was using words to get my attention, and other cool stuff. Does anyone have any experience with Vitamin D3? Could this have been a " healing regression " or was it the preservatives? I ordered a more pure form of Vitamin D, and took him off the current one. Thanks for all your help. I have learned so much from this group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Which brand of COD would you suggest? > > Hi, > > My DAN recommended starting my two ASD kids on 5000 iu of Vitamin D3. I bought some > > from the health food store, and it's mostly organic, but it has some preservatives in it. My > > daughter took it and she did great in ABA, but other then that I haven't seen much of a > > reaction. However my son took it and by the end of the day his sensory system went crazy. > > He was sensory seeking by running into things and screamed in pain during bath time when I > > tried to wash him. He was also clenching and screaming, which he used to do because of > > artificial colorings and flavorings. I haven't seen him do this in a long time. > > This morning, however, his speech was awesome. He was using and signing a lot of new > > words. He was using words to get my attention, and other cool stuff. Does anyone have any > > experience with Vitamin D3? Could this have been a " healing regression " or was it the > > preservatives? > > I ordered a more pure form of Vitamin D, and took him off the current one. > > Thanks for all your help. I have learned so much from this group. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 I poured clo down my children from day one. Both have been tested-one in bottom 10% and one in bottom 25%. There is info on line about the clo being filtered and synthetic vit added back with ratios a/d not what is commonly thought and labels not reflecting the content of the product. After 8 mos of 5,000iu D3 per day both of my young adult children have not reached adequate levels yet. This is one supp I would continue!! > > Hi, > > My DAN recommended starting my two ASD kids on 5000 iu of Vitamin D3. I bought some > > from the health food store, and it's mostly organic, but it has some preservatives in it. My > > daughter took it and she did great in ABA, but other then that I haven't seen much of a > > reaction. However my son took it and by the end of the day his sensory system went crazy. > > He was sensory seeking by running into things and screamed in pain during bath time when I > > tried to wash him. He was also clenching and screaming, which he used to do because of > > artificial colorings and flavorings. I haven't seen him do this in a long time. > > This morning, however, his speech was awesome. He was using and signing a lot of new > > words. He was using words to get my attention, and other cool stuff. Does anyone have any > > experience with Vitamin D3? Could this have been a " healing regression " or was it the > > preservatives? > > I ordered a more pure form of Vitamin D, and took him off the current one. > > Thanks for all your help. I have learned so much from this group. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 My son is doing incredibly well on the exact same dose. If you suspect fillers, continue looking for something more pure. It sounds like things are coming alive and new sensory info not experienced previously can be alarming/upsetting. My son has improved with motor coordation, sensory, and a speech. He's babbling constantly and touching everything where previously he was aversive to touching anything. He's even independently feeling all of the textures in his touch books when he would previously pull his hand away when I tried to help him feel the pages. He has even developed a sense of rhythm and is drumming not only on his drums, but on the wall, the table, etc. If he was a typical boy, no one would call it a " stim " , so I'm encouraging his interest by playing music and also bought a few handrums and bongos as he prefers his hands over using the sticks on his rim drum. Anywhoo... it doesn't sound like a negative response to me. If you become concerned, follow your gut and reduced dose or stop, but I think he's responding well. Be sure to have his levels tested. It should be 70-80 ng/ml, but some kids with autism do well at 100 ng/ml under doctor's guidance. You can buy a home test kit if you prefer: http://www.zrtlab.com/Page.aspx?nid=12 & action=view & category=14 & partner=VitaminD%\ 20Council > > Hi, > My DAN recommended starting my two ASD kids on 5000 iu of Vitamin D3. I bought some > from the health food store, and it's mostly organic, but it has some preservatives in it. My > daughter took it and she did great in ABA, but other then that I haven't seen much of a > reaction. However my son took it and by the end of the day his sensory system went crazy. > He was sensory seeking by running into things and screamed in pain during bath time when I > tried to wash him. He was also clenching and screaming, which he used to do because of > artificial colorings and flavorings. I haven't seen him do this in a long time. > This morning, however, his speech was awesome. He was using and signing a lot of new > words. He was using words to get my attention, and other cool stuff. Does anyone have any > experience with Vitamin D3? Could this have been a " healing regression " or was it the > preservatives? > I ordered a more pure form of Vitamin D, and took him off the current one. > Thanks for all your help. I have learned so much from this group. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Doctor McCandless is advising against using cod liver oil. Most don't provide the proper balance between vitamins A and D, which should be minimally 5 times as much D as A. She recommends ProDHA to cod liver oil, and gives a separate vitamin A drop, with high dose D3. This turn away from CLO to DHA is being echoed through the autism community and the general public. > > > Hi, > > > My DAN recommended starting my two ASD kids on 5000 iu of Vitamin > D3. I bought some > > > from the health food store, and it's mostly organic, but it has > some preservatives in it. My > > > daughter took it and she did great in ABA, but other then that I > haven't seen much of a > > > reaction. However my son took it and by the end of the day his > sensory system went crazy. > > > He was sensory seeking by running into things and screamed in > pain during bath time when I > > > tried to wash him. He was also clenching and screaming, which he > used to do because of > > > artificial colorings and flavorings. I haven't seen him do this > in a long time. > > > This morning, however, his speech was awesome. He was using and > signing a lot of new > > > words. He was using words to get my attention, and other cool > stuff. Does anyone have any > > > experience with Vitamin D3? Could this have been a " healing > regression " or was it the > > > preservatives? > > > I ordered a more pure form of Vitamin D, and took him off the > current one. > > > Thanks for all your help. I have learned so much from this > group. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 > My DAN recommended starting my two ASD kids on 5000 iu of Vitamin D3. I bought some > from the health food store, and it's mostly organic, but it has some preservatives in it. >>However my son took it and by the end of the day his sensory system went crazy. > He was sensory seeking by running into things and screamed in pain during bath time when I > tried to wash him. He was also clenching and screaming, which he used to do because of > artificial colorings and flavorings. I haven't seen him do this in a long time. > This morning, however, his speech was awesome. First, find another vitamin D supplement without all the preservatives. Second, too-high doses of vitamin D caused massive headache here. So if you think your son had a massive headache, try lowering his dose. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Which pro DHA is that by Nordic? From: happietrout <eener@...> Subject: Re: Vitamin D Therapy Received: Wednesday, February 4, 2009, 2:32 PM Doctor McCandless is advising against using cod liver oil. Most don't provide the proper balance between vitamins A and D, which should be minimally 5 times as much D as A. She recommends ProDHA to cod liver oil, and gives a separate vitamin A drop, with high dose D3. This turn away from CLO to DHA is being echoed through the autism community and the general public. > > > Hi, > > > My DAN recommended starting my two ASD kids on 5000 iu of Vitamin > D3. I bought some > > > from the health food store, and it's mostly organic, but it has > some preservatives in it. My > > > daughter took it and she did great in ABA, but other then that I > haven't seen much of a > > > reaction. However my son took it and by the end of the day his > sensory system went crazy. > > > He was sensory seeking by running into things and screamed in > pain during bath time when I > > > tried to wash him. He was also clenching and screaming, which he > used to do because of > > > artificial colorings and flavorings. I haven't seen him do this > in a long time. > > > This morning, however, his speech was awesome. He was using and > signing a lot of new > > > words. He was using words to get my attention, and other cool > stuff. Does anyone have any > > > experience with Vitamin D3? Could this have been a " healing > regression " or was it the > > > preservatives? > > > I ordered a more pure form of Vitamin D, and took him off the > current one. > > > Thanks for all your help. I have learned so much from this > group. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Yes, exactly - Nordic Naturals. Sorry about that... > > > > Hi, > > > > My DAN recommended starting my two ASD kids on 5000 iu of Vitamin > > D3. I bought some > > > > from the health food store, and it's mostly organic, but it has > > some preservatives in it. My > > > > daughter took it and she did great in ABA, but other then that I > > haven't seen much of a > > > > reaction. However my son took it and by the end of the day his > > sensory system went crazy. > > > > He was sensory seeking by running into things and screamed in > > pain during bath time when I > > > > tried to wash him. He was also clenching and screaming, which he > > used to do because of > > > > artificial colorings and flavorings. I haven't seen him do this > > in a long time. > > > > This morning, however, his speech was awesome. He was using and > > signing a lot of new > > > > words. He was using words to get my attention, and other cool > > stuff. Does anyone have any > > > > experience with Vitamin D3? Could this have been a " healing > > regression " or was it the > > > > preservatives? > > > > I ordered a more pure form of Vitamin D, and took him off the > > current one. > > > > Thanks for all your help. I have learned so much from this > > group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 What is the recommended amount of Vit D3 for children? I noticed the Vit D in CLO is just Vit D. Is that different? Maybe we need to add in D3 as well as the CLO we are already taking? Any advice on that?  Thanks, Dana From: happietrout <eener@...> Subject: Re: Vitamin D Therapy Date: Wednesday, February 4, 2009, 11:12 AM Yes, exactly - Nordic Naturals. Sorry about that... > > > > Hi, > > > > My DAN recommended starting my two ASD kids on 5000 iu of Vitamin > > D3. I bought some > > > > from the health food store, and it's mostly organic, but it has > > some preservatives in it. My > > > > daughter took it and she did great in ABA, but other then that I > > haven't seen much of a > > > > reaction. However my son took it and by the end of the day his > > sensory system went crazy. > > > > He was sensory seeking by running into things and screamed in > > pain during bath time when I > > > > tried to wash him. He was also clenching and screaming, which he > > used to do because of > > > > artificial colorings and flavorings. I haven't seen him do this > > in a long time. > > > > This morning, however, his speech was awesome. He was using and > > signing a lot of new > > > > words. He was using words to get my attention, and other cool > > stuff. Does anyone have any > > > > experience with Vitamin D3? Could this have been a " healing > > regression " or was it the > > > > preservatives? > > > > I ordered a more pure form of Vitamin D, and took him off the > > current one. > > > > Thanks for all your help. I have learned so much from this > > group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Dr Mercola has an hour long lecture on his web site that explains the difference between Vit D3 and Vit D2. He also talks about how Vit D is so helpful in autoimmune dissorders like autism. he explains the best ways to get Vit D and why so many of us are deficient. Here is the link, or you can go to Dr. Mercola's awesome web site and search for Vitamin D. http://articles.mercola.com/sites/articles/archive/2008/12/16/my-one- hour-vitamin-d-lecture-to-clear-up-all-your-confusion-on-this-vital- nutrient.aspx I love Dr. Mercola. Thanks for all your helpful information. > > > > > Hi, > > > > > My DAN recommended starting my two ASD kids on 5000 iu of Vitamin > > > D3. I bought some > > > > > from the health food store, and it's mostly organic, but it has > > > some preservatives in it. My > > > > > daughter took it and she did great in ABA, but other then that I > > > haven't seen much of a > > > > > reaction. However my son took it and by the end of the day his > > > sensory system went crazy. > > > > > He was sensory seeking by running into things and screamed in > > > pain during bath time when I > > > > > tried to wash him. He was also clenching and screaming, which he > > > used to do because of > > > > > artificial colorings and flavorings. I haven't seen him do this > > > in a long time. > > > > > This morning, however, his speech was awesome. He was using and > > > signing a lot of new > > > > > words. He was using words to get my attention, and other cool > > > stuff. Does anyone have any > > > > > experience with Vitamin D3? Could this have been a " healing > > > regression " or was it the > > > > > preservatives? > > > > > I ordered a more pure form of Vitamin D, and took him off the > > > current one. > > > > > Thanks for all your help. I have learned so much from this > > > group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 I am giving to my son CLO Carlston. One morning I tried it for myself and it give me stomach pain. Do you think it might be better to five caps instead of liquid form? Did you know that we have to keep the CLO bootle for only 3 months after opening? > > > > > Hi, > > > > > My DAN recommended starting my two ASD kids on 5000 iu of Vitamin > > > D3. I bought some > > > > > from the health food store, and it's mostly organic, but it has > > > some preservatives in it. My > > > > > daughter took it and she did great in ABA, but other then that I > > > haven't seen much of a > > > > > reaction. However my son took it and by the end of the day his > > > sensory system went crazy. > > > > > He was sensory seeking by running into things and screamed in > > > pain during bath time when I > > > > > tried to wash him. He was also clenching and screaming, which he > > > used to do because of > > > > > artificial colorings and flavorings. I haven't seen him do this > > > in a long time. > > > > > This morning, however, his speech was awesome. He was using and > > > signing a lot of new > > > > > words. He was using words to get my attention, and other cool > > > stuff. Does anyone have any > > > > > experience with Vitamin D3? Could this have been a " healing > > > regression " or was it the > > > > > preservatives? > > > > > I ordered a more pure form of Vitamin D, and took him off the > > > current one. > > > > > Thanks for all your help. I have learned so much from this > > > group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Carlson's has 700-1200iu vitamin A and only 400iu vitamin D, which is out of balance. The ratio should be at least 5:1 (D:A). That is, there should be at least 5 times as much D as A, or it can cause problems. Carlson's is not unique in this imbalance. Nordic Naturals is also well respected and is similarly out of balance. The omega 3's are okay. DHA is higher than EPA by a bit, which is what we want to see. EPA is great for the general community, but DHA crosses the blood brain barrier and benefits kids with autism the most. If you want to follow the suggestions of Dr. McCandless's (Children with Starving Brains), here are the basics used to swap out cod liver oil: - 5000iu D3 (or higher) all at once. All brands are find, but she prefers the tiny ones from www.vrp.com - If you're new to them, give them JM's pin # and get a 10% discount, 211032. - 1 drop of Klaire's for the 1000iu of A - For DHA she uses Nordic Naturals ProDHA (not the low-dose children's formula) > > > > > > Hi, > > > > > > My DAN recommended starting my two ASD kids on 5000 iu of > Vitamin > > > > D3. I bought some > > > > > > from the health food store, and it's mostly organic, but it > has > > > > some preservatives in it. My > > > > > > daughter took it and she did great in ABA, but other then > that I > > > > haven't seen much of a > > > > > > reaction. However my son took it and by the end of the day > his > > > > sensory system went crazy. > > > > > > He was sensory seeking by running into things and screamed > in > > > > pain during bath time when I > > > > > > tried to wash him. He was also clenching and screaming, > which he > > > > used to do because of > > > > > > artificial colorings and flavorings. I haven't seen him do > this > > > > in a long time. > > > > > > This morning, however, his speech was awesome. He was using > and > > > > signing a lot of new > > > > > > words. He was using words to get my attention, and other > cool > > > > stuff. Does anyone have any > > > > > > experience with Vitamin D3? Could this have been a " healing > > > > regression " or was it the > > > > > > preservatives? > > > > > > I ordered a more pure form of Vitamin D, and took him off > the > > > > current one. > > > > > > Thanks for all your help. I have learned so much from this > > > > group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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