Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Somewhat OT,but ever since I've been doing the diet,probiotics,and enzymes,my malabsorption and food reactions are gone,but I am back where I was as a child,with the hard,difficult to pass two foot long BMs,and the severe GI pain that wakes me up,or won't let me sleep.It's like I am five years old all over again.Does anybody have any answers for this pain ?  ________________________________ From: nick aylward <nick_aylward@...> Sent: Thu, February 4, 2010 8:06:43 PM Subject: Re: melatonin - my kid is sleeping )) - SmartBrain  Hi, Thank you I'll check out SMARTBrain technologies. . you're the best From: D.W <dwink2u (DOT) com> Subject: melatonin - my kid is sleeping )) - SmartBrain Date: Thursday, February 4, 2010, 7:01 AM  You can purchase SmartBrain and use at home - we have bought it and will be trying it out. Supposed to work on ADD/ADHD issues - that was our reason for purchase - would be great to find it works for sleep too! Deb (BIG p.s. Because of our success with the Proteus, I found a local psychologist who specializes in neurofeedback. My son was tested and found to have an " abnormal " brain (qEEG study) compared to a nationally normed large sample. He's high beta and hypercoherent, basically opposite of ADD, more like OCD or Asperger-ish. Using NASA-patented technology, he plays video games and the doctor programs the game to futz out (slow down, fail) when he's using the wrong brainwaves to think. And, it's fixing him! His moods are good, no meltdowns, and things are getting better each time. Highly recommended if you can find a certified practitioner of the SMARTBrain technologies! !). (p.s. he said that the neurofeedback also fixes sleep issues ...). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 > Somewhat OT,but ever since I've been doing the diet,probiotics,and enzymes,my malabsorption and food reactions are gone,but I am back where I was as a child,with the hard,difficult to pass two foot long BMs, This was major constipation at my house, which was caused by four things: rice, yeast overgrowth, magnesium deficiency, and mitochondrial dysfunction. What supps do you use? What foods do you usually eat? Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 Food is generally a matter of avoiding casein,corn,and a product by product avoidance of other carbs. HLC Mindlinx,an multienzyme product and too many others to list. How does mitochondria play a part here?  ________________________________ From: danasview <danasview@...> Sent: Sat, February 6, 2010 10:08:23 AM Subject: Re: Gi pain and sleep WAS:melatonin - my kid is sleeping ))  > Somewhat OT,but ever since I've been doing the diet,probiotics, and enzymes,my malabsorption and food reactions are gone,but I am back where I was as a child,with the hard,difficult to pass two foot long BMs, This was major constipation at my house, which was caused by four things: rice, yeast overgrowth, magnesium deficiency, and mitochondrial dysfunction. What supps do you use? What foods do you usually eat? Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 > How does mitochondria play a part here? Lots of supps caused constipation here, primarily because they required magnesium for proper absorption, so I had to significantly increase the magnesium when starting those. Mitochondrial dysfunction caused my son to be unable to properly absorb fats. His symptoms were severe aggression, ear wax, and terrible constipation. Once I started mito cocktail and increased magnesium, all of those problems disappeared and he had significant gains. I wrote about it here http://www.danasview.net/mar05.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 I wish people would get it into their heads that " mitochondrial dysfunction " ,and inability to absorb fats can be secondary problems.The main issues are often caused by a folate metabolism disorders and high homocysteines.  http://www.ncbi.nlm.nih.gov/pubmed/7371475 http://www.springerlink.com/content/d30480h6v37634 From: danasview <danasview@...> Sent: Wed, February 10, 2010 8:15:25 AM Subject: Re: Gi pain and sleep WAS:melatonin - my kid is sleeping ))  > How does mitochondria play a part here? Lots of supps caused constipation here, primarily because they required magnesium for proper absorption, so I had to significantly increase the magnesium when starting those. Mitochondrial dysfunction caused my son to be unable to properly absorb fats. His symptoms were severe aggression, ear wax, and terrible constipation. Once I started mito cocktail and increased magnesium, all of those problems disappeared and he had significant gains. I wrote about it here http://www.danasvie w.net/mar05. htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 > I wish people would get it into their heads that " mitochondrial dysfunction " ,and inability to absorb fats can be secondary problems.The main issues are often caused by a folate metabolism disorders and high homocysteines. My son had mitochondrial dysfunction, severe folic acid deficiency, several other severe deficiencies, several severe toxicities, hypothyroid, adrenal issues, carotene conversion issues, viruses in his brain, and lots of other issues. They were ALL secondary problems to heavy metal poisoning. I had to first remove the metals, then address each of those problems. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Removing metals is one of the factors that does away with the autism,not the folate metabolism disorders.Detox the metals,and you STILL have problems with folate and high homocysteine.The inability to detoxify metals comes from COMT mutations,the folate metabolism problems come from MTHFR mutations.Different problems that often exist side by side,and are probably part of a polymorphic metabolic syndrome.  ________________________________ From: danasview <danasview@...> Sent: Thu, February 11, 2010 7:21:35 AM Subject: Re: Gi pain and sleep WAS:melatonin - my kid is sleeping ))  > I wish people would get it into their heads that " mitochondrial dysfunction " ,and inability to absorb fats can be secondary problems.The main issues are often caused by a folate metabolism disorders and high homocysteines. My son had mitochondrial dysfunction, severe folic acid deficiency, several other severe deficiencies, several severe toxicities, hypothyroid, adrenal issues, carotene conversion issues, viruses in his brain, and lots of other issues. They were ALL secondary problems to heavy metal poisoning. I had to first remove the metals, then address each of those problems. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2010 Report Share Posted February 12, 2010 Again, this is so interesting! I think when we started down our path of biomed, we were just trying to get symptom relief. Our son had a horrible anesthesia reaction, and went from neurotypical to absolutely out of his mind overnight. Another reason I need to get a MTHFR. We worked on yeast, we worked on bacteria. It came back. We're doing it again. I don't want to keep on this cycle forever. So as I did deeper, I do start to think that folate metabolism might be getting closer to the problem behind the problem. As far as metals, we are fortunate. We have slightly elevated lead and slight antimony, but nothing alarming. What I'm hoping is that we can work on the folate metabolism, and the body will detox the metals on its own, rather than chelate to get rid of the metals and hope the folate starts working properly. Maybe a pipe dream, but I can hope! Sara > > I wish people would get it into their heads that " mitochondrial dysfunction " ,and inability to absorb fats can be secondary problems.The main issues are often caused by a folate metabolism disorders and high homocysteines. > > My son had mitochondrial dysfunction, severe folic acid deficiency, several other severe deficiencies, several severe toxicities, hypothyroid, adrenal issues, carotene conversion issues, viruses in his brain, and lots of other issues. > > They were ALL secondary problems to heavy metal poisoning. I had to first remove the metals, then address each of those problems. > > Dana > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2010 Report Share Posted February 12, 2010 > Removing metals is one of the factors that does away with the autism,not the folate metabolism disorders.Detox the metals,and you STILL have problems with folate and high homocysteine.The inability to detoxify metals comes from COMT mutations,the folate metabolism problems come from MTHFR mutations.Different problems that often exist side by side,and are probably part of a polymorphic metabolic syndrome. Yes, as I wrote previously, first I had to remove the metals, then I had to fix all the things that the metals had caused. Removing the metals was only the first step. It has been a long process, but my severely autistic son is about 98% biomedically recovered now. He still needs a supplement, so I can't call him 100% recovered yet. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2010 Report Share Posted February 12, 2010 Do you have to keep your son on the mito cocktail long term, or did he end up healing enough not to require it anymore? > > How does mitochondria play a part here? > > > Lots of supps caused constipation here, primarily because they required magnesium for proper absorption, so I had to significantly increase the magnesium when starting those. > > Mitochondrial dysfunction caused my son to be unable to properly absorb fats. His symptoms were severe aggression, ear wax, and terrible constipation. Once I started mito cocktail and increased magnesium, all of those problems disappeared and he had significant gains. > > I wrote about it here > > http://www.danasview.net/mar05.htm > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 > Do you have to keep your son on the mito cocktail long term, or did he end up healing enough not to require it anymore? He needed mito cocktail for probably 18 months. He no longer needs it. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I have metabolic mutations,but not primary mitochondrial ones.I use some of the mito cocktail.I have found that I still get mito crashes,although not as frequently.I use 5-10 grams of creatine when these come on.  ________________________________ From: danasview <danasview@...> Sent: Sat, February 13, 2010 9:45:07 AM Subject: Re: Gi pain and sleep WAS:melatonin - my kid is sleeping ))  > Do you have to keep your son on the mito cocktail long term, or did he end up healing enough not to require it anymore? He needed mito cocktail for probably 18 months. He no longer needs it. Dana Quote Link to comment Share on other sites More sharing options...
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