Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Hi Kenda, My name is Ruth and I was diagnosed with M.S. in 1985, and in March of this year I was diagnosed with AIH and recently also found out I have Autoimmune Cholangitis. My heart goes out to you with your trying to work in management and cope with not only M.S. but AIH. I encourage you to be gentle with yourself. I have found since getting AIH, the fatigue is more severe than I experienced with M.S. alone. Are you taking the compaxone for the M.S.? Some of the meds given for M.S. aren't the best for our liver. I am glad you wrote Kendra and I hope you will find encouragement here, the people here are so supportive, I don't know what I would do without this group. God Bless, Ruth tazzy19632001 wrote: Hi, I have been receiving the "daily" batches of e-mails to see if I could get a better understanding of who everyone is... Sounds like there are people on-line from a lot of different places, but with a lot of the same concerns. Medical info - I am 39 1/2 yrs old, single parent with one 12 yr old daughter. My blood tests that were sent off to California came back and indicated that I have AIH, Shogrens and RA. I was diagnosed in June of 94 with M.S. MS has been relatively unremarkable until Aug of last year. (2nd round of Optic Neuritis in left eye)For the past two 1/2 years I was seeing a Gastro for what he felt was acid reflux due a hiatal hernia and "nervous intestines" cant think of the term right now...oh it came to me irritable bowel syndrome. After about two weeks of feeling terrible, urine changing to a golden brown and feeling like my gallbladder was going to explode, I went on to work called my Prim Care Physician and went over to their office. They referred me to a surgeon who admitted me later that day with possible appendicitis. 10 days later I was relased after only establishing I did not have appendicites/gallstones and blood work that came back supporting the diagnoses of AIH, Shogrens and Rhem Arthritis. My gastr waited two month before putting me on any steroids. He wanted to see how long it would take the liver to resolve itself. Biopsy revealed some inflammation and damage similar to that associated with AIH. After two months blood work started escalating and then we started with 30 mg of pred a day for about 6 weeks then added immuran. After immuran was added my blood work starting returning down the right direction. My last blood test indicated that AST/ALT or SGOT/SGTT were both in the 30 and 40 ranges and bili was still at 1.8. (SGOT/SGTT or AST/ALT were both over 1000 and bili was over 10 when I went into hospital)I had terrible middle stomach pain left to right for the first several months after being in the hospital and my gastro too, said he didn't know what it was. Prim Care Phy indicated that as the swelling went up and down the organs and what they pushed around them were feeling a terrible bruised feeling, like I had been kicked in the gut and this would continue until everything was closer to normal. This pain is no longer consistent but comes for days, mostly on the right side now and returns to very mild discomfort.With the MS I could always work around the random fatigue. I no longer can. When I go down, I am gone, useless. I am still working full time and have not shared anything but that I do have a chronic disease with my sr mgr. but I am greatly failing in keeping up with my responsibilites as part of a management team and project mgmt roles. I no longer can remember things from minute to the next and feel quite concerned that I will be "weaned" through attrition eventually.Both my gatro and neurologist don't seem to understand my concerns and say that as I feel better I will be able to do more. Meanwhile, I am constantly apologizing for missing deadlines and forgetting to do things. I recently went to HR since I really feel like I am caught in a whirlpool and not being fair to people that I am supposed to be leading or the company as a whole. We are going to meet again and see if we can work out some arrangements and techniques to help with getting things done or reducing workload for a while (I am carrying around a palm pilot and a big notebook in which I right everything down so I can review ... this has helped a lot)I am currently taking 10 mg of predisone, 50 mg of immuran, daily copaxone shot, started aricept 2 weeks ago to see if it will help with memory and 1/2 tablet of provigil to get me through the day. Meanwhile, I wake up all night and can't sleep from the side pain off and on. I have a wonderful fiance, Greg who has been extremely supportive and keeps me quite balanced.I know this is quite long, but I wanted to go ahead and answer the questions that I have seen asked and bring the group up to date on what is currently going on with me.The information I have read on this site is great and I have learned a lot! Sounds like everyone is very supportive of each other and tries to get the answers we are looking for. This is great. I will say now that I will do my best to respond to e-mail, but I usually can only get on-line for personal stuff about 2Xs a week. So I may be a little slow in responding. Just know that I will do my best to respond to questions or comments and keep up with everything that is going on with the group.Thanks for being a part of this group and being so open and honest with each other!Kenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Welcome Kenda. This site has been ever so helpful! There is so much information available through people who have done much research on this disease. This disease at best, is tiring! Yikes....I keep being told I will get more energy as time goes on. It is true, for now, I am beginning to feel that I have more energy to spend. I still get very tired, and tonight, I just want to go to bed and stay for a week or so. But there are only 3 days left, and I think I might be able to make it to Friday. Good reading here on the site! debby [ ] Hello - New to Group Hi, I have been receiving the "daily" batches of e-mails to see if I could get a better understanding of who everyone is... Sounds like there are people on-line from a lot of different places, but with a lot of the same concerns. Medical info - I am 39 1/2 yrs old, single parent with one 12 yr old daughter. My blood tests that were sent off to California came back and indicated that I have AIH, Shogrens and RA. I was diagnosed in June of 94 with M.S. MS has been relatively unremarkable until Aug of last year. (2nd round of Optic Neuritis in left eye)For the past two 1/2 years I was seeing a Gastro for what he felt was acid reflux due a hiatal hernia and "nervous intestines" cant think of the term right now...oh it came to me irritable bowel syndrome. After about two weeks of feeling terrible, urine changing to a golden brown and feeling like my gallbladder was going to explode, I went on to work called my Prim Care Physician and went over to their office. They referred me to a surgeon who admitted me later that day with possible appendicitis. 10 days later I was relased after only establishing I did not have appendicites/gallstones and blood work that came back supporting the diagnoses of AIH, Shogrens and Rhem Arthritis. My gastr waited two month before putting me on any steroids. He wanted to see how long it would take the liver to resolve itself. Biopsy revealed some inflammation and damage similar to that associated with AIH. After two months blood work started escalating and then we started with 30 mg of pred a day for about 6 weeks then added immuran. After immuran was added my blood work starting returning down the right direction. My last blood test indicated that AST/ALT or SGOT/SGTT were both in the 30 and 40 ranges and bili was still at 1.8. (SGOT/SGTT or AST/ALT were both over 1000 and bili was over 10 when I went into hospital)I had terrible middle stomach pain left to right for the first several months after being in the hospital and my gastro too, said he didn't know what it was. Prim Care Phy indicated that as the swelling went up and down the organs and what they pushed around them were feeling a terrible bruised feeling, like I had been kicked in the gut and this would continue until everything was closer to normal. This pain is no longer consistent but comes for days, mostly on the right side now and returns to very mild discomfort.With the MS I could always work around the random fatigue. I no longer can. When I go down, I am gone, useless. I am still working full time and have not shared anything but that I do have a chronic disease with my sr mgr. but I am greatly failing in keeping up with my responsibilites as part of a management team and project mgmt roles. I no longer can remember things from minute to the next and feel quite concerned that I will be "weaned" through attrition eventually.Both my gatro and neurologist don't seem to understand my concerns and say that as I feel better I will be able to do more. Meanwhile, I am constantly apologizing for missing deadlines and forgetting to do things. I recently went to HR since I really feel like I am caught in a whirlpool and not being fair to people that I am supposed to be leading or the company as a whole. We are going to meet again and see if we can work out some arrangements and techniques to help with getting things done or reducing workload for a while (I am carrying around a palm pilot and a big notebook in which I right everything down so I can review ... this has helped a lot)I am currently taking 10 mg of predisone, 50 mg of immuran, daily copaxone shot, started aricept 2 weeks ago to see if it will help with memory and 1/2 tablet of provigil to get me through the day. Meanwhile, I wake up all night and can't sleep from the side pain off and on. I have a wonderful fiance, Greg who has been extremely supportive and keeps me quite balanced.I know this is quite long, but I wanted to go ahead and answer the questions that I have seen asked and bring the group up to date on what is currently going on with me.The information I have read on this site is great and I have learned a lot! Sounds like everyone is very supportive of each other and tries to get the answers we are looking for. This is great. I will say now that I will do my best to respond to e-mail, but I usually can only get on-line for personal stuff about 2Xs a week. So I may be a little slow in responding. Just know that I will do my best to respond to questions or comments and keep up with everything that is going on with the group.Thanks for being a part of this group and being so open and honest with each other!Kenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Kenda - Welcome!! You are definitely in the right place. There are a lot of knowledgeable, caring people here. You will find a lot of answers to most anything that comes up. So happy for you that you have good support. Love and prayers - gina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2002 Report Share Posted October 9, 2002 Welcome to the group Kendra ! Sounds like you have a lot on your plate. Well, don't be a piggy and share it with us. God bless jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 Welcome ! I think this makes 3 s on the list now! You will really like this group, great support and a great resource when you have questions. R. Mom to (8, DS) and Grace (5) Hello - New to Group Hello- I just joined this group, so I thought I would say hello. My name is , and my husband's name is Jered. I have 3 boys, Ben-13, Brendt-11 and Blake-2yrs. 4 mo. w/DS. Blake had heart surgery when he was 3 months old. He walks and signs, he says a few words. He is absolutely the " star of the show " around our house. With much older siblings, he gets plenty of attention from all 4 of us! We recently found out Blake has dysphagia (which means he breaths in liquids when he drinks, unless we put thickening agents in the liquid) and he has reflux. Which means he spits up and breaths that in too. We were quite suprised to learn that he had these problems because he drank quite normally. Our doctor told us that many kids with DS aspirate silently. Which means they breath the liquids in with out choking or coughing. Blake has never been a puker either, we had no idea he was refluxing until they did the test. The doctors tested for these things because Blake had frequent respitory problems. I was wondering if any parents on this list had children that aspirate/reflux. Schulte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 Hello - welcome to the group. Its a bit late now to get many responses, but check back tomorrow and im sure there will be lots of advice and info! 50 mcg of levothyroxine is quite a low dose and will most likely need increasing - my endo started me on 25 mcg and Im now up to 125 mcg and its taken almost a year to get to this dose (my endo does seem to be cautious!!) and I am now feeling as though Im getting there! Dont get down - you are at least diagnosed which many of our members struggle to get - so you are on the right road! All the symptoms you mention are compatible with hypothyroidism - the thyroid runs your metabolism and affects lots of things, that you just wouldnt imagine are related!! I would suggest that you post your last results (and previous ones if you have them) with the reference ranges as different labs use different levels - then the experienced members of the group can help you. I have found progesterone cream very helpful, particularly in stopping the dizziness I was experiencing. Did you take the thyroxine on the day of your blood tests? There are many who would say you shouldnt take for at least 24 hours before a blood test as this gives a better indication of the thyroid hormones in the tissues, not just the blood - Sheila or someone can tell you more about this. Like you I was diagnosed as depressed - which I wasnt! You will find that your story is well known to many on this group and will find lots of help. TPA members have loads of experience so dont worry - just check back tomorrow! Gill x Hello all,I was diagnosed last summer with low thyroid function, and was started off on 50mg of levothyroxine, and was told by the GP I would start to feel wonderful within weeks. Well I'm still waiting! and they won't up my dose as they say my levels are fine now.I have been underactive for about five years, and finally after repeated trips to the gp and consistantly being offered prozac which I didn't take I changed Dr who tested my thyroid and I thought the answer to my long list of ailments had been found. I gather that the Dr's hands are legally tied when it comes to prescribing levels, so what can I do for myself. I am at my witts end with this. I am 43 with the mind of a 21 year old and the body of a 89 year old, infact my 89 year old aunt has more energy than me. Even though I am tired I find it hard to sleep, and I have zero motivation for doing the general day to day stuff of life. I have all manner of aches and pains, at times I can barely crawl up the stairs. My gp has done a barrage of tests including ones for anemia, me, leukemia and many others and basically there's nothing else wrong with me. I do get a couple of days a month when I have increased energy and then I play catch up with all the stuff I couldnt manage before, I just wish I felt like that for the rest of the month.I am quite interested in the progesterone cream, a friend was talking about it yesterday.Anyway that's enough from me for now, Internal Virus Database is out-of-date.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.6/1192 - Release Date: 21/12/07 13:17 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 Thank you for your reply, I was thinking of asking my GP for the details of my levels as he did not tell me what they were, he just said they were within the normal range. I'd better go to bed now, night, . > > Hello - welcome to the group. Its a bit late now to get many responses, but check back tomorrow and im sure there will be lots of advice and info! > > 50 mcg of levothyroxine is quite a low dose and will most likely need increasing - my endo started me on 25 mcg and Im now up to 125 mcg and its taken almost a year to get to this dose (my endo does seem to be cautious!!) and I am now feeling as though Im getting there! > > Dont get down - you are at least diagnosed which many of our members struggle to get - so you are on the right road! All the symptoms you mention are compatible with hypothyroidism - the thyroid runs your metabolism and affects lots of things, that you just wouldnt imagine are related!! > I would suggest that you post your last results (and previous ones if you have them) with the reference ranges as different labs use different levels - then the experienced members of the group can help you. > I have found progesterone cream very helpful, particularly in stopping the dizziness I was experiencing. > Did you take the thyroxine on the day of your blood tests? There are many who would say you shouldnt take for at least 24 hours before a blood test as this gives a better indication of the thyroid hormones in the tissues, not just the blood - Sheila or someone can tell you more about this. > > Like you I was diagnosed as depressed - which I wasnt! You will find that your story is well known to many on this group and will find lots of help. > > TPA members have loads of experience so dont worry - just check back tomorrow! > Gill x > > > > Hello all, > I was diagnosed last summer with low thyroid function, and was > started off on 50mg of levothyroxine, and was told by the GP I would > start to feel wonderful within weeks. Well I'm still waiting! and > they won't up my dose as they say my levels are fine now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Hello Welcome to TPA-UK and I hope you get all the help and support you need here. First and foremost, to familiarise yourself with this DD, I would read, read and then read again everything that is on our website www.tpa-uk.org.uk and then everything that is in our FILES and LINKS on this forum. There is a wealth of information around. Once you start to understanding the workings of the thyroid, and the associated problems that go alongside it, you will be better armed to help yourself to wellness - because it is a fact that the majority of the GP's and the majority of the NHS endocrinologists are not fully trained and really, know little about the subject. However, having said that, there are some pretty good practitioners out there who will bend over backwards to help their patients all they can - but it is finding them that is the difficulty. Hello all,I was diagnosed last summer with low thyroid function, and was started off on 50mg of levothyroxine, and was told by the GP I would start to feel wonderful within weeks. Well I'm still waiting! and they won't up my dose as they say my levels are fine now. 50 mcgs L-thyroxine is a very low dose. The average dose for sufferers of hypothyroidism is around 100 to 150 mcgs - and even at those doses, many patients do not regain their normal health. I have been underactive for about five years, and finally after repeated trips to the gp and consistantly being offered prozac which I didn't take I changed Dr who tested my thyroid and I thought the answer to my long list of ailments had been found. Thank goodness you didn't take the Prozac - this is such an easy answer for doctors to tell their patients "you are depressed". Prozac carries a multitude of problems for those patients who are not depressed. The majority of people KNOW whether they are depressed or not.I gather that the Dr's hands are legally tied when it comes to prescribing levels, so what can I do for myself. Doctors are NOT legally tied to prescribing levels. Doctors are not properly taught at medical school how to properly diagnose and treat hypothyroidism. Have you, for instance, been given a thorough clionical examination, had your thyroid palpitated, had your BP, pulse and temperature taken, had your tendon reflexes tested (especially your Achilles tendon)? Has your doctor examined your skin, hair, tongue? Has your doctor done a FULL thyroid function test which involves your TSH, Free T4, Free T3, tested to see if you have antibodies to your thyroid etc? If you look on the patient leaflet that is in your L-thyroxine pills, it probably tells you that you should tell your doctor if you have low adrenal reserve BEFORE taking L-thyroxine and that you should not take L-thyroxine until this is treated. Did your doctor test you to see if you had low adrenal reserve? Did your doctor question you about other members in your family having thyroid disease or other autoimmune problems? I bet the answer is NO to the majority of the questions. I am at my witts end with this. I am 43 with the mind of a 21 year old and the body of a 89 year old, infact my 89 year old aunt has more energy than me. Even though I am tired I find it hard to sleep, and I have zero motivation for doing the general day to day stuff of life. I have all manner of aches and pains, at times I can barely crawl up the stairs. My gp has done a barrage of tests including ones for anemia, me, leukemia and many others and basically there's nothing else wrong with me. I do get a couple of days a month when I have increased energy and then I play catch up with all the stuff I couldnt manage before, I just wish I felt like that for the rest of the month. You ask what you can do to help yourself. First, make sure your GP DOES request the tests mentioned above and also ask him to test your Ferritin (stored iron) level too. If this is too low, you will get all the same symptoms as hypothyroidism and it will also stop your L-thyroxine from being absorbed. If he doesn't do the tests, you can get them done through NPTech Services (look in our FILES and scroll down until you find one called NPTech Services and you can see the tests they do and the prices they charge). Once you get the results, do post them onto the Forum together with the reference range for each test and we will be able to help you interpret them. Many doctors do not know how to read one test against another test unfortunately, so if you are anywhere, high or low, within the reference range, they tell you that you are 'normal' and need no changes in your medication - as your's has done. BTW - do you have your last blood results? If not, get them from your GP, post them here and make sure you have the reference ranges for each one. There are a number of reasons why you may not be coping well on L-thyroxine alone. Thyroxine (T4) is an inactive hormone and it MUST convert through the liver to the active hormone triiodothyronine (T3 for short). T3 needs to get into every cell in your body to make it function and if you are not converting, your body isn't getting the thyroid hormone it needs - hence, you feel pretty awful and you can be very ill. Again, the majority of doctors are told there is no such thing as a "conversion problem" - there IS. I am one such person and I now take Armour Thyroid which is a natural thyroid product - been used for over 100 years, and contains ALL the thyroid hormones a health body requires. Another problem (again doctors deny) is that you could have low adrenal reserve. Your adrenals have a lot of work to do and with hypothyroidism taking over your body, they have even more work to do to get all the hormones working as they should. They often can't cope and give up, and again, this stops your L-thyroxine from being absorbed. Go to our FILES (again) and look at everything 'adrenal' and do the Adrenal Questionnaire and see how you score. If high, then you need to do the 24 hour salivary adrenal profile to see where your cortisol and DHEA are at 4 specific times during the day. Again, you can find the details of this in the NPTech File, but this is quite an expensive test - but worth every penny. Treatment is mostly easy and you will hear other members of this forum talking about it. The last point I should tell you about is that many people who are not doing well oln their L-thyroxine dose is because they have Candida Albicans. To tell if this might be a problem that you have, you can do a home test. Tonight, take a clear glass of water up to bed with you, and first thing in the morning (before cleaning your teeth or having a drink) spit into the top of the glass and then go and get on with your bits and pieces. Come back after a while and have a look at the water. If this is cloudy, or more likely if there are thin thready strands going towards the bottom of the glass, this is a good indication that you have Candida. Again, we have a Candida Quesitonnaire in our Files. So complete that too. We can help you regain your health , but yhou are probably right now, overwhelmed by the enormous amount of information there is here - but please don't panic. Take one step at a time, read lots, ask questions and we will talk you through everything you need to do. Many people use natural progesterone cream because hypothyroid women have a tendancy to be oestrogen dominant, and you really DO need to balance these sex hormones. Follow the discussions about this, again, ask questions, and good luck. There IS light at the end of the tunnel for you. luv - SheilaI am quite interested in the progesterone cream, a friend was talking about it yesterday.Anyway that's enough from me for now, No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.12/1373 - Release Date: 11/04/2008 09:17 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Hi amanda, Welcome to the list, sadly your story is all too common- me included. The tendency is to treat to the test and not to the symptoms- then blame the symptoms on something else! 50mcg is not a full replacement dose. What were your last test results? If your TSH is not near the bottom of the range then you could ask your doc for a dose increase 'to see if it helps' keeping you undermedicated can have more serious consequences than those of overmedication which no one would tolerate willingly. I've never heard that one about doc's hands being tied! There's one or two who I'd love to do that to! Subject: Hello - New to Group Hello all, I was diagnosed last summer with low thyroid function, and was started off on 50mg of levothyroxine, and was told by the GP I would start to feel wonderful within weeks. Well I'm still waiting! and they won't up my dose as they say my levels are fine now. I gather that the Dr's hands are legally tied when it comes to prescribing levels, so what can I do for myself. I am quite interested in the progesterone cream, a friend was talking about it yesterday. Anyway that's enough from me for now, ------------------------------------ Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Hi Sara,  Regarding your 2nd question...Tyler's episodes did get worse as time went on. They started with highs of 105 right away, but some of the other symptoms progressed. He started not wanting to eat at all and vomitted often (especially because of the Motrin). We put him in Naproxen about 15 months into the fevering. It helped his episodes dramatically taking 105-106 highs down to 102. I supplemented inbetween with tylenol and things were much better for awhile. Then when he turned 2 he began having alot of throat involvement and fas climbing fevers again. He had a few vomitting episodes again, and I had to start using baths once in awhile at night to cool him when the meds weren't working. I only ever saw one mouth sore, so I suppose it could have been a normal cankor type sore??? But between 2 and 2yr 8mo his glands became increasingly larger and painful. His fever cycle started changing up from every 2 weeks to sometimes a 1 weeker followed by a 3 weeker or visa versa. If he had a milder episode the next one was always very severe. We opted to have a T & A. He had been fevering since 3 months old and it was terrible to see the episodes getting worse again. He had his surgery 8/5/08 and so far has been fever free which for us means 4 less fevers so far. I find that I am almost 'holding my breath' about the success of the surgery. I am afraid to completely think it has worked and am steeling myself incase it is just temporary.  Hope this helps you a little. I remember when I 1st found this sight and all the wonderful people and information that it has. I finally felt like I wasn't crazy and it was sad, but at the same time comforting to see that I was not alone in dealing with this.  Best to , Alice, and you - I can only imagine what it would have been like with twins!  Pruden Tyler Pruden 2yr 9mo fevered since 3mo - T & A 8/5/08 skipped 4 fevers so far Dylan Pruden 6mo Vancouver WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 It does help - thank you! I had a feeling that I may have to expect her to get worse before she gets better. We were lucky to diagnose her quickly thanks to the modern miracle of email - I was able to chart her fevers since the very first by searching for emails in which I had to cancel playdates. I am completely torn up by having to give her so much medication (Tylenol/Motrin) each month .  I know that she struggles with abdominal pain as a result of the Motrin. I am looking forward to learning more from this page to help determine a course of action for her treatment. Right now, my plan is to manage the monthly fevers as best I can and consider a T & A at three years old if she is not improving - probably earlier if she gets worse. It is all so scary and maddening - as you know all too well I'm sure.  Thanks again for your reply and we will " keep our fingers crossed " for Tyler !  Goodnight, Sara Pettingill  21 mos. (fevering since 15 mos.) Alice 21 mos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2010 Report Share Posted April 12, 2010 > Had a break tried no fenol - WONDERFUL results. He was HAPPY!!!, played by himself with toys!!! started eating, stopped choking, lots of sensory issues improved, his skin was amazing. Phenol info http://www.danasview.net/phenol.htm My son's phenol issues were resolved with ALA chelation. Molybdenum can also help. > THEN he got chicken pox - and went back to square one . This is a variety of herpes virus. I eliminated herpes virus here with lysine. Herpes die off caused a LOT of yeast overgrowth here, so watch for that. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 Thank you for your response Dana. Hope you don't mind I have a couple more questions: 1)How did you know your sons virus and yeast were in his brain? I'm asking as although my son does has gut permability (shown by test) stool analysis suggests that gut issues are under control. For a while I've been questioning permable gut brain barrier. 2) How long (minimum) would you need to usr lysine. We are using culturelle, sac boullardi and no fenol - should this be enough for yeast 3) Any suggestions for parasites - is there an oil to rub on feet (I don't think I'll get anything else down him orally) Would this help for yeast as well or is it different? Many thanks. We are really struggling at the moment. He is so miserable and just cries any time he doens;t have 100% attention. Another thing I forgot to mention - each time he gets a virus, afterwards he gets a small non blanching rash on his neck - small blood prick like rash. !st time Dr sent him straight to hospital but they did tests and were not concerned. Anyone else know what this is. Alison R (UK) On 12 April 2010 14:53, danasview <danasview@...> wrote: > > > > > Had a break tried no fenol - WONDERFUL results. He was HAPPY!!!, played > by himself with toys!!! started eating, stopped choking, lots of sensory > issues improved, his skin was amazing. > > Phenol info > > http://www.danasview.net/phenol.htm > > My son's phenol issues were resolved with ALA chelation. Molybdenum can > also help. > > > > THEN he got chicken pox - and went back to square one . > > This is a variety of herpes virus. I eliminated herpes virus here with > lysine. Herpes die off caused a LOT of yeast overgrowth here, so watch for > that. > > Dana > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2010 Report Share Posted April 14, 2010 > 1)How did you know your sons virus and yeast were in his brain? By observation of symptoms and personal experience with my own issues. >>I'm asking > as although my son does has gut permability (shown by test) stool analysis > suggests that gut issues are under control. For a while I've been > questioning permable gut brain barrier. Many times we had yeast overgrowth issues here, and there were no physical/gut signs. But taking biotin and GSE resolved the issues. > 2) How long (minimum) would you need to usr lysine. Depends on how high a dose you use, and how deficient you are. My #2 required high doses for 8 months. I used lower doses for me and it took just over a year. >>We are using > culturelle, sac boullardi and no fenol - should this be enough for yeast Not at my house. I used biotin and GSE. > 3) Any suggestions for parasites - is there an oil to rub on feet (I don't > think I'll get anything else down him orally) Would this help for yeast as > well or is it different? I have heard good things about black walnut for parasites. I never had to do a parasite cleanse tho. Dana Quote Link to comment Share on other sites More sharing options...
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