Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 Hi, I'm usually posting about my son. Today it's my daughter. She isn't on the spectrum, but has PANDAS. She is 10, and was otherwise healthy. We have had her on the usual Taurine, GABA, TMG etc for inhibitory neurotransmittors as well as Biotin. I have started her on Acidophilus today. She is on Kirkmans Max Spectrum Complete w/Isogest with every meal and snacks. We have tried the SCD, and it did not work for her. Although it reduced her tics quickly in conjunction with the enzymes, she lost a lot of weight she didn't need to and is way too thin now.She definately was tired of the foods even though she eats a very varied diet, and she started not tolerating a lot of the foods on the diet. We recently left it, and are back to GFCFSF, etc.I would rather not do SCD again, as it is really a struggle to get her to eat and she can't loose any more weight, it is affecting her energy, etc. Her tics are slowly coming back. They became very violent at their peak and very painful for her. I know she has a very leaky gut. The problem is, she reacts to anything that goes into her stomach. How do you heal a gut if you are battling the leakiness at the same time? I am stumped. Thanks, Susi Quote Link to comment Share on other sites More sharing options...
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