Checking in...

June 24, 2003

Hi Grace, I'm so happy to see how well you're doing. You seem to have boundless energy. That sure is a good sign! I'm sure you're next tests will show no traces of HCV--you are doing great! good luck and continued good health to you!! Blessings, Satya

[ ] Checking in...

Hi ,Here I am - checking in. I've been trying to get to the board every couple of days to see how folks are doing. I've been doing wonderful. There is life after treatment! The weather has been really nice in No. California - so I've been spending as much time as possible out in it! My boyfriend's 12 year old daughter is visiting right now from out of state - so we've been on the go times 10 Today we went to Muir Woods so she could see the Coastal Redwoods up close, then we went to Stinson Beach and north up the coast a ways - the drive was absolutely beautiful. The beauty of the Northern Coastline and the Redwoods is undescribable. It's one of my very favorite places.Tomorrow we will go to San Francisco to see a show and then it's back to work for me on Monday.My last shot on treatment was on April 26. My energy level immediately started to return - within a couple of weeks I was back to 'normal'. Now my hair is coming back in and it's soft and shiny again. I even have a sparkle in my and a glow to my skin. I stopped taking all supplements as well. I haven't even called the doctorsince I finished treatment, but will have my 6 month post tx PCR done in November. I don't feel like the virus has returned and God willing it won't. I don't know if I'd do standard treatment again. Even though I sailed through it compared to most folks - I'm just not sick enough (or willing enough) to do it again at this point.I hope you are doing well. Please know that I will post my next PCR results to the board once I know them.Take good care,Grace> DCP........Please keep out of this! I enjoy listening to intellegent people, not ignorant people such as yourself. There are many of us out here who like to hear both sides of the story. We have some very bright people in this group and is most informative when people who are knowledgeable give us what they have learned in their studies and their own treatment. Arguments and name calling is not necessary DCP. Satya, Andy, Karyn, Grace......etc Please let us know how you are doing?? You too ! Love,

June 24, 2003

God bless you Grace, you deserve it all. You have been such an inspiration

Gwen

August 6, 2004

> to say I'll be at the picnic, and bringing some banded and non

banded friends!

>

> Genn - Whoo Hoo - can't wait to see ya

Elma

November 18, 2004

Wednesday, November 17, 2004, 2:12:37 PM, you wrote:

DA> Any advice for those traveling long distances with

DA> the band?

You've got it right...exercise and being prepared with food for when

there isn't any you can handle. But at this point you should be able

to eat most things, I'd guess.

I've always wanted to go to Israel, and one of these days I'll make

it, though not likely for work.

Oh yeah....be sure to get up and walk a lot on the plane...every

chance you get. I had two flights yesterday, but fairly short, only a

half hour and a two hour. But I had long waits, and spent two hours

walking almost continuously around the concourses in SFO.

dan

Dan Lester, Boise, ID honu@... www.mylapband.tk

Dr. Ortiz, Tijuana, 4/28/03

323/209/199 Age 61 Fair is whatever God decides to do.

January 9, 2005

I don't think I was talking about being dizzy, the

discussion was about head ackes. If I did mention

dizziness then I mis-spoke, perhaps you miss

understood? I just wanted to clarify my thought on

this....

tom hansen

--- Behr <behr@...> wrote:

> Our son, (17) is having very bad dizzy spells

> also. It happens every

> time he stands up. Fatigue makes it much worse. He

> has passed out twice. He

> also wears a hearing aid.

>

> We have been through a battery of tests to try and

> figure out why, and so

> far everything comes up negative. We have determined

> that it is not vertigo.

> The doctors can tell by the type of dizziness you

> have.

>

> Tom Hansen stated the other day that his dizziness

> was attributed to his

> volume being too high in his hearing aid. We will

> check into that.

>

> Does anyone have any suggestions?? is getting

> quite desperate for some

> type of improvement.

>

> Many thanks,

>

> _____

>

> From: marie_thomson@...

> [mailto:marie_thomson@...]

> Sent: Saturday, January 08, 2005 10:34 PM

> cholesteatoma

> Subject: Checking In...

>

> Hello, everyone... Just checking in.

>

> Some of you may remember me, although it's been more

> than a few

> months since I posted. I have been trying to read

> as many of the

> posts as possible but since I was promoted in late

> summer last year,

> I have to time for anything anymore. Those of you

> who've had

> surgeries and/or are having a lot of problems still,

> I hope it gets

> better for you and I hope some of you have gotten

> some relief from

> things you've had to deal with.

>

> I have a question for those of you who deal with

> dizziness,

> imbalance, and/or vertigo.

>

> I went to the ENT a few months back because I got

> dizzy coming out

> of the bank when I got change for work, reached for

> the car and

> dropped immediately (landed on my tail bone. That

> was in August,

> not long before I was promoted). The day after my

> grandmother's

> funeral, I was at work, and I got dizzy when I

> putting something on

> a shelf, I fell over and cracked my head on the

> corner of shelf.

> I've gotten dizzy while walking up or down the

> stairs (I've always

> managed to catch myself except once), and the last

> time I got dizzy

> on the stairs, I went to grab onto the rail, and I

> slipped and fell

> down the stairs and landed on my hip.

>

> There's been probably dozens of these incidents, but

> the latest one

> was yesterday. I was getting ready to get in the

> car to go to work,

> and I looked up at something and I got dizzy and

> dropped and landd

> on my knee, which now is all shades of yellow,

> black, purple, and

> red.

>

> I've noticed that this kind of thing always seems to

> happen right

> after I have moved my head/eyes just the right way.

> My ENT said

> that usually there is a delay with the kind of

> vertigo he said he

> thinks it is, but with mine, it's always something

> that's sudden and

> I hardly have any time to catch myself when I start

> to fall.

>

> I haven't driven since last Feb (04) because the

> last time I drove,

> I was in the middle of making a turn, and the

> dizziness hit and I

> ended up almost missing the road and going into a

> ditch. I haven't

> driven since because every time I've made motions

> similar to those

> you make when you look into the rear view mirror or

> when you look

> behind you to pull out, etc, I get sick to my

> stomach and the

> dizziness comes on. It's really very annoying.

>

> I already have balance issues because of all the

> games my ears and

> sinuses like to play. The infections in my right

> ear and the cyst

> on my left ear drum I'm sure are not helping things

> any.

>

> Anyway, those of you who have vertigo, when the

> dizziness comes on,

> is there any warning or delay to it, or is it sudden

> like mine is?

>

> Now that work has calmed down a little, I'll try to

> be more active,

> but I don't know how much help I can be to any of

> you.

>

> Thank you everyone and happy (belated) new year..

>

> Amy Marie

>

April 27, 2005

Cheryl, what wonderful news that you all are

doing well. AND…how

exciting for your daughter’s graduation…AND Randy, CONGRATULATIONS

for being a first time father! That

is so very special!

I will remember this young man and Mom who are going through the liver

surgery. How exciting that his Mom

can give him the gift of life twice! It is awesome.

So good to hear from you!

Debby

[ ] Checking

in...

Hello Everyone!

Checking in..... we, too, had

snow beginning on Saturday thru Monday. All my beautiful flowers

are now gone but at least the yard is nice and green. Still lots of rain

predicted for the rest of the week.. at least that keeps me

from having to mow the lawn right now-LOL.

The weather has been off and on warm

and we have gotten a couple of days of fishing in. Randy and I continue

to do well and we are anxiously awaiting our daughter's graduation from high school

in May. (FYI-- Randy adopted in April and became a first time proud

Dad at 51). Today we are off to visit another college as she has not made

up her mind as to which college she wants to attend.

This past weekend, the three of us

visited a family whose son is sick with liver disease. Tomorrow the

mother will be her son's living donor. Please keep them in your thoughts

and prayers. We will be going to visit them in the hospital this week-end

during their recovery.

The son was very happy to meet Randy

and had a zillion questions for us. I think it put his mind somewhat at

ease to see you can do well post transplant. Randy and him engaged in

some pretty indepth scientific discussions and he was happy to see that Randy's

transplant did not cause problems in his career. The son is a sprite 23

with a bright future ahead of him.

That's about it for now from up in

the mountains of WV...

Cheryl & Randy

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June 3, 2005

melanie, i am so sorry about your mother.

please hang in there and my thoughts and prayers are with you.

marsha

June 3, 2005

In a message dated 6/3/2005 12:41:30 AM Eastern Standard Time,

watermelanie@... writes:

> i have the responsibility of

> making all of the arrangements and clearing out her apartment. which

> means lots of heavy lifting which makes my neck hurt fiercely. but it has

> to be

> done.

> melanie, don't be a martyr. ask for help!!!!!

> i refuse to lift anything. your local church, any of the charity groups who

> you might donate to, can help you to pack up. i went through this with my

> father recently.

> i actually got to know him even better as i packed his stuff up. it was

> interesting,

> even though i miss him dearly. good luck. marsha

June 3, 2005

Hi ,

I'm sorry for your loss, please know you and your Mom were- and are-

in my prayers.

Maybe you could do an inventory of your Mom's apt. and decide what you

could donate to some charity. Then, contact that charity and recruit

help in removing those items. That may reduce your work load. Also,

someone in their work crew might be able to help you move the rest of

the items. It's an idea.

In my area, most folks have an auction- after removing the items they

want. The auctioneers here are very helpful with these sales- in a

way they have to be. If the grieving family was 'taken advantage of'

that auctioneer would not have any business. Folks show up for two

reasons- first to help the family raise money, second to get some

memento of the friend they just lost. It's a win-win situation and

helps ease the pain of grief. Good luck with whatever you decide.

GBY

In spinal problems , " "

<watermelanie@c...> wrote:

> hi everyone.

>

> i just wanted to let you know that my mother passed awayat 1:40am

tuesday

> morning. my heart is broken, but i'm hanging in there. thanks for

all the

> -melanie

June 3, 2005

, I am so sorry to hear that. I know you were concerned about her health

and surgery. My heart goes out to you and your family and you are in our

thoughts and prayers

<watermelanie@...> wrote:

hi everyone.

i just wanted to let you know that my mother passed awayat 1:40am tuesday

morning. my heart is broken, but i'm hanging in there. thanks for all the

support you gave her when i was inquiring about surgery for her. although

her health was poor in general, this still came as a shock. but she was in a lot

of pain and she is free of it now. please keep us in your prayers as this is a

very hard time for me, emotionally and physically. i have the responsibility of

making all of the arrangements and clearing out her apartment. which

means lots of heavy lifting which makes my neck hurt fiercely. but it has to be

done. i'll check in next week after i get my cortisone shots. with any luck,

they

will help me with my disc pain.

-melanie

June 3, 2005

it's not about being a martyr. i am her only nearby family and i need to sort

through everything. my mother was mentally ill and without going into

details... it would be embarrasing for both me and her to have someone else

there going through her belongings. i loved her very much, but she was a

strange woman. once i finish all of the personal things, my fiance will help me

box everything up and then i have arrangements for salvation army to come

pick up the rest of it. also, it is important to me to hurry up and get

through

this for many reasons, one of which is that i can't afford to pay rent on her

apartment this month. so if no one is around to help me when it needs to be

done, you can bet that i'm gonna do it. but i'm not doing anything stupid like

lifting furniture!

thanks for the advice, but this situation is a little different.

-mel

> In a message dated 6/3/2005 12:41:30 AM Eastern Standard Time,

> watermelanie@c... writes:

>

> > i have the responsibility of

> > making all of the arrangements and clearing out her apartment. which

> > means lots of heavy lifting which makes my neck hurt fiercely. but it has

> > to be

> > done.

> > melanie, don't be a martyr. ask for help!!!!!

> > i refuse to lift anything. your local church, any of the charity groups who

> > you might donate to, can help you to pack up. i went through this with my

> > father recently.

> > i actually got to know him even better as i packed his stuff up. it was

> > interesting,

> > even though i miss him dearly. good luck. marsha

>

June 4, 2005

,

I am very sorry for the loss of you mother. I and my family will pray for

you during this difficult time you are going through. Any time you loose a

family member, it can have a traumatic affect on those left behind regardless

how

prepared they were for the death.

Please consult with your church as they will help you with all aspects of

preparing for the funeral, cleaning out the house, and will assist with any

other things that need to be done.

Remember that as a Christian, your mother is with the Lord, no longer in

pain, and you will see her again. Lean upon your brothers and sisters in

Christ

to get you through this difficult time.

God Bless you,

June 4, 2005

i'm much more spiritual than religious, but someone told me to read revelation

21:4, and that it would bring comfort. i found a bible in my mom's stuff and i

read it... and it did. it is a very nice passage. it made me smile and cry.

always a strange combination.

my fiance and i packed up the rest of it today. salvation army will come pick

up our donation on wednesday. all of the work is done.

thank you for your prayers.

-melanie

> ,

> I am very sorry for the loss of you mother. I and my family will pray for

> you during this difficult time you are going through. Any time you loose a

> family member, it can have a traumatic affect on those left behind

regardless how

> prepared they were for the death.

>

> Please consult with your church as they will help you with all aspects of

> preparing for the funeral, cleaning out the house, and will assist with any

> other things that need to be done.

>

> Remember that as a Christian, your mother is with the Lord, no longer in

> pain, and you will see her again. Lean upon your brothers and sisters in

Christ

> to get you through this difficult time.

>

> God Bless you,

>

September 6, 2008

Hey Shelby... did you mean " grassfed " instead of " grainfed " ???

I've never recovered much from my brainfog and several other

symptoms. BUT, I noticed after cheating a lot that many symptoms

came back that I had forgotten about. First to come back is the achy

knuckles and ankles. But then, the puffy eyes, stiff neck with

occasional cricks, sore shoulders, etc.... and the belly bloat, of

course. I also noticed a small patch of athlete's foot on the bottom

of my foot.

There really IS something to all of this! If we could be disciplined

enough to stick with it.... grrrrrrrrrrr

This whole time, I've maintained 100% supplements, and still have no

problem tolerating 6 T of VCO daily. I can also eat my target

amounts on fitday, and don't have any reactions to all the fat like I

did in the beginning. The diarreah has been gone for a long time

now, since I cut out olive oil... but I've even been eating it lately

with my cucumber/onion/green pepper/tomato/lemon-juice/fresh basil

salad with no ill effects. I eat 4-6 T of butter daily as well, and

still have plenty of grassfed beef in the deep freeze.

My dog has been eating raw meat/bones/organs for the past 2 months

and is doing GREAT on that diet!!

I've been working at an office, and will start full-time on Monday.

I'm not crazy about it, but the money's not too bad, and as my energy

and motivation are down, I'm willing to let my organizing business

take a little rest (it has supported me for almost 10 years). The

biggest temptation in the office is trying to avoid coffee w/sugar

and cream!!! I drank some several days before camping, but now I'm

not drinking it any more. (I never was a regular coffee drinker, and

hadn't had any for 9 months prior to going to Jamaica).

Also, my biggest temptation at home is avoiding a teaspoon of ketchup

with my eggs in the morning, or with meat. *sigh*

Sorry to ramble....

Doug

September 7, 2008

Oh yes I meant grass. You know the kind of meat that is out in the

pasture and costs 5 bucks a pound if you buy it in bulk. I have to

drive an hour to pick up my order. I get very creative in how to

extend the life of a cut of meat. i still think somehow the cost

could average out because we don't buy twinkies or soda. However, I

am not willing to figure it up yet.

I know exactly what you are saying with old symptoms coming back. I

was thinking about that this morning. I had that old pain in my left

side coming back. I had gone for a colonoscopy last year because it

was so bad. It is gone again now. Yes I think there is something to

this. I went to a party at lake yesterday. I hauled my cooler and my

church folks don't even mention it anymore. I can't eat anything they

bring. I spent all morning preparing food for me and my son. That has

been one of the hardest parts of all this. It is hard to go places

with food because I either have to bring my own or decline. When I

explain why I am not eating or I have brought food, people don't know

whether to believe me about the candida or not. They have never heard

of it.

I think it is okay to ramble...this is our life.

Shelby

>

September 7, 2008

> Also, my biggest temptation at home is avoiding a teaspoon of ketchup

> with my eggs in the morning, or with meat. *sigh*

> Doug

***** Doug, have you tried the ketchup recipe on Bee's site? It's really good.

Marissa

September 7, 2008

Kara I am in Sylva about 45 minutes west of Asheville. I have to

drive about an hour to get my meat. I just fill the trunk full and

put it in my chest freezer. The farm is

http://www.hickorynutgapfarm.com/. I love them and their products are

so good. I am still learning where to buy good local food and when.

Try this website to find products and meat nearer to

you...http://www.eatwild.com/. This is how I find many of my sources.

I also drive to a small town called Topton to get fresh mountain

trout.

Shelby

>

> Shelby where in NC are you? I am between clover and lake wylie in

sc.

> If you are near i'd love to know where you get your beef, chicken,

> etc

>

> Thank

> Kara

>

April 25, 2010

....so I don't get deleted! : )

April 27, 2010

Me too .. thanks for the info everyone ... Marcia

>

> ...so I don't get deleted! : )

>

August 2, 2010

I don't think he'll go to *any* dr, much less one he would actually have to

travel to see. I have absolutely no idea how experienced his doctor was. When

Rob was first diagnosed, his dr said he should probably have the surgery done

open chest (I forget what that's called).....my husband tried to find someone

around here that would do it, with no luck. So he went back to his dr & his dr

said " I can do it laparascopically " .....it made me nervous because while he

seemed confident that it could be done, why would he have suggested the other

way?? It's like he did a lap because there was no other choice. It never dawned

on me to actually look outside of Milwaukee for a dr. Duh....

>

> Hi everyone....

>

> A few new people since I last posted....I just wanted to say HI & welcome!! I

am reading each & every message posted, lots of good info! For those who are new

or who may not remember, I do not have achalasia but my husband has had it for

about 20 years. He was finally diagnosed in 2008 & the dr did a Heller. Wish I'd

known about this site then....I have no idea how experienced his dr was. He did

go back for a check up about 6 months after his surgery, the dr then ordered an

endoscopy because he saw something.....but my husband never followed up with

him. I assume it was nothing since the dr didn't urgently call. He then had an

episode back in February-ish where he once again couldn't get anything down. It

lasted about 3 weeks.....again, he didn't call the dr & he eventually was able

to eat again. Now it seems he hasn't had any problems....he's even been eating

meals without his ginormous glass of water. I did warn him about the E

stretching but he doesn't seem concerned about it. I've always been the

worrier....but I just started a full time job & with 2 kids....well he's on his

own, lol!!!

>

> Just wanted you all to know I'm still here....still reading.....I learn

something new every day

>

August 2, 2010

, this is a rare disease, seems that we are learning so much on this

site.Â I would never know about these things if it weren't for this group.Â I

am

learning more each day, throughout the 22yrs that I have had this problem, I

never met anyone with it, no one could relate to me.Â With the group, at least

we can talk about options and gather info.Â

For now, figure out the best things that he can swallow and help him to eat

those things.Â Certain foods work better than others sometimes.Â For example,

I

can eat a couple scrambled eggs, but can barely get any kind of sandwich down.Â

That is me, what can he eat???Â Does it all come up?Â

Julee

________________________________

From: milwaukeemommy <milwaukeemommy@...>

achalasia

Sent: Sun, August 1, 2010 7:08:43 PM

Subject: Re: Checking in...

Â