could i have thoughts/experience about medication?

[Guest guest]

Hello! I talked to my sons very awesome teacher today, and she brought up that

her and the autism specialist were thinking maybe my son would benefit from

medication for his anxiety. She wasn't pushy just brought it up as something to

think about. L:ike everyones kids here, he is very bright! knows his stuff but

his initiation, or even follow through is suppressed by his getting overwhelmed

and he just checks out. I guess he even said sorry to the teacher at recess

after she was trying to help with social interaction. Like sorry i cant do it

and walked away. The autism specialist is a veteran in the field and used to be

a nurse, and she suggested Prozac, or something in that family. I really respect

the staff at sammys program, and i always thought of myself as anti-med for my

son, but i dont want to paint sam in a corner because i am narrow minded. So, i

wanted to ask around for experience and opinions on meds, anxiety, and what is

helpful. He is

currently taking 100mg of l-theanine once a day, and half mg of melatonin at

night. a couple years ago i tried 5htp, and GABA and his behaviors actually got

worse. when i took the gaba i got the mother of all headaches, so maybe that is

what he experienced also. Beyond that we are doing anti-virals, (virastop, OLE)

antifungals, (GSE, no-fenol,Candidase), Lugols, Liverlife, and Chelation, (DMSA,

Cilantro, Chlorella) Ambrotose, and lots of Vitamin C. I would really

appreciate the feedback. Thanks! Libby

[Guest guest]

Hi,

My daughter (not on spectrum) is 10 and has PANDAS - she had so much

anxiety that she was almost reluctant to get up off the couch,

followed me from room to room etc. My son's DAN! doc saw her and

immediatly started her on 975mg taurine three times a day, 200 mg

theanine 2x a day, and 500 mg tyrosine 2x a day - I added in

Gillham's Calm and calcium. We also bought Bach Rescue remedy

pastilles, and everytime she has a " jittery stomach " or starts to

feel anxious she takes a lozenge and is better in a few minutes. If

we stop anything, she is worse in about 48 hours.

I hope your son doesn't have to take Prozac, when he might be helped

by tweaking his supplements a little. Also, we noticed when we upped

my spectrum son's melatonin from 1mg to 1 1/2, he did much better

during the day.Always check your yeast protocol also, we added in

Culturelle to take care of Clostridia and that helped as well with my

son.

Hope this helps,

Susi

[Guest guest]

Have you tried increasing the l-theanine to see if that helps any? My son

gets it 3x a day and it has really helped.

Hope this helps,

Mom to - 4 years old - recovering from PDD-NOS

Our recovery story: http://www.recoveringnicholas.com

From:

[mailto: ] On Behalf Of Libby

Sent: Thursday, February 05, 2009 11:45 AM

chelatingkids2 ;

Subject: could i have thoughts/experience about medication?

Hello! I talked to my sons very awesome teacher today, and she brought up

that her and the autism specialist were thinking maybe my son would benefit

from medication for his anxiety. She wasn't pushy just brought it up as

something to think about. L:ike everyones kids here, he is very bright!

knows his stuff but his initiation, or even follow through is suppressed by

his getting overwhelmed and he just checks out. I guess he even said sorry

to the teacher at recess after she was trying to help with social

interaction. Like sorry i cant do it and walked away. The autism specialist

is a veteran in the field and used to be a nurse, and she suggested Prozac,

or something in that family. I really respect the staff at sammys program,

and i always thought of myself as anti-med for my son, but i dont want to

paint sam in a corner because i am narrow minded. So, i wanted to ask around

for experience and opinions on meds, anxiety, and what is helpful. He is

currently taking 100mg of l-theanine once a day, and half mg of melatonin at

night. a couple years ago i tried 5htp, and GABA and his behaviors actually

got worse. when i took the gaba i got the mother of all headaches, so maybe

that is what he experienced also. Beyond that we are doing anti-virals,

(virastop, OLE) antifungals, (GSE, no-fenol,Candidase), Lugols, Liverlife,

and Chelation, (DMSA, Cilantro, Chlorella) Ambrotose, and lots of Vitamin C.

I would really appreciate the feedback. Thanks! Libby

[Guest guest]

I forgot about one other thing, if the Prozac doesn't work, he might

have some pretty bad withdrawal symptoms. My doc put me on an ssri for

fibromyalgia, and coming off it when it didn't work was, well, you know

what. It is not fun.

Hope this helps,

Susi

[Guest guest]

We put our 5 year old autistic son on Prozac and life was Heaven...for

about a month. Then that all went away. Prozac is known for causing

irritability. So, if that happens, don't give up- just try another.

What helped us the most was this article written by Temple Grandin.

http://www.iidc.indiana.edu/irca/TempleGrandin/EvaluMedication.html

I'm going to post the paragraph that helped us.

People with autism have very sensitive nervous systems. Some

individuals may require much lower doses of medications than people

with a normal nervous system. This will vary from individual to

individual. If some individuals are given too high a dose of either an

older tricyclic antidepressant or one of the newer medications, such

as Prozac or Zoloft, there may be side effects. Antidepressants have a

dosage window. Too little will not work and too much causes side

effects. The first sign of too high a dose of an antidepressant is

early morning awakening. This can usually be corrected by lowering the

dose. If the excessive dosing continues, the person will escalate into

insomnia, irritability, agitation and aggression. To determine the

correct dose, you must be a good observer. Enough must be given to be

effective but too much can have almost the opposite effect. Both

parents and doctors have reported that when the antidepressant was

first given, the person became calmer and then about two weeks later,

he went berserk. This is due to a slow buildup in the system. This is

especially a problem with Prozac. The dose must be lowered at the

first indication of insomnia.

***This is EXACTLY what happened with our son and when I lowered the

dose, he started sleeping again- stopped waking up at 3-4 am and was

less moody. Eventually I had to keep lowering it until he was at 1 mg

(which is what I would STRONGLY suggest starting at...it's a lot

easier to slowly increase the dose if it isn't working than keep

wondering if it's too high or too low). In then end I had to stop the

Prozac all together- it was making him irritable. We haven't added

anything back, yet. But he is also on Risperdal for

aggression/psychotic rage episodes (we won't go into that).

>

> Hello! I talked to my sons very awesome teacher today, and she

brought up that her and the autism specialist were thinking maybe my

son would benefit from medication for his anxiety. She wasn't pushy

just brought it up as something to think about. L:ike everyones kids

here, he is very bright! knows his stuff but his initiation, or even

follow through is suppressed by his getting overwhelmed and he just

checks out. I guess he even said sorry to the teacher at recess after

she was trying to help with social interaction. Like sorry i cant do

it and walked away. The autism specialist is a veteran in the field

and used to be a nurse, and she suggested Prozac, or something in that

family. I really respect the staff at sammys program, and i always

thought of myself as anti-med for my son, but i dont want to paint sam

in a corner because i am narrow minded. So, i wanted to ask around for

experience and opinions on meds, anxiety, and what is helpful. He is

> currently taking 100mg of l-theanine once a day, and half mg of

melatonin at night. a couple years ago i tried 5htp, and GABA and his

behaviors actually got worse. when i took the gaba i got the mother of

all headaches, so maybe that is what he experienced also. Beyond that

we are doing anti-virals, (virastop, OLE) antifungals, (GSE,

no-fenol,Candidase), Lugols, Liverlife, and Chelation, (DMSA,

Cilantro, Chlorella) Ambrotose, and lots of Vitamin C. I would really

appreciate the feedback. Thanks! Libby

>

>

>

>

>

>

[Guest guest]

This is very true. Several years ago, my son was put on Lexapro. It was an awful

experience. The doc kept adjusting the dose. He went from being anxious to

pulling out all of his eyelashes and eyebrows and whining like a puppy. At the

very worst, he tried jumping out of the car while we were riding down the road,

running across a crowded parking lot, and hugging strangers. He couldn't wind

down.  After 2 years the doc said he couldn't stabilize and wanted to put him on

Abilify but couldn't assure me it too wouldn't backfire. I refused and it took

another 2 years to work through the withdrawal. It's a good thing it doesn't

effect everyone like that. I think we must have had a worst case senario. Good

Luck.

 

D.

From: gfcfmommy <gfcfmommy@...>

Subject: Re: could i have thoughts/experience about medication?

Date: Thursday, February 5, 2009, 7:23 PM

I forgot about one other thing, if the Prozac doesn't work, he might

have some pretty bad withdrawal symptoms. My doc put me on an ssri for

fibromyalgia, and coming off it when it didn't work was, well, you know

what. It is not fun.

Hope this helps,

Susi

[Guest guest]

Libby,

I came across this information on adrenal support for anxiety while

searching the archives at Autism Mercury.

HTH

Orelindel

http://onibasu.com/archives/am/195792.html

So, i wanted to ask around for experience and opinions on meds,

anxiety, and what is helpful. He is currently taking 100mg of l-

theanine once a day, and half mg of melatonin at night. a couple

years ago i tried 5htp, and GABA and his behaviors actually got

worse. when i took the gaba i got the mother of all headaches, so

maybe that is what he experienced also. Beyond that we are doing anti-

virals, (virastop, OLE) antifungals, (GSE, no-fenol,Candidase),

Lugols, Liverlife, and Chelation, (DMSA, Cilantro, Chlorella)

Ambrotose, and lots of Vitamin C. I would really appreciate the

feedback. Thanks! Libby

[Guest guest]

Prozac shouldn't have the withdrawal problems alot of other SSRI's

have. Because it " tapers " out of the system naturally, it is more

gradual.

>

> From: gfcfmommy <gfcfmommy@...>

> Subject: Re: could i have thoughts/experience about

medication?

>

> Date: Thursday, February 5, 2009, 7:23 PM

>

>

>

>

>

>

> I forgot about one other thing, if the Prozac doesn't work, he might

> have some pretty bad withdrawal symptoms. My doc put me on an ssri for

> fibromyalgia, and coming off it when it didn't work was, well, you know

> what. It is not fun.

> Hope this helps,

> Susi

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Orelindel,

 

Thank you so much for posting this information. This describes my son exactly;

sometimes we don't know if we are going or coming. He has extreme anxiety to the

point of panic, ocd, severe sensory problems, and poor task switching skills -

all of them. Never have heard anything about adrenal function. Would I need to

see a doctor to support or can I do that on my own?

 

D.

From: orelindel <whatmattersmost@...>

Subject: Re: could i have thoughts/experience about medication?

Date: Friday, February 6, 2009, 7:57 PM

Libby,

I came across this information on adrenal support for anxiety while

searching the archives at Autism Mercury.

HTH

Orelindel

http://onibasu. com/archives/ am/195792. html

So, i wanted to ask around for experience and opinions on meds,

anxiety, and what is helpful. He is currently taking 100mg of l-

theanine once a day, and half mg of melatonin at night. a couple

years ago i tried 5htp, and GABA and his behaviors actually got

worse. when i took the gaba i got the mother of all headaches, so

maybe that is what he experienced also. Beyond that we are doing anti-

virals, (virastop, OLE) antifungals, (GSE, no-fenol,Candidase) ,

Lugols, Liverlife, and Chelation, (DMSA, Cilantro, Chlorella)

Ambrotose, and lots of Vitamin C. I would really appreciate the

feedback. Thanks! Libby

[Guest guest]

You can do this on your own. I recently increased my DDs dose up from

one ACE a day to two a day. One in the morning and one in the

evening. Like anything else, start low and go slow. I use Adrenergize

by Enzymatic Therapy:

http://tinyurl.com/bussjw

>

> Orelindel,

>  

> Thank you so much for posting this information. This describes my

son exactly; sometimes we don't know if we are going or coming. He

has extreme anxiety to the point of panic, ocd, severe sensory

problems, and poor task switching skills - all of them. Never have

heard anything about adrenal function. Would I need to see a doctor

to support or can I do that on my own?

>  

> D.

[Guest guest]

Thanks.

 

D.

From: orelindel <whatmattersmost@...>

Subject: Re: could i have thoughts/experience about medication?

Date: Saturday, February 7, 2009, 11:58 AM

You can do this on your own. I recently increased my DDs dose up from

one ACE a day to two a day. One in the morning and one in the

evening. Like anything else, start low and go slow. I use Adrenergize

by Enzymatic Therapy:

http://tinyurl. com/bussjw

>

> Orelindel,

>  

> Thank you so much for posting this information. This describes my

son exactly; sometimes we don't know if we are going or coming. He

has extreme anxiety to the point of panic, ocd, severe sensory

problems, and poor task switching skills - all of them. Never have

heard anything about adrenal function. Would I need to see a doctor

to support or can I do that on my own?

>  

> D.

[Guest guest]

Orelindel,

 

I pulled this from a folder where I had saved some of your posts. I wanted to

keep this so I could look into it further. I am just so overwhelmed at

everything I need to be doing and have read over and over to only try one new

thing at a time. What is ACE? Considering the symptoms, should this be a

priority?

 

There are so many things going on with my son. I've tried in the past to add

vitamin c to juices but he would refuse to drink them. He takes only liquid meds

or something that can be desolved in fluid or food because his gag response is

so bad that he can't even stand the smallest pills without throwing up. Right

now the gastroenterologist is trying to determine if he has crohns, ulcerative

colitis, or celiac. In the meantime, we have implemented the gfcf diet, which

seems to be helping some.

 

I am trying to implement the things which are most imperative at the moment, and

figure out what order I need to do the others in.

 

Thank you so much for your information on this. They have given me a direction I

never thought of looking before.

 

Drissia

From: orelindel <whatmattersmost@...>

Subject: Re: could i have thoughts/experience about medication?

Date: Saturday, February 7, 2009, 11:58 AM

You can do this on your own. I recently increased my DDs dose up from

one ACE a day to two a day. One in the morning and one in the

evening. Like anything else, start low and go slow. I use Adrenergize

by Enzymatic Therapy:

http://tinyurl. com/bussjw

>

> Orelindel,

>  

> Thank you so much for posting this information. This describes my

son exactly; sometimes we don't know if we are going or coming. He

has extreme anxiety to the point of panic, ocd, severe sensory

problems, and poor task switching skills - all of them. Never have

heard anything about adrenal function. Would I need to see a doctor

to support or can I do that on my own?

>  

> D.

[Guest guest]

Hi Drissia,

So sorry for the delay in responding. Many say that adrenal support

is essential prior to interventions such as chelation. The DDI Hair

Elements Test can be used to determine whether your child needs

adrenal support. If yes, I'd make that a priority.

You can order this test through Direct Labs (800) 908-0000 and get a

discount if you are a member of the Autism Mercury Group. Here

is a link to the test on their site.

https://www.directlabs.com/Default.aspx?TabId=55

When you get your results back, you can post it at Autism Mercury so

that others can help you interpret the results.

You might also find the document " Mastering Autism " useful. It is

just over 300 pages and free at Willis' Group. It discusses the

adrenals among many other topics. After you sign in go to the file

section, scroll down to a word document entitled " Mastering Autism " :

Williss/files/

My DD doesn't swallow pills. Thankfully, I can get most supplements

in her with a medicine syringe.

All the best,

Orelindel

>

> Orelindel,

>  

> I pulled this from a folder where I had saved some of your posts. I

wanted to keep this so I could look into it further. I am just so

overwhelmed at everything I need to be doing and have read over and

over to only try one new thing at a time. What is ACE? Considering

the symptoms, should this be a priority?

[Guest guest]

Orelindel,

 

Thanks for the reply. Never thought about a syringe. Have tried to hide in food

or drink but he always knows the difference, even when I can't taste the

difference. Takes liquid medicine ok as long as it's only 1 or 2 spoons at a

time.

 

Drissia

From: orelindel <whatmattersmost@...>

Subject: Re: could i have thoughts/experience about medication?

Date: Wednesday, February 25, 2009, 8:38 PM

Hi Drissia,

So sorry for the delay in responding. Many say that adrenal support

is essential prior to interventions such as chelation. The DDI Hair

Elements Test can be used to determine whether your child needs

adrenal support. If yes, I'd make that a priority.

You can order this test through Direct Labs (800) 908-0000 and get a

discount if you are a member of the Autism Mercury Group. Here

is a link to the test on their site.

https://www. directlabs. com/Default. aspx?TabId= 55

When you get your results back, you can post it at Autism Mercury so

that others can help you interpret the results.

You might also find the document " Mastering Autism " useful. It is

just over 300 pages and free at Willis' Group. It discusses the

adrenals among many other topics. After you sign in go to the file

section, scroll down to a word document entitled " Mastering Autism " :

http://health. groups.. com/group/ Williss/files/

My DD doesn't swallow pills. Thankfully, I can get most supplements

in her with a medicine syringe.

All the best,

Orelindel

>

> Orelindel,

>  

> I pulled this from a folder where I had saved some of your posts. I

wanted to keep this so I could look into it further. I am just so

overwhelmed at everything I need to be doing and have read over and

over to only try one new thing at a time. What is ACE? Considering

the symptoms, should this be a priority?