Re: 1 step forward, 2 steps back

[Guest guest]

no, we were so tired of the tantrums and other crap that we gave up on the tired

try. Started looking into sulfation, instead of methylation cause our guy need

help in the sulfation cycle.

nancy j

a child is diagnosed with

asd every 20 seconds

>

> From: West <shanwest@...>

> Subject: RE: 1 step forward, 2 steps back

> " " < >

> Date: Monday, September 13, 2010, 6:38 PM

>

>

>

> It had folinic in it. Still with the hyper. Maybe if I

> bought some extra folinic and added it on top of that yet? I

> dunno.

>

> ----- Receiving the following content -----

>

> From: Burleson

>

> Receiver:

>

> Time: 2010-09-13, 17:59:49

>

> Subject: RE: 1 step forward, 2 steps back

>

> >If they get hyper with the DMG you can give Folinic

> acid to make it go away. I was ready to try that with my

> son, but his went away before I could order any:) So I don't

> really know how well it works

>

> >

>

> >

>

> >

>

> >

>

>

> >From: shanwest@...

>

>

> >Date: Mon, 13 Sep 2010 14:05:37 -0700

>

> >Subject: RE: 1 step forward, 2 steps back

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >The OAT showed no gut dysbiosis, so it's not strep. I

> did try DMG, but OMG the hyperactivity got even worse. He

> was actually quite miserable with the hyperness then.

>

> >

>

> >I'll look into the antibiotics, but I dunno. I'm scared

> of throwing his gut flora out of balance on top of it all.

>

> >

>

> >Thanks for the ideas.

>

> >

>

> >

>

> >

>

> >----- Receiving the following content -----

>

> >From: Burleson

>

> >Receiver:

>

> >Time: 2010-09-13, 14:00:58

>

> >Subject: RE: 1 step forward, 2 steps back

>

> >

>

> >>Oh my gosh! Well you haven't lost your sense of

> humor and that is a very good thing...sometimes it's all we

> have:) Have you tried TMG or DMG? I know they are supposed

> to go a long way in healing the actual gut leaks. Also

> Vancomycin, Neomycin, Gentamycin, and Rifaxamin are these

> weird antibiotics that are supposed to resolve inflammation.

> I think you might find that they also help with som eof the

> tics and stuff....it sounds an awful lot like PANDAS. Have

> you had his strep antibodies tested? You should look on tv

> guide quickly and see if Discovery Health Channel is going

> to replay the Mistery Diagnosis on PANDAS again. It was on

> last night and my Mom recorded it...I'll see if I can find

> the name of the actual episode for you

>

> >>

>

> >>

>

> >>

>

> >>

>

>

> >>From: shanwest@...

>

>

> >>Date: Mon, 13 Sep 2010 11:13:16 -0700

>

> >>Subject: 1 step forward, 2 steps back

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>I'm longing for the 1 step forward... We got my

> elder son's OAT back last week, and it was awful. The DAN

> doc says it's the worst she's seen. She called the lab (she

> has a friend there) and he said it was one of the worst he'd

> seen. So, now I'm looking at it going " What now? " and

> unfortunately, so are they. The theory is that he's got a

> food allergy that is enflaming him so badly that his gut is

> leaking terribly - so for that, we're doing an elimination

> diet. The serotonin markers are nuts. He's terribly toxic

> from solvents and plastics, phthalates being the worst.

> There's no sign of yeast or bacteria or viruses. That's the

> only good thing.

>

> >>But his symptoms are so out of control and nothing

> seems to be working. He's got a vocal tic that makes me

> insane. " Uh! Ay! " around 6 times per minute, every minute

> he's awake. And it varies between conversation volume and

> LOUD and SHRILL. Like my ears are literally pounding. His

> sleep is utterly hosed. Last night, he slept from 3 to 9.

> He's obsessed with putting his fingers into my shirt. He's

> so hyper and inattentive that he can't even sit still long

> enough to eat. He has no interest in anything other than

> occasionally stacking cards or cds. Mostly, he runs around

> and jumps and harasses the dog. Oh, and he's happy about it

> all. Or at least appears that way. He's not meltdown-y. He

> doesn't cry most of the time. The only thing that makes any

> of it better is if we go someplace loud/bright. Like Walmart

> or Best Buy or Costco. He's content there. And better for a

> while at home afterward. Weird, I know.

>

> >>I'm all for ideas. Because he's deafening me. And

> I'm so sleep deprived it's crazy.

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>[Non-text portions of this message have been

> removed]

>

> >>

>

> >>

>

> >>

>

> >>------------------------------------

>

> >>

>

> >>

[Guest guest]

Man, I need to read up on that. I thought they were sort of the same thing...or

at least closely related. I know my son has sulfation issues...

From: endofautism@...

Date: Mon, 13 Sep 2010 19:53:58 -0700

Subject: RE: 1 step forward, 2 steps back

no, we were so tired of the tantrums and other crap that we gave up on the tired

try. Started looking into sulfation, instead of methylation cause our guy need

help in the sulfation cycle.

nancy j

a child is diagnosed with

asd every 20 seconds

>

> From: West <shanwest@...>

> Subject: RE: 1 step forward, 2 steps back

> " " < >

> Date: Monday, September 13, 2010, 6:38 PM

>

>

>

> It had folinic in it. Still with the hyper. Maybe if I

> bought some extra folinic and added it on top of that yet? I

> dunno.

>

> ----- Receiving the following content -----

>

> From: Burleson

>

> Receiver:

>

> Time: 2010-09-13, 17:59:49

>

> Subject: RE: 1 step forward, 2 steps back

>

> >If they get hyper with the DMG you can give Folinic

> acid to make it go away. I was ready to try that with my

> son, but his went away before I could order any:) So I don't

> really know how well it works

>

> >

>

> >

>

> >

>

> >

>

>

> >From: shanwest@...

>

>

> >Date: Mon, 13 Sep 2010 14:05:37 -0700

>

> >Subject: RE: 1 step forward, 2 steps back

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >The OAT showed no gut dysbiosis, so it's not strep. I

> did try DMG, but OMG the hyperactivity got even worse. He

> was actually quite miserable with the hyperness then.

>

> >

>

> >I'll look into the antibiotics, but I dunno. I'm scared

> of throwing his gut flora out of balance on top of it all.

>

> >

>

> >Thanks for the ideas.

>

> >

>

> >

>

> >

>

> >----- Receiving the following content -----

>

> >From: Burleson

>

> >Receiver:

>

> >Time: 2010-09-13, 14:00:58

>

> >Subject: RE: 1 step forward, 2 steps back

>

> >

>

> >>Oh my gosh! Well you haven't lost your sense of

> humor and that is a very good thing...sometimes it's all we

> have:) Have you tried TMG or DMG? I know they are supposed

> to go a long way in healing the actual gut leaks. Also

> Vancomycin, Neomycin, Gentamycin, and Rifaxamin are these

> weird antibiotics that are supposed to resolve inflammation.

> I think you might find that they also help with som eof the

> tics and stuff....it sounds an awful lot like PANDAS. Have

> you had his strep antibodies tested? You should look on tv

> guide quickly and see if Discovery Health Channel is going

> to replay the Mistery Diagnosis on PANDAS again. It was on

> last night and my Mom recorded it...I'll see if I can find

> the name of the actual episode for you

>

> >>

>

> >>

>

> >>

>

> >>

>

>

> >>From: shanwest@...

>

>

> >>Date: Mon, 13 Sep 2010 11:13:16 -0700

>

> >>Subject: 1 step forward, 2 steps back

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>I'm longing for the 1 step forward... We got my

> elder son's OAT back last week, and it was awful. The DAN

> doc says it's the worst she's seen. She called the lab (she

> has a friend there) and he said it was one of the worst he'd

> seen. So, now I'm looking at it going " What now? " and

> unfortunately, so are they. The theory is that he's got a

> food allergy that is enflaming him so badly that his gut is

> leaking terribly - so for that, we're doing an elimination

> diet. The serotonin markers are nuts. He's terribly toxic

> from solvents and plastics, phthalates being the worst.

> There's no sign of yeast or bacteria or viruses. That's the

> only good thing.

>

> >>But his symptoms are so out of control and nothing

> seems to be working. He's got a vocal tic that makes me

> insane. " Uh! Ay! " around 6 times per minute, every minute

> he's awake. And it varies between conversation volume and

> LOUD and SHRILL. Like my ears are literally pounding. His

> sleep is utterly hosed. Last night, he slept from 3 to 9.

> He's obsessed with putting his fingers into my shirt. He's

> so hyper and inattentive that he can't even sit still long

> enough to eat. He has no interest in anything other than

> occasionally stacking cards or cds. Mostly, he runs around

> and jumps and harasses the dog. Oh, and he's happy about it

> all. Or at least appears that way. He's not meltdown-y. He

> doesn't cry most of the time. The only thing that makes any

> of it better is if we go someplace loud/bright. Like Walmart

> or Best Buy or Costco. He's content there. And better for a

> while at home afterward. Weird, I know.

>

> >>I'm all for ideas. Because he's deafening me. And

> I'm so sleep deprived it's crazy.

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>[Non-text portions of this message have been

> removed]

>

> >>

>

> >>

>

> >>

>

> >>------------------------------------

>

> >>

>

> >>

[Guest guest]

Going back to your previous post about strep. I don't think the OAT test can

rule out strep. You need to do a blood test for ASO titer ans Dnase B titer.

vocal tics can be from strep.

1 step forward, 2 steps back

>>

>>

>>

>>

>>

>>

>>I'm longing for the 1 step forward... We got my elder son's OAT back last

week, and it was awful. The DAN doc says it's the worst she's seen. She called

the lab (she has a friend there) and he said it was one of the worst he'd seen.

So, now I'm looking at it going " What now? " and unfortunately, so are they. The

theory is that he's got a food allergy that is enflaming him so badly that his

gut is leaking terribly - so for that, we're doing an elimination diet. The

serotonin markers are nuts. He's terribly toxic from solvents and plastics,

phthalates being the worst. There's no sign of yeast or bacteria or viruses.

That's the only good thing.

>>But his symptoms are so out of control and nothing seems to be working. He's

got a vocal tic that makes me insane. " Uh! Ay! " around 6 times per minute, every

minute he's awake. And it varies between conversation volume and LOUD and

SHRILL. Like my ears are literally pounding. His sleep is utterly hosed. Last

night, he slept from 3 to 9. He's obsessed with putting his fingers into my

shirt. He's so hyper and inattentive that he can't even sit still long enough to

eat. He has no interest in anything other than occasionally stacking cards or

cds. Mostly, he runs around and jumps and harasses the dog. Oh, and he's happy

about it all. Or at least appears that way. He's not meltdown-y. He doesn't cry

most of the time. The only thing that makes any of it better is if we go

someplace loud/bright. Like Walmart or Best Buy or Costco. He's content there.

And better for a while at home afterward. Weird, I know.

>>I'm all for ideas. Because he's deafening me. And I'm so sleep deprived it's

crazy.

>>

>>

>>

>>

>>

>>

[Guest guest]

Hi --

My son (now recovered...for the most part) struggled with sky-high serotonin. I

have talked to several doctors about it, and researched it for hours myself, but

it seems to be a tricky problem. It seems logical that if a kid has high

serotonin, he'd be very nice and calm, but if it's too high, as you know, they

can get very hyper and OCD-like. I could not find a fix for the high serotonin

because no one knew what to do about it (it's now resolving somewhat).

Instead, I tackled some of the other problems. My son does have PANDAS. I would

suggest going to http://e-pandas.com and see if anything rings true there. We

did zithromax for a long time, but have stopped and now use Enhansa. It is

working great!

Re: the horrible leaky gut, when my son was so ill, I would make bone broth a

lot. Basically, you cook a whole chicken in the crockpot for 48 hours. You get

STRONG broth, and it is supposed to be very healing for the gut. Our doc talked

to us about doing fermented foods, but I just couldn't (too gross for me). But

the bone broth did quite a bit to heal his gut. Coconut oil is supposed to be

healing too...you can buy a tub of it and cook with it. Some kids will take it

from a spoon.

We also LOVE enzymes. We use No-Fenol and AFP Peptizyde from Houston. We have

found that, even more than the GFCF diet (which we did for 9 months), enzymes

helped out son to digest foods that were difficult for him, and let his gut take

a break from all the drama.

My son had been ill for so long that his body was all stressed out and couldn't

heal. I started this program with massage, a brushing protocol, and joint

compressions. My husband or I would spent literally three to four hours a day on

this. We did it that intensely for about two weeks, then backed down a bit as he

calmed down. Also did lots of salt baths, and mag cream when he wouldn't take

the baths. We found that once we got his body to calm down, the supplements and

diet changes could work. He was just so tense that his body was in fight/flight

all the time.

We are also big, big fans of GABA. We would give our son 750 mg/day (he's 7 and

weighs about 70 pounds) and we also tried Kirkman's GABA/Mag cream, which is a

nice mix of GABA and Mag sulfate. Nice thing about transdermal is that it will

bypass the gut. We also did melatonin every night so he could get some

restorative sleep.

And, of course, pooping pooping pooping. Gotta keep that moving!

All the best!

Sara

>

> Going back to your previous post about strep. I don't think the OAT test can

rule out strep. You need to do a blood test for ASO titer ans Dnase B titer.

vocal tics can be from strep.

>

[Guest guest]

Have you tried the tmg? That worked better here.

> From: Burleson <lesburleson@...>

> Subject: RE: 1 step forward, 2 steps back

>

> Date: Monday, September 13, 2010, 10:44 PM

>

> Hmmmm...do you happen to know the dosage? I can look up the

> recommendation for the ratio that helps...I've got a

> fabulous book that has it in there

>

>

>

>

> From: shanwest@...

> Date: Mon, 13 Sep 2010 18:38:22 -0700

> Subject: RE: 1 step forward, 2 steps back

>

>

>  

>

>

>

> It had folinic in it. Still with the hyper. Maybe if I

> bought some extra folinic and added it on top of that yet? I

> dunno.

>

> ----- Receiving the following content -----

> From: Burleson

> Receiver:

> Time: 2010-09-13, 17:59:49

> Subject: RE: 1 step forward, 2 steps back

>

> >If they get hyper with the DMG you can give Folinic

> acid to make it go away. I was ready to try that with my

> son, but his went away before I could order any:) So I don't

> really know how well it works

> >

> >

> >

> >

>

> >From: shanwest@...

>

> >Date: Mon, 13 Sep 2010 14:05:37 -0700

> >Subject: RE: 1 step forward, 2 steps back

> >

> >

> >

> >

> >

> >

> >The OAT showed no gut dysbiosis, so it's not strep. I

> did try DMG, but OMG the hyperactivity got even worse. He

> was actually quite miserable with the hyperness then.

> >

> >I'll look into the antibiotics, but I dunno. I'm scared

> of throwing his gut flora out of balance on top of it all.

> >

> >Thanks for the ideas.

> >

> >

> >

> >----- Receiving the following content -----

> >From: Burleson

> >Receiver:

> >Time: 2010-09-13, 14:00:58

> >Subject: RE: 1 step forward, 2 steps back

> >

> >>Oh my gosh! Well you haven't lost your sense of

> humor and that is a very good thing...sometimes it's all we

> have:) Have you tried TMG or DMG? I know they are supposed

> to go a long way in healing the actual gut leaks. Also

> Vancomycin, Neomycin, Gentamycin, and Rifaxamin are these

> weird antibiotics that are supposed to resolve inflammation.

> I think you might find that they also help with som eof the

> tics and stuff....it sounds an awful lot like PANDAS. Have

> you had his strep antibodies tested? You should look on tv

> guide quickly and see if Discovery Health Channel is going

> to replay the Mistery Diagnosis on PANDAS again. It was on

> last night and my Mom recorded it...I'll see if I can find

> the name of the actual episode for you

> >>

> >>

> >>

> >>

>

> >>From: shanwest@...

>

> >>Date: Mon, 13 Sep 2010 11:13:16 -0700

> >>Subject: 1 step forward, 2 steps back

> >>

> >>

> >>

> >>

> >>

> >>

> >>I'm longing for the 1 step forward... We got my

> elder son's OAT back last week, and it was awful. The DAN

> doc says it's the worst she's seen. She called the lab (she

> has a friend there) and he said it was one of the worst he'd

> seen. So, now I'm looking at it going " What now? " and

> unfortunately, so are they. The theory is that he's got a

> food allergy that is enflaming him so badly that his gut is

> leaking terribly - so for that, we're doing an elimination

> diet. The serotonin markers are nuts. He's terribly toxic

> from solvents and plastics, phthalates being the worst.

> There's no sign of yeast or bacteria or viruses. That's the

> only good thing.

> >>But his symptoms are so out of control and nothing

> seems to be working. He's got a vocal tic that makes me

> insane. " Uh! Ay! " around 6 times per minute, every minute

> he's awake. And it varies between conversation volume and

> LOUD and SHRILL. Like my ears are literally pounding. His

> sleep is utterly hosed. Last night, he slept from 3 to 9.

> He's obsessed with putting his fingers into my shirt. He's

> so hyper and inattentive that he can't even sit still long

> enough to eat. He has no interest in anything other than

> occasionally stacking cards or cds. Mostly, he runs around

> and jumps and harasses the dog. Oh, and he's happy about it

> all. Or at least appears that way. He's not meltdown-y. He

> doesn't cry most of the time. The only thing that makes any

> of it better is if we go someplace loud/bright. Like Walmart

> or Best Buy or Costco. He's content there. And better for a

> while at home afterward. Weird, I know.

> >>I'm all for ideas. Because he's deafening me. And

> I'm so sleep deprived it's crazy.

> >>

> >>

> >>

> >>

> >>

> >>[Non-text portions of this message have been

> removed]

> >>

> >>

> >>

> >>------------------------------------

> >>

> >>

[Guest guest]

we use Essential GSH

 

________________________________

From: Burleson <lesburleson@...>

Sent: Tue, September 14, 2010 5:48:51 AM

Subject: RE: 1 step forward, 2 steps back

Man, I need to read up on that. I thought they were sort of the same thing...or

at least closely related. I know my son has sulfation issues...

From: endofautism@...

Date: Mon, 13 Sep 2010 19:53:58 -0700

Subject: RE: 1 step forward, 2 steps back

 

no, we were so tired of the tantrums and other crap that we gave up on the tired

try. Started looking into sulfation, instead of methylation cause our guy need

help in the sulfation cycle.

nancy j

a child is diagnosed with

asd every 20 seconds

>

> From: West <shanwest@...>

> Subject: RE: 1 step forward, 2 steps back

> " " < >

> Date: Monday, September 13, 2010, 6:38 PM

>

>

>

> It had folinic in it. Still with the hyper. Maybe if I

> bought some extra folinic and added it on top of that yet? I

> dunno.

>

> ----- Receiving the following content -----

>

> From: Burleson

>

> Receiver:

>

> Time: 2010-09-13, 17:59:49

>

> Subject: RE: 1 step forward, 2 steps back

>

> >If they get hyper with the DMG you can give Folinic

> acid to make it go away. I was ready to try that with my

> son, but his went away before I could order any:) So I don't

> really know how well it works

>

> >

>

> >

>

> >

>

> >

>

>

> >From: shanwest@...

>

>

> >Date: Mon, 13 Sep 2010 14:05:37 -0700

>

> >Subject: RE: 1 step forward, 2 steps back

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >The OAT showed no gut dysbiosis, so it's not strep. I

> did try DMG, but OMG the hyperactivity got even worse. He

> was actually quite miserable with the hyperness then.

>

> >

>

> >I'll look into the antibiotics, but I dunno. I'm scared

> of throwing his gut flora out of balance on top of it all.

>

> >

>

> >Thanks for the ideas.

>

> >

>

> >

>

> >

>

> >----- Receiving the following content -----

>

> >From: Burleson

>

> >Receiver:

>

> >Time: 2010-09-13, 14:00:58

>

> >Subject: RE: 1 step forward, 2 steps back

>

> >

>

> >>Oh my gosh! Well you haven't lost your sense of

> humor and that is a very good thing...sometimes it's all we

> have:) Have you tried TMG or DMG? I know they are supposed

> to go a long way in healing the actual gut leaks. Also

> Vancomycin, Neomycin, Gentamycin, and Rifaxamin are these

> weird antibiotics that are supposed to resolve inflammation.

> I think you might find that they also help with som eof the

> tics and stuff....it sounds an awful lot like PANDAS. Have

> you had his strep antibodies tested? You should look on tv

> guide quickly and see if Discovery Health Channel is going

> to replay the Mistery Diagnosis on PANDAS again. It was on

> last night and my Mom recorded it...I'll see if I can find

> the name of the actual episode for you

>

> >>

>

> >>

>

> >>

>

> >>

>

>

> >>From: shanwest@...

>

>

> >>Date: Mon, 13 Sep 2010 11:13:16 -0700

>

> >>Subject: 1 step forward, 2 steps back

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>I'm longing for the 1 step forward... We got my

> elder son's OAT back last week, and it was awful. The DAN

> doc says it's the worst she's seen. She called the lab (she

> has a friend there) and he said it was one of the worst he'd

> seen. So, now I'm looking at it going " What now? " and

> unfortunately, so are they. The theory is that he's got a

> food allergy that is enflaming him so badly that his gut is

> leaking terribly - so for that, we're doing an elimination

> diet. The serotonin markers are nuts. He's terribly toxic

> from solvents and plastics, phthalates being the worst.

> There's no sign of yeast or bacteria or viruses. That's the

> only good thing.

>

> >>But his symptoms are so out of control and nothing

> seems to be working. He's got a vocal tic that makes me

> insane. " Uh! Ay! " around 6 times per minute, every minute

> he's awake. And it varies between conversation volume and

> LOUD and SHRILL. Like my ears are literally pounding. His

> sleep is utterly hosed. Last night, he slept from 3 to 9.

> He's obsessed with putting his fingers into my shirt. He's

> so hyper and inattentive that he can't even sit still long

> enough to eat. He has no interest in anything other than

> occasionally stacking cards or cds. Mostly, he runs around

> and jumps and harasses the dog. Oh, and he's happy about it

> all. Or at least appears that way. He's not meltdown-y. He

> doesn't cry most of the time. The only thing that makes any

> of it better is if we go someplace loud/bright. Like Walmart

> or Best Buy or Costco. He's content there. And better for a

> while at home afterward. Weird, I know.

>

> >>I'm all for ideas. Because he's deafening me. And

> I'm so sleep deprived it's crazy.

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>

>

> >>[Non-text portions of this message have been

> removed]

>

> >>

>

> >>

>

> >>

>

> >>------------------------------------

>

> >>

>

> >>

[Guest guest]

Our major issue was sulfation, not methylation too. We found that GABA, mag

sulfate (epsom salts baths or transdermal cream) and No-Fenol from Houston

helped a lot. Enhansa might have had something to do with it, but I can't be

sure about that one. We also tried other stuff but the things above seemed to be

what made a positive difference.

Things that made it worse were methyl B-12 shots and folinic acid. Bad, bad

stuff for us...although for kids with methylation issues, it's a godsend.

Sara

> ________________________________

> From: Burleson <lesburleson@...>

>

> Sent: Tue, September 14, 2010 5:48:51 AM

> Subject: RE: 1 step forward, 2 steps back

>

> Man, I need to read up on that. I thought they were sort of the same

thing...or at least closely related. I know my son has sulfation issues...

>

>

> From: endofautism@...

> Date: Mon, 13 Sep 2010 19:53:58 -0700

> Subject: RE: 1 step forward, 2 steps back

>

> no, we were so tired of the tantrums and other crap that we gave up on the

tired

> try. Started looking into sulfation, instead of methylation cause our guy need

> help in the sulfation cycle.

> nancy j

[Guest guest]

How do I tell which needs addressing (sulfation or methylation)?

Thanks

-- Sent from my Palm Pixi

On Sep 15, 2010 9:21, sebrown1126a & lt;sarabrown@... & gt; wrote:

Our major issue was sulfation, not methylation too. We found that GABA, mag

sulfate (epsom salts baths or transdermal cream) and No-Fenol from Houston

helped a lot. Enhansa might have had something to do with it, but I can't be

sure about that one. We also tried other stuff but the things above seemed to be

what made a positive difference.

Things that made it worse were methyl B-12 shots and folinic acid. Bad, bad

stuff for us...although for kids with methylation issues, it's a godsend.

Sara

& gt; ________________________________

& gt; From: Burleson & lt;lesburleson@... & gt;

& gt;

& gt; Sent: Tue, September 14, 2010 5:48:51 AM

& gt; Subject: RE: 1 step forward, 2 steps back

& gt;

& gt; Man, I need to read up on that. I thought they were sort of the same

thing...or at least closely related. I know my son has sulfation issues...

& gt;

& gt;

& gt; From: endofautism@...

& gt; Date: Mon, 13 Sep 2010 19:53:58 -0700

& gt; Subject: RE: 1 step forward, 2 steps back

& gt;

& gt; no, we were so tired of the tantrums and other crap that we gave up on the

tired

& gt; try. Started looking into sulfation, instead of methylation cause our guy

need

& gt; help in the sulfation cycle.

& gt; nancy j

------------------------------------

[Guest guest]

We figured out sulfation vs. methylation basically by trial and error, and

studying my sons labs for hours.

He responded horribly to methyl-B12 shots. Same with folinic. He got very

aggressive and hyper and over-emotional.

When we addressed sulfation, he made wonderful improvements. We noticed that he

would be very smelly and he didn't seem to be able to detox. Sulfation work

helps that to subside.

Sara

>

> Our major issue was sulfation, not methylation too. We found that GABA, mag

sulfate (epsom salts baths or transdermal cream) and No-Fenol from Houston

helped a lot. Enhansa might have had something to do with it, but I can't be

sure about that one. We also tried other stuff but the things above seemed to be

what made a positive difference.

>

>

>

> Things that made it worse were methyl B-12 shots and folinic acid. Bad, bad

stuff for us...although for kids with methylation issues, it's a godsend.

>

>

>

> Sara

>

>

>

> & gt; ________________________________

>

> & gt; From: Burleson lesburleson@

>

> & gt;

>

> & gt; Sent: Tue, September 14, 2010 5:48:51 AM

>

> & gt; Subject: RE: 1 step forward, 2 steps back

>

> & gt;

>

> & gt; Man, I need to read up on that. I thought they were sort of the same

thing...or at least closely related. I know my son has sulfation issues...

>

> & gt;

>

> & gt;

>

> & gt; From: endofautism@

>

> & gt; Date: Mon, 13 Sep 2010 19:53:58 -0700

>

> & gt; Subject: RE: 1 step forward, 2 steps back

>

>

>

> & gt;

>

> & gt; no, we were so tired of the tantrums and other crap that we gave up on

the tired

>

> & gt; try. Started looking into sulfation, instead of methylation cause our guy

need

>

> & gt; help in the sulfation cycle.

>

> & gt; nancy j

>

>

>

>

>

>

>

>

>

> ------------------------------------

>

>

>

>

[Guest guest]

Dr. Kartzinel did a report on methylation/sulfation.  If anyone wants a copy, I

can send it.  It explains what each are and what works for each cycle.

nancy j

a child is diagnosed with

asd every 20 seconds

From: sebrown1126a <sarabrown@...>

Subject: Re: 1 step forward, 2 steps back

Date: Thursday, September 16, 2010, 6:50 AM

 

We figured out sulfation vs. methylation basically by trial and error, and

studying my sons labs for hours.

He responded horribly to methyl-B12 shots. Same with folinic. He got very

aggressive and hyper and over-emotional.

When we addressed sulfation, he made wonderful improvements. We noticed that he

would be very smelly and he didn't seem to be able to detox. Sulfation work

helps that to subside.

Sara

>

> Our major issue was sulfation, not methylation too. We found that GABA, mag

sulfate (epsom salts baths or transdermal cream) and No-Fenol from Houston

helped a lot. Enhansa might have had something to do with it, but I can't be

sure about that one. We also tried other stuff but the things above seemed to be

what made a positive difference.

>

>

>

> Things that made it worse were methyl B-12 shots and folinic acid. Bad, bad

stuff for us...although for kids with methylation issues, it's a godsend.

>

>

>

> Sara

>

>

>

> & gt; ________________________________

>

> & gt; From: Burleson lesburleson@

>

> & gt;

>

> & gt; Sent: Tue, September 14, 2010 5:48:51 AM

>

> & gt; Subject: RE: 1 step forward, 2 steps back

>

> & gt;

>

> & gt; Man, I need to read up on that. I thought they were sort of the same

thing...or at least closely related. I know my son has sulfation issues...

>

> & gt;

>

> & gt;

>

> & gt; From: endofautism@

>

> & gt; Date: Mon, 13 Sep 2010 19:53:58 -0700

>

> & gt; Subject: RE: 1 step forward, 2 steps back

>

>

>

> & gt;

>

> & gt; no, we were so tired of the tantrums and other crap that we gave up on

the tired

>

> & gt; try. Started looking into sulfation, instead of methylation cause our guy

need

>

> & gt; help in the sulfation cycle.

>

> & gt; nancy j

>

>

>

>

>

>

>

>

>

> ------------------------------------

>

>

>

>

[Guest guest]

I would love to get a copy! Thank you!

Nathalie

From: nancy cook

Sent: Thursday, September 16, 2010 10:08 AM

Subject: Re: Re: 1 step forward, 2 steps back

Dr. Kartzinel did a report on methylation/sulfation. If anyone wants a copy, I

can send it. It explains what each are and what works for each cycle.

nancy j

a child is diagnosed with

asd every 20 seconds

From: sebrown1126a <sarabrown@...>

Subject: Re: 1 step forward, 2 steps back

Date: Thursday, September 16, 2010, 6:50 AM

We figured out sulfation vs. methylation basically by trial and error, and

studying my sons labs for hours.

He responded horribly to methyl-B12 shots. Same with folinic. He got very

aggressive and hyper and over-emotional.

When we addressed sulfation, he made wonderful improvements. We noticed that he

would be very smelly and he didn't seem to be able to detox. Sulfation work

helps that to subside.

Sara

>

> Our major issue was sulfation, not methylation too. We found that GABA, mag

sulfate (epsom salts baths or transdermal cream) and No-Fenol from Houston

helped a lot. Enhansa might have had something to do with it, but I can't be

sure about that one. We also tried other stuff but the things above seemed to be

what made a positive difference.

>

>

>

> Things that made it worse were methyl B-12 shots and folinic acid. Bad, bad

stuff for us...although for kids with methylation issues, it's a godsend.

>

>

>

> Sara

>

>

>

> & gt; ________________________________

>

> & gt; From: Burleson lesburleson@

>

> & gt;

>

> & gt; Sent: Tue, September 14, 2010 5:48:51 AM

>

> & gt; Subject: RE: 1 step forward, 2 steps back

>

> & gt;

>

> & gt; Man, I need to read up on that. I thought they were sort of the same

thing...or at least closely related. I know my son has sulfation issues...

>

> & gt;

>

> & gt;

>

> & gt; From: endofautism@

>

> & gt; Date: Mon, 13 Sep 2010 19:53:58 -0700

>

> & gt; Subject: RE: 1 step forward, 2 steps back

>

>

>

> & gt;

>

> & gt; no, we were so tired of the tantrums and other crap that we gave up on

the tired

>

> & gt; try. Started looking into sulfation, instead of methylation cause our guy

need

>

> & gt; help in the sulfation cycle.

>

> & gt; nancy j

>

>

>

>

>

>

>

>

>

> ------------------------------------

>

>

>

>

[Guest guest]

I would love a copy too! Thank you in advance!

From: sebrown1126a <sarabrown@...>

Subject: Re: 1 step forward, 2 steps back

Date: Thursday, September 16, 2010, 6:50 AM

We figured out sulfation vs. methylation basically by trial and error, and

studying my sons labs for hours.

He responded horribly to methyl-B12 shots. Same with folinic. He got very

aggressive and hyper and over-emotional.

When we addressed sulfation, he made wonderful improvements. We noticed that he

would be very smelly and he didn't seem to be able to detox. Sulfation work

helps that to subside.

Sara

>

> Our major issue was sulfation, not methylation too. We found that GABA, mag

sulfate (epsom salts baths or transdermal cream) and No-Fenol from Houston

helped a lot. Enhansa might have had something to do with it, but I can't be

sure about that one. We also tried other stuff but the things above seemed to be

what made a positive difference.

>

>

>

> Things that made it worse were methyl B-12 shots and folinic acid. Bad, bad

stuff for us...although for kids with methylation issues, it's a godsend.

>

>

>

> Sara

>

>

>

> & gt; ________________________________

>

> & gt; From: Burleson lesburleson@

>

> & gt;

>

> & gt; Sent: Tue, September 14, 2010 5:48:51 AM

>

> & gt; Subject: RE: 1 step forward, 2 steps back

>

> & gt;

>

> & gt; Man, I need to read up on that. I thought they were sort of the same

thing...or at least closely related. I know my son has sulfation issues...

>

> & gt;

>

> & gt;

>

> & gt; From: endofautism@

>

> & gt; Date: Mon, 13 Sep 2010 19:53:58 -0700

>

> & gt; Subject: RE: 1 step forward, 2 steps back

>

>

>

> & gt;

>

> & gt; no, we were so tired of the tantrums and other crap that we gave up on

the tired

>

> & gt; try. Started looking into sulfation, instead of methylation cause our guy

need

>

> & gt; help in the sulfation cycle.

>

> & gt; nancy j

>

>

>

>

>

>

>

>

>

> ------------------------------------

>

>

>

>

[Guest guest]

I would LOVE a copy!!

deb

On Sep 16, 2010, at 10:41 AM, NL wrote:

> I would love to get a copy! Thank you!

>

> Nathalie

>

> From: nancy cook

> Sent: Thursday, September 16, 2010 10:08 AM

>

> Subject: Re: Re: 1 step forward, 2 steps back

>

> Dr. Kartzinel did a report on methylation/sulfation. If anyone wants

> a copy, I can send it. It explains what each are and what works for

> each cycle.

>

> nancy j

>

> a child is diagnosed with

>

> asd every 20 seconds

>

>

>

> From: sebrown1126a <sarabrown@...>

> Subject: Re: 1 step forward, 2 steps back

>

> Date: Thursday, September 16, 2010, 6:50 AM

>

> We figured out sulfation vs. methylation basically by trial and

> error, and studying my sons labs for hours.

>

> He responded horribly to methyl-B12 shots. Same with folinic. He got

> very aggressive and hyper and over-emotional.

>

> When we addressed sulfation, he made wonderful improvements. We

> noticed that he would be very smelly and he didn't seem to be able

> to detox. Sulfation work helps that to subside.

>

> Sara

>

>

>

> >

>

> > Our major issue was sulfation, not methylation too. We found that

> GABA, mag sulfate (epsom salts baths or transdermal cream) and No-

> Fenol from Houston helped a lot. Enhansa might have had something to

> do with it, but I can't be sure about that one. We also tried other

> stuff but the things above seemed to be what made a positive

> difference.

>

> >

>

> >

>

> >

>

> > Things that made it worse were methyl B-12 shots and folinic acid.

> Bad, bad stuff for us...although for kids with methylation issues,

> it's a godsend.

>

> >

>

> >

>

> >

>

> > Sara

>

> >

>

> >

>

> >

>

> > & gt; ________________________________

>

> >

>

> > & gt; From: Burleson lesburleson@

>

> >

>

> > & gt;

>

> >

>

> > & gt; Sent: Tue, September 14, 2010 5:48:51 AM

>

> >

>

> > & gt; Subject: RE: 1 step forward, 2 steps back

>

> >

>

> > & gt;

>

> >

>

> > & gt; Man, I need to read up on that. I thought they were sort of

> the same thing...or at least closely related. I know my son has

> sulfation issues...

>

> >

>

> > & gt;

>

> >

>

> > & gt;

>

> >

>

> > & gt; From: endofautism@

>

> >

>

> > & gt; Date: Mon, 13 Sep 2010 19:53:58 -0700

>

> >

>

> > & gt; Subject: RE: 1 step forward, 2 steps back

>

> >

>

> >

>

> >

>

> > & gt;

>

> >

>

> > & gt; no, we were so tired of the tantrums and other crap that we

> gave up on the tired

>

> >

>

> > & gt; try. Started looking into sulfation, instead of methylation

> cause our guy need

>

> >

>

> > & gt; help in the sulfation cycle.

>

> >

>

> > & gt; nancy j

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> > ------------------------------------

>

> >

>

> >

>

> >

>

> >

[Guest guest]

Hi ,

I would like a copy also.

Thanks

-- Sent from my Palm Pixi

On Sep 16, 2010 11:10, nancy cook & lt;endofautism@... & gt; wrote:

Dr. Kartzinel did a report on methylation/sulfation. & nbsp; If anyone wants a

copy, I can send it. & nbsp; It explains what each are and what works for each

cycle.

nancy j

a child is diagnosed with

asd every 20 seconds

From: sebrown1126a & lt;sarabrown@... & gt;

Subject: Re: 1 step forward, 2 steps back

Date: Thursday, September 16, 2010, 6:50 AM

& nbsp;

We figured out sulfation vs. methylation basically by trial and error, and

studying my sons labs for hours.

He responded horribly to methyl-B12 shots. Same with folinic. He got very

aggressive and hyper and over-emotional.

When we addressed sulfation, he made wonderful improvements. We noticed that he

would be very smelly and he didn't seem to be able to detox. Sulfation work

helps that to subside.

Sara

& gt;

& gt; Our major issue was sulfation, not methylation too. We found that GABA, mag

sulfate (epsom salts baths or transdermal cream) and No-Fenol from Houston

helped a lot. Enhansa might have had something to do with it, but I can't be

sure about that one. We also tried other stuff but the things above seemed to be

what made a positive difference.

& gt;

& gt;

& gt;

& gt; Things that made it worse were methyl B-12 shots and folinic acid. Bad, bad

stuff for us...although for kids with methylation issues, it's a godsend.

& gt;

& gt;

& gt;

& gt; Sara

& gt;

& gt;

& gt;

& gt; & amp;gt; ________________________________

& gt;

& gt; & amp;gt; From: Burleson lesburleson@

& gt;

& gt; & amp;gt;

& gt;

& gt; & amp;gt; Sent: Tue, September 14, 2010 5:48:51 AM

& gt;

& gt; & amp;gt; Subject: RE: 1 step forward, 2 steps back

& gt;

& gt; & amp;gt;

& gt;

& gt; & amp;gt; Man, I need to read up on that. I thought they were sort of the

same thing...or at least closely related. I know my son has sulfation issues...

& gt;

& gt; & amp;gt;

& gt;

& gt; & amp;gt;

& gt;

& gt; & amp;gt; From: endofautism@

& gt;

& gt; & amp;gt; Date: Mon, 13 Sep 2010 19:53:58 -0700

& gt;

& gt; & amp;gt; Subject: RE: 1 step forward, 2 steps back

& gt;

& gt;

& gt;

& gt; & amp;gt;

& gt;

& gt; & amp;gt; no, we were so tired of the tantrums and other crap that we gave

up on the tired

& gt;

& gt; & amp;gt; try. Started looking into sulfation, instead of methylation cause

our guy need

& gt;

& gt; & amp;gt; help in the sulfation cycle.

& gt;

& gt; & amp;gt; nancy j

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt; ------------------------------------

& gt;

& gt;

& gt;

& gt;

[Guest guest]

I'd love a copy. Thanks.

RE: 1 step forward, 2 steps back

>

>

>

> & gt;

>

> & gt; no, we were so tired of the tantrums and other crap that we gave up on

the tired

>

> & gt; try. Started looking into sulfation, instead of methylation cause our

guy need

>

> & gt; help in the sulfation cycle.

>

> & gt; nancy j

>

>

>

>

>

>

>

>

>

> ------------------------------------

>

>

>

>

[Guest guest]

I would love a copy as well. Have never understood how this works.

 

Thanks,

D.

From: sebrown1126a & lt;sarabrown@... & gt;

Subject: Re: 1 step forward, 2 steps back

Date: Thursday, September 16, 2010, 6:50 AM

& nbsp;

We figured out sulfation vs. methylation basically by trial and error, and

studying my sons labs for hours.

He responded horribly to methyl-B12 shots. Same with folinic. He got very

aggressive and hyper and over-emotional.

When we addressed sulfation, he made wonderful improvements. We noticed that he

would be very smelly and he didn't seem to be able to detox. Sulfation work

helps that to subside.

Sara

& gt;

& gt; Our major issue was sulfation, not methylation too. We found that GABA, mag

sulfate (epsom salts baths or transdermal cream) and No-Fenol from Houston

helped a lot. Enhansa might have had something to do with it, but I can't be

sure about that one. We also tried other stuff but the things above seemed to be

what made a positive difference.

& gt;

& gt;

& gt;

& gt; Things that made it worse were methyl B-12 shots and folinic acid. Bad, bad

stuff for us...although for kids with methylation issues, it's a godsend.

& gt;

& gt;

& gt;

& gt; Sara

& gt;

& gt;

& gt;

& gt; & amp;gt; ________________________________

& gt;

& gt; & amp;gt; From: Burleson lesburleson@

& gt;

& gt; & amp;gt;

& gt;

& gt; & amp;gt; Sent: Tue, September 14, 2010 5:48:51 AM

& gt;

& gt; & amp;gt; Subject: RE: 1 step forward, 2 steps back

& gt;

& gt; & amp;gt;

& gt;

& gt; & amp;gt; Man, I need to read up on that. I thought they were sort of the

same thing...or at least closely related. I know my son has sulfation issues...

& gt;

& gt; & amp;gt;

& gt;

& gt; & amp;gt;

& gt;

& gt; & amp;gt; From: endofautism@

& gt;

& gt; & amp;gt; Date: Mon, 13 Sep 2010 19:53:58 -0700

& gt;

& gt; & amp;gt; Subject: RE: 1 step forward, 2 steps back

& gt;

& gt;

& gt;

& gt; & amp;gt;

& gt;

& gt; & amp;gt; no, we were so tired of the tantrums and other crap that we gave

up on the tired

& gt;

& gt; & amp;gt; try. Started looking into sulfation, instead of methylation cause

our guy need

& gt;

& gt; & amp;gt; help in the sulfation cycle.

& gt;

& gt; & amp;gt; nancy j

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt; ------------------------------------

& gt;

& gt;

& gt;

& gt;

[Guest guest]

I would like a copy too. Thank you.

Jen

From: [mailto: ]

On Behalf Of ammattson

Sent: Thursday, September 16, 2010 12:19 PM

Subject: Re: Re: 1 step forward, 2 steps back

I'd love a copy. Thanks.

RE: 1 step forward, 2 steps back

>

>

>

> & gt;

>

> & gt; no, we were so tired of the tantrums and other crap that we gave up on

the tired

>

> & gt; try. Started looking into sulfation, instead of methylation cause our guy

need

>

> & gt; help in the sulfation cycle.

>

> & gt; nancy j

>

>

>

>

>

>

>

>

>

> ------------------------------------

>

>

>

>

[Guest guest]

Me too!

 

________________________________

From: Jennefer Pucylowski <jenny7422@...>

Sent: Thu, September 16, 2010 6:29:47 PM

Subject: RE: Re: 1 step forward, 2 steps back

 

I would like a copy too. Thank you.

Jen

From: [mailto: ]

On Behalf Of ammattson

Sent: Thursday, September 16, 2010 12:19 PM

Subject: Re: Re: 1 step forward, 2 steps back

I'd love a copy. Thanks.

RE: 1 step forward, 2 steps back

>

>

>

> & gt;

>

> & gt; no, we were so tired of the tantrums and other crap that we gave up on

the

>tired

>

>

> & gt; try. Started looking into sulfation, instead of methylation cause our guy

>need

>

>

> & gt; help in the sulfation cycle.

>

> & gt; nancy j

>

>

>

>

>

>

>

>

>

> ------------------------------------

>

>

>

>

[Guest guest]

I would like a copy as well please.

________________________________

From: Jennefer Pucylowski <jenny7422@...>

Sent: Thu, September 16, 2010 12:29:47 PM

Subject: RE: Re: 1 step forward, 2 steps back

I would like a copy too. Thank you.

Jen

From: [mailto: ]

On Behalf Of ammattson

Sent: Thursday, September 16, 2010 12:19 PM

Subject: Re: Re: 1 step forward, 2 steps back

I'd love a copy. Thanks.

RE: 1 step forward, 2 steps back

>

>

>

> & gt;

>

> & gt; no, we were so tired of the tantrums and other crap that we gave up on

the

>tired

>

>

> & gt; try. Started looking into sulfation, instead of methylation cause our guy

>need

>

>

> & gt; help in the sulfation cycle.

>

> & gt; nancy j

>

>

>

>

>

>

>

>

>

> ------------------------------------

>

>

>

>

[Guest guest]

I would love a copy as well.

Thanks so much in advance!!

Kara

>

> >

>

> > Our major issue was sulfation, not methylation too. We found that GABA, mag

sulfate (epsom salts baths or transdermal cream) and No-Fenol from Houston

helped a lot. Enhansa might have had something to do with it, but I can't be

sure about that one. We also tried other stuff but the things above seemed to be

what made a positive difference.

>

> >

>

> >

>

> >

>

> > Things that made it worse were methyl B-12 shots and folinic acid. Bad, bad

stuff for us...although for kids with methylation issues, it's a godsend.

>

> >

>

> >

>

> >

>

> > Sara

[Guest guest]

, I would love a copy Do you need my e-mail adress? Or are you smarter

than me and can actually figure out how to get it of the site? ha ha ha ha

[Guest guest]

I would love a copy, thanks!

>

> Dr. Kartzinel did a report on methylation/sulfation.  If anyone wants a copy,

I can send it.  It explains what each are and what works for each cycle.

>

> nancy j

>

>

>

>

[Guest guest]

I would love a copy. My email address is tkb1922@...

Thanks

Tisha

Sent from my Verizon Wireless BlackBerry

Re: 1 step forward, 2 steps back

I would love a copy, thanks!

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> Dr. Kartzinel did a report on methylation/sulfation.  If anyone wants a copy,

I can send it.  It explains what each are and what works for each cycle.

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> nancy j

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[Guest guest]

I would also like a copy. My email address is pauliegirl1@comcast/.net

Thank you so much!!

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> Dr. Kartzinel did a report on methylation/sulfation.  If anyone wants a copy,

I can send it.  It explains what each are and what works for each cycle.

>

[Guest guest]

Please also send it my way. Thanks,

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> > Dr. Kartzinel did a report on methylation/sulfation.  If anyone wants a

copy, I can send it.  It explains what each are and what works for each cycle.

> >

> > nancy j

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