Re: Help with natural cure for childhood Epilepsy...

[Guest guest]

I would suggest books by the Bragg family. and .

________________________________

From: Kehring <gizbaby123@...>

gizbaby123@...

Sent: Saturday, November 1, 2008 7:21:19 AM

Subject: Help with natural " cure " for childhood Epilepsy...

Since you all have been such a help with other issues in my life I'm turning to

you in hopes someone out there can help me with this issue.  While my membership

is pending with the child-epilepsy group I would like to ask you about the

following: my step-DD is almost 9 yrs old.  Other than this epilepsy issue that

showed itself a little over a year ago she is a normal healthy child. 

Her seizures do not happen often and are not very severe.  In fact she's only

had 3 seizures during a 1 1/2 year period and when she does have a seizure she

becomes unresponsive, talks out of order, blanks out, and body stiffens.

The doc last year put her on something called Lamitsal (sp?).  She was on the

meds for 1 year and did not have a seizure while on the meds.  However, 6 months

off of the meds she just had a seizure again.  The doc is advising to put her on

the meds again and try

for another year...in hopes the meds will make it go away. 

He believes she has a mild case of childhood epilepsy that in most instances

will go away has she ages.  All the testing done shows that she is having

seizures but, oh geez, can't remember...the test was over a year ago...so please

excuse me...I think something about its there but not as bad.  Sorry, I'll have

to get back to you about the test results from last year. 

The problem I have is with the meds being used.  I did research on this med and

it is also used for bi-polar disorders.  DD is different on the meds...her

mood...she is seemingly depressed.  When told of the news she must go back on

the meds she began to cry and said they " made her feel different " and did not

want to feel that way. 

Has anyone encountered this type of situation with epilepsy and their, otherwise

" NT " child, and if so were there any other meds that worked better or a

homeopathic route?  Please, it would be much appreciated if you could share your

story and what did or didn't work for you or your child.  I understand and

respect your privacy and some information is sensitive, if  it makes you feel

more comfortable please, if you wish please email me privately.

DD & our family TYIA (thank you in advance)!

[Guest guest]

If your child is crying about going on a med for a mild case of

epilepsy, I'd listen to her. How severe, if she'll grow out of it,

does she really need to be medicated? Is there another med that is

milder, different for her? The medicine will NOT cure her, which is

what the doc seems to be saying. That will not happen. Do you have a

really good DAN doctor or really good chiropractor in your area? I'd

see him and get some urine/saliva tests done. They can prescribe

supplements that might help and heal. Lamictal is not a crazy bad

drug, but its not a good one either (none of them are). I would not

have my kid on drugs unless it was ABSOLUTELY necessary. That's just

me. Namaste, Arlynn

[Guest guest]

I have no background with seizures - but if she were my daughter, I'd listen

to her instincts about the med not being right for her. There are plenty of

other options such as the ketogenic diet.

-Lana

On Sat, Nov 1, 2008 at 7:21 AM, Kehring <gizbaby123@...>wrote:

> The problem I have is with the meds being used. I did research on this med

> and it is also used for bi-polar disorders. DD is different on the

> meds...her mood...she is seemingly depressed. When told of the news she

> must go back on the meds she began to cry and said they " made her feel

> different " and did not want to feel that way.

[Guest guest]

,

Lamictil is a dangerous med, I think. My daughter (15 yrs/seizures &

ADD) has had seizures since she was 2 1/2 yrs and has been on various

meds since she was 5. She was on Lamictil for a while but they have

to screen for liver damage (which makes me nervous) and she had a

rash so the WHISKED her off it (some danger, I guess). Now she has

been on Carbamazepin (200 mg x twice daily) for many years and she

can tell of no side affects. 's seizures were worse and more

frequent than your daughter's.

My goal is to get off the meds entirely. My son has Aspergers

Syndrome and I believe he has lost his diagnosis with all the

treatments (supplements, enzymes, HBOT, etc) that we have done and I

believe that Les' seizures are part of her autism spectrum disorder.

I read the book, Recovering Autistic Children by Edelson & Rimland

(from autism.com) and many of those kids had seizures. They were

treated with various supplements including DMG and Vit. 6/magnesium

and many improved. I believe Les has mercury in her brain, and also

her small intestine is not metabolizing food correctly to get the

right nutrients to her brain. So this is the direction that we are

working.

sally

>

> Since you all have been such a help with other issues in my life

I'm turning to you in hopes someone out there can help me with this

issue.  While my membership is pending with the child-epilepsy

group I would like to ask you about the following: my step-DD is

almost 9 yrs old.  Other than this epilepsy issue that showed itself

a little over a year ago she is a normal healthy child. 

>

> Her seizures do not happen often and are not very severe.  In fact

she's only had 3 seizures during a 1 1/2 year period and when she

does have a seizure she becomes unresponsive, talks out of order,

blanks out, and body stiffens.

>

> The doc last year put her on something called Lamitsal (sp?).  She

was on the meds for 1 year and did not have a seizure while on the

meds.  However, 6 months off of the meds she just had a seizure

again.  The doc is advising to put her on the meds again and try

> for another year...in hopes the meds will make it go away. 

>

> He believes she has a mild case of childhood epilepsy that in most

instances will go away has she ages.  All the testing done shows that

she is having seizures but, oh geez, can't remember...the test was

over a year ago...so please excuse me...I think something about its

there but not as bad.  Sorry, I'll have to get back to you about the

test results from last year. 

>

> The problem I have is with the meds being used.  I did research on

this med and it is also used for bi-polar disorders.  DD is different

on the meds...her mood...she is seemingly depressed.  When told of

the news she must go back on the meds she began to cry and said

they " made her feel different " and did not want to feel that way. 

>

> Has anyone encountered this type of situation with epilepsy and

their, otherwise " NT " child, and if so were there any other meds that

worked better or a

> homeopathic route?  Please, it would be much appreciated if you

could share your story and what did or didn't work for you or your

child.  I understand and respect your privacy and some information is

sensitive, if  it makes you feel more comfortable please, if you wish

please email me privately.

>

> DD & our family TYIA (thank you in advance)!

>

>

>

>

>

>

>

>

[Guest guest]

Just saw this on the autism Mercury Group:

>

> Since you all have been such a help with other issues in my life

I'm turning to you in hopes someone out there can help me with this

issue.  While my membership is pending with the child-epilepsy

group I would like to ask you about the following: my step-DD is

almost 9 yrs old.  Other than this epilepsy issue that showed itself

a little over a year ago she is a normal healthy child. 

>

> Her seizures do not happen often and are not very severe.  In fact

she's only had 3 seizures during a 1 1/2 year period and when she

does have a seizure she becomes unresponsive, talks out of order,

blanks out, and body stiffens.

>

> The doc last year put her on something called Lamitsal (sp?).  She

was on the meds for 1 year and did not have a seizure while on the

meds.  However, 6 months off of the meds she just had a seizure

again.  The doc is advising to put her on the meds again and try

> for another year...in hopes the meds will make it go away. 

>

> He believes she has a mild case of childhood epilepsy that in most

instances will go away has she ages.  All the testing done shows that

she is having seizures but, oh geez, can't remember...the test was

over a year ago...so please excuse me...I think something about its

there but not as bad.  Sorry, I'll have to get back to you about the

test results from last year. 

>

> The problem I have is with the meds being used.  I did research on

this med and it is also used for bi-polar disorders.  DD is different

on the meds...her mood...she is seemingly depressed.  When told of

the news she must go back on the meds she began to cry and said

they " made her feel different " and did not want to feel that way. 

>

> Has anyone encountered this type of situation with epilepsy and

their, otherwise " NT " child, and if so were there any other meds that

worked better or a

> homeopathic route?  Please, it would be much appreciated if you

could share your story and what did or didn't work for you or your

child.  I understand and respect your privacy and some information is

sensitive, if  it makes you feel more comfortable please, if you wish

please email me privately.

>

> DD & our family TYIA (thank you in advance)!

>

>

>

>

>

>

>

>

[Guest guest]

Epilepsy is related to food allergies. What kind of testing have you done?

IgG? Stress Assessments? You need to find out if she's allergic to gluten.

Epilepsy/celiac are related.

let me know. cath