Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 > > > > My son (age 3/pdd-nos/dyspraxia) was recently diagnosed with fat and > > sugar malabsorbtion. > > > My son had fat malabsorption. It was caused by mitochondrial > dysfunction. I wrote what he needed to correct this problem here > > http://www.danasview.net/mar05.htm > > Dana > Dana, can fat malabsorption lead to heartburn and gastritis? My son seems to be having these 2 issues lately and has been having yellowy fatty stools. His lipid peroxides are high and they suggested Cq10. He also needs carnitine and b2. He is on hydroxy B12 shots. You have said previously that B12 can knock down B2? Also I don't think my son is tolerating his probiotics. Why is it that some kids can't tolerate bifido species again? He seems to start being silly after having them and won't eat and then starts a silly biting game. And he knows he is not supposed to do it so he says " no " before he even does it. We are supposed to redirect and ignore it but I have awful bruises from it. He also bites himself once in a great while and I got a note sent home about it at school. He is also on Nizoral for yeast. He was on Pentasa (amino salicylate acid) for his gut inflamation but that made his stools foamy and yeastier smelling. He doesn't want to eat much of anything lately. He seems to have a lot of gas. I am so upset that we spent so much money on his colonoscopy/endoscopy and nothing seems to help him. He won't eat in the am either. I think I am going to try just a hypoallergenic type of acidolphilus. His inflamation is in the terminal illeum. With some showing up in stomach and esophogus. Could lack of folic acid cause decrease in appetite? Thanks for any info- I am about ready to throw in the towel. I don't even know what diet he should be on anymore. Wanda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 > Dana, > can fat malabsorption lead to heartburn and gastritis? Yes, altho so can other things. > My son seems to be having these 2 issues lately and has been having > yellowy fatty stools. Also try adding a high lipase enzyme. >> His lipid peroxides are high and they suggested > Cq10. He also needs carnitine and b2. CoQ10 and Carnitine are part of mito cocktail. You can read the other ingredients here http://www.danasview.net/mar05.htm >> He is on hydroxy B12 shots. You > have said previously that B12 can knock down B2? I remember someone else saying that, not me. My kids needed carnitine and folic acid with B12. >> Also I don't think my > son is tolerating his probiotics. Why is it that some kids can't > tolerate bifido species again? My son also did not tolerate probiotics. I don't really know why. I gave him biotin instead, which worked very well. >>Could lack of folic acid > cause decrease in appetite? I don't know, it caused other issues for my kids. I know zinc deficiency can cause lack of appetite. So can taking B vitamins and EFAs without mito cocktail. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 > Dana, > if you check out my last reply to you - I just had a thought that this > must be a corn allergy my son is having. Enzymes did not help my son with corn, only ALA chelation and a few supplements eliminated that problem. > stuffy nose, This was food intolerance for me. >> his nizoral contains zanthan gum which I now know peope > with corn sensitivity have. His juice has citric acid (is this > different from ascorbic acid?) Most commercial citric acid is made from corn. >>I need to find a complete list of things that > contain corn so we can try to avoid them but I don't know a good > source do you? Try this site http://www.cornallergens.com/ >> Does this sound like corn allergy to you? Very possibly. >>Did corn make your > children have fermented smelling BM's? Not that I recall. It affected them only mentally/behaviorally, not so much physically. >>Also after giving the > nizoral my son does a lot of hand waving in front of eyes. Did corn do > this to your kids? Yep, but then so did a few other things. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 In a message dated 04/10/2007 03:55:58 GMT Standard Time, dalywanda@... writes: Thank you for telling me about the folic acid. His lips have been cracked and burning. >>>In this house that responds quickly to high dose vitamin B2. I use NOW brand 100mg HTH Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 --- In , " danasview " > > > Thank you for telling me about the folic acid. His lips have been cracked and burning. Rubbing them on things. I have noticed hangnails and nails that rip off easily. And a biting thing lately. possibly burning in feet and hands because he is stomping alot. The Gastro said his folate was fine but that may be because he had some recently but other tests have said his figlu was high meaning the need for folic acid and also genetic testing has suggested using methyltetrahydrofolate or something like that. 5 MTHF. I will look into that too. Thanks for the corn allergy web site. I think my son is experiencing heartburn. We talked to our first gastro today and he wants him on zantac and mesamalanine (but personally I don't think this will work on him) Then our second opinion said to put him on the Creon 20 enzymes and try to use benefiber with him. What do you think about the 2nd opinion? Just out of curiosity. I'm scared the benefiber might not work with him but it sure beats using miralax or something like that. That stuff is so bad for you and some of the stuff in it I think also contains corn from reading the corn allergy website. Thank you so much. Wanda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 > > Thank you for telling me about the folic acid. His lips have been > cracked and burning. Rubbing them on things. I have noticed hangnails > and nails that rip off easily. Folic definitely helped at my house for those issues. Hangnails were also vitamin C deficiency. >>We talked to our first gastro today and he > wants him on zantac and mesamalanine (but personally I don't think > this will work on him) Then our second opinion said to put him on the > Creon 20 enzymes and try to use benefiber with him. What do you think > about the 2nd opinion? I would definitely go toward the naturals before I would try the medications. So I like the second opinion. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2007 Report Share Posted October 7, 2007 --- In @.... > Hi Dana, We are trying the creon enzymes with him. Somewhere I thought I read that phenol sensative people may have a problem with pork derived enzymes or secretin. Is this true? Is there a sulfer component to this type of enzyme? He is acting sillier than normal with the enzymes. I don't know if they are just creating more die off or if he isn't tolerating them. He has a big red circular rash around his anus now too. But, his BM is a little darker in color. I don't know if that means anything. If you have any answers or know where I can find them let me know. Thanks, Wanda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 >>My question to you is this - How does one get > started with enzymes? Should I see a doctor first? If not, how do I > choose what to give him and in what amounts? Please advise. Lots of good info here http://www.enzymestuff.com/ I used HNI http://www.houstonni.com/ No doctor required. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 >>My question to you is this - How does one get > started with enzymes? Should I see a doctor first? If not, how do I > choose what to give him and in what amounts? Please advise. Lots of good info here http://www.enzymestuff.com/ I used HNI http://www.houstonni.com/ No doctor required. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Some of those enzymes for kids are not strong enough. That company may be good, but I would up the kiddie doseage if you don't see results. See also: _www.houstonni.com_ (http://www.houstonni.com) or _www.kirkmanlabs.com_ (http://www.kirkmanlabs.com) Heidi N ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2007 Report Share Posted November 12, 2007 > > My son is 3 years old and we are trying the gfcf diet... the problem > is that he doesnt like any of the food. Before we started the diet > the only thing he would eat is chicken nuggets and pot pies and > sometimes a pancake. So once we started the diet he was down to only > eating the chicken nuggets. I have read online somewhere that enzymes > do the same thing as the diet. Does anyone know any helpful > information on this. My child is starving himself. My son left gfcf with HNI enzymes http://www.houstonni.com/ This is a good site on enzymes http://www.enzymestuff.com/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2007 Report Share Posted December 16, 2007 www.enzymestuff.com is a great site for getting started. > > I am new here and also to the world of enzymes. I have 4 boys ranging in > ages twenty two to four yrs old, none of whom are autistic,except we suspect > aspergers in my twenty yr old second son. I believe my oldest has always had > yeast issues, I just didn't know what it was called or what to do about it. He > is a very picky eater and only likes most of the yeast ridden foods (peanut > butter,bread,fast food, etc) My two youngest are not autistic but seem to be > abnormally aggressive and irritable. My question is how do I know what to do for > each of them. Also,the oldest is away at college so I don't have control over > his diet. Any ideas there would be appreciated. TIA. > > > > susan > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2008 Report Share Posted July 26, 2008 > > Hallo All > I am fairly new to Enzymes but have been giving my 5yr old ASD son > kids digest from enzymedica. > Is this a reasonable produst to start with? > We have also been giving him an Ultradophilus probiotic. > He is casien free but I would like to get him back on casien if > possible. > The choice of enzymes seems to be a bit bewildering for me at the > moment. > I would be grateful for any advice. > > Kenny > Sorry I posted this before on a heading already in circulation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Hi Kenny Kid's Digest is a good place to start off with. Obviously the best treatment for gluten or casein intolerance is to remove the offending foods from the person's diet. But if you do not want to do this, you can try taking an enzyme formula that contains DPP-IV along with other proteases. This will digest and assimilate the offending proteins. It also heals the gut, reduces inflammation, allows the proteins to be properly absorbed in their digested state, and broadens the amount of food a person may eat. Enzymedica makes a great product called GlutenEase. It has Enzymedica is the same company that makes Kid's Digest. If you would like any samples of this product or if you have ANY questions, please let me know. Alessandra Enzymedica's Education Department enzymedica.com > > > > Hallo All > > I am fairly new to Enzymes but have been giving my 5yr old ASD son > > kids digest from enzymedica. > > Is this a reasonable produst to start with? > > We have also been giving him an Ultradophilus probiotic. > > He is casien free but I would like to get him back on casien if > > possible. > > The choice of enzymes seems to be a bit bewildering for me at the > > moment. > > I would be grateful for any advice. > > > > Kenny > > > Sorry I posted this before on a heading already in circulation. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Most of the adjustments, I think, have been from the probiotics. We started both at the same time and I think most of what we have seen is yeast related. I started the boys (3 and 4yrs) out with 1/2 Trienza at each meal, none yet at snacks. 1/2 kids chewable probiotic from Houston. I was also giving them 1/2 OLE first thing in the morning, but cut that out. The week we started, one son was just about over a virus and then the other one suddenly got it (or else it was made worse with the yeast die-off and OLE trying to fight the virus). He got pretty sick, so I cut back on everything for him for a bit. Now they are taking 1 Trienza prior to beginning each meal (mixed in juice). Then a full kids probiotic after the meal. The boys are taking Yummi Bears multi vitamins and I've been giving them a liquid magnesium citrate, calcium citrate, Vitamin D mixture. I think I will be replacing that with Natural Calm (w or w/o calcium not sure yet). I think they need more magnesium, especially to help with the BMs. My oldest is pretty bad about taking new foods, but so far all the vitamins/supplements we have tried, he's done okay with. > > Thank you for sharing your view. My son is already on probiotics, but > its the Nature's Plus Kidz AcidophiKidz, and Im not sure if there are > better ones he could be taking??? With the Trienza, have you noticed > any of the adjustment side effects in Defelice's book? How low of > a dose did you start with, and was it once a day or each meal. Im going > to reread her book about the yeast issues, thanks for brining that up. > Also, what other vitamins & supplements do you add? takes > Flintstones Chewable w/ extra C, which I know arent the best, but the > only ones he will take willingly. Thanks for your help!! Robin > > > > I'm only on week2 of enzymes, but I can give you a beginner's view. > > My son is very similar about not eating much, mainly processed and > > mainly starches. We also have a problem with constipation (or feeling > > like he's constipated even when he goes), gas, bloating, etc. Have > > you looked into or read about yeast issues? I would say to think > > about adding probiotics as well. I read Enzymes for Autism and other > > Neurological Conditions by DeFelice for most starting out info. > > I went with a broad enzyme (Trienza) to start and probiotics. We are > > starting low, decreasing and increasing doses as needed and adding > > vitamins or other supplements as I see the need. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 > > Hello! I am so thankful I found this group, as I have just started > looking into enzymes. Ive tried to post this a couple days ago, but it > never showed up on the posts. I really want to try my 10 yo old AS son > on Enzymes, but have no idea where to start! Is there any specific ones > that have worked well for any of you? I used HNI with much success http://www.houstonni.com/ Dana Quote Link to comment Share on other sites More sharing options...
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