hi!

[Guest guest]

Renay,

Did you see the post about Dr. Lehman's website? We mentioned it to our Ped.

Rheum. Dr. Sanborg at Stanford and she said she went school with him... small

world! I think that you are fortunate to be able to see him! I have heard

that Lyme Disease is often mis diagnosed as JRA. That's actually how it was

discovered; by a Mom who was suspicious of the many children diagnosed with

JRA in her town: Lyme, Conn. (Hope all of my facts are straight!) Anyway,

she researched for about 6 years and finally proved to the Docs that there

was something besides JRA causing these symptoms in the children. We have

never had our son tested for Lyme's but it is a nagging question for us; I

guess it's a matter of denial or hope... there are a few circumstances that

even cause more of a question but we don't want to draw more blood than we

have to; so we'll do a test when we do more bloodwork - that's the worst!

Especially when they're so young!

Well, I hope for your sake and 's that you get some answers and a sure

diagnosis. That can be so frustrating! Our experience was about 1-2 months

w/out a diagnosis and 9 days in the hospital! It seems like forever ago and

it was just Nov. '98....

-Suzie

[Guest guest]

Hello Renay,

It does sometimes seem really difficult for the doctors to try to make an

accurate diagnosis when a lot of times the symptoms are overlapping. The

fever, rash, and swollen, painful joints sound a lot like the symptoms my son

gets. He hasn't had the nausea and vomiting, red eyes or purple spots,

though. His blood work, from the very first instance, has always showed an

elevated SED rate and white blood cell count, though. The first type of

treatment they gave, when his symptoms presented, was antibiotic therapies.

Several different kinds. These had no effect for him. His symptoms actually

worsened.

We kept seeing the regular pediatricians every couple of days for 2 weeks and

then we went to the emergency room one night, when his fever went really

high. He had no appetite, wasn't walking anymore, was extremely fatigued, had

weight loss and was complaining of lots of pain throughout his body. They

gave him an injection of antibiotic, prescribed an NSAID and took some blood.

The next day we went back to the pediatrician and they put my son in the

hospital for two weeks. They did spinal taps, MRI's, CT scans, bone scans,

and lots of blood tests. They started ruling out bacteriological infections,

illnesses like luekemia, Lyme disease, etc. They hooked him up to an IV for

rehydration and nourishment. They saw the spiking fevers as high as 106.7

degrees, twice a day, and the classic still's rash. As soon as they started

prednisone, my son started improving. Within 8 days he was actually able to

walk again, with a walker. Upon his discharge, we had to fly off-island to a

major medical center. We met with Dr. Kurahara, a pediatric

rheumatologist, who after looking at his hospital charts and medical records,

checked the condition of his joints and made the diagnosis of systemic

juvenile rheumatoid arthritis. So, for us, it took only about a month of

uncertainty before the diagnosis.

I'm glad to hear that is not in pain. She is fortunate, then. I hope

the swelling in her knees isn't causing any underlying joint deterioration.

Since there are so many varying types of rheumatological illnesses, I think

it's a great idea that you're going to see a well-respected specialist in the

field. I hope the appt is beneficial and provides some answers. Let us know.

If you remember, ask the doctor about the glucosamine supplements and let us

know what he says. I'd be curious to hear his opinion on them.

Keep Well!

~Georgina

[Guest guest]

My thoughts and prayers are with both you and your daughter. I hope soon you

will both have some good news in fighting this disease.

Charlene (chychysmom)

[Guest guest]

i understand what you said

was so active up until feb 2000

then she went straight to a wheelchair from that to a cast then crutches

then braces and now nothing until her next episode or when i know shes out

playing

rough which is not often when she starts back to school i will have to

remind her the braces go on till she gets home

i know these kids miss the running and playing

but if they are doing ok

as with i tell her if she feels up to it go for it

yesterday was a great day she was out most of the day playing

ACTUALLY PLAYING lololol i sat there and watched her and smiled

she was playing baseball and kicking the ball she fell and scraped her

knee

my heart dropped she got up and walked i asked if she was ok she said yes

mom

lololol she went on and played

but today she has mostly layed around

they have their good days and bad

and i have gotten to where i enjoy watching her and really cherish the days

she runs

but bad days i tell her she will get out and do it again

we have to keep their spirits up

Robbin

[Guest guest]

Dear , Yes, I am from Oregon, specifically, Portland. I can just take

a moment here, as I am off to Seattle to see my sick father. My daughter,

is 11 with systemic JRA. I am working with Doernbeckers and the Arthritis

foundation to start a parents network. Which doctor do you see? There is

now a new one moving into Portland at Emanuel. His name is Dr. Dan

Kingsbury. I will write more later, when I get to Seattle. Take care.

>From: " Stutzman " <stutzman@...>

>Reply- egroups

> egroups

>Subject: Hi!

>Date: Sat, 05 Aug 2000 05:42:19 -0000

>

>I have been enjoying reading everyone's messages the past month and

>have learned a great deal. I thought I'd take a momment to share a

>little about my daughter, Tori.

>

>Tori turned 5 2 weeks ago and developed systemic jra just before her

>third birthday. She was a child afraid of nothing - climbing up a

>ladder at 10mo. of age to her great gramma's roof. Now she is afraid

>of everything that's even a little out of the routine. The jra

>affects her ankles, knees, hips and wrists on both sides. In the

>past 2 years we've had 2 months (last Dec. & Jan.)where she seemed

>free of pain and " back to normal " . She has been on naprosyn,

>methotrexate, prednisone, folic acid and we added enbrel 3 months ago

>as things continue to get worse. She has had fevers continue since

>Feb. and the rash comes and goes. The enbrel has helped very little

>so far, but we hope when the fevers subside maybe we'll see a

>difference. We saw her rheumatolgist yesterday. We thought she

>hadn't been having any side effects from the drugs, but when I

>mentioned she kept getting little sores on her face which were

>creating scares and that she won't engage in any fun kid like

>activities which would create scrapes he said it was due to the

>naprosyn which she's been on for the past 2 years. He says in time

>being off the naprosyn the scares will fade and switched her to

>ibprophen for now. He also uped her pred. to 6mg/day in hopes to

>increase her appetite and stop the fevers. She's 30lbs. 37 inches

>tall and hasn't gained weight in 2 years. It doesn't help that her

>favorite foods are cucumbers and celery and that she doesn't like

>junk food or things with sugar - strange child!

>

>I think the hardest part is having her younger brother who just

>turned 2 doing all the thing she used to do and dealing with the

>memmories of when she did all those " active " things. He is just 2

>inches shorter than her and weighs the same as her. (At least their

>weights balance out on both sides when I have to carry them!!!)

>

>She is excited about starting school this year but worries about what

>it's all going to entail even though she's gone to preschool. Thanks

>for the Teacher info. & I'm checking into 504plans. (Tori has very

>little energy when it comes to moving.)

>

>Thanks to everyone who shares. It has been great to see many of my

>thought and worries in you letters. Is anyone out there from Oregon?

>I need to look into the local chapter and find other kids with jra

>for Tori to meet. I'll stop rambling now. It's been great " getting

>to know you " !

>

>

>

>

>

>

>For links to websites with JRA info visit:

>http://www.geocities.com/Heartland/Village/8414/Links.html

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Georgina,

You mentioned Josh not limping and walking down the stairs sideways anymore,

and getting out of bed alone... these are a few things Kelsey has

accomplished since she was diagnosed in April, which are great

accomplishments considering the shape she was in then. Kelsey used to be

very slow moving, if mobile at all, in the mornings, and now to see her get

out of bed, use the potty, etc all by herself, and with no tears, is like

watching a baby take its first steps all over again or something. Little

things we used to take for granted are very appreciated now!

I'm in a state of paranoia right now because my 8 year old daughter has a

pretty nasty cold, (just in time for school to start, by the way) and I'm so

afraid Kelsey will get it and end up in a flare again. She's doing so well

right now, I hate the thought of her getting sick and flaring. I've been

cleaning, lots of hand washing and spraying lots of Lysol! lol About all I

can do, I guess.

Anyway, glad Josh is doing well and I hope things stay that way!!! Take

care,

[Guest guest]

Hi ,

I just now got to read your message, which really touched my heart. Yes,

I can understand the feelings you have. I've been there, too. My son was

a little older when he got systemic JRA. He had just turned 6. His was

very aggressive and active arthritis, like your daughter's sounds to be.

With Josh, he's had lots of different joints affected. It seemed to

travel around, instead of settling for any length of time in one or two

particular joints. He's taken many of the same meds, too. We haven't

tried enbrel, though. Finally, it seems like things have gotten under

control. There was a huge difference when we switched from oral to sub-q

methotrexate. I'm not exactly sure that that's what caused the major

improvement. Could have just been the passage of time, I suppose. But

for us, it has definitely gotten much easier to deal with over time. My

son was diagnosed almost 5 and a half years ago. Things are looking

pretty good at this point.

Well, still have some ups and downs. Last week on Saturday Josh woke up

and came downstairs to the living room. Note: he no longer needs help to

get up or down the stairs or even just to sit up in bed, and doesn't

limp anymore or walk down the stairs sideways anymore Anyway, he sat

down and told me that he had his rash again. With the saddest look in

his big, brown eyes. A look of more than just disappointment. More like

being scared that it was all gonna' start over again, like it has many

times in the past. The warning belss rang. Took his temperature. No

fever He did have soreness in his legs though. He rested a little bit

and we figured we could just wait and see what happened.

Well, the next day he woke up with a stuffy nose and cold. Others here

have mentioned that too, that if their child gets sick in some minor

way, that they often have an increase in their JRA symptoms. I was a

little worried. Sometimes even just a regular cold has seemed to lead to

a flare up. This time, though, it was just minor. In a couple days, he

seemed all better already. And I was so grateful! So was Josh! Parents

who don't deal with all this kind of stuff would never even understand.

It seems like because of our past experience, I get into a certain

emotional mode of let's see what happens because of this and what we can

do, immediately, to make the best of it. It's like an emergency response

team preparing in case of a hurricane. Getting ready, in whatever ways

we can to divert it but knowing full well that there's really nothing we

can do beforehand. Just have to wait it out and pick up the pieces,

later. Hmmm ... how did I get there? Oh. Josh getting a cold Well,

his cold is better. His arthritis still seems okay. But I'm ever

vigilant, just in case.

My son has (unfortunately) needed long term steroids, as part of the

treatment plan. Whenever we raise the dose, his appetite picks up and he

eats like a horse. Best to offer lots of small meals/snacks throughout

the day, I think. I know how you feel about the size issue. My younger

daughter is quite a few inches taller than my son. About the same

weight, though. She's lean, with lots of muscle. He's not so plump as he

used to be when taking really high doses of prednisone, but he still has

the rounded face, love handles, and some chubbiness around his tummy

area. But so do I. And I don't take steroids I keep thinking that

maybe if his arthritis stays stable, and we can continue to decrease

VERY SLOWLY the steroids, that maybe he'll have a growth spurt and have

some normal growth. Only time will tell. Well, isn't that true about

just about everything?

, I hope things will start improving more for your daughter, soon.

Hang in there. We'll be here, whenever you want to share what's going

on. Some of us, like me, take a bit of time before we catch up with the

news sometimes, but we're a friendly group of people who do understand

what you're going through and will try to help however we can.

Good to meet you,

Aloha,

Georgina (in Hawaii)

Stutzman wrote:

>

> I have been enjoying reading everyone's messages the past month and

> have learned a great deal. I thought I'd take a momment to share a

> little about my daughter, Tori.

>

> Tori turned 5 2 weeks ago and developed systemic jra just before her

> third birthday. She was a child afraid of nothing - climbing up a

> ladder at 10mo. of age to her great gramma's roof. Now she is afraid

> of everything that's even a little out of the routine. The jra

> affects her ankles, knees, hips and wrists on both sides. In the

> past 2 years we've had 2 months (last Dec. & Jan.)where she seemed

> free of pain and " back to normal " . She has been on naprosyn,

> methotrexate, prednisone, folic acid and we added enbrel 3 months ago

> as things continue to get worse. She has had fevers continue since

> Feb. and the rash comes and goes. The enbrel has helped very little

> so far, but we hope when the fevers subside maybe we'll see a

> difference. We saw her rheumatolgist yesterday. We thought she

> hadn't been having any side effects from the drugs, but when I

> mentioned she kept getting little sores on her face which were

> creating scares and that she won't engage in any fun kid like

> activities which would create scrapes he said it was due to the

> naprosyn which she's been on for the past 2 years. He says in time

> being off the naprosyn the scares will fade and switched her to

> ibprophen for now. He also uped her pred. to 6mg/day in hopes to

> increase her appetite and stop the fevers. She's 30lbs. 37 inches

> tall and hasn't gained weight in 2 years. It doesn't help that her

> favorite foods are cucumbers and celery and that she doesn't like

> junk food or things with sugar - strange child!

>

> I think the hardest part is having her younger brother who just

> turned 2 doing all the thing she used to do and dealing with the

> memmories of when she did all those " active " things. He is just 2

> inches shorter than her and weighs the same as her. (At least their

> weights balance out on both sides when I have to carry them!!!)

>

> She is excited about starting school this year but worries about what

> it's all going to entail even though she's gone to preschool. Thanks

> for the Teacher info. & I'm checking into 504plans. (Tori has very

> little energy when it comes to moving.)

>

> Thanks to everyone who shares. It has been great to see many of my

> thought and worries in you letters. Is anyone out there from Oregon?

> I need to look into the local chapter and find other kids with jra

> for Tori to meet. I'll stop rambling now. It's been great " getting

> to know you " !

>

>

[Guest guest]

Hi ,

Thanks. Yup, I start spraying lysol on all the surfaces here, too. The

'country fresh' scent It always makes me start worrying all over

again, when even a simple cold comes too close. But you're right. I

definitely appreciate more the simple kinds of things that most people

take for granted. Things that we used to take for granted!

I hope Kelsey doesn't get sick. That would be a bummer, right before

school starts. Well, anytime at all, really.

Take care,

Georgina

imshellrenee@... wrote:

>

> Georgina,

>

> You mentioned Josh not limping and walking down the stairs sideways anymore,

> and getting out of bed alone... these are a few things Kelsey has

> accomplished since she was diagnosed in April, which are great

> accomplishments considering the shape she was in then. Kelsey used to be

> very slow moving, if mobile at all, in the mornings, and now to see her get

> out of bed, use the potty, etc all by herself, and with no tears, is like

> watching a baby take its first steps all over again or something. Little

> things we used to take for granted are very appreciated now!

>

> I'm in a state of paranoia right now because my 8 year old daughter has a

> pretty nasty cold, (just in time for school to start, by the way) and I'm so

> afraid Kelsey will get it and end up in a flare again. She's doing so well

> right now, I hate the thought of her getting sick and flaring. I've been

> cleaning, lots of hand washing and spraying lots of Lysol! lol About all I

> can do, I guess.

>

> Anyway, glad Josh is doing well and I hope things stay that way!!! Take

> care,

>

>

[Guest guest]

Hi Marilyn,

Let us know the lab results when you get them. It rather sounds like a food

intolerance, especially since you're mentioning headaches and bloating too.

It would be good if you found a doctor who would run tests to check for

common food intolerances. Or you could try reading up on elimination,

rotation diets. With your history of autoimmune thyoid disease, gluten

sensitivity or wheat intolerance comes to mind, but there are many food and

chemical intolerances. Trying to control a child's diet can be a real hassle

but if it keeps her well it's certainly worth a try.

[Guest guest]

> Hi Marilyn,

This may not be of help, but my son got a stomach flu in

December and after it was gone developed nausia decreased apetite,and

some dizziness too. I gave him oil of oregano and it gave him relief.

It has a quite hot taste, but he would ask for it daily for about a

week then didn't want it any more. He hasn't had a reoccurance yet.

Joan

[Guest guest]

Her stool exam showed giardia. I don't know where and

when she got it but I suspect that when I brought her

to the doctors two years ago she already has this as

the stomach pain and nausea are recurring but with no

diarrhea. The doctors ruled out parasites, she had an

abdominal x-ray too, which was unnecessary now that I

have the causative agent for her discomforts. To think

that if she was properly diagnosed, she could have

been freed from the pains and I wouldn't have had

endless worries.

The medtechs must have had a feast day looking at the

giardia becoz it was uncommon. My question is, can the

giardia stay in the abdomen for months or years

without causing so much problem?

Where did you get the oregano oil? We have a lot of

oregano grown in the backyard. I used the extract once

to treat their coughs but it made the phlegm harder to

expectorate. I've never tried the oil though,maybe it

will also help her discomfort, and the medicine that

the doctor gave her would I hope eradicate all, even

the encysted forms. I'm hesitant to use the Flagyl

bcoz it has been found to cause cancer in rats but it

has to do for now. After the seven days treatment,

she'll have another stool exam to see if there is

still any left.

Thanks for your concern Joan......

marilyn

>

> > Hi Marilyn,

> This may not be of help, but my son got a

> stomach flu in

> December and after it was gone developed nausia

> decreased apetite,and

> some dizziness too. I gave him oil of oregano and it

> gave him relief.

> It has a quite hot taste, but he would ask for it

> daily for about a

> week then didn't want it any more. He hasn't had a

> reoccurance yet.

> Joan

>

>

>

__________________________________________________

[Guest guest]

Hi Mariyln,

Glad to hear they found the cause. Giardia is hard to diagnose and

treat. The oil of oregano that I use is processed by North American

Herb & Spice. I've tried a couple other brands and from my own

experience I recommend this one. You can get it from the Health food

store. The oil of oregano and the oregamax capsules are the same

brand. I haven't tried the capsuals.

I have a book that goes into its' uses. For giardia it states:

Take a few drops under the tongue twice daily. In addition, add a

few drops of tomato juice or water and drink twice daily. For superior

results, do a liver purge before consuming the oil. Mix a quarter cup

of extra virgin olive oil with a few tablespoons of vinegar and drink.

Follow one hour later with the oil of oregano. The liver flush will

help purge the parasite from the biliary tracts in the liver. In

addition take Oregamax, three capsules twice daily.

The book has a couple pages on giardia that I can email you

privately if you would like. She's going to take awhile to heal on the

inside, but your half way there.

You may want to try it first to share the experience with her- it is a

hot sensation, but it passes quickly.

Here's to a speedy recovery!

Joan

[Guest guest]

Yes, Joan, please do e-mail me the treatment, and I'll

try the liver flush. I jst hope that I'd find the

herbs here... thanks you so much.

Marilyn

--- stecolhay@... wrote:

> Hi Mariyln,

> Glad to hear they found the cause. Giardia is

> hard to diagnose and

> treat. The oil of oregano that I use is processed by

> North American

> Herb & Spice. I've tried a couple other brands and

> from my own

> experience I recommend this one. You can get it from

> the Health food

> store. The oil of oregano and the oregamax capsules

> are the same

> brand. I haven't tried the capsuals.

> I have a book that goes into its' uses. For giardia

> it states:

> Take a few drops under the tongue twice daily. In

> addition, add a

> few drops of tomato juice or water and drink twice

> daily. For superior

> results, do a liver purge before consuming the oil.

> Mix a quarter cup

> of extra virgin olive oil with a few tablespoons of

> vinegar and drink.

> Follow one hour later with the oil of oregano. The

> liver flush will

> help purge the parasite from the biliary tracts in

> the liver. In

> addition take Oregamax, three capsules twice daily.

> The book has a couple pages on giardia that I can

> email you

> privately if you would like. She's going to take

> awhile to heal on the

> inside, but your half way there.

> You may want to try it first to share the experience

> with her- it is a

> hot sensation, but it passes quickly.

> Here's to a speedy recovery!

> Joan

>

>

__________________________________________________

[Guest guest]

Marilyn,

I asked about parasites at the health food store. She found in her

book that olive leaf extract is effective against giardia (I'll call

her back tomorrow to see if there is anything eles, I think black

walnut and grape seed extract may be helpful). There are herbal

products for parasites and intestinal cleansing, but I don't know if

they work on giardia. Is she responding to the flagyl?

Joan

[Guest guest]

Hi Amy

I hope someone can give you some good advice on how to work out getting

your family to support you, maybe just remembering how well you felt following

the diet for 2 weeks can help get you going again, and once your family

sees how well your feeling, they might start supporting you more.

I'm following Eat Right 4 Your Type, just into the 2nt day but liking

it, hoping the weight falls off. lol.

welcome!

Laurie

AmyReid wrote:

I've

been a part of this list for quite some time now, but haven't posted anything

yet. I took the Candida self test because my boyfriend thought that

I should. I first did this test about 1+ years ago and scored around

200+ (I can't remember what the actual score was). I decided to take

it again in January and realized that I still scored in the low 190s.

I have made some small changes in my life, but not enough to make any major

differences. I need to follow an anti-Candida diet, but my family

is not in support and I have such a hard time motivating myself.

One of my main problems is my IBS. My doctor has told me to increase

my fiber and I have, but not consistently. When I eat more fiber

and cut out the sugar, I feel much better. I also am very prone to

congestion, especially in my nose and throat. My boyfriend is very

supportive of this diet, but we both find it very difficult. He has

much more control over what he chooses to eat, and I know that there are

many times that I make it more difficult for him to make good choices.

It would be so much easier if I felt that I had the support of my family.

Any suggestions for how to overcome this obstacle would be greatly appreciated.

I did follow the diet totally faithfully for about 2 weeks and felt great.

I am also 27 and have high blood pressure and would like to lose about

30-35 pounds. I think that losing weight (by following the diet)

along with exercise would be very helpful. I have tried the Body

Ecology Diet and would also like to hear what other diets people are following.AmyBoston

Area

Send blank message to candidiasis-unsubscribeonelist

if you want to UNSUBSCRIBE !

[Guest guest]

Amy - for the IBS - I belong to a large group of people that have all done this for ibs and have had incredible results.

You buy your flax seed whole. You whirr it in a coffee grinder to powder (they are very hard, and will " pass " if not crushed). Every day you should eat some of the freshly crushed flax seed (off and on all day). It is loaded with good oils, vitamins and fiber. Freshly crushed flax seed will only keep a couple -three days in the fridge - and will lose its potency. So you must grind up new stuff every 3 days or so. It does not taste terrible. This will make you 'normal' - no more IBS. Tried and proven results with too many to number...try it - you'll see!

wendy

HI!

I've been a part of this list for quite some time now, but haven't posted anything yet. I took the Candida self test because my boyfriend thought that I should. I first did this test about 1+ years ago and scored around 200+ (I can't remember what the actual score was). I decided to take it again in January and realized that I still scored in the low 190s. I have made some small changes in my life, but not enough to make any major differences. I need to follow an anti-Candida diet, but my family is not in support and I have such a hard time motivating myself. One of my main problems is my IBS. My doctor has told me to increase my fiber and I have, but not consistently. When I eat more fiber and cut out the sugar, I feel much better. I also am very prone to congestion, especially in my nose and throat. My boyfriend is very supportive of this diet, but we both find it very difficult. He has much more control over what he chooses to eat, and I know that there are many times that I make it more difficult for him to make good choices. It would be so much easier if I felt that I had the support of my family. Any suggestions for how to overcome this obstacle would be greatly appreciated. I did follow the diet totally faithfully for about 2 weeks and felt great. I am also 27 and have high blood pressure and would like to lose about 30-35 pounds. I think that losing weight (by following the diet) along with exercise would be very helpful. I have tried the Body Ecology Diet and would also like to hear what other diets people are following.

Amy

Boston AreaSend blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE !

[Guest guest]

I have been trying to follow the anti-candida diet for about 6 months. I have learned that I was doing many things wrong...but through this list have corrected many "no-no's " on the diet. I have lost about 25 pounds and know I have to strictly stick to the diet. I feel the same, but if I eat or drink anything I am not supposed to...I have an itch that tells me that I need to stick to this diet. I am learning the antifungals, etc. that need to be taken along with this diet.

My family was not that supportive at first...when they realized that I had my mind set on sticking to this diet no matter what...they changed their minds...sometimes they forget and ask me if I want some bread or something...but for the most part they are now supportive...my sister who laughed and rolled her eyes at me has found she has a yeast infection and is asking me for advice...and she sees all the weight I have lost. I can't stand to lose much more, but need to continue this fight.

Thanks to all on the list that give me more motivation!

[Guest guest]

I scared my folks into being supportive. They thought it was all

rubbish at first, but when my dad persistently offered me bread,

chocolate and so on (not to be nasty - just genuinely wanting to

get me to 'treat myself' because I was so ill) I hit them with the

diabetes analogy ('Would you offer me sugar if I was diabetic,

and try to tell me a little bit wouldn't hurt? Because that chocolate

will do me just as much harm'). They both read my Leon Chaitow

book after that, and have been supportive ever since!!

Ann

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

http://www.willow-web.net Quality Web Design

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

Hi Amy,

What candida diet are you talking about exactly? I'm on a macrobiotic diet which is helping (no sugar, gluten products, dairy, or animal products , except for fish) It's mainly small amount of grains (rice, millet, quinoa) losts of vegetables and some tofu, beans and fish for protein. The key is lots of vegetables. If you're family is not supportive, oh well. It is your body, your life, your happiness.

Anything I coufld do to help,

Carol

[Guest guest]

There are many anti-candida diets. Which one are you on? Are you eating whole grains without gluten--rice, millet or quinoa?

Thanks,

Carol

[Guest guest]

A realy nice way to eat flax seed is to stir it

into applesauce. It gives applesauce a nutty

flavor. LIZ

HI!

I've been a part of this list for quite some time now, but haven't posted anything yet. I took the Candida self test because my boyfriend thought that I should. I first did this test about 1+ years ago and scored around 200+ (I can't remember what the actual score was). I decided to take it again in January and realized that I still scored in the low 190s. I have made some small changes in my life, but not enough to make any major differences. I need to follow an anti-Candida diet, but my family is not in support and I have such a hard time motivating myself. One of my main problems is my IBS. My doctor has told me to increase my fiber and I have, but not consistently. When I eat more fiber and cut out the sugar, I feel much better. I also am very prone to congestion, especially in my nose and throat. My boyfriend is very supportive of this diet, but we both find it very difficult. He ha!

s much more control over what he chooses to eat, and I know that there are many times that I make it more difficult for him to make good choices. It would be so much easier if I felt that I had the support of my family. Any suggestions for how to overcome this obstacle would be greatly appreciated. I did follow the diet totally faithfully for about 2 weeks and felt great. I am also 27 and have high blood pressure and would like to lose about 30-35 pounds. I think that losing weight (by following the diet) along with exercise would be very helpful. I have tried the Body Ecology Diet and would also like to hear what other diets people are following.

Amy

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[Guest guest]

Hi Liz,

I love to eat mine in soy milk warmed on the stove, not to hot because

it will destroy the good oils, but it turns out thick like cooked cereal.

Laurie

Rabbitbrain@... wrote:

A

realy nice way to eat flax seed is to stir itinto

applesauce. It gives applesauce a nuttyflavor.

LIZ

HI!

I've been a part of this list for quite some time

now, but haven't posted anything yet. I took the Candida self test

because my boyfriend thought that I should. I first did this test

about 1+ years ago and scored around 200+ (I can't remember what the actual

score was). I decided to take it again in January and realized that

I still scored in the low 190s. I have made some small changes in

my life, but not enough to make any major differences. I need to

follow an anti-Candida diet, but my family is not in support and I have

such a hard time motivating myself. One of my main problems is my

IBS. My doctor has told me to increase my fiber and I have, but not

consistently. When I eat more fiber and cut out the sugar, I feel

much better. I also am very prone to congestion, especially in my

nose and throat. My boyfriend is very supportive of this diet, but

we both find it very difficult. He ha! s much more control over what

he chooses to eat, and I know that there are many times that I make it

more difficult for him to make good choices. It would be so much

easier if I felt that I had the support of my family. Any suggestions

for how to overcome this obstacle would be greatly appreciated. I

did follow the diet totally faithfully for about 2 weeks and felt great.

I am also 27 and have high blood pressure and would like to lose about

30-35 pounds. I think that losing weight (by following the diet)

along with exercise would be very helpful. I have tried the Body

Ecology Diet and would also like to hear what other diets people are following.AmyBoston

Area

Send blank message to candidiasis-unsubscribeonelist

if you want to UNSUBSCRIBE !

[Guest guest]

I got to a point where I just no longer cared whether or not my

family/friends supported me. I was too sick to care, I guess. Now

that I've been on the diet for a few months and am feeling much

better, I care even less about their support, nor do I make any

apologies for bringing my own food and/or not eating theirs at

gatherings, etc. I have to do this for me.

~

[Guest guest]

Amen : were with you 100% . thats how The Lord became my "Dr" he is the ONLY person who knows what is going on in our bodies. when ever i would pray for a cleansing i got ready because it wasn't to far off when i had my die-offs. my family didn't reconize my sickness even suggested it was in my mind! (not to me of course) i told them 2 yrs. ago i could get cancer, no one seemed concern, so here i am today! have a good day, i think today will be a good day althou i can't go to church, after taking out my Lympth nodes they didn' tell me they were putting STAPLES in!!!!!!!!!!OUCH! & they pull when moving my arm certain ways! talk to everyone later. Mogdrmom

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