hi!

[Guest guest]

Good one. It's hard for me--during the holidays especially because I am meat restricted and potato restricted.

[Guest guest]

Good to have you back, Christy. I can't claim too much

credit, first took the initiative to start this

group and he and Diane started invites and then all of

us with records of email addresses tried to get to

everybody, between us. At any rate the result seems to

be that we have recovered most of the group. Hopefully

we have repaired most of the damage inflicted by the

former leader of our group. I am not here to bash

anybody, but I found that behavior very inconsiderate.

I will try to say no more on that subject. -dz-

--- christy89029@... wrote:

> Thanks Dave for pulling this group of people

> together. Sorry it took

> me so long to sign up, but things have been hectic

> both at home and

> at work. We are downsizing at work(not voluntarily)

> and I am now

> officially a department of one with the work load of

> 4 people.

> Course, no ot allowed....oh well, that's Casino's

> for you!

> Am getting ready to go to New Jersey to see my

> sister-in-law

> Janet. She has been given 2 months to live by the

> radiological

> oncologist who talked her into going into 8 weeks of

> radium therapy.

> She has been home and off the therapy for 2 weeks

> and now he gives

> her two months. Well, I guess it is two months we

> may not have

> had. Will be landing at Newark Airport the morning

> of the 13th of

> July. Have many chores to do once I am

> there...funeral home,

> cleaning and packing closets, home repairs for my

> son, status of

> burial site, talking to 3 different doctors and

> checking out the

> Hospice people she is dealing with.....the list goes

> on!

> Any way, just wanted to let you know that I

> finally made it here to

> the new list and wanted to that you Dave for doing

> this for those of

> us who wanted to be free to express and discuss

> whatever is on our

> minds. Huey's latest labs aren't good at all. The

> doctor will not

> allow him to travel this summer, so am doing the New

> Jersey trip with

> my youngest son. He will be on leave from the Army.

>

> Hope to hear from you all soon....love, Christy

>

>

__________________________________________________

[Guest guest]

Hi Christy,

Glad to see that you made it here.... I will be praying for

Janet...... Take care of yourself....

Angel Hugs,

Diane

[Guest guest]

In a message dated 12/15/01 12:42:12 PM Pacific Standard Time, wafdaf@... writes:

I was diagnose with auto-immune hepatitis two years ago, then I had varices and was put on a tranplant list, but now all my blood tests are normal, so I'm on hold, and hopefully will stay there for awhile. I have a friend, thought who had bllod tests, and his enzymes were high. The Doctor thinks he has a bile duct problem, and I don't have enought information to give to him on that. Is there anything he should stay away from (of course alcohol), but I mean fatty foods, or salt, or sugar? Can someone please give me some information, or direct me to a site so I can help him with some answers? Thanks, I'm glad I found you.

I'm glad to hear your tests are going well.

Your friend's problem ("bile duct problem") could be Primary Sclerosing Cholangitis, Autoimmune Cholangitis, or Primary Biliary Cholangitis.

Many people in this group have these disorders, as they tend to overlap with AIH. I'm sure one of them can point you to a good site. Such sites have been circulated many times in the group, but I haven't saved them. In the meantime, ask him which problem he has. There are for these disorders.

Do you have liver reference books by Palmer or G. Worman? They discuss these disorders, rather briefly, in addition to AIH.

Best wishes, and keep in touch.

Harper (AIH)

[Guest guest]

In a message dated 12/15/01 12:41:52 PM Pacific Standard Time, wafdaf@... writes:

I was diagnose with auto-immune hepatitis two years ago, then I had

varices and was put on a tranplant list, but now all my blood tests

are normal, so I'm on hold, and hopefully will stay there for

awhile. I have a friend, thought who had bllod tests, and his

enzymes were high. The Doctor thinks he has a bile duct problem, and

I don't have enought information to give to him on that. Is there

anything he should stay away from (of course alcohol), but I mean

fatty foods, or salt, or sugar? Can someone please give me some

information, or direct me to a site so I can help him with some

answers? Thanks, I'm glad I found you.

WELCOME TO THE GROUP!! Sorry however that you had to find us this way! But you will find a tremendous amount of support and information here. Everyone is very compassionate and understanding!!

Please feel free to vent anytime you need to also. As we all know what a tremendous burden an illness can bring...along with many frustrations!!

We will listen and answer your questions the best we can!!

CONGRATS ON THE BLOOD WORK!

But am sorry I can't help you with your friends problem!

Take care,

**HAPPY**HOLIDAYS**

**AND WARM HUGS**

Bertha.

[Guest guest]

Welcome ! Sorry it has to be for this reason, but there is a lot of info

and support given here (and taken). Feel free to chime in any time you want.

My symptoms started about 15+ years ago, was deemed psychiatrically challenged

(my term) and went on SSDI. I was finally diagnosed late last year, after my

daughter who lives in CA came down with lyme. On comparing symptoms, we both

realized that lyme was probably what I have had all these years. Getting

someone to order the tests and have them run at Igenex was another hurdle, but

through persistence, it was accomplished. The next huge hurdle was finding a

LLMD. No dr. will touch lyme in OR due to the threat of losing their license so

I travel 1000 mi. every 6 weeks to SF to see my LLMD who is wonderful. I have

been on IV rocephin for 8 mos, and biaxin for about 4-5 and am seeing a slight

improvement finally. Sorry to go on, didn't mean to.

Hope to hear more from you soon

[Guest guest]

Oh !

Why couldn't I have met you sooner! Although I spent most of my life in CA, in

March of 98 I moved to OR. None of the CA docs could figure out what was wrong.

Within 3 months of being in OR, I had my diagnosis and I spent the last 3 years

trying to get back to CA to get treatment. I know exactly what you mean by not

being able to get treated in OR. No docs there would touch me - including at a

supposed teaching hospital. I even tried getting the medical board to give an

exception to that stupid 3 months of IV rule with no luck. I would have loved to

be able to travel back and forth, but couldn't afford it and have finally gotten

back to CA. Unfortunately, I didn't manage to end up near any of the LLMD's I

know of and am now looking for one I can get to without driving. One of my

symptoms is passing out so I had my license revoked about 5 years ago. I'm so

thrilled to hear about someone being able to do what I couldn't though and wish

you all the best on keeping your abx and trips going as long as you need them.

Hearing stories of things working out for others is one of the things that gives

me hope to persevere.

Thanks for the welcome!

[Guest guest]

,

I lived in CA my whole life until 6 years ago, when I moved to OR. My symptoms

started when I was living in southern CA. I used to do a lot of hiking and

backpacking in that region. The very first dr. I saw wondered about lyme (very

astute for the mid 80's) but the only test then was the lyme titer and mine was

negative so I was given the dx of FMS.

Were you diagnosed at OHSU? I have a list of LLMD's in CA if you would llike to

have it. Email me privately and I would be glad to share it with you. Where

abouts in CA are you?

[Guest guest]

Welcome Sebastian,

So glad you found us. We have another member in our

group who is originally from Puerto Rico and his name

is Tony. Tony is a very caring person and he inspires

us all with his attitude toward life.

It sounds, Sebastian as if you have had a rough time

of it with your AIH, your numbers have been extremely

high. I wish I knew more to answer your question about

the globulin and protein numbers. I am newly

diagnosed with AIH and Autoimmune Cholangitis since

last March so I am still learning, hopefully someone

else can answer that for you. I would recommend two

books that are good references for AIH, one is by

Palmer, " Dr. Palmer's Guide to

Hepatitis Liver Disease What You Need to Know. "

Another one is written by Dr. Worman, I don't

know the title but they can be purchased off of

Amazon.com for under about $15 each. Sebastian, we are

like a family here, sometimes we don't always agree,

but we really do care for one another here, so I hope

you can write back and that you will get answers for

your questions.

God Bless,

Ruth, From Oregon

--- Sebastian Renta <sebyrenta@...> wrote:

---------------------------------

hi,

my name is sebastian renta and i am from puerto rico.

i am really happy to be part of the liver support

group. i have autoimmune hepatits with early chirosis.

i am under 40 mg of prednisone and with 50mg of

imuran. i have been diagnosticated with this diseas

since May of 2002. i was doing really good at the

beginig with only the prednisone were i could get my

ast and alt to the low1 00s. i was in the ast in 3210

and the alt in 2789. but in october i got infected

with a virus where my liver enzimes got back to the

2000 thousand. now i am rehabilitating and since

november when the doctor put me with the imuran too i

have been doing a lot better. now my ast is in 129 and

my alt in 298. my bilirubin was in the 3.2 and now is

in .70. the only thing that makes me scared is that

the globilin and the protein stay in the same range.

my globulin is in 5.9 and my protein is in 9.8. they

have been the same since november. is this normal or

is there any kind of food that makes that stay high?

is the excersice helpful?

thanks,

sebastian

---------------------------------

The new MSN 8: smart spam protection and 2 months

FREE*

[Guest guest]

Sebastian..... welcome to our group ... hoe you will like it here and we

can help you in some way.

I read your post and noted your uneasiness with some of your serum

levels. Proteins are part of a CBC complete blood count as is total

globulins.

High counts in either or both could mean a couple of things...... it

could indicate a liver disease (which has been diagnosed)......it could

mean a chronic infection.... you were treated for viral infection or it

could mean a blood or bone marrow disease.... but I think it's due to

your liver disease , in which case it would be an expected result. Your

asts and alts are still quite high.

agaon welcome

Jerry

[Guest guest]

ruth thanks for the welcome. i am really learning too from this deseas. i am actually treated by dr. worman. he had saw me in 2 occasions when he want to see me because he said that i was the first patient that he has that actually was diagnosticated with an early chirosis when the AIH was diagnosticated.and i learned a lot from him. i have a lot of information that he gave me and i hope i can help you and anyone if case that you need it.

thanks, sebastian ; )

>From: "hrby97111@..."

>Reply- > >Subject: Re: [ ] hi! >Date: Wed, 19 Feb 2003 01:06:31 -0800 (PST) > >Welcome Sebastian, > So glad you found us. We have another member in our >group who is originally from Puerto Rico and his name >is Tony. Tony is a very caring person and he inspires >us all with his attitude toward life. > It sounds, Sebastian as if you have had a rough time >of it with your AIH, your numbers have been extremely >high. I wish I knew more to answer your question about >the globulin and protein numbers. I am newly >diagnosed with AIH and Autoimmune Cholangitis since >last March so I am still learning, hopefully someone >else can answer that for you. I would recommend two >books that are good references for AIH, one is by > Palmer, "Dr. Palmer's Guide to >Hepatitis Liver Disease What You Need to Know." >Another one is written by Dr. Worman, I don't >know the title but they can be purchased off of >Amazon.com for under about $15 each. Sebastian, we are >like a family here, sometimes we don't always agree, >but we really do care for one another here, so I hope >you can write back and that you will get answers for >your questions. >God Bless, >Ruth, From Oregon >--- Sebastian Renta wrote: > >--------------------------------- > >hi, > >my name is sebastian renta and i am from puerto rico. >i am really happy to be part of the liver support >group. i have autoimmune hepatits with early chirosis. >i am under 40 mg of prednisone and with 50mg of >imuran. i have been diagnosticated with this diseas >since May of 2002. i was doing really good at the >beginig with only the prednisone were i could get my >ast and alt to the low1 00s. i was in the ast in 3210 >and the alt in 2789. but in october i got infected >with a virus where my liver enzimes got back to the >2000 thousand. now i am rehabilitating and since >november when the doctor put me with the imuran too i >have been doing a lot better. now my ast is in 129 and >my alt in 298. my bilirubin was in the 3.2 and now is >in .70. the only thing that makes me scared is that >the globilin and the protein stay in the same range. >my globulin is in 5.9 and my protein is in 9.8. they >have been the same since november. is this normal or >is there any kind of food that makes that stay high? >is the excersice helpful? > >thanks, > >sebastian > > >--------------------------------- >The new MSN 8: smart spam protection and 2 months >FREE* >

[Guest guest]

jerry thanks for the welcome. actually is for the liver diseas. i have to go thru 2 bonemorrow and both were negative thanks to God.

thanks, sebastian

>From: gefox@... >Reply- > >Subject: Re: [ ] hi! >Date: Wed, 19 Feb 2003 09:45:02 -0500 (EST) > >Sebastian..... welcome to our group ... hoe you will like it here and we >can help you in some way. >I read your post and noted your uneasiness with some of your serum >levels. Proteins are part of a CBC complete blood count as is total >globulins. >High counts in either or both could mean a couple of things...... it >could indicate a liver disease (which has been diagnosed)......it could >mean a chronic infection.... you were treated for viral infection or it >could mean a blood or bone marrow disease.... but I think it's due to >your liver disease , in which case it would be an expected result. Your >asts and alts are still quite high. > >agaon welcome >Jerry > Protect your PC - Click here for McAfee.com VirusScan Online

[Guest guest]

Can we get the recruiting team from UC to take us out

The most thoroughly wasted of all days is that which one has not laughed!Eddie

[Guest guest]

HepperPad/

> I want to invite you over to the Hepperpad for a few laughs and to

> meet some new Hepper friends

> Also, there is a Heppofest planned here in Colorado in June so if

> anyone needs info please let me know - it's a camping, motels, and

> cabin type deal at the Garden of the Gods - Kerry12155@a...

>

> Drop by the pad! it's a casual place to get away from Heptalk -

> bring a joke! - Hugs, Kerry

[Guest guest]

Hi Kerry.

Colorado is my second home, I spent a few years in Colorado Springs, and about 8 years up in the high country... (Breckenridge, Aspen, Glenwood Springs,...) I would love to come to the Heppofest in June. Please let me know all the details...

And if there is anything I can do to help, let me know....

Thanks so much...

God Bless....

Peace, Love, & Prayers

Kerry <Kerry12155@...> wrote:

I want to invite you over to the Hepperpad for a few laughs and to meet some new Hepper friends :)Also, there is a Heppofest planned here in Colorado in June so if anyone needs info please let me know - it's a camping, motels, and cabin type deal at the Garden of the Gods - Kerry12155@...Drop by the pad! it's a casual place to get away from Heptalk - bring a joke! - Hugs, Kerry

[Guest guest]

Hi Sadie,Welcome to the group. I am one of the moderators for the group.It sounds like you have been through a lot. I can relate to the headaches that you are having as I have a herniated disk at the c5 level as well as several bulging disks in my neck ,as well as in my lower back.I am unable to walk up stairs most of the time as well. I've had the MRIs as well as the ct scans and a CT/MYLOGRAM [THAT'S MOST LIKELY MISSPELLED,LOL]. I know about laying on the ct table as well as the MRI table .They both are a pain to have to deal with .As far as having the tests done on both your lumbar and neck, if it were me I would want both of them done to see what is wrong{but then that's just me.I bet you want to know what's what as well }

Sadie there is one more thing that I need to tell you.

The group founder has made it a group rule that pain meds not be discussed in the group forum. This particular rule is for your safety,and the safety of everyone else in the group.

All other type of medication is ok to discuss,just not pain meds

Well,I've got to go,so I will say bye for now.

MAY YOU HAVE A BETTER DAY TOMORROW THAN YOU HAD TODAY.

TAKE AS BEST CARE AS YOU CAN AND BE SAFE.

Larry,group moderator

REMEMBER ALL OF OUR MEN AND

WOMEN IN THE ARMED SERVICE OF OUR NATION

PRAY THAT THEY MAY BE SAFE

AND SOUND IN BODY AND MIND

[Guest guest]

Hi Sadie,Welcome to the group. I am one of the moderators for the group.It sounds like you have been through a lot. I can relate to the headaches that you are having as I have a herniated disk at the c5 level as well as several bulging disks in my neck ,as well as in my lower back.I am unable to walk up stairs most of the time as well. I've had the MRIs as well as the ct scans and a CT/MYLOGRAM [THAT'S MOST LIKELY MISSPELLED,LOL]. I know about laying on the ct table as well as the MRI table .They both are a pain to have to deal with .As far as having the tests done on both your lumbar and neck, if it were me I would want both of them done to see what is wrong{but then that's just me.I bet you want to know what's what as well }

Sadie there is one more thing that I need to tell you.

The group founder has made it a group rule that pain meds not be discussed in the group forum. This particular rule is for your safety,and the safety of everyone else in the group.

All other type of medication is ok to discuss,just not pain meds

Well,I've got to go,so I will say bye for now.

MAY YOU HAVE A BETTER DAY TOMORROW THAN YOU HAD TODAY.

TAKE AS BEST CARE AS YOU CAN AND BE SAFE.

Larry,group moderator

REMEMBER ALL OF OUR MEN AND

WOMEN IN THE ARMED SERVICE OF OUR NATION

PRAY THAT THEY MAY BE SAFE

AND SOUND IN BODY AND MIND

[Guest guest]

Hi Sadie,Welcome to the group. I am one of the moderators for the group.It sounds like you have been through a lot. I can relate to the headaches that you are having as I have a herniated disk at the c5 level as well as several bulging disks in my neck ,as well as in my lower back.I am unable to walk up stairs most of the time as well. I've had the MRIs as well as the ct scans and a CT/MYLOGRAM [THAT'S MOST LIKELY MISSPELLED,LOL]. I know about laying on the ct table as well as the MRI table .They both are a pain to have to deal with .As far as having the tests done on both your lumbar and neck, if it were me I would want both of them done to see what is wrong{but then that's just me.I bet you want to know what's what as well }

Sadie there is one more thing that I need to tell you.

The group founder has made it a group rule that pain meds not be discussed in the group forum. This particular rule is for your safety,and the safety of everyone else in the group.

All other type of medication is ok to discuss,just not pain meds

Well,I've got to go,so I will say bye for now.

MAY YOU HAVE A BETTER DAY TOMORROW THAN YOU HAD TODAY.

TAKE AS BEST CARE AS YOU CAN AND BE SAFE.

Larry,group moderator

REMEMBER ALL OF OUR MEN AND

WOMEN IN THE ARMED SERVICE OF OUR NATION

PRAY THAT THEY MAY BE SAFE

AND SOUND IN BODY AND MIND

[Guest guest]

Hi :

I'm glad surgery helped you out. My surgery helped me out too!!

> Hi! My name is . I had DDD for 10 years and the pain was bad.

> Just recently it was almost debelating. I was almost bed ridden. I

was

> on 100 mg of morphine with no help. I had surgery June 7. I am in a

> neck brace and will be for 3 months. I can tell you as soon as I woke

> up from surgery I could tell the difference with the pain level. It

> went from a 15 to a 5. Now the pain is even less. I still have a

> problem with my right shoulder. But the doctor told me the surgery

> would not help. I have to go to a ortho doctor for that. I just

wanted

> say that surgery seems to have been the answer for me.

>

>

[Guest guest]

CINDY

So glad it helped. I hope as it further heals it will prove totally worth it. I go to my spine doctor to give answer on spinal fusion i need on Aust. 3rd. Im still not sure if its the right thing to do--.

Beverly

-- Re: Hi!

Hi : I'm glad surgery helped you out. My surgery helped me out too!! > Hi! My name is . I had DDD for 10 years and the pain was bad.> Just recently it was almost debelating. I was almost bed ridden. I was> on 100 mg of morphine with no help. I had surgery June 7. I am in a> neck brace and will be for 3 months. I can tell you as soon as I woke> up from surgery I could tell the difference with the pain level. It> went from a 15 to a 5. Now the pain is even less. I still have a> problem with my right shoulder. But the doctor told me the surgery> would not help. I have to go to a ortho doctor for that. I just wanted> say that surgery seems to have been the answer for me.> >

[Guest guest]

HELLO CINDY,

My name is Larry and I'm one of the moderators for the group.

I deleted your message to the group because you included the name of the pain medicine that you have been taking.

The group founder has made it a policy in this group that pain meds not be discussed by name in the group forum.

All other meds may be discussed freely .

I know that you are new to the group and just overlooked the greeting message that was sent to you when you joined the group.

In that message it stated that pain meds were not to be discussed in the group setting.

In the future please abide by this rule.

Thank you in advance for your cooperation in this area .

PLEASE CONTINUE TO COME HERE AND POST YOUR QUESTIONS AND ANY OTHER THINGS THAT YOU WISH TO SHARE.

WE ARE HERE TO HELP YOU IN ANY WAY THAT WE CAN.

I sincerely hope that I will be able to help you in the future.

I'm here to be of service to you in any way that I can.

MAY YOU HAVE A BETTER DAY TODAY THAN YESTERDAY AND NOT AS GOOD A DAY AS TOMORROW.

TAKE AS BEST CARE AS YOU CAN AND BE SAFE

Larry ,group moderator

Ann <c_elizabeth0218@...> wrote:

Hi! My name is . I had DDD for 10 years and the pain was bad.Just recently it was almost debelating. I was almost bed ridden. I wason {NAME OF THE PAIN MEDICINE DELETED BY GROUP MODERATOR}I had surgery June 7. I am in aneck brace and will be for 3 months. I can tell you as soon as I wokeup from surgery I could tell the difference with the pain level. Itwent from a 15 to a 5. Now the pain is even less. I still have aproblem with my right shoulder. But the doctor told me the surgerywould not help. I have to go to a ortho doctor for that. I just wantedsay that surgery seems to have been the answer for me.REMEMBER ALL OF OUR MEN AND

WOMEN IN THE ARMED SERVICE OF OUR NATION

PRAY THAT THEY MAY BE SAFE

AND SOUND IN BODY AND MIND

[Guest guest]

Yes, daily exercise has worked tremendously well for me. The orthopedic surgeon informed me that he may need to do a fusion but he won't know until he gets inside. That really frightened me. When I heard that I immediately thought of the neuro surgeon who told me to exercise. I had originally thought that he was insane as I was in such bad shape I couldn't walk without a cane. Keep in mind that two other orthopedic surgeons had told me not to exercise as it could make matters worse. That was fine with me as I didn't really want to exercise anyway and now I had doctors orders not to do it GREAT. Well I was wrong. Maybe you should also try to do easy exercise to see how it goes. What do you have to lose?

PS Sorry to all for naming the specific drug in an earlier post. It won't happen again. Promise.

[Guest guest]

Welcome Dirk,

With regards to your gastro-internal problems, I suggest reading the

following chapters:

- Enzymes: The Key to Longevity

- Journey to the Center of Your Colon

- Allergies: The Threshold of Reactivity

from the following site

http://thedoctorwithin.com/index_fr.php?page=content.php

exyogi

>

> Hi guys. Awesome mailing list!

>

> I only found out about fermented foods a few months back when I

was trying

> to find ways to get lots of probiotics. Since then, I've fallen in

love! I

> love all fermented things. Delicious! I'm hoping you guys can help

me out

> with recipes and so forth. My last batch of sauekraut went

horribly wrong.

>

> In addition, I am suffering from many gastro-intestinal problems:

pain,

> multiple allergies, possibly (likely) leaky gut, definite candida

> overgrowth, rickettsia and chlymadia. If any of you know a good

way to treat

> these problems, please let me know!

>

> Unfortunately, I can't tolerate kefir. I was really hoping that

would help

> (and I LOVE the taste, the sourer the better), but it makes me

sick for some

> reason. I was advised that this may be because I had too much too

fast. Or

> perhaps it's due to the lactose and candida. I think I also have

bowel

> inflammation so harsh things, e.g. vinegar and colosan colon

cleansing cause

> me considerable pain. I am on a pretty paleo, low carb diet right

now, but I

> want to try incorporate more fermented veggies. I'm going to try

make

> kefirkraut and then kimchee (I REALLY want to try kimchee! But let

me get

> kefirkraut right first).

>

> Anyway, I'd appreciate any advice anybody can offer if you've had

success

> treating intestinal dysbiosis. My infections don't seem to respond

well to

> any treatments. I'm starting on EM-1 culture and l. reuteri soon

and I hope

> that will help. I've heard good things.

>

> Anyway, awesome list! Keep fermenting!

> Dirk

>

>

>

[Guest guest]

Hi, Dirk. You sound like I was before I realized that I'm gluten and casein

intolerant. Getting off the wheat/rye/barley and milk really helped me.

I learned to make kefir cider from Heidi (on this board?? Check the files) -

a well rinsed kefir grain in apple cider - the probiotics really help. Also

kefired coconut milk.

As for your kraut - are you trying to do it with whey? Don't! That makes

the veggies mushy and if you are reacting to casein, then even worse. The

old fashioned sauerkraut is just cabbage and salt and perhaps some water if

the cabbage has dried out. Check out " Wild Fermentation " or " Putting Foods

By " or even just online - 5# of cabbage to 3 TBSP salt (although salt comes

in such different sized that using a tablespoon to measure it can be dicey)

or to taste - " like a good soup " says Heidi. Traditional Kimchee cut

differently and has added spices and other veggies, but still no whey.

Connie

Hi!

Hi guys. Awesome mailing list!

I only found out about fermented foods a few months back when I was trying

to find ways to get lots of probiotics. Since then, I've fallen in love! I

love all fermented things. Delicious! I'm hoping you guys can help me out

with recipes and so forth. My last batch of sauekraut went horribly wrong.

In addition, I am suffering from many gastro-intestinal problems: pain,

multiple allergies, possibly (likely) leaky gut, definite candida

overgrowth, rickettsia and chlymadia. If any of you know a good way to treat

these problems, please let me know!

Unfortunately, I can't tolerate kefir. I was really hoping that would help

(and I LOVE the taste, the sourer the better), but it makes me sick for some

reason. I was advised that this may be because I had too much too fast. Or

perhaps it's due to the lactose and candida. I think I also have bowel

inflammation so harsh things, e.g. vinegar and colosan colon cleansing cause

me considerable pain. I am on a pretty paleo, low carb diet right now, but I

want to try incorporate more fermented veggies. I'm going to try make

kefirkraut and then kimchee (I REALLY want to try kimchee! But let me get

kefirkraut right first).

Anyway, I'd appreciate any advice anybody can offer if you've had success

treating intestinal dysbiosis. My infections don't seem to respond well to

any treatments. I'm starting on EM-1 culture and l. reuteri soon and I hope

that will help. I've heard good things.

Anyway, awesome list! Keep fermenting!

Dirk

[Guest guest]

Thanks for the advice, Connie. I was planning on making kefirkraut using

kefir grains. I just figured it would have more beneficial flora than

straight up kefirkraut and would be less likely to got rotten (last time I

tried to make traiditional sauerkraut it went totally off).

I will look into the kefir cider. But I tried kefir fermenting fruit juice

before and it always ended up either too alcoholic, or too sugary. Couldn't

get it right.

Thanks!

On 4/10/06, Connie Hampton <connie@...> wrote:

>

> Hi, Dirk. You sound like I was before I realized that I'm gluten and

> casein

> intolerant. Getting off the wheat/rye/barley and milk really helped me.

>

> I learned to make kefir cider from Heidi (on this board?? Check the files)

> -

> a well rinsed kefir grain in apple cider - the probiotics really help.

> Also

> kefired coconut milk.

>

> As for your kraut - are you trying to do it with whey? Don't! That makes

> the veggies mushy and if you are reacting to casein, then even worse. The

> old fashioned sauerkraut is just cabbage and salt and perhaps some water

> if

> the cabbage has dried out. Check out " Wild Fermentation " or " Putting

> Foods

> By " or even just online - 5# of cabbage to 3 TBSP salt (although salt

> comes

> in such different sized that using a tablespoon to measure it can be

> dicey)

> or to taste - " like a good soup " says Heidi. Traditional Kimchee cut

> differently and has added spices and other veggies, but still no whey.

>

> Connie

>

>

> Hi!

>

> Hi guys. Awesome mailing list!

>

> I only found out about fermented foods a few months back when I was trying

> to find ways to get lots of probiotics. Since then, I've fallen in love! I

> love all fermented things. Delicious! I'm hoping you guys can help me out

> with recipes and so forth. My last batch of sauekraut went horribly wrong.

>

> In addition, I am suffering from many gastro-intestinal problems: pain,

> multiple allergies, possibly (likely) leaky gut, definite candida

> overgrowth, rickettsia and chlymadia. If any of you know a good way to

> treat

> these problems, please let me know!

>

> Unfortunately, I can't tolerate kefir. I was really hoping that would help

> (and I LOVE the taste, the sourer the better), but it makes me sick for

> some

> reason. I was advised that this may be because I had too much too fast. Or

> perhaps it's due to the lactose and candida. I think I also have bowel

> inflammation so harsh things, e.g. vinegar and colosan colon cleansing

> cause

> me considerable pain. I am on a pretty paleo, low carb diet right now, but

> I

> want to try incorporate more fermented veggies. I'm going to try make

> kefirkraut and then kimchee (I REALLY want to try kimchee! But let me get

> kefirkraut right first).

>

> Anyway, I'd appreciate any advice anybody can offer if you've had success

> treating intestinal dysbiosis. My infections don't seem to respond well to

> any treatments. I'm starting on EM-1 culture and l. reuteri soon and I

> hope

> that will help. I've heard good things.

>

> Anyway, awesome list! Keep fermenting!

> Dirk

>

>

>