Re: Re: Risperdal for the treatmet of autistic symptoms

[Guest guest]

Thank you Sara for this email. It made me cry. I am at the beginning and

everything just feels a little desparate. I REALLY like the idea of massage. We

do it but not for such long periods of time. Leia isn't talking yet. Just the

odd word and mainly a lot of jibberish. But she has tons of motor

delays....doesn't chew or put food on her own into her mouth. She also has all

of the autistic symptoms except for the self-injurous/tantrum characteristics. I

will do loads of research in Risperdil. Everyone is telling me to research it

thoroughly. I too hope to be tweaking symptoms some day.

From: sebrown1126a <sarabrown@...>

Subject: Re: Risperdal for the treatmet of autistic symptoms

Date: Wednesday, January 13, 2010, 9:00 AM

 

We were at a point about eight months ago where our physician thought the only

option to stop my son's aggressive behavior was risperdal. We personally did not

want to do this, but each decision is personal and each med choice must be made

with that patient's best interests at heart.

We decided to try some other things, but I have to warn you...I spent hundreds

of hours researching my decision. Not everyone has the desire/time to dig into

it that much. We found that my son's issues were a result of severe pain, sulfur

detoxification issues, and a host of other things. He was feeling terrible, and

his behavior followed suit. Kids act out...and stim, when they don't know how to

handle what their little body is doing to them.

We have done just about everything, and tried just about everything. My son is

thankfully healed/recovered and now we're in more of a maintenance/ tweaking

phase. Helping him heal was the hardest thing...and the most rewarding thing I

have ever done.

Our son had huge gut issues. Sounds like your daughter also struggles with that.

When we finally got his gut feeling better, I will never forget the day when he

sat down, looked at me with a surprised face, and said " Mom, my belly doesn't

hurt! " I asked him if every time he sat down previously, his belly hurt, and he

said yes. Sometimes kids don't even understand what it's like to live without

pain, what " normal " should feel like. How in the world can they focus on

anything else, or behave, when they hurt so much? My heart hurts for my son and

what he had to go through.

I don't know your daughter's lab results/medical situation, so I can't say

whether or not to use Risperdal, but...I will say that a turning point for us

was when we started giving my son massages. We'd do it for sometimes 90 minutes

to 2.5 hours a day, along with joint compressions. His body was so tensed up

from the constant pain that the meds we were doing couldn't work. He needed to

relax so he could heal. We also did a significant amount of focused prayer for

him, which I believe helped our reaction to his behavior, as well as led us to

the right research so we could make medication decisions.

Whatever you decide, I think you're going a great route getting her gut healthy.

Have you done enzymes? We are Houston Enzyme fans. They were AWESOME for

us...life-changing in fact (and got us on a normal diet again!). We mix up the

yeast protocol a lot too. Sometimes Nystatin works for awhile, then we try other

stuff. If you delve deeper into biomed, great...it's so rewarding. If you try

risperdal, then that's great too, because it was the decision you felt was best

for your little girl.

All the best....Sara

>

> In a message dated 1/12/2010 5:48:38 P.M. Eastern Standard Time,

> tanya.yarkoni@ ... writes:

>

> Today i was told that a prominent pediatric neurologist took a look at my

> soon to be 3 year old and thinks that Risperdal along with ABA might help

> get her on track.Following directions from my DAN doc I currently have her

> on antibiotics for 100% strep virus in her gut and Nystatin for yeast.

> Still, her doctor feels that they might be able to get through to leia more

> easily and actually get some kind of cognitive response if they introduced

> Risperdal to reduce some of her self-stimulatory behavior. Does anyone have an

> opinion about this?

> Thanks

>

>

>

>

[Guest guest]

she sits and moves her body and head from side to side

she puts her finger in front of her eyes

and she stares at her hands

she will also put her head to one side and just stare

From: danasview <danasview@...>

Subject: Re: Risperdal for the treatmet of autistic symptoms

Date: Wednesday, January 13, 2010, 10:24 AM

 

>>leia more easily and actually get some kind of cognitive response if they

introduced Risperdal to reduce some of her self-stimulatory behavior.

What are the stims?

Dana

[Guest guest]

right now i have leia on antibiotics for strep

and nystatin for yeast

then we will move onto probiotics and more vits

how long does it take to start seeing results

From: danasview <danasview@...>

Subject: Re: Risperdal for the treatmet of autistic symptoms

Date: Friday, January 15, 2010, 10:17 AM

 

> she sits and moves her body and head from side to side

> she puts her finger in front of her eyes

> and she stares at her hands

> she will also put her head to one side and just stare

At my house, these were eliminated with anti-fungals, anti-virals, and B

vitamins, especially B12.

It is quickest and easiest to start a yeast protocol, so I would start there.

Dana

[Guest guest]

Keep an eye out for signs of yeast. Nystatin wasn't enough for my son,

especially when taking antibiotics

Kerrie

Sent from my iPhone

On Jan 15, 2010, at 3:01 PM, Yarkoni <tanya.yarkoni@...>

wrote:

> right now i have leia on antibiotics for strep

> and nystatin for yeast

> then we will move onto probiotics and more vits

> how long does it take to start seeing results

>

>

>

>

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> From: danasview <danasview@...>

> Subject: Re: Risperdal for the treatmet of autistic symptoms

>

> Date: Friday, January 15, 2010, 10:17 AM

>

>

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>

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>> she sits and moves her body and head from side to side

>> she puts her finger in front of her eyes

>> and she stares at her hands

>> she will also put her head to one side and just stare

>

> At my house, these were eliminated with anti-fungals, anti-virals,

> and B vitamins, especially B12.

>

> It is quickest and easiest to start a yeast protocol, so I would

> start there.

>

> Dana

>

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>

[Guest guest]

so what did you do to get rid of the yeast?

>

>

> From: danasview <danasview (DOT) com>

> Subject: Re: Risperdal for the treatmet of autistic symptoms

>

> Date: Friday, January 15, 2010, 10:17 AM

>

>

>

>

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>> she sits and moves her body and head from side to side

>> she puts her finger in front of her eyes

>> and she stares at her hands

>> she will also put her head to one side and just stare

>

> At my house, these were eliminated with anti-fungals, anti-virals,

> and B vitamins, especially B12.

>

> It is quickest and easiest to start a yeast protocol, so I would

> start there.

>

> Dana

>

>

>

>

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>

[Guest guest]

hi mary

i am just reaching out because i am in need of moral support

i am in the really early stages of treating leia with biomedics and i just feel

sort of lost

wandering if what i am doing is going to have any tangible effect

how quickly does one start to see results

i am praying for something

i get glimpses sometimes

but mostly it's fog

no response

slow cognition

she doesn't eat on her own

she doesn't even chew

very poor motor skills

they are saying it looks like autism with mental retardation

but she is only turning 3 in a couple of weeks

and we have only started to scratch the surface

i feel like i am clinging onto biomedics like it is my only hope

which it may be

but then i truly want to hope

and right now, i am not sure if i can be positive

i am sure you understand where i am at

tanya

From: mbrookh <mbrookh@...>

Subject: Re: Risperdal for the treatmet of autistic symptoms

Date: Wednesday, January 13, 2010, 4:37 PM

 

,

This reminds me of the long ago story about[?who], an autistic middle schooler

who as a grown person recalled that she used to spend hours looking at her

hands/shaking them etc and wondering if they were connected to her body. My own

daughter 25y now, used to have enough peripheral neuropathy[numbness in

hands/arms; feet/legs] that she could not at times tell where to put her feet to

walk. This was one of the first things to disappear w chelation. Are you/do you

intend to chelate? We used the Cutler 'low and slow' method. The visuals - have

you read any of Dr Megson materials and/or tried vit A? She's convinced that our

children have a very limited 'tunnel' for accurate vision;only a few degrees

where rods and cones actually function as what we think of as 'normal' Hence,

side vision to bring things into alignment as best they can. Otherwise, things

are a blur, without shape and maybe without color. Dr. Megson had a great

presentation about this at one

of the first DAN conferences. It may still be on the ARI web site. Sounds to me

like your little one is truly trying to find what is going on 'out there' -

smart girl! http://www.megson. com/

> >>leia more easily and actually get some kind of cognitive response if they

introduced Risperdal to reduce some of her self-stimulatory behavior.

>

> What are the stims?

>

> Dana

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