Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 This info. was for a friend. She is a diabetic (insulin shots daily) went into the hospital when she developed sores in her mouth and lips and tongue were swelling twice their size. Her dr. diagnosis -- a kidney/bladder infection and yeast didn't say what caused the sores in her mouth or lips and tongue swelling. She has been on trmt for 3 and 1/2 months standard interferon /1000mg ribivirin. Her Dr never did a RNA PCR, no biopsy, has not had the routine blood work done (after two weeks and then once monthly). Her dr. says she has cirrhosis?? This is in a very small town in east Texas. She has no insurance, trying for SS and medical benefits. Could you tell me what you think about this. Does this Dr. know what he is doing or what!!! Thanks for any info., Marjorie Re: Lab Work > Marjorie, > It would be caused by the interferon. Has your > doctor recommended a dose reduction? That is probably > all you need. > Claudine > --- Marjorie Delese <mrdelese@...> wrote: > > Would the white count and platelets being low be > > caused from the > > interferon or ribivirin or both? Thanks, Marjorie > > > > ===== > Claudine > claudinecrews@... > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 This info. was for a friend. She is a diabetic (insulin shots daily) went into the hospital when she developed sores in her mouth and lips and tongue were swelling twice their size. Her dr. diagnosis -- a kidney/bladder infection and yeast didn't say what caused the sores in her mouth or lips and tongue swelling. She has been on trmt for 3 and 1/2 months standard interferon /1000mg ribivirin. Her Dr never did a RNA PCR, no biopsy, has not had the routine blood work done (after two weeks and then once monthly). Her dr. says she has cirrhosis?? This is in a very small town in east Texas. She has no insurance, trying for SS and medical benefits. Could you tell me what you think about this. Does this Dr. know what he is doing or what!!! Thanks for any info., Marjorie Re: Lab Work > Marjorie, > It would be caused by the interferon. Has your > doctor recommended a dose reduction? That is probably > all you need. > Claudine > --- Marjorie Delese <mrdelese@...> wrote: > > Would the white count and platelets being low be > > caused from the > > interferon or ribivirin or both? Thanks, Marjorie > > > > ===== > Claudine > claudinecrews@... > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 This info. was for a friend. She is a diabetic (insulin shots daily) went into the hospital when she developed sores in her mouth and lips and tongue were swelling twice their size. Her dr. diagnosis -- a kidney/bladder infection and yeast didn't say what caused the sores in her mouth or lips and tongue swelling. She has been on trmt for 3 and 1/2 months standard interferon /1000mg ribivirin. Her Dr never did a RNA PCR, no biopsy, has not had the routine blood work done (after two weeks and then once monthly). Her dr. says she has cirrhosis?? This is in a very small town in east Texas. She has no insurance, trying for SS and medical benefits. Could you tell me what you think about this. Does this Dr. know what he is doing or what!!! Thanks for any info., Marjorie Re: Lab Work > Marjorie, > It would be caused by the interferon. Has your > doctor recommended a dose reduction? That is probably > all you need. > Claudine > --- Marjorie Delese <mrdelese@...> wrote: > > Would the white count and platelets being low be > > caused from the > > interferon or ribivirin or both? Thanks, Marjorie > > > > ===== > Claudine > claudinecrews@... > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 This info. was for a friend. She is a diabetic (insulin shots daily) went into the hospital when she developed sores in her mouth and lips and tongue were swelling twice their size. Her dr. diagnosis -- a kidney/bladder infection and yeast didn't say what caused the sores in her mouth or lips and tongue swelling. She has been on trmt for 3 and 1/2 months standard interferon /1000mg ribivirin. Her Dr never did a RNA PCR, no biopsy, has not had the routine blood work done (after two weeks and then once monthly). Her dr. says she has cirrhosis?? This is in a very small town in east Texas. She has no insurance, trying for SS and medical benefits. Could you tell me what you think about this. Does this Dr. know what he is doing or what!!! Thanks for any info., Marjorie Re: Lab Work > Marjorie, > It would be caused by the interferon. Has your > doctor recommended a dose reduction? That is probably > all you need. > Claudine > --- Marjorie Delese <mrdelese@...> wrote: > > Would the white count and platelets being low be > > caused from the > > interferon or ribivirin or both? Thanks, Marjorie > > > > ===== > Claudine > claudinecrews@... > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Marjorie, I suppose that she could have all these things wrong, the low WBC would make her more suceptable to infections, including yeast infections. The sores in her mouth could be yeast (called thrush when it occurs in the mouth) also. Being diabetic also makes a person more prone to yeast infections. (this isn't much help, I know. Sorry.) Claudine --- Marjorie Delese <mrdelese@...> wrote: > This info. was for a friend. She is a diabetic > (insulin shots daily) went > into the hospital when she developed sores in her > mouth and lips and tongue > were swelling twice their size. Her dr. diagnosis > -- a kidney/bladder > infection and yeast didn't say what caused the sores > in her mouth or lips > and tongue swelling. She has been on trmt for 3 and > 1/2 months standard > interferon /1000mg ribivirin. Her Dr never did a RNA > PCR, no biopsy, has not > had the routine blood work done (after two weeks and > then once monthly). Her > dr. says she has cirrhosis?? This is in a very small > town in east Texas. > She has no insurance, trying for SS and medical > benefits. Could you tell > me what you think about this. Does this Dr. know > what he is doing or > what!!! > Thanks for any info., Marjorie > > Re: Lab Work > > > > Marjorie, > > It would be caused by the interferon. Has > your > > doctor recommended a dose reduction? That is > probably > > all you need. > > Claudine > > --- Marjorie Delese <mrdelese@...> wrote: > > > Would the white count and platelets being low > be > > > caused from the > > > interferon or ribivirin or both? Thanks, > Marjorie > > > > > > > > ===== > > Claudine > > claudinecrews@... > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Marjorie, I suppose that she could have all these things wrong, the low WBC would make her more suceptable to infections, including yeast infections. The sores in her mouth could be yeast (called thrush when it occurs in the mouth) also. Being diabetic also makes a person more prone to yeast infections. (this isn't much help, I know. Sorry.) Claudine --- Marjorie Delese <mrdelese@...> wrote: > This info. was for a friend. She is a diabetic > (insulin shots daily) went > into the hospital when she developed sores in her > mouth and lips and tongue > were swelling twice their size. Her dr. diagnosis > -- a kidney/bladder > infection and yeast didn't say what caused the sores > in her mouth or lips > and tongue swelling. She has been on trmt for 3 and > 1/2 months standard > interferon /1000mg ribivirin. Her Dr never did a RNA > PCR, no biopsy, has not > had the routine blood work done (after two weeks and > then once monthly). Her > dr. says she has cirrhosis?? This is in a very small > town in east Texas. > She has no insurance, trying for SS and medical > benefits. Could you tell > me what you think about this. Does this Dr. know > what he is doing or > what!!! > Thanks for any info., Marjorie > > Re: Lab Work > > > > Marjorie, > > It would be caused by the interferon. Has > your > > doctor recommended a dose reduction? That is > probably > > all you need. > > Claudine > > --- Marjorie Delese <mrdelese@...> wrote: > > > Would the white count and platelets being low > be > > > caused from the > > > interferon or ribivirin or both? Thanks, > Marjorie > > > > > > > > ===== > > Claudine > > claudinecrews@... > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Marjorie, I suppose that she could have all these things wrong, the low WBC would make her more suceptable to infections, including yeast infections. The sores in her mouth could be yeast (called thrush when it occurs in the mouth) also. Being diabetic also makes a person more prone to yeast infections. (this isn't much help, I know. Sorry.) Claudine --- Marjorie Delese <mrdelese@...> wrote: > This info. was for a friend. She is a diabetic > (insulin shots daily) went > into the hospital when she developed sores in her > mouth and lips and tongue > were swelling twice their size. Her dr. diagnosis > -- a kidney/bladder > infection and yeast didn't say what caused the sores > in her mouth or lips > and tongue swelling. She has been on trmt for 3 and > 1/2 months standard > interferon /1000mg ribivirin. Her Dr never did a RNA > PCR, no biopsy, has not > had the routine blood work done (after two weeks and > then once monthly). Her > dr. says she has cirrhosis?? This is in a very small > town in east Texas. > She has no insurance, trying for SS and medical > benefits. Could you tell > me what you think about this. Does this Dr. know > what he is doing or > what!!! > Thanks for any info., Marjorie > > Re: Lab Work > > > > Marjorie, > > It would be caused by the interferon. Has > your > > doctor recommended a dose reduction? That is > probably > > all you need. > > Claudine > > --- Marjorie Delese <mrdelese@...> wrote: > > > Would the white count and platelets being low > be > > > caused from the > > > interferon or ribivirin or both? Thanks, > Marjorie > > > > > > > > ===== > > Claudine > > claudinecrews@... > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Marjorie, I suppose that she could have all these things wrong, the low WBC would make her more suceptable to infections, including yeast infections. The sores in her mouth could be yeast (called thrush when it occurs in the mouth) also. Being diabetic also makes a person more prone to yeast infections. (this isn't much help, I know. Sorry.) Claudine --- Marjorie Delese <mrdelese@...> wrote: > This info. was for a friend. She is a diabetic > (insulin shots daily) went > into the hospital when she developed sores in her > mouth and lips and tongue > were swelling twice their size. Her dr. diagnosis > -- a kidney/bladder > infection and yeast didn't say what caused the sores > in her mouth or lips > and tongue swelling. She has been on trmt for 3 and > 1/2 months standard > interferon /1000mg ribivirin. Her Dr never did a RNA > PCR, no biopsy, has not > had the routine blood work done (after two weeks and > then once monthly). Her > dr. says she has cirrhosis?? This is in a very small > town in east Texas. > She has no insurance, trying for SS and medical > benefits. Could you tell > me what you think about this. Does this Dr. know > what he is doing or > what!!! > Thanks for any info., Marjorie > > Re: Lab Work > > > > Marjorie, > > It would be caused by the interferon. Has > your > > doctor recommended a dose reduction? That is > probably > > all you need. > > Claudine > > --- Marjorie Delese <mrdelese@...> wrote: > > > Would the white count and platelets being low > be > > > caused from the > > > interferon or ribivirin or both? Thanks, > Marjorie > > > > > > > > ===== > > Claudine > > claudinecrews@... > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Marjorie, He may be cutting down costs but a close watch has to be kept on white counts and platelets. She is diabetic and more prone to infections once the white counts are down. I think she needs to have a complete blood profile to see as to what is going on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Marjorie, He may be cutting down costs but a close watch has to be kept on white counts and platelets. She is diabetic and more prone to infections once the white counts are down. I think she needs to have a complete blood profile to see as to what is going on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 one causes one and one causes the other but I forget which is which. I finally had to tell my boss about my hep and meds. I have been working a lot of overtime and then not able to get up the next morning to go in on time, much less try to come in two hours earlier than normal. She has allowed me to have my start time 30 minutes later so I have a little more leeway there and that should help. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 one causes one and one causes the other but I forget which is which. I finally had to tell my boss about my hep and meds. I have been working a lot of overtime and then not able to get up the next morning to go in on time, much less try to come in two hours earlier than normal. She has allowed me to have my start time 30 minutes later so I have a little more leeway there and that should help. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Marjarie where in east Texas? I know some good gastros in Longview and maybe I can help get her a REAL DOCTOR hahha... not completely kidding there. I love the east Texas pines.. but man am I glad I'm in a city with good docs for now with the hep. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Who would go on treatment without a biopsy, pcr and genotype? jeeeeeeeeeezus! I can only blame the doctor halfway in this. I feel the patient is at least 1/3 responsible ya know. Get informed! There are books at the bookstore about hep alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Since I've had the hep.. I've had more infections of all kinds (never had a damned bladder infection before hep! or kidney infection or sinus infection etc). My doc gave me 99 refills for Diflucan, cause I also get yeast infections, esp once a month. She might try to get that esp if her yeast problems are more of a cycle thing. I've tried to cut down on milk and dairy products and up on juice and water. Yep diabetics are notorious for having yeast and other problems that their body can't balance. Good luck alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 She is in Atlanta, Tx. she has no insurance and is not able to work so not much $$ either, she's trying for SS and medical benefits. She is not paying her GI dr. he's just billing her but also he's not treating her either. I haven't checked on her in a while, I've been gone. Have to e-mail through a friend of hers. I know she is out of the hospital and stopped (instructed by be-in- charge nurse and then the GI Dr) treatment since I last heard from her. She trust her ol' family Dr. Matt, everything he says is written in stone and she's going to do what he says. He doesn't know a thing about combo trmt, what to watch for , etc. etc. Marjorie Re: Lab Work > Marjarie where in east Texas? I know some good gastros in Longview and maybe > I can help get her a REAL DOCTOR hahha... not completely kidding there. I > love the east Texas pines.. but man am I glad I'm in a city with good docs > for now with the hep. > alley/ > ICQ 12631861 > alleypat@... > http://www.flash.net/~alleypat > > > -------------------------------------------------------------------- ---- > Need a credit card? > Instant Approval and 0% intro APR with Aria! > 1/7101/1/_/619765/_/964144022/ > -------------------------------------------------------------------- ---- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 She is in Atlanta, Tx. she has no insurance and is not able to work so not much $$ either, she's trying for SS and medical benefits. She is not paying her GI dr. he's just billing her but also he's not treating her either. I haven't checked on her in a while, I've been gone. Have to e-mail through a friend of hers. I know she is out of the hospital and stopped (instructed by be-in- charge nurse and then the GI Dr) treatment since I last heard from her. She trust her ol' family Dr. Matt, everything he says is written in stone and she's going to do what he says. He doesn't know a thing about combo trmt, what to watch for , etc. etc. Marjorie Re: Lab Work > Marjarie where in east Texas? I know some good gastros in Longview and maybe > I can help get her a REAL DOCTOR hahha... not completely kidding there. I > love the east Texas pines.. but man am I glad I'm in a city with good docs > for now with the hep. > alley/ > ICQ 12631861 > alleypat@... > http://www.flash.net/~alleypat > > > -------------------------------------------------------------------- ---- > Need a credit card? > Instant Approval and 0% intro APR with Aria! > 1/7101/1/_/619765/_/964144022/ > -------------------------------------------------------------------- ---- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 where in the hell is Atlanta Texas? I've lived in Buna, Kootnz, Silsbee, Longview, Rockwall, Quinlan.... the list goes on alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 where in the hell is Atlanta Texas? I've lived in Buna, Kootnz, Silsbee, Longview, Rockwall, Quinlan.... the list goes on alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 it's about 40 miles west of Texarkana Re: Lab Work > where in the hell is Atlanta Texas? I've lived in Buna, Kootnz, Silsbee, > Longview, Rockwall, Quinlan.... the list goes on > alley/ > ICQ 12631861 > alleypat@... > http://www.flash.net/~alleypat > > > -------------------------------------------------------------------- ---- > Missing old school friends? Find them here: > 1/7079/1/_/619765/_/964397566/ > -------------------------------------------------------------------- ---- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 it's about 40 miles west of Texarkana Re: Lab Work > where in the hell is Atlanta Texas? I've lived in Buna, Kootnz, Silsbee, > Longview, Rockwall, Quinlan.... the list goes on > alley/ > ICQ 12631861 > alleypat@... > http://www.flash.net/~alleypat > > > -------------------------------------------------------------------- ---- > Missing old school friends? Find them here: > 1/7079/1/_/619765/_/964397566/ > -------------------------------------------------------------------- ---- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2002 Report Share Posted April 17, 2002 Hi , From what I've read about lupus, the ANA count has to be fairly high to determine whether it's active lupus. Also there is typically (read " usually not always " ) a butterfly type rash on the face across the nose. FYI, I have an elevated ANA as well. Mine is low-moderate elevation vs mildly or severely. That was one factor that helped my doctors determine a PA diagnosis, I think. Here's what the Arthritis Foundation has to say on Lupus: http://arthritis.org/conditions/DiseaseCenter/lupus.asp If you have concerns about it, definitely talk about it with your rheumy. I certainly hope it's not Lupus though! That is terrible disease! Wishing you wellness, Meghan > hey all. i had my lab work done. i had an " ana " drawn and it is > elevated. i know that with 2 cousins of mine and a friend were > diagnosed with lupus by having this test done. does anyone know if it > elevates with pa? i know that it is rare in men but some men do get > it. my friend also said it could be possible for me to have both pa > and lupus. i know that alot of these symptoms are the same so any > input from anyone would be great. i know that when all this first > started i lost alot of hair. i could hardly stand and was a real > bitch! i still am ..lol.not to mention all the rashes and hives and > p. i do not feel i have made alot of progress since being diagnosed > with pa about 4 years ago. anyway if anyone knows about the ana let > me know..wishing you all well.kyle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 talk anytime about whatever you need to..We all go through the finance problems..Trust me my husband hasn't found work in 4 weeks..PTL he went offshore last night..Now for how long yet we don't know..So myself like many others do understand what you are going through..I wish you luck.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Have they checked your viral load? Sharon M B wrote: Hi Folks... When I went to the Hep C Specialty Clinic last month they told me that even though my liver enzymes were normal, they wanted to recheck them in 6 months and then in 6 months again. Then if they were still normal to check them every year. Well, the doc must have changed his mind. I got a call from the nurse saying the doc had written an order for a liver enzyme check now, in 2 months and again in 4 months. So I went in on Friday for the recheck. Now it's just the waiting game to see what the results are going to be like. I was hoping to do the liver biopsy in September but now I'm not sure if I will be able to do it then. I changed jobs and so far am not getting as many hours as I was getting with the other job. There is the potential that more hours may come in but time will tell. I hate it that my health has to depend so much on finances but I have Medicare and the co-pay is about $100 and I already owe them $45 for the abdominal ultrasound that I still have to pay. Guess I'll just have to wait and see what my hours look like. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Hello Why does it take always take so long to do all the testing etc.. I have an interview for the Clinical HCV Study Program this Tuesday. They will be doing another liver biopsy since the first was done on 03/30/99. I read my biopsy and it stated moderate fibrosis with swelling cells. Fibrosis tissue found at the portal were near point to point. Love and Hugs to all and their pets. M B wrote: Hi Folks... When I went to the Hep C Specialty Clinic last month they told me that even though my liver enzymes were normal, they wanted to recheck them in 6 months and then in 6 months again. Then if they were still normal to check them every year. Well, the doc must have changed his mind. I got a call from the nurse saying the doc had written an order for a liver enzyme check now, in 2 months and again in 4 months. So I went in on Friday for the recheck. Now it's just the waiting game to see what the results are going to be like. I was hoping to do the liver biopsy in September but now I'm not sure if I will be able to do it then. I changed jobs and so far am not getting as many hours as I was getting with the other job. There is the potential that more hours may come in but time will tell. I hate it that my health has to depend so much on finances but I have Medicare and the co-pay is about $100 and I already owe them $45 for the abdominal ultrasound that I still have to pay. Guess I'll just have to wait and see what my hours look like. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
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