Re: obessions

[Guest guest]

Is he on the gfcfsf diet? If not you definitely need to try it. It really

works for me and my son. It helps me put away obsessions and get on with my

life.

>

> My son has become quite obsessed with convincing his father to rescind a

punishment of witholding my son's hand held gaming device.  It has been a month,

and this is still all my son can talk about or think about.  When he has the

device (a Nintendo DSI), playing it is his obsession.  He becomes angry when

anyone interrupts him from using it, even just to ask him a question.

> The degree to which these obsessions own my son, makes me feel as if

behavioral techniques are not enough to free him from this.  It has to be

biological.  Any supplements that help repetitive interests and perseveration?

We are taking enhansa, GABA, glycine, taurine, Niacin, Inositol, B-6, B-12, CLO,

digestive enzymes, and Saccharomyces Boulardii. I even bought an over the

counter oxytocin spray, " Oxy Calm " .  

> I am really worried because he has told me that he has thought of " shooting "

his father.  Over a gaming device! Please, if anyone knows of something to free

him from this OCD and anger, let me know.

>

>

>

>

>

[Guest guest]

>

> My son has become quite obsessed with convincing his father to rescind a

punishment of witholding my son's hand held gaming device.

At my house, OCD issues were caused by yeast overgrowth, viruses, and B12

deficiency.

>>When he has the device (a Nintendo DSI), playing it is his obsession. He

becomes angry when anyone interrupts him from using it, even just to ask him a

question.

Have him help you develop a contract, that says things like " when I am allowed

to play with DSI, I will never display anger [be specific with his behaviors],

and if I do, I know I will be required to give it back " . Give time limits

also, like " I will be allowed to play with the DSI for no more than 30 minutes

at a time, and I will nicely turn it off and give it back at the end of that

time " .

> The degree to which these obsessions own my son, makes me feel as if

behavioral techniques are not enough to free him from this. It has to be

biological. Any supplements that help repetitive interests and perseveration?

We are taking enhansa, GABA, glycine, taurine, Niacin, Inositol, B-6, B-12, CLO,

digestive enzymes, and Saccharomyces Boulardii. I even bought an over the

counter oxytocin spray, " Oxy Calm " .

With that list, the first thing I would do is increase the yeast protocol. The

following things will tend to increase yeast for most kids: Enhansa [sometimes

helps control yeast, will cause an overgrowth if your kid is viral], niacin, B6,

B12.

> I am really worried because he has told me that he has thought of " shooting "

his father. Over a gaming device! Please, if anyone knows of something to free

him from this OCD and anger, let me know.

If my son said that, I would tell him that it was a highly inappropriate emotion

regarding a toy, and if he did not change his attitude toward his father and the

toy, then I would throw away the toy. We would write the contract I mentioned

above, and both of us would sign it. It would include at the end " if my

attitude regarding the DSI does not improve, I realize the DSI will be

discarded. "

Dana

[Guest guest]

Are you sure this is obsessive compulsive? At our house, this would be " special

interest " . My dd was dx'd and treated for ocd for years. It was Pandas.

Thanks to OLE and danasview, her ocd has been managed very well for 2 years now.

She still has " special interests " - right now it's anime on the computer. What

worked for one, did not work for the other.

The computer is now a very helpful tool in my parenting bag. I offer more time

for cooperation, less for intentional misbehavior. Special interests can be put

to good use.

If this issue is still unresolved, feel free to e me direct and I'll tell you

how I made it work for us.

My daughter is very spiritual and would never show aggression by choice, nor any

other " bad " behavior. Regardless, being interrupted when she is very tuned in

to her interest tends to push her " impulse-control " button and can result in an

angry response. I found a way to turn that into a positive as well. We are

both very happy with what her " special interest " brings to her life.

She's 14, but I'm sure this approach would have worked at a much younger age.

Darla

p.s. I was an undiagnosed aspie who was denied special interests. I still (at

47) have overwhelming resentment towards those who denied simple pleasures

because they didn't understand my needs. It sounds like your husband is trying

to control your son, rather than understand him - no offense. Does your son

have a dx?

obessions

My son has become quite obsessed with convincing his father to rescind a

punishment of witholding my son's hand held gaming device. It has been a month,

and this is still all my son can talk about or think about. When he has the

device (a Nintendo DSI), playing it is his obsession. He becomes angry when

anyone interrupts him from using it, even just to ask him a question.

The degree to which these obsessions own my son, makes me feel as if

behavioral techniques are not enough to free him from this. It has to be

biological. Any supplements that help repetitive interests and perseveration?

We are taking enhansa, GABA, glycine, taurine, Niacin, Inositol, B-6, B-12, CLO,

digestive enzymes, and Saccharomyces Boulardii. I even bought an over the

counter oxytocin spray, " Oxy Calm " .

I am really worried because he has told me that he has thought of " shooting "

his father. Over a gaming device! Please, if anyone knows of something to free

him from this OCD and anger, let me know.

[Guest guest]

Question; what acitivity has your son's dad put in place of the hand held gaming

device; which he obvioulsy enjoys; for example; you take away the one thing the

kid enjoys; and then you give him no substiture! I do not view playing video

games as a compulsion; A compluslion is where the child does not productive

actions; example;

a. complusion; chedks the door knob 10 days a day; Obession; wears only green

clothes etc; I DO NOT THINK VIDEO GAMES IS OCD; however; if your husband does

not want your son playing hand held vidoes then your should not say; we stop

this becausse tis is ocd; this is not ocd; be like saying; I took a 10 m. bike

ride; does that mena I am obssess or complused to bike ride; NO! means i like

bike riding; so your son; like computer games; I do not see this as a bad

behavior!

just my 2 c and ps I would keep doing the Sachromytes; incraase doaage

>

> Are you sure this is obsessive compulsive? At our house, this would be

" special interest " . My dd was dx'd and treated for ocd for years. It was

Pandas. Thanks to OLE and danasview, her ocd has been managed very well for 2

years now. She still has " special interests " - right now it's anime on the

computer. What worked for one, did not work for the other.

> The computer is now a very helpful tool in my parenting bag. I offer more

time for cooperation, less for intentional misbehavior. Special interests can

be put to good use.

> If this issue is still unresolved, feel free to e me direct and I'll tell you

how I made it work for us.

> My daughter is very spiritual and would never show aggression by choice, nor

any other " bad " behavior. Regardless, being interrupted when she is very tuned

in to her interest tends to push her " impulse-control " button and can result in

an angry response. I found a way to turn that into a positive as well. We are

both very happy with what her " special interest " brings to her life.

> She's 14, but I'm sure this approach would have worked at a much younger age.

> Darla

> p.s. I was an undiagnosed aspie who was denied special interests. I still (at

47) have overwhelming resentment towards those who denied simple pleasures

because they didn't understand my needs. It sounds like your husband is trying

to control your son, rather than understand him - no offense. Does your son

have a dx?

>

>

>

>

> obessions

>

>

> My son has become quite obsessed with convincing his father to rescind a

punishment of witholding my son's hand held gaming device. It has been a month,

and this is still all my son can talk about or think about. When he has the

device (a Nintendo DSI), playing it is his obsession. He becomes angry when

anyone interrupts him from using it, even just to ask him a question.

> The degree to which these obsessions own my son, makes me feel as if

behavioral techniques are not enough to free him from this. It has to be

biological. Any supplements that help repetitive interests and perseveration?

We are taking enhansa, GABA, glycine, taurine, Niacin, Inositol, B-6, B-12, CLO,

digestive enzymes, and Saccharomyces Boulardii. I even bought an over the

counter oxytocin spray, " Oxy Calm " .

> I am really worried because he has told me that he has thought of " shooting "

his father. Over a gaming device! Please, if anyone knows of something to free

him from this OCD and anger, let me know.

>

>

[Guest guest]

I am so glad someone is talking about obsessions. We have been dealing with that

here for a long time. My son can't stand to have a door or window open. That

makes life complicated. He has shut the door to the pantry with me in there on

many occasions. We must ride with all windows up in the car. He can't go outside

in the summer because of things flying around(we live in a rural community). He

freaks out when anything flying comes near him. That started when he was

bee-stung several years ago.

 

 I have an older son who started being a germaphobe when he took micro-biology

in college. It's funny you should mention Panda's. Isn't that tied to strep in

some way? Both of these boys had strep more times than you can count. The older

one never even ran a fever, just got a scratchy throat and became irritable. 

 

I would love to know more about this.

 

D.

From: <anne_white53@...>

Subject: Re: obessions

Date: Saturday, September 26, 2009, 7:01 AM

 

Question; what acitivity has your son's dad put in place of the hand held gaming

device; which he obvioulsy enjoys; for example; you take away the one thing the

kid enjoys; and then you give him no substiture! I do not view playing video

games as a compulsion; A compluslion is where the child does not productive

actions; example;

a. complusion; chedks the door knob 10 days a day; Obession; wears only green

clothes etc; I DO NOT THINK VIDEO GAMES IS OCD; however; if your husband does

not want your son playing hand held vidoes then your should not say; we stop

this becausse tis is ocd; this is not ocd; be like saying; I took a 10 m. bike

ride; does that mena I am obssess or complused to bike ride; NO! means i like

bike riding; so your son; like computer games; I do not see this as a bad

behavior!

just my 2 c and ps I would keep doing the Sachromytes; incraase doaage

>

> Are you sure this is obsessive compulsive? At our house, this would be

" special interest " . My dd was dx'd and treated for ocd for years. It was Pandas.

Thanks to OLE and danasview, her ocd has been managed very well for 2 years now.

She still has " special interests " - right now it's anime on the computer. What

worked for one, did not work for the other.

> The computer is now a very helpful tool in my parenting bag. I offer more time

for cooperation, less for intentional misbehavior. Special interests can be put

to good use.

> If this issue is still unresolved, feel free to e me direct and I'll tell you

how I made it work for us.

> My daughter is very spiritual and would never show aggression by choice, nor

any other " bad " behavior. Regardless, being interrupted when she is very tuned

in to her interest tends to push her " impulse-control " button and can result in

an angry response. I found a way to turn that into a positive as well. We are

both very happy with what her " special interest " brings to her life.

> She's 14, but I'm sure this approach would have worked at a much younger age.

> Darla

> p.s. I was an undiagnosed aspie who was denied special interests. I still (at

47) have overwhelming resentment towards those who denied simple pleasures

because they didn't understand my needs. It sounds like your husband is trying

to control your son, rather than understand him - no offense. Does your son have

a dx?

>

>

>

>

> obessions

>

>

> My son has become quite obsessed with convincing his father to rescind a

punishment of witholding my son's hand held gaming device. It has been a month,

and this is still all my son can talk about or think about. When he has the

device (a Nintendo DSI), playing it is his obsession. He becomes angry when

anyone interrupts him from using it, even just to ask him a question.

> The degree to which these obsessions own my son, makes me feel as if

behavioral techniques are not enough to free him from this. It has to be

biological. Any supplements that help repetitive interests and perseveration? We

are taking enhansa, GABA, glycine, taurine, Niacin, Inositol, B-6, B-12, CLO,

digestive enzymes, and Saccharomyces Boulardii. I even bought an over the

counter oxytocin spray, " Oxy Calm " .

> I am really worried because he has told me that he has thought of " shooting "

his father. Over a gaming device! Please, if anyone knows of something to free

him from this OCD and anger, let me know.

>

>

[Guest guest]

My daughter had her first bout of strep at 3, with a scratchy throat but no real

pain. She never had oh-my-god-I'm-dying strep. Shortly thereafter, she started

tic'ing. Eventually, she was dx'd with ocd and tourette's. We missed

opportunities for early intervention, as we were looking in the wrong direction

- she battled those symptoms for 7 years. My daughter's life was greatly

changed (for the better) when we found the truth.

Yes, the PANDAS is tied to strep, and both are tied to OCD. My dd had more

trouble with motor tics than ocd-ness, but she no longer struggles with either.

Now if we could just find a magic bean for teen acne....

Darla

From: drissia wright

Sent: Saturday, September 26, 2009 9:42 AM

Subject: Re: obessions

I am so glad someone is talking about obsessions. We have been dealing with

that here for a long time. My son can't stand to have a door or window open.

That makes life complicated. He has shut the door to the pantry with me in there

on many occasions. We must ride with all windows up in the car. He can't go

outside in the summer because of things flying around(we live in a rural

community). He freaks out when anything flying comes near him. That started when

he was bee-stung several years ago.

I have an older son who started being a germaphobe when he took micro-biology

in college. It's funny you should mention Panda's. Isn't that tied to strep in

some way? Both of these boys had strep more times than you can count. The older

one never even ran a fever, just got a scratchy throat and became irritable.

I would love to know more about this.

D.

From: <anne_white53@...>

Subject: Re: obessions

Date: Saturday, September 26, 2009, 7:01 AM

Question; what acitivity has your son's dad put in place of the hand held

gaming device; which he obvioulsy enjoys; for example; you take away the one

thing the kid enjoys; and then you give him no substiture! I do not view playing

video games as a compulsion; A compluslion is where the child does not

productive actions; example;

a. complusion; chedks the door knob 10 days a day; Obession; wears only green

clothes etc; I DO NOT THINK VIDEO GAMES IS OCD; however; if your husband does

not want your son playing hand held vidoes then your should not say; we stop

this becausse tis is ocd; this is not ocd; be like saying; I took a 10 m. bike

ride; does that mena I am obssess or complused to bike ride; NO! means i like

bike riding; so your son; like computer games; I do not see this as a bad

behavior!

just my 2 c and ps I would keep doing the Sachromytes; incraase doaage

>

> Are you sure this is obsessive compulsive? At our house, this would be

" special interest " . My dd was dx'd and treated for ocd for years. It was Pandas.

Thanks to OLE and danasview, her ocd has been managed very well for 2 years now.

She still has " special interests " - right now it's anime on the computer. What

worked for one, did not work for the other.

> The computer is now a very helpful tool in my parenting bag. I offer more

time for cooperation, less for intentional misbehavior. Special interests can be

put to good use.

> If this issue is still unresolved, feel free to e me direct and I'll tell

you how I made it work for us.

> My daughter is very spiritual and would never show aggression by choice, nor

any other " bad " behavior. Regardless, being interrupted when she is very tuned

in to her interest tends to push her " impulse-control " button and can result in

an angry response. I found a way to turn that into a positive as well. We are

both very happy with what her " special interest " brings to her life.

> She's 14, but I'm sure this approach would have worked at a much younger

age.

> Darla

> p.s. I was an undiagnosed aspie who was denied special interests. I still

(at 47) have overwhelming resentment towards those who denied simple pleasures

because they didn't understand my needs. It sounds like your husband is trying

to control your son, rather than understand him - no offense. Does your son have

a dx?

>

>

>

>

> obessions

>

>

> My son has become quite obsessed with convincing his father to rescind a

punishment of witholding my son's hand held gaming device. It has been a month,

and this is still all my son can talk about or think about. When he has the

device (a Nintendo DSI), playing it is his obsession. He becomes angry when

anyone interrupts him from using it, even just to ask him a question.

> The degree to which these obsessions own my son, makes me feel as if

behavioral techniques are not enough to free him from this. It has to be

biological. Any supplements that help repetitive interests and perseveration? We

are taking enhansa, GABA, glycine, taurine, Niacin, Inositol, B-6, B-12, CLO,

digestive enzymes, and Saccharomyces Boulardii. I even bought an over the

counter oxytocin spray, " Oxy Calm " .

> I am really worried because he has told me that he has thought of " shooting "

his father. Over a gaming device! Please, if anyone knows of something to free

him from this OCD and anger, let me know.

>

>

[Guest guest]

I have to disagree that video game playing cannot be OCD. The way the original

poster described it sounded very OCD to me- this is not a kid who sometimes

enjoys playing (like your bike riding example), it is all he can think about.

My older son has struggles some with OCD from having high blood histamine levels

(the other big cause of OCD aside from PANDAS). The way I understand it,

ANYTHING can be obsessive or compulsive- what makes it OCD is not what the

person is fixated on, but the character of the fixation itself.

I agree that this sounds like something biological rather than something that

can be addressed by parenting techniques. If there is any way to stop having a

battle over this while you treat the cause- find some way to stop taking it

away. It sounds like that is making the obsession worse. In the meantime, I'd

look into both PANDAS and high histamine (called Histadelia). Either way you

are probably going to be addressing bacteria. In my family, special diet is

absolutely necessary to address this. GF/Cf i a good start but not enough- we

had to do a low histamine diet, but that only kept symptoms at bay, didn't heal

the problem. We are now on GAPS (a version of SCD) and that is really healing

the problem.

-Sierra

>

> Question; what acitivity has your son's dad put in place of the hand held

gaming device; which he obvioulsy enjoys; for example; you take away the one

thing the kid enjoys; and then you give him no substiture! I do not view playing

video games as a compulsion; A compluslion is where the child does not

productive actions; example;

>

> a. complusion; chedks the door knob 10 days a day; Obession; wears only green

clothes etc; I DO NOT THINK VIDEO GAMES IS OCD; however; if your husband does

not want your son playing hand held vidoes then your should not say; we stop

this becausse tis is ocd; this is not ocd; be like saying; I took a 10 m. bike

ride; does that mena I am obssess or complused to bike ride; NO! means i like

bike riding; so your son; like computer games; I do not see this as a bad

behavior!

> just my 2 c and ps I would keep doing the Sachromytes; incraase doaage

[Guest guest]

What is a low histamine diet? That's a possibility. My children have allergies

out the roof. They have all been on allergy medications since they were babies.

My son has been through them all, now taking liquid Allegra. They work for a

while; when they stop, part of the side effects is aggressiveness.

Thanks,

D.

From: purpledragonmama05 <sierra.ansley@...>

Subject: Re: obessions

Date: Saturday, September 26, 2009, 3:31 PM

 

I have to disagree that video game playing cannot be OCD. The

way the original poster described it sounded very OCD to me- this is not a kid

who sometimes enjoys playing (like your bike riding example), it is all he can

think about. My older son has struggles some with OCD from having high blood

histamine levels (the other big cause of OCD aside from PANDAS). The way I

understand it, ANYTHING can be obsessive or compulsive- what makes it OCD is not

what the person is fixated on, but the character of the fixation itself.

I agree that this sounds like something biological rather than something that

can be addressed by parenting techniques. If there is any way to stop having a

battle over this while you treat the cause- find some way to stop taking it

away. It sounds like that is making the obsession worse. In the meantime, I'd

look into both PANDAS and high histamine (called Histadelia). Either way you

are probably going to be addressing bacteria. In my family, special diet is

absolutely necessary to address this. GF/Cf i a good start but not enough- we

had to do a low histamine diet, but that only kept symptoms at bay, didn't heal

the problem. We are now on GAPS (a version of SCD) and that is really healing

the problem.

-Sierra

>

> Question; what acitivity has your son's dad put in place of the hand held

gaming device; which he obvioulsy enjoys; for example; you take away the one

thing the kid enjoys; and then you give him no substiture! I do not view playing

video games as a compulsion; A compluslion is where the child does not

productive actions; example;

>

> a. complusion; chedks the door knob 10 days a day; Obession; wears only green

clothes etc; I DO NOT THINK VIDEO GAMES IS OCD; however; if your husband does

not want your son playing hand held vidoes then your should not say; we stop

this becausse tis is ocd; this is not ocd; be like saying; I took a 10 m. bike

ride; does that mena I am obssess or complused to bike ride; NO! means i like

bike riding; so your son; like computer games; I do not see this as a bad

behavior!

> just my 2 c and ps I would keep doing the Sachromytes; incraase doaage

[Guest guest]

Could you explain what PANDAS is? Also, are you saying that a strep infection

led to the OCD and the tourettes?

Thank you for sharing your stories.

>

> My daughter had her first bout of strep at 3, with a scratchy throat but no

real pain. She never had oh-my-god-I'm-dying strep. Shortly thereafter, she

started tic'ing. Eventually, she was dx'd with ocd and tourette's. We missed

opportunities for early intervention, as we were looking in the wrong direction

- she battled those symptoms for 7 years. My daughter's life was greatly

changed (for the better) when we found the truth.

> Yes, the PANDAS is tied to strep, and both are tied to OCD. My dd had more

trouble with motor tics than ocd-ness, but she no longer struggles with either.

> Now if we could just find a magic bean for teen acne....

> Darla

[Guest guest]

Comment: I understand from a 20/20 special; the OCD following sickness is " due

to the AntiBitoics; which somehow cause OCD; thnx. A.

> >

> > My daughter had her first bout of strep at 3, with a scratchy throat but no

real pain. She never had oh-my-god-I'm-dying strep. Shortly thereafter, she

started tic'ing. Eventually, she was dx'd with ocd and tourette's. We missed

opportunities for early intervention, as we were looking in the wrong direction

- she battled those symptoms for 7 years. My daughter's life was greatly

changed (for the better) when we found the truth.

> > Yes, the PANDAS is tied to strep, and both are tied to OCD. My dd had more

trouble with motor tics than ocd-ness, but she no longer struggles with either.

> > Now if we could just find a magic bean for teen acne....

> > Darla

>

[Guest guest]

Here's a post on my blog with my notes about high blood histamine levels and the

low histamine diet. If anyone has anything to ad, please do! If noting else, I

found this diet to be a great way to reduce my horrendous seasonal allergies.

http://roosclues.blogspot.com/2009/09/histadelia-and-low-histamine-diet.html

-Sierra

>

> What is a low histamine diet? That's a possibility. My children have allergies

out the roof. They have all been on allergy medications since they were babies.

My son has been through them all, now taking liquid Allegra. They work for a

while; when they stop, part of the side effects is aggressiveness.

>

> Thanks,

> D.

[Guest guest]

I'm not the original poster, but YES, strep can lead to OCD and Toureette's. I

think it is actually a pretty common cause. I've heard several explanations,

one is that the antibodies to strep can attack the brain, another is that strep

produces metabolites that affect the brain and lead to the symptoms. I haven't

personally looked into it much but if you search the archives of the group there

should be tons of info.

-Sierra

> >

> > My daughter had her first bout of strep at 3, with a scratchy throat but no

real pain. She never had oh-my-god-I'm-dying strep. Shortly thereafter, she

started tic'ing. Eventually, she was dx'd with ocd and tourette's. We missed

opportunities for early intervention, as we were looking in the wrong direction

- she battled those symptoms for 7 years. My daughter's life was greatly

changed (for the better) when we found the truth.

> > Yes, the PANDAS is tied to strep, and both are tied to OCD. My dd had more

trouble with motor tics than ocd-ness, but she no longer struggles with either.

> > Now if we could just find a magic bean for teen acne....

> > Darla

>

[Guest guest]

PANDAS is an autoimmune response. The body thinks that the basal ganglia

is a strep infection and attacks the brain to try to kill off the infection.

the body is confused and that's why expose to any kind of strep, including

the supposedly good strep strain of S. Thermiphilus sets some PANDAS kids

off on wicked flares.

Kerrie

In a message dated 9/28/2009 10:42:31 A.M. Eastern Daylight Time,

dsstarkey@... writes:

Pandas is a neurological issue. I don't buy into a lot of mainstream

theories/beliefs, but it was once explained to me (by med prof) as the immune

system attacking the brain in response to the strep or the antibiotics

(can't remember which). Sounded like mumbo jumbo to me, but maybe someone else

here knows?

[Guest guest]

Pandas is a neurological issue. I don't buy into a lot of mainstream

theories/beliefs, but it was once explained to me (by med prof) as the immune

system attacking the brain in response to the strep or the antibiotics (can't

remember which). Sounded like mumbo jumbo to me, but maybe someone else here

knows?

My dd's symptoms appeared shortly after a strep infection that didn't present

typically with high pain, but only a scratchy throat and change in personality

(sick kiditis). She began exhibiting some mild ocd-ish things and making a

noise in her throat. Correcting her (re the noise) led to an alternate tic.

She ultimately experienced days/weeks where the tic'ing was nonstop, and she was

utterly miserable.

When I finally got a clue, I didn't stop to educate myself on Pandas - I just

took list advice and started feeding her OLE. She was in a tic regression at

the time (occasional periods over the years when tics were gone for a while),

and we've never had to deal with tics or ocd thoughts since. We also take a

number of supportive nutes and such, but the primary tool for Pandas here is

definitely OLE.

Darla

Re: obessions

Could you explain what PANDAS is? Also, are you saying that a strep

infection led to the OCD and the tourettes?

Thank you for sharing your stories.

>

> My daughter had her first bout of strep at 3, with a scratchy throat but no

real pain. She never had oh-my-god-I'm-dying strep. Shortly thereafter, she

started tic'ing. Eventually, she was dx'd with ocd and tourette's. We missed

opportunities for early intervention, as we were looking in the wrong direction

- she battled those symptoms for 7 years. My daughter's life was greatly changed

(for the better) when we found the truth.

> Yes, the PANDAS is tied to strep, and both are tied to OCD. My dd had more

trouble with motor tics than ocd-ness, but she no longer struggles with either.

> Now if we could just find a magic bean for teen acne....

> Darla

[Guest guest]

Makes sense here. We have a family filled with auto immune problems. My older

son has Ulcerative colitis, uncles and aunts with Rheumatoid Arthritis, my

younger son with Celiac, my daughter with Alopecia and Hashimotos.

D.

From: ratlenhum@... <ratlenhum@...>

Subject: Re: obessions

Date: Monday, September 28, 2009, 10:57 AM

 

PANDAS is an autoimmune response. The body thinks that the

basal ganglia

is a strep infection and attacks the brain to try to kill off the infection.

the body is confused and that's why expose to any kind of strep, including

the supposedly good strep strain of S. Thermiphilus sets some PANDAS kids

off on wicked flares.

Kerrie

In a message dated 9/28/2009 10:42:31 A.M. Eastern Daylight Time,

dsstarkeycomcast (DOT) net writes:

Pandas is a neurological issue. I don't buy into a lot of mainstream

theories/beliefs, but it was once explained to me (by med prof) as the immune

system attacking the brain in response to the strep or the antibiotics

(can't remember which). Sounded like mumbo jumbo to me, but maybe someone else

here knows?

[Guest guest]

Thanks for the info. I have never looked into Pandas, but my kids all have ocd

behaviors on one level or another. Will try ocd. It's funny. When my son started

having the constant throat clearing, his pediatrician said it was allergies and

just kept prescribing different medications.

D.

From: Darla <dsstarkey@...>

Subject: Re: obessions

Date: Monday, September 28, 2009, 10:32 AM

 

Pandas is a neurological issue. I don't buy into a lot of

mainstream theories/beliefs, but it was once explained to me (by med prof) as

the immune system attacking the brain in response to the strep or the

antibiotics (can't remember which). Sounded like mumbo jumbo to me, but maybe

someone else here knows?

My dd's symptoms appeared shortly after a strep infection that didn't present

typically with high pain, but only a scratchy throat and change in personality

(sick kiditis). She began exhibiting some mild ocd-ish things and making a

noise in her throat. Correcting her (re the noise) led to an alternate tic.

She ultimately experienced days/weeks where the tic'ing was nonstop, and she was

utterly miserable.

When I finally got a clue, I didn't stop to educate myself on Pandas - I just

took list advice and started feeding her OLE. She was in a tic regression at

the time (occasional periods over the years when tics were gone for a while),

and we've never had to deal with tics or ocd thoughts since. We also take a

number of supportive nutes and such, but the primary tool for Pandas here is

definitely OLE.

Darla

Re: obessions

Could you explain what PANDAS is? Also, are you saying that a strep infection

led to the OCD and the tourettes?

Thank you for sharing your stories.

>

> My daughter had her first bout of strep at 3, with a scratchy throat but no

real pain. She never had oh-my-god-I' m-dying strep. Shortly thereafter, she

started tic'ing. Eventually, she was dx'd with ocd and tourette's. We missed

opportunities for early intervention, as we were looking in the wrong direction

- she battled those symptoms for 7 years. My daughter's life was greatly changed

(for the better) when we found the truth.

> Yes, the PANDAS is tied to strep, and both are tied to OCD. My dd had more

trouble with motor tics than ocd-ness, but she no longer struggles with either.

> Now if we could just find a magic bean for teen acne....

> Darla

[Guest guest]

Thanks.

From: purpledragonmama05 <sierra.ansley@...>

Subject: Re: obessions

Date: Sunday, September 27, 2009, 4:41 PM

 

Here's a post on my blog with my notes about high blood

histamine levels and the low histamine diet. If anyone has anything to ad,

please do! If noting else, I found this diet to be a great way to reduce my

horrendous seasonal allergies.

http://roosclues. blogspot. com/2009/ 09/histadelia- and-low-histamin

e-diet.html

-Sierra

>

> What is a low histamine diet? That's a possibility. My children have allergies

out the roof. They have all been on allergy medications since they were babies.

My son has been through them all, now taking liquid Allegra. They work for a

while; when they stop, part of the side effects is aggressiveness.

>

> Thanks,

> D.

__________________________________________________

[Guest guest]

Interesting - my son (12 yo/Asperger's) makes this noise w/his throat and asks

what he can do to make it stop - says it's " itching " . He's had several bouts of

strep/scarlet fever. Had his tonsils out last year. Now wondering if he has

PANDAS - how do we test for that?

His main issues are hand-flapping, focusing in on his topics of interest (that's

all he's interested in talking about), can't concentrate, clumsy and just can't

relate to other kids (due to his obsessions, I think).

If we start OLE, should we simultaneously treat for yeast (he also will laugh

while sleeping - yeast issue?).?

Thanks!

Deb

She began exhibiting some mild ocd-ish things and making a noise in her throat.

Correcting her (re the noise) led to an alternate tic. She ultimately

experienced days/weeks where the tic'ing was nonstop, and she was utterly

miserable.

>

> When I finally got a clue, I didn't stop to educate myself on Pandas - I just

took list advice and started feeding her OLE. She was in a tic regression at

the time (occasional periods over the years when tics were gone for a while),

and we've never had to deal with tics or ocd thoughts since. We also take a

number of supportive nutes and such, but the primary tool for Pandas here is

definitely OLE.

>

> Darla

> >

>

>

[Guest guest]

Hi deb. My 11 year old son used to make the ssame noises. We were up to every 7

seconds at his worst. When we eliminated dairy from his diet the noises

amazingly went away. I know the dairy is a contributing factor for him. I let

him have one banana split on the last day our ice cream shop was going to close

for the season. 3 hours later he was starting the noises again. For jake it took

72 hours for that to clear his system or most of his system.

Sent from my Verizon Wireless BlackBerry

Re: obessions

Interesting - my son (12 yo/Asperger's) makes this noise w/his throat and asks

what he can do to make it stop - says it's " itching " . He's had several bouts of

strep/scarlet fever. Had his tonsils out last year. Now wondering if he has

PANDAS - how do we test for that?

His main issues are hand-flapping, focusing in on his topics of interest (that's

all he's interested in talking about), can't concentrate, clumsy and just can't

relate to other kids (due to his obsessions, I think).

If we start OLE, should we simultaneously treat for yeast (he also will laugh

while sleeping - yeast issue?).?

Thanks!

Deb

She began exhibiting some mild ocd-ish things and making a noise in her throat.

Correcting her (re the noise) led to an alternate tic. She ultimately

experienced days/weeks where the tic'ing was nonstop, and she was utterly

miserable.

>

> When I finally got a clue, I didn't stop to educate myself on Pandas - I just

took list advice and started feeding her OLE. She was in a tic regression at

the time (occasional periods over the years when tics were gone for a while),

and we've never had to deal with tics or ocd thoughts since. We also take a

number of supportive nutes and such, but the primary tool for Pandas here is

definitely OLE.

>

> Darla

> >

>

>

[Guest guest]

Hi All,

We have battled PANDAS/OCD for almost two years in my 10 year old. I can

absolutely guarantee you it's very real. We use the SCDiet, anti-fungals,

Taurine, Omega 3-s, melatonin and GABA. We have also used magnesium,inositol and

probiotics.We are part of a study right now that uses cefdinir against the

original strep infection for 6 weeks.Hopefully it will work. It has ruined my

daughters life, and we are slowly regaining her back. A good griend has a son

with PANDAS, and he cannot leave the house somedays because of his OCD.

The biggest problem is that if the infection is more than 6 months out, you will

test positive for strep so many uneducated docs will dismiss it as Tourette's.

Tourett's is kind of a catch-all, kind of like autism is for our family. Sheila

wrote a good book on Natural treatments for Tourette's and Tic Disorders.

By far our biggest helpers were the SCD and Taurine, melatonin and GABA.

Hope this helps,

Susi

[Guest guest]

I agree; OCD is a diasese which affects a person's life;

I agree with the supplements you are using; you may consider : adding a Liquid

Vitmain B-Complex; just to get the B-Vits. levels up; my point is: (according to

Dr. 's website at www.ocd-free.org

is washing hands; checking things; agoraphobia; eating disorders ARE diseases;

however Dr. 's comment is (as best as I can see is

Take an oridinary table lamp; the lightbulb is good; the lamp is good; and the

source of energy is good; but the lamp does not turn on;

why ? because their is faulty wiring going from the lamp to the bulb;

This is what thinks OCD ia about; the " wires from your son's mind;

which is fine; or your daughter's lamp (the health) is fine; but the child has

OCD; this is because there is faulty wiring in the child's nervous system WHERE

THE MESSAGE DOES NOT REACH THE MIND; so the child repeats the same action;

becasue they dont' get the message and the is caused by IMO and s' A

DEFCICINEY OF VITMAIN B12; VIT. B1; B2; B3; B5; B6 (GABA); CHOLINE INOSITIOL

VIT. C

So you are on the right tract with the Supplements; which are working!

>

> Hi All,

>

> We have battled PANDAS/OCD for almost two years in my 10 year old. I can

absolutely guarantee you it's very real. We use the SCDiet, anti-fungals,

Taurine, Omega 3-s, melatonin and GABA. We have also used magnesium,inositol and

probiotics.We are part of a study right now that uses cefdinir against the

original strep infection for 6 weeks.Hopefully it will work. It has ruined my

daughters life, and we are slowly regaining her back. A good griend has a son

with PANDAS, and he cannot leave the house somedays because of his OCD.

>

> The biggest problem is that if the infection is more than 6 months out, you

will test positive for strep so many uneducated docs will dismiss it as

Tourette's. Tourett's is kind of a catch-all, kind of like autism is for our

family. Sheila wrote a good book on Natural treatments for Tourette's and

Tic Disorders.

>

> By far our biggest helpers were the SCD and Taurine, melatonin and GABA.

>

> Hope this helps,

> Susi

>

[Guest guest]

> Thanks for the info. I have never looked into Pandas, but my kids all have ocd

behaviors on one level or another. Will try ocd. It's funny. When my son started

having the constant throat clearing, his pediatrician said it was allergies and

just kept prescribing different medications.

Constant throat clearing, at my house, meant yeast overgrowth. OCD was caused

by yeast, viruses, and B12 deficiency. Therefore, I would first try increasing

the yeast protocol, see if that helps.

Dana

[Guest guest]

> Interesting - my son (12 yo/Asperger's) makes this noise w/his throat and asks

what he can do to make it stop - says it's " itching " . He's had several bouts of

strep/scarlet fever. Had his tonsils out last year. Now wondering if he has

PANDAS - how do we test for that?

> His main issues are hand-flapping, focusing in on his topics of interest

(that's all he's interested in talking about), can't concentrate, clumsy and

just can't relate to other kids (due to his obsessions, I think).

Throat noises, flapping, and obsessions were all caused by yeast here.

[Flapping and obsessions had other causes also, but yeast was one of them.]

> If we start OLE, should we simultaneously treat for yeast (he also will laugh

while sleeping - yeast issue?).?

Yes, definitely increase yeast protocol.

Dana

[Guest guest]

Sorry, was off-line. I'm sure others have answered, as I'm days behind. We

always treat yeast along with the Pandas. We've used a lot of things, but often

use Candida Yeast Management from vitacost for budget reasons.

Darla

Re: obessions

Interesting - my son (12 yo/Asperger's) makes this noise w/his throat and

asks what he can do to make it stop - says it's " itching " . He's had several

bouts of strep/scarlet fever. Had his tonsils out last year. Now wondering if he

has PANDAS - how do we test for that?

His main issues are hand-flapping, focusing in on his topics of interest

(that's all he's interested in talking about), can't concentrate, clumsy and

just can't relate to other kids (due to his obsessions, I think).

If we start OLE, should we simultaneously treat for yeast (he also will laugh

while sleeping - yeast issue?).?

Thanks!

Deb

She began exhibiting some mild ocd-ish things and making a noise in her

throat. Correcting her (re the noise) led to an alternate tic. She ultimately

experienced days/weeks where the tic'ing was nonstop, and she was utterly

miserable.

>

> When I finally got a clue, I didn't stop to educate myself on Pandas - I

just took list advice and started feeding her OLE. She was in a tic regression

at the time (occasional periods over the years when tics were gone for a while),

and we've never had to deal with tics or ocd thoughts since. We also take a

number of supportive nutes and such, but the primary tool for Pandas here is

definitely OLE.

>

> Darla

> >

>

>

[Guest guest]

We have been struggling with this for years. My son can't stand to have a door

or window open. He closes every door in the house. Has a fit if the pantry door

is open, even if someone is in there. We have to ride with the windows up. Can't

stand anything that flies, so he won't go outside anymore.  If we get a fly in

the car, we have to stop on the side of the road to get it out, because he can

From: <anne_white53@...>

Subject: Re: obessions

Date: Saturday, September 26, 2009, 7:01 AM

 

Question; what acitivity has your son's dad put in place of the hand held gaming

device; which he obvioulsy enjoys; for example; you take away the one thing the

kid enjoys; and then you give him no substiture! I do not view playing video

games as a compulsion; A compluslion is where the child does not productive

actions; example;

a. complusion; chedks the door knob 10 days a day; Obession; wears only green

clothes etc; I DO NOT THINK VIDEO GAMES IS OCD; however; if your husband does

not want your son playing hand held vidoes then your should not say; we stop

this becausse tis is ocd; this is not ocd; be like saying; I took a 10 m. bike

ride; does that mena I am obssess or complused to bike ride; NO! means i like

bike riding; so your son; like computer games; I do not see this as a bad

behavior!

just my 2 c and ps I would keep doing the Sachromytes; incraase doaage

>

> Are you sure this is obsessive compulsive? At our house, this would be

" special interest " . My dd was dx'd and treated for ocd for years. It was Pandas.

Thanks to OLE and danasview, her ocd has been managed very well for 2 years now.

She still has " special interests " - right now it's anime on the computer. What

worked for one, did not work for the other.

> The computer is now a very helpful tool in my parenting bag. I offer more time

for cooperation, less for intentional misbehavior. Special interests can be put

to good use.

> If this issue is still unresolved, feel free to e me direct and I'll tell you

how I made it work for us.

> My daughter is very spiritual and would never show

aggression by choice, nor any other " bad " behavior. Regardless, being

interrupted when she is very tuned in to her interest tends to push her

" impulse-control " button and can result in an angry response. I found a way to

turn that into a positive as well. We are both very happy with what her " special

interest " brings to her life.

> She's 14, but I'm sure this approach would have worked at a much younger age.

> Darla

> p.s. I was an undiagnosed aspie who was denied special interests. I still (at

47) have overwhelming resentment towards those who denied simple pleasures

because they didn't understand my needs. It sounds like your husband is trying

to control your son, rather than understand him - no offense. Does your son have

a dx?

>

>

>

>

> obessions

>

>

> My son has become quite obsessed with convincing his father to rescind a

punishment of witholding my son's hand held gaming device. It has been a month,

and this is still all my son can talk about or think about. When he has the

device (a Nintendo DSI), playing it is his obsession. He becomes angry when

anyone interrupts him from using it, even just to ask him a question.

> The degree to which these obsessions own my son, makes me feel as if

behavioral techniques are not enough to free him from this. It has to be

biological. Any supplements that help repetitive interests and perseveration? We

are taking enhansa, GABA, glycine,

taurine, Niacin, Inositol, B-6, B-12, CLO, digestive enzymes, and Saccharomyces

Boulardii. I even bought an over the counter oxytocin spray, " Oxy Calm " .

> I am really worried because he has told me that he has thought of " shooting "

his father. Over a gaming device! Please, if anyone knows of something to free

him from this OCD and anger, let me know.

>

>