Re:preparing for mediation with school

[Guest guest]

Tami

I wanted to comment that I would not even mention this email group to a school

district in the context of mediation or an IEP. We are not professionals and

are really no more than a faceless and nameless group of anonymous individuals

who discuss protocols that are not typically mainstream. Anybody on here could

even claim to be a Dr. or Nurse and nobody would know the difference. We have

absolutely no standing whatsoever with a school district - and shouldn't. How do

you know what kind of cockamamie advice you could get here or anywhere on the

internet for that matter. You are probably here - like me - because you need

somewhere to talk these things over and this is a good group - but I do check

things out for myself elsewhere and discuss with Drs. I think you would be

doing yourself a disservice just by taking up time talking about something that

is irrelevant to a school. I missed out on your original discussion but am

assuming it has to do with administration of

enzymes during school hours or something like that. The ONLY thing a school

has to pay attention to is a professional recommendation. Go get a Dr. to write

you a letter and you will accomplish everything you want. They are required by

law to follow a Dr.s directions. I needed my son to leave school early 2 days a

week every week and the storm clouds starting gathering over Mount School

District Special Ed Dept. while they practiced putting on frowns and saying no.

So I went back to our Neuropsych who wrote a letter stating that he recommended

an early dismissal for reasons of stamina and that was the end of it. No more

discussion - they had to respond to a professional medical recommendation.

You might want to go to the s Law website and search for information

regarding medical issues. You can also call or email them and they will answer

questions for you.

They are headed up by and Pam . Pete has successfully

argued 2 cases for Special Education in front of the US Supreme Court, and

countless others in lower courts.

I would also recommend that you contact your local Downs organization and ask

if they have anyone who is familiar with this issue. I have found that The

Upside of Downs - ( I don't know if they are national ) here locally has a super

strong parent advocacy group and they are just militant about knowing the law

and their parental rights in the school districts - I've found them to be a very

good resource. The Downs kids were way ahead of the autistic kids in getting

services, aides, etc. In fact in my school district the Downs kids all have an

aide while kids with obvious other medical conditions are getting zip. It was

all a matter of organization and collective clout.

Have you contacted the Learning Disabilities Association? LDA. Or the ARC of

your state?

These people all have years and years of experience that the autism community

is just now gathering. You could also contact your County Job and Family

Services to just ask if they can point you to a parent advocacy group. There is

a group in Ohio called OCECD or Ohio Coalition for the Education of Children

with Disabilities. OCECD is a great org - and they have sister groups in 13

other states - but you'd have to contact them to see which ones. They are a free

parent advocacy organization and will consult with you for free on your

particular issues. Also - you could call your State Dept of Education and ask

for help.

I think there are many other avenues for you to get what you want besides

giving them the name of an internet website and thinking that that will

legitimize what you want to do.

Good luck and I hope you succeed

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Liz D.