Guest guest Posted May 30, 2010 Report Share Posted May 30, 2010 I am right there with you. Give her gum and lower stress levels around her. One psych says these kids are highly stressed and repetitive actions are their attempt to calm themselves.I am really starting to believe that. I am wanting a calming vitamin/medicine. I notice being in nature helps,exercise helps, taking a warm bath, happy music helps, not talking about them in front of them or talking about stressful things helps,carrying heavy things, . Any other ideas to calm a sensitive nervous system? Was your daughter born very bright and sensitive to everything? I am also, if I am honest, a worrier. I notice my daughter does it more as she tires. Prayers for all these kids! Welcome others ideas that stress plays a very important cause in addition to others for ASD kids. Wonder if there is an autism prayer/good thought site out there also? From: Yarkoni <tanya.yarkoni@...> Subject: improve focus Date: Sunday, May 30, 2010, 1:06 PM  my daughter seems to be all over the place and not really into focusing on anything she self-stimulates a lot lots of hands in mouth, hand movements she runs from room to room any thoughts about making her more grounded Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2010 Report Share Posted May 30, 2010 i agree with exercise, she loves happy music, taking a warm bath (we do that frequently) i need to get better at not talking about her around her. i try to avoid it. i have no idea how much she understands i think a calcium/magnesium vitamin would be good but am not sure what to give her. i have to crush everything and add it to her rice milk in a bottle.  ________________________________ From: Evangeline <eaofthehills@...> Sent: Mon, May 31, 2010 12:00:51 AM Subject: Re: improve focus  I am right there with you. Give her gum and lower stress levels around her. One psych says these kids are highly stressed and repetitive actions are their attempt to calm themselves.I am really starting to believe that. I am wanting a calming vitamin/medicine. I notice being in nature helps,exercise helps, taking a warm bath, happy music helps, not talking about them in front of them or talking about stressful things helps,carrying heavy things, . Any other ideas to calm a sensitive nervous system? Was your daughter born very bright and sensitive to everything? I am also, if I am honest, a worrier. I notice my daughter does it more as she tires. Prayers for all these kids! Welcome others ideas that stress plays a very important cause in addition to others for ASD kids. Wonder if there is an autism prayer/good thought site out there also? From: Yarkoni <tanya.yarkoni@...> Subject: improve focus Date: Sunday, May 30, 2010, 1:06 PM  my daughter seems to be all over the place and not really into focusing on anything she self-stimulates a lot lots of hands in mouth, hand movements she runs from room to room any thoughts about making her more grounded Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2010 Report Share Posted May 31, 2010 my son puts his hands in the mouth a lot lately and has lots of self-stimulating behaviours, I totally understand what you're going through! we've been told it's a luck of zinc, what I did is I just ordered this multi-vitamin/minerals wafers that I'm hoping he'll like. I don't know if it's going to work because we haven't received it yet! they are from Kirkman, I have faith they will help. good luck, > > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2010 Report Share Posted May 31, 2010 i am confused because i give her zinc drops every night.  ________________________________ From: saba_ale <saba_ale@...> Sent: Mon, May 31, 2010 3:20:03 PM Subject: Re: improve focus  my son puts his hands in the mouth a lot lately and has lots of self-stimulating behaviours, I totally understand what you're going through! we've been told it's a luck of zinc, what I did is I just ordered this multi-vitamin/minerals wafers that I'm hoping he'll like. I don't know if it's going to work because we haven't received it yet! they are from Kirkman, I have faith they will help. good luck, > > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2010 Report Share Posted May 31, 2010 how's your yeast protocol? could be our old nemesis yeast. nancy j From: Yarkoni <tanya.yarkoni@...> Subject: Re: Re: improve focus Date: Monday, May 31, 2010, 5:33 AM  i am confused because i give her zinc drops every night.  ________________________________ From: saba_ale <saba_ale@...> Sent: Mon, May 31, 2010 3:20:03 PM Subject: Re: improve focus  my son puts his hands in the mouth a lot lately and has lots of self-stimulating behaviours, I totally understand what you're going through! we've been told it's a luck of zinc, what I did is I just ordered this multi-vitamin/minerals wafers that I'm hoping he'll like. I don't know if it's going to work because we haven't received it yet! they are from Kirkman, I have faith they will help. good luck, > > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2010 Report Share Posted May 31, 2010  she also goes spacey so often just staring out the side of her eye my yeast protocol.... i have started on one solgar biotin a day and one cap of culturelle. she gets some fruit and a few teaspoons of honey in a day  ________________________________ From: nancy cook <endofautism@...> Sent: Mon, May 31, 2010 5:31:10 PM Subject: Re: Re: improve focus  how's your yeast protocol? could be our old nemesis yeast. nancy j From: Yarkoni <tanya.yarkoni@...> Subject: Re: Re: improve focus Date: Monday, May 31, 2010, 5:33 AM  i am confused because i give her zinc drops every night.  ________________________________ From: saba_ale <saba_ale@...> Sent: Mon, May 31, 2010 3:20:03 PM Subject: Re: improve focus  my son puts his hands in the mouth a lot lately and has lots of self-stimulating behaviours, I totally understand what you're going through! we've been told it's a luck of zinc, what I did is I just ordered this multi-vitamin/minerals wafers that I'm hoping he'll like. I don't know if it's going to work because we haven't received it yet! they are from Kirkman, I have faith they will help. good luck, > > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2010 Report Share Posted May 31, 2010 nancy what did you do for the yeast protocol?  ________________________________ From: nancy cook <endofautism@...> Sent: Mon, May 31, 2010 5:31:10 PM Subject: Re: Re: improve focus  how's your yeast protocol? could be our old nemesis yeast. nancy j From: Yarkoni <tanya.yarkoni@...> Subject: Re: Re: improve focus Date: Monday, May 31, 2010, 5:33 AM  i am confused because i give her zinc drops every night.  ________________________________ From: saba_ale <saba_ale@...> Sent: Mon, May 31, 2010 3:20:03 PM Subject: Re: improve focus  my son puts his hands in the mouth a lot lately and has lots of self-stimulating behaviours, I totally understand what you're going through! we've been told it's a luck of zinc, what I did is I just ordered this multi-vitamin/minerals wafers that I'm hoping he'll like. I don't know if it's going to work because we haven't received it yet! they are from Kirkman, I have faith they will help. good luck, > > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2010 Report Share Posted June 4, 2010 > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded These were usually yeast symptoms at my house. You might also try digestive enzymes, if you don't already use them. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2010 Report Share Posted June 4, 2010  like trienza? ________________________________ From: danasview <danasview@...> Sent: Fri, June 4, 2010 5:15:30 PM Subject: Re: improve focus  > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded These were usually yeast symptoms at my house. You might also try digestive enzymes, if you don't already use them. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 Have you had a sensory assessment? My son also has focus issues and running from room to room. Some of his issues are related to yeast, but he's also looking for some sensory input. We've just started Sensory integration therapy to see if that helps. Karla > > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 How do you get Sensory Integration Therapy. I have been trying to get that since my son was 8 years old and have never been able to. He's had ot by 2 different therapists and the school did a test showing that he had serious problems with sensory issues, but it's like nobody knows what to do about it. From: wiersmak <wiersmak@...> Subject: Re: improve focus Date: Saturday, June 5, 2010, 8:46 AM Â Have you had a sensory assessment? My son also has focus issues and running from room to room. Some of his issues are related to yeast, but he's also looking for some sensory input. We've just started Sensory integration therapy to see if that helps. Karla > > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 The SPD foundation is a good place to start. Theres a link to find OT providers that specialize in SPD. We see a clinic in our local area that deals with SPD and thankfully our insurance covers 100% after our deductible. They will also work with his school on things they can implement to help. Karla http://www.spdfoundation.net/ > > How do you get Sensory Integration Therapy. I have been trying to get that since my son was 8 years old and have never been able to. He's had ot by 2 different therapists and the school did a test showing that he had serious problems with sensory issues, but it's like nobody knows what to do about it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 Get the book " Raising a Sensory Smart Child " . (can't remember the author) and take her suggestions. We did this and it worked wonders with our guy. We needed to learn how to " play in a productive way " with him. nancy j From: wiersmak <wiersmak@...> Subject: Re: improve focus Date: Saturday, June 5, 2010, 8:46 AM  Have you had a sensory assessment? My son also has focus issues and running from room to room. Some of his issues are related to yeast, but he's also looking for some sensory input. We've just started Sensory integration therapy to see if that helps. Karla > > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 Thanks. My guy is 17 now, but only functions on about an 8 year level. Do you think it would help him and where do I find it? From: wiersmak <wiersmak@...> Subject: Re: improve focus Date: Saturday, June 5, 2010, 8:46 AM Â Have you had a sensory assessment? My son also has focus issues and running from room to room. Some of his issues are related to yeast, but he's also looking for some sensory input. We've just started Sensory integration therapy to see if that helps. Karla > > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 We got ours from the library. No use buying when you can borrow. Also you can look over the other books on sensory integration issues. Only look at books that are about 4 years old because anything older doesn't take into account all the new information out there about our kids. nancy j From: wiersmak <wiersmak@...> Subject: Re: improve focus Date: Saturday, June 5, 2010, 8:46 AM  Have you had a sensory assessment? My son also has focus issues and running from room to room. Some of his issues are related to yeast, but he's also looking for some sensory input. We've just started Sensory integration therapy to see if that helps. Karla > > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 ok thanks. I will. From: wiersmak <wiersmak@...> Subject: Re: improve focus Date: Saturday, June 5, 2010, 8:46 AM Â Have you had a sensory assessment? My son also has focus issues and running from room to room. Some of his issues are related to yeast, but he's also looking for some sensory input. We've just started Sensory integration therapy to see if that helps. Karla > > my daughter seems to be all over the place > and not really into focusing on anything > she self-stimulates a lot > lots of hands in mouth, hand movements > she runs from room to room > any thoughts about making her more grounded > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 My son's attention is helped by fighting yeast and B-vitamins. > > > > > > > > > > my daughter seems to be all over the place > > > > > and not really into focusing on anything > > > > > she self-stimulates a lot > > > > > lots of hands in mouth, hand movements > > > > > she runs from room to room > > > > > any thoughts about making her more grounded > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 What do you use to fight yeast? Do you get a lot of negative behavioral reactions? Which B vitamins. We have had so many setbacks here that now I ask for details if I can get them. From: <ckrupa3672@...> Subject: Re: improve focus Date: Sunday, June 6, 2010, 9:45 AM Â My son's attention is helped by fighting yeast and B-vitamins. > > > > > > > > > > my daughter seems to be all over the place > > > > > and not really into focusing on anything > > > > > she self-stimulates a lot > > > > > lots of hands in mouth, hand movements > > > > > she runs from room to room > > > > > any thoughts about making her more grounded > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 > like trienza? Yes Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 , My daughter was diagnosed PDD-NOS at 3 (now almost 4, significant issues since 15 months), but it's mostly Sensory Integration issues. We've been getting Occupational Therapy for over a year now through our local Children's Hospital. Public Schools are supposed to provide Occupational Therapy for children that test low in sensory but usually only if it is disrupting or delaying classroom performance, so I would definitely seek this out through your son's IEP if you're able. It's difficult to get insurance to cover OT because most programs cut it off for developmental delays once the kid hits school age (because of the public school supposedly covering it). Our daily sensory diet includes swinging & brushing stimulation, but we've been doing it so long now that I probably work in other sensory things without realizing it -- the books will help with that, but also an OT. Additionally, we've found that high doses of Omega-3 EPAs (we use Nordic Naturals EPA mostly but are currently trying their Ultimate Omega, which is less fishy & has the same EPAs though lower ratio EPA:DHA, but more Omegas overall) for focus & got very positive results within a week of beginning those. We've continued to see improvement as she continues to take them. We've also added in various probiotics recently, since many of her sensory issues end up being apparently related to yeast overgrowth in her stool. We use a general children's probiotic daily, but then add in Kefir, yogurt, & Houston's AFP Chewable probiotics when she has a sensory surge. Good luck! > > > > > > > my daughter seems to be all over the place > > > and not really into focusing on anything > > > she self-stimulates a lot > > > lots of hands in mouth, hand movements > > > she runs from room to room > > > any thoughts about making her more grounded > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 This is all so interesting. We live in Israel. I know about skin brushing and swinging. We try to incorporate a lot of physical and motor work into her program. Can you tell me the quantities of omega 3 you are using daily. I give her one cap of culturelle daily. Leia always seems to have stomach issues. Do you make your own yogurt? Thanks ________________________________ From: cat.tejnecky <cat.tejnecky@...> Sent: Sun, June 6, 2010 8:38:10 PM Subject: Re: improve focus  , My daughter was diagnosed PDD-NOS at 3 (now almost 4, significant issues since 15 months), but it's mostly Sensory Integration issues. We've been getting Occupational Therapy for over a year now through our local Children's Hospital. Public Schools are supposed to provide Occupational Therapy for children that test low in sensory but usually only if it is disrupting or delaying classroom performance, so I would definitely seek this out through your son's IEP if you're able. It's difficult to get insurance to cover OT because most programs cut it off for developmental delays once the kid hits school age (because of the public school supposedly covering it). Our daily sensory diet includes swinging & brushing stimulation, but we've been doing it so long now that I probably work in other sensory things without realizing it -- the books will help with that, but also an OT. Additionally, we've found that high doses of Omega-3 EPAs (we use Nordic Naturals EPA mostly but are currently trying their Ultimate Omega, which is less fishy & has the same EPAs though lower ratio EPA:DHA, but more Omegas overall) for focus & got very positive results within a week of beginning those. We've continued to see improvement as she continues to take them. We've also added in various probiotics recently, since many of her sensory issues end up being apparently related to yeast overgrowth in her stool. We use a general children's probiotic daily, but then add in Kefir, yogurt, & Houston's AFP Chewable probiotics when she has a sensory surge. Good luck! > > > > > > > my daughter seems to be all over the place > > > and not really into focusing on anything > > > she self-stimulates a lot > > > lots of hands in mouth, hand movements > > > she runs from room to room > > > any thoughts about making her more grounded > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Woops -- sorry, forgot about the Omegas question. With the Nordic Natural EPAs we started Anika with we used 2 capsules, totaling 800mg EPA: 200mg DHA. The research we'd done indicated that the EPA was essential for attention issues, so a 4:1 ratio was important. It is also important to keep the other fats down in your child's diet so that they do not out-compete the Omegas in his system -- so eliminate any fried foods especially. The lower you keep the other fats, the more effective the Omegas *can* be. Obviously, there is the possibility that this is not a deficiency for your son in which case the high omegas will not impact his attention. However, if this is an issue you should start to see improvement within two weeks -- likely within 3-5 days. I recommend this route because I know it worked for us. However, others will swear by Cod Liver Oil because it has higher levels of Vitamins A & D, which are also good and this may be another route for you to take if the EPAs don't seem to help. I put our Omegas in my daughter's Orange Juice, because citrus is supposed to help with absorption of fish oils. Good luck! > > This is all so interesting. > We live in Israel. I know about skin brushing and swinging. We try to incorporate a lot of physical and motor work into her program. Can you tell me the quantities of omega 3 you are using daily. I give her one cap of culturelle daily. Leia always seems to have stomach issues. Do you make your own yogurt? > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 , Must admit that I'm not very scientific on our yogurt. I've got my daughter mostly off milk (we don't have any apparent allergies or need to go fully GF/CF from the test round we ran), so I use basic over-the-counter soy yogurt (mostly vanilla because she does seem to have fruit sensitivity). Honestly, haven't seen much change from the yogurt in how she acts, but the Kefir gave us huge improvements within just about 24 hours last time she had sensory regression -- Got the Kefir smoothies and she downed something like a quart over the course of the day (pomegranate flavor since we're iffy on strawberries). She kept asking for more & I gave it to her. Also was using the Houston AFP https://www.houston-enzymes.com/store/product.php?c=1 & p=5 and Primadophilus Kids from Nature's Way. Mostly I was just trying to hit her with as much probiotic matter as I could to out-compete the yeast in her system without medication. <several hours later> Sorry, didn't realize I hadn't sent this. Goes with my EPA post I just sent. > > This is all so interesting. > We live in Israel. I know about skin brushing and swinging. We try to incorporate a lot of physical and motor work into her program. Can you tell me the quantities of omega 3 you are using daily. I give her one cap of culturelle daily. Leia always seems to have stomach issues. Do you make your own yogurt? > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Hi, Thanks for all this info. It appears the ratio I have of EPA to DHA is not 4:1 I still am not sure what is helping my daughter and what isn't. Best ________________________________ From: cat.tejnecky <cat.tejnecky@...> Sent: Mon, June 7, 2010 7:36:39 PM Subject: Re: improve focus  Woops -- sorry, forgot about the Omegas question. With the Nordic Natural EPAs we started Anika with we used 2 capsules, totaling 800mg EPA: 200mg DHA. The research we'd done indicated that the EPA was essential for attention issues, so a 4:1 ratio was important. It is also important to keep the other fats down in your child's diet so that they do not out-compete the Omegas in his system -- so eliminate any fried foods especially. The lower you keep the other fats, the more effective the Omegas *can* be. Obviously, there is the possibility that this is not a deficiency for your son in which case the high omegas will not impact his attention. However, if this is an issue you should start to see improvement within two weeks -- likely within 3-5 days. I recommend this route because I know it worked for us. However, others will swear by Cod Liver Oil because it has higher levels of Vitamins A & D, which are also good and this may be another route for you to take if the EPAs don't seem to help. I put our Omegas in my daughter's Orange Juice, because citrus is supposed to help with absorption of fish oils. Good luck! > > This is all so interesting. > We live in Israel. I know about skin brushing and swinging. We try to incorporate a lot of physical and motor work into her program. Can you tell me the quantities of omega 3 you are using daily. I give her one cap of culturelle daily. Leia always seems to have stomach issues. Do you make your own yogurt? > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 I would think any amount of Omegas would be a good thing, but higher EPAs should equate to better focus. Also, better quality Omegas (Norway products are generally considered the best) that come from cleaner fish & the final product has been well filtered for heavy metals, etc should also give you better results. > > > > This is all so interesting. > > We live in Israel. I know about skin brushing and swinging. We try to incorporate a lot of physical and motor work into her program. Can you tell me the quantities of omega 3 you are using daily. I give her one cap of culturelle daily. Leia always seems to have stomach issues. Do you make your own yogurt? > > Thanks > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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